Civic Intelligence

Vasculitis Foundation

990 • Fiscal year 2021 • EIN 43-1492959

Jul 01, 2020 to Jun 30, 2021 • Filed on Sep 24, 2021

Organization ProfileWWW.VASCULITISFOUNDATION.ORG
PO Box 28660Kansas City, MO 64188

(816) 436-8211

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

33rd percentile

0.01x

Higher debt load relative to assets than 33% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

32nd percentile

0.02x

Higher debt load relative to revenue than 32% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

76th percentile

33%

Higher net margin than 76% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

70th percentile

$99,745

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 7.5% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

73rd percentile

25%

Faster asset growth than 73% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

53rd percentile

15%

Faster revenue growth than 53% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Up

$2,082,111

Up $420,445 (+25%) from 2020

Net Assets

Up

$2,051,309

Up $495,821 (+32%) from 2020

Liabilities

Down

$30,802

Down $75,376 (-71%) from 2020

Revenue And Expenses
Liabilities / Revenue32nd percentileNet Margin76th percentile

Revenue

Up

$1,330,516

Up $173,962 (+15%) from 2020

Expenses

Down

$895,702

Down $495,675 (-36%) from 2020

Net Income

Up

$434,814

Up $669,637 (+285%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth73rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $889,885Liabilities 2010: $66,182Net Assets 2010: $823,7032010Assets 2011: $949,068Liabilities 2011: $26,124Net Assets 2011: $922,9442011Assets 2012: $1,117,238Liabilities 2012: $28,932Net Assets 2012: $1,088,3062012Assets 2013: $1,178,462Liabilities 2013: $66,965Net Assets 2013: $1,111,4972013Assets 2014: $1,214,554Liabilities 2014: $34,930Net Assets 2014: $1,179,6242014Assets 2015: $1,191,428Liabilities 2015: $36,992Net Assets 2015: $1,154,4362015Assets 2016: $1,150,881Liabilities 2016: $65,464Net Assets 2016: $1,085,4172016Assets 2017: $1,391,746Liabilities 2017: $60,828Net Assets 2017: $1,330,9182017Assets 2018: $1,500,959Liabilities 2018: $68,003Net Assets 2018: $1,432,9562018Assets 2019: $1,855,438Liabilities 2019: $75,998Net Assets 2019: $1,779,4402019Assets 2020: $1,661,666Liabilities 2020: $106,178Net Assets 2020: $1,555,4882020Assets 2021: $2,082,111Liabilities 2021: $30,802Net Assets 2021: $2,051,3092021Assets 2022: $2,457,931Liabilities 2022: $28,409Net Assets 2022: $2,429,5222022Assets 2023: $4,528,503Liabilities 2023: $82,762Net Assets 2023: $4,445,7412023Assets 2024: $5,594,826Liabilities 2024: $53,633Net Assets 2024: $5,541,1932024Assets 2025: $6,087,497Liabilities 2025: $146,118Net Assets 2025: $5,941,3792025

Highlighted filing

2021

Assets$2,082,111
Liabilities$30,802
Net Assets$2,051,309
Open 2021 Filing

Operations Trend

Revenue Growth53rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $500,5632010Revenue 2011: $750,830Expenses 2011: $697,917Net Income 2011: $52,9132011Expenses 2012: $679,3912012Expenses 2013: $674,6472013Revenue 2014: $903,616Expenses 2014: $836,904Net Income 2014: $66,7122014Revenue 2015: $958,934Expenses 2015: $984,832Net Income 2015: -$25,8982015Revenue 2016: $878,515Expenses 2016: $951,054Net Income 2016: -$72,5392016Revenue 2017: $1,380,842Expenses 2017: $1,161,346Net Income 2017: $219,4962017Revenue 2018: $1,081,157Expenses 2018: $985,876Net Income 2018: $95,2812018Revenue 2019: $1,413,621Expenses 2019: $1,086,332Net Income 2019: $327,2892019Revenue 2020: $1,156,554Expenses 2020: $1,391,377Net Income 2020: -$234,8232020Revenue 2021: $1,330,516Expenses 2021: $895,702Net Income 2021: $434,8142021Revenue 2022: $1,569,283Expenses 2022: $1,080,323Net Income 2022: $488,9602022Revenue 2023: $3,247,457Expenses 2023: $1,290,245Net Income 2023: $1,957,2122023Revenue 2024: $2,956,706Expenses 2024: $2,090,325Net Income 2024: $866,3812024Revenue 2025: $2,508,810Expenses 2025: $2,383,106Net Income 2025: $125,7042025

