Civic Intelligence

Vasculitis Foundation

990 • Fiscal year 2020 • EIN 43-1492959

Jul 01, 2019 to Jun 30, 2020 • Filed on Oct 30, 2020

Organization ProfileWWW.VASCULITISFOUNDATION.ORG
PO Box 28660Kansas City, MO 64188

(816) 436-8211

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

43rd percentile

0.06x

Higher debt load relative to assets than 43% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

42nd percentile

0.09x

Higher debt load relative to revenue than 42% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

15th percentile

-20%

Higher net margin than 15% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2020

Asset Growth

8th percentile

-10%

Faster asset growth than 8% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

24th percentile

-18%

Faster revenue growth than 24% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets43rd percentile

Assets

Down

$1,661,666

Down $193,772 (-10%) from 2019

Net Assets

Down

$1,555,488

Down $223,952 (-13%) from 2019

Liabilities

Up

$106,178

Up $30,180 (+40%) from 2019

Revenue And Expenses
Liabilities / Revenue42nd percentileNet Margin15th percentile

Revenue

Down

$1,156,554

Down $257,067 (-18%) from 2019

Expenses

Up

$1,391,377

Up $305,045 (+28%) from 2019

Net Income

Down

-$234,823

Down $562,112 (-172%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth8th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $889,885Liabilities 2010: $66,182Net Assets 2010: $823,7032010Assets 2011: $949,068Liabilities 2011: $26,124Net Assets 2011: $922,9442011Assets 2012: $1,117,238Liabilities 2012: $28,932Net Assets 2012: $1,088,3062012Assets 2013: $1,178,462Liabilities 2013: $66,965Net Assets 2013: $1,111,4972013Assets 2014: $1,214,554Liabilities 2014: $34,930Net Assets 2014: $1,179,6242014Assets 2015: $1,191,428Liabilities 2015: $36,992Net Assets 2015: $1,154,4362015Assets 2016: $1,150,881Liabilities 2016: $65,464Net Assets 2016: $1,085,4172016Assets 2017: $1,391,746Liabilities 2017: $60,828Net Assets 2017: $1,330,9182017Assets 2018: $1,500,959Liabilities 2018: $68,003Net Assets 2018: $1,432,9562018Assets 2019: $1,855,438Liabilities 2019: $75,998Net Assets 2019: $1,779,4402019Assets 2020: $1,661,666Liabilities 2020: $106,178Net Assets 2020: $1,555,4882020Assets 2021: $2,082,111Liabilities 2021: $30,802Net Assets 2021: $2,051,3092021Assets 2022: $2,457,931Liabilities 2022: $28,409Net Assets 2022: $2,429,5222022Assets 2023: $4,528,503Liabilities 2023: $82,762Net Assets 2023: $4,445,7412023Assets 2024: $5,594,826Liabilities 2024: $53,633Net Assets 2024: $5,541,1932024Assets 2025: $6,087,497Liabilities 2025: $146,118Net Assets 2025: $5,941,3792025

Highlighted filing

2020

Assets$1,661,666
Liabilities$106,178
Net Assets$1,555,488
Open 2020 Filing

Operations Trend

Revenue Growth24th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $500,5632010Revenue 2011: $750,830Expenses 2011: $697,917Net Income 2011: $52,9132011Expenses 2012: $679,3912012Expenses 2013: $674,6472013Revenue 2014: $903,616Expenses 2014: $836,904Net Income 2014: $66,7122014Revenue 2015: $958,934Expenses 2015: $984,832Net Income 2015: -$25,8982015Revenue 2016: $878,515Expenses 2016: $951,054Net Income 2016: -$72,5392016Revenue 2017: $1,380,842Expenses 2017: $1,161,346Net Income 2017: $219,4962017Revenue 2018: $1,081,157Expenses 2018: $985,876Net Income 2018: $95,2812018Revenue 2019: $1,413,621Expenses 2019: $1,086,332Net Income 2019: $327,2892019Revenue 2020: $1,156,554Expenses 2020: $1,391,377Net Income 2020: -$234,8232020Revenue 2021: $1,330,516Expenses 2021: $895,702Net Income 2021: $434,8142021Revenue 2022: $1,569,283Expenses 2022: $1,080,323Net Income 2022: $488,9602022Revenue 2023: $3,247,457Expenses 2023: $1,290,245Net Income 2023: $1