Highlighted filing

2021

Revenue$1,330,516
Expenses$895,702
Net Income$434,814
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
Sep 24, 2021
Return Version
2020v4.0
Gross Receipts
$1,330,516
Mission and Program Overview

Mission

The vasculitis foundation supports medical research and empowers our community through education and awareness.

Building upon the collective strength of the vasculitis community, the foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,499,403$1,619,694▲ $120,291
Cash and Non-Interest-Bearing Accounts$102,938$234,748▲ $131,810
Pledges and Grants Receivable$18,253$200,868▲ $182,615
Land, Buildings, and Equipment, Net$36,267$16,479▼ $19,788
Prepaid Expenses and Deferred Charges$4,705$10,222▲ $5,517
Savings and Temporary Cash Investments$100$100→ $0
Total Assets$1,661,666$2,082,111▲ $420,445
Liabilities
Unsecured Notes Loans Payable$72,960--
Other Liabilities$27,318$27,771▲ $453
Accounts Payable and Accrued Expenses$5,900$3,031▼ $2,869
Total Liabilities$106,178$30,802▼ $75,376
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,117,790$1,270,723▲ $152,933
Net Assets Without Donor Restrictions$437,698$780,586▲ $342,888
Total Net Assets Fund Balance$1,555,488$2,051,309▲ $495,821
Total Liabilities and Net Assets / Fund Balance$1,661,666$2,082,111▲ $420,445

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$16,479$98,659$115,138

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2020$253,378-▲ $61,689-$313,242
2019$242,458-▲ $12,482-$253,378
2018$229,195-▲ $14,696-$242,458
2017$214,763-▲ $16,005-$229,195
2016$194,569-▲ $21,616-$214,763
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joyce a KullmanExecutive DiFT$87,794$11,951$99,745

Board Members and Trustees

NameTitle
Sara Baird Amodio EddPresident
Anisha B Dua MdDirector
Caz CazanovDirector
Jacquelyn EidsonDirector
Jason Springer Md MsDirector
Jason WadlerDirector
Jocelyn AshfordDirector
Kevin Byram MdDirector
Peter Grayson Md MscDirector
Victor JamesDirector
Suzanne DepaolisPast Preside
Allison RossSecretary
Don NagleTreasurer
Brian GoldmanVP of Resour
Revenue and Support

Revenue Composition

Contributions and Grants
$1,269,441
Program Service Revenue
$4,110
Investment Income
$55,834
Other Revenue
$1,131
All Other Contributions
$1,116,373
Change in Net Assets
$434,814

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,321,079
Revenue Not Reported on Financial Statements
$9,437
Revenue Not Reported on Form 990
$61,007
Total Revenue per Audited Statements
$1,382,086
Total Revenue per Form 990
$1,330,516
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$350,641
Salaries, Compensation, and Employee Benefits$349,762
Grants and Similar Amounts Paid$195,299
Total Fundraising Expense$74,895
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$147,707$25,286$40,590$213,583
Foreign Grants$114,366--$114,366
Current Officers, Directors, Trustees, and Key Employees$63,865$17,305$17,304$98,474
Grants to Domestic Orgs$80,933--$80,933
Conferences and Meetings$68,875$16-$68,891
Office Expenses$32,280$7,320$8,132$47,732
Information Technology$21,135$10,944$4,731$36,810
Advertising$36,452--$36,452
Fees for Services Accounting$6,957$25,568-$32,525
Payroll Taxes$13,508$3,866$4,031$21,405
Depreciation Depletion$14,841$4,947-$19,788
Other Employee Benefits$16,300--$16,300
Fees for Service Investment Mgmnt Fees-$9,437-$9,437
Insurance$1,501$1,436$105$3,042
Fees for Services Legal-$1,474-$1,474
Other Expenses$1,300--$1,300
Travel$358$4$2$364
Total Functional Expenses$713,204$107,603$74,895$895,702

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$895,702
Expenses per Audited Statements$886,265
Total Expenses per Audited Statements$886,265
Expenses Not Reported on Financial Statements$9,437
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of South FloridaTampa, FL501c3Data Management$45,933
Mayo ClinicRochester, MN501c3Vasculitis Research$25,000
Trustees of the University of PaPhiladelphia, PA501c3Vasculitis Research$10,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Payroll$24,946
Health Insurance Payable$1,249
Credit Card Payable$850
Payroll Taxes$726
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 6

“The organization has members.”

Form 990, Page 6, Part VI, Line 7A

“The members of the organization vote to elect members to the board of directors.”

Form 990, Page 6, Part VI, Line 7B

“By-laws of the organization can not be changed without a vote of the members.”

Form 990, Page 6, Part VI, Line 11B

“The 990 is reviewed and approved by the organization's finance committee and then shared with the board of directors before filing with the irs.”

Form 990, Page 6, Part VI, Line 12C

“Board of director members are required to complete a conflict of interest statement annually which is reviewed at the fall retreat.”

Form 990, Page 6, Part VI, Line 15A

“Annual performance review and comparison to industry.”

Form 990, Page 6, Part VI, Line 19

“Governing documents are made available to the public upon written request.”

Filing and Contact Details

Filer

Filer Name
Vasculitis Foundation
EIN
43-1492959
Phone
8164368211
Address
PO BOX 28660, KANSAS CITY, MO 64188

Signing Officer

Name
Joyce a Kullman
Title
Executive Director
Phone
8164368211
Signed
2021-09-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Sara Baird Amodio Edd
Formed
1988
Legal Domicile
Mo
Voting Board Members
14
Independent Board Members
14
Employees
5
Volunteers
200

Preparer

Firm
Novak Birks Pc
Address
4435 MAIN ST STE 500, KANSAS CITY, MO 64111-1858
Preparer
William J Miller CPA
Phone
8169316111
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Building upon the collective strength of the vasculitis community, the foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.”

Form 990, Page 2, Part III, Line 4B

“The vasculitis foundation (vf) collaborates with researchers worldwide to fund research into determining the cause, developing more effective treatments, and discovering a cure for vasculitis. Research ranges from basic science to improving quality of life studies. The vasculitis foundation research program provides one-year or two-year grants to support pilot studies in researching etiology/pathogenesis, epidemiology, diagnosis, and treatment/management of vasculitis. The vf fellowship program is a mentored training program of up to two years for physician- investigators who have a strong interest in vasculitis and wish to pursue a period of specialized training with an emphasis on clinical and/or translational patient-oriented research. The vf provides one-year or two- year funds to support the fellowships. During 2020-21, the vf provided grants to eight foreign and domestic institutions including one fellowship grant, six research grants, and one grant for data collection and study management.”

Form 990, Part XI, Line 9

“Rounding 1 book / tax depreciation difference -1”

Financial Statement Notes

Schedule D, Page 2, Part V, Line 4

“The vasculitis foundation board has designated certain funds, to be treated similarly to an endowment, to generate a long-term total rate of return that will increase the value of the assets and provide a long term reserve fund for the organization.”

Schedule D, Page 3, Part X

“The foundation qualifies as tax exempt from federal income tax under section 501(c)(3) of the internal revenue code. The foundation recognizes the financial statement benefit of a tax position only after determining that the relevant tax authority would more likely than not sustain the position following an audit. For tax positions meeting the more-likely- than-not threshold, the amount recognized in the financial statements is the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement with the relevant tax authority. The foudation is subject to income tax regulations in the u.s. Federal jurisdiction and certain state jurisdictions. Tax regulations within each jurisdiction are subject to the interpretation of the related tax laws and regulations and require significant judgement to apply. With few exceptions, the foundation is no longer subject to income tax examinations by the applicable tax authorities for the years before 2018. If any were to be incurred, the foundation's policy is to record penalties and interest assessed by income tax authorities as operating expenses.”

Schedule D, Page 4, Part XII, Line 2D

“Rounding -1 book / tax depreciation difference 1”

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IRS990/ProgSrvcAccomActy2Grp/Desc0THE VASCULITIS FOUNDATION (VF) COLLABORATES WITH RESEARCHERS WORLDWIDE TO FUND RESEARCH INTO DETERMINING THE CAUSE, DEVELOPING MORE EFFECTIVE TREATMENTS, AND DISCOVERING A CURE FOR VASCULITIS. RESEARCH RANGES FROM BASIC SCIENCE TO IMPROVING QUALITY OF LIFE STUDIES. THE VASCULITIS FOUNDATION RESEARCH PROGRAM PROVIDES ONE-YEAR OR TWO-YEAR GRANTS TO SUPPORT PILOT STUDIES IN RESEARCHING ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, DIAGNOSIS, AND TREATMENT/MANAGEMENT OF VASCULITIS. THE VF FELLOWSHIP PROGRAM IS A MENTORED TRAINING PROGRAM OF UP TO TWO YEARS FOR PHYSICIAN- INVESTIGATORS WHO HAVE A STRONG INTEREST IN VASCULITIS AND WISH TO PURSUE A PERIOD OF SPECIALIZED TRAINING WITH AN EMPHASIS ON CLINICAL AND/OR TRANSLATIONAL PATIENT-ORIENTED RESEARCH. THE VF PROVIDES ONE-YEAR OR TWO- YEAR FUNDS TO SUPPORT THE FELLOWSHIPS. DURING 2020-21, THE VF PROVIDED GRANTS TO EIGHT FOREIGN AND DOMESTIC INSTITUTIONS INCLUDING ONE FELLOWSHIP GRANT, SIX RESEARCH GRANTS, AND ONE GRANT FOR DATA COLLECTION AND STUDY MANAGEMENT.
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Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,082,111
Liabilities
$30,802
Net assets
$2,051,309
Revenue
$1,330,516
Expenses
$895,702
Net income
$434,814
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.09$0.15$5.94$2.51$2.38$0.13
2024Detailed filing. Detailed filing data is available for this year.$5.59$0.05$5.54$2.96$2.09$0.87
2023Detailed filing. Detailed filing data is available for this year.$4.53$0.08$4.45$3.25$1.29$1.96
2022Detailed filing. Detailed filing data is available for this year.$2.46$0.03$2.43$1.57$1.08$0.49
2021Detailed filing. Detailed filing data is available for this year.$2.08$0.03$2.05$1.33$0.90$0.43
2020Detailed filing. Detailed filing data is available for this year.$1.66$0.11$1.56$1.16$1.39$0.23
2019Detailed filing. Detailed filing data is available for this year.$1.86$0.08$1.78$1.41$1.09$0.33
2018Detailed filing. Detailed filing data is available for this year.$1.50$0.07$1.43$1.08$0.99$0.10
2017Detailed filing. Detailed filing data is available for this year.$1.39$0.06$1.33$1.38$1.16$0.22
2016Detailed filing. Detailed filing data is available for this year.$1.15$0.07$1.09$0.88$0.95$0.07
2015Detailed filing. Detailed filing data is available for this year.$1.19$0.04$1.15$0.96$0.98$0.03
2014Detailed filing. Detailed filing data is available for this year.$1.21$0.03$1.18$0.90$0.84$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.18$0.07$1.11$0.67
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.12$0.03$1.09$0.68
2011Summary only. Only limited summary data is available for this year.$0.95$0.03$0.92$0.75$0.70$0.05
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.07$0.82$0.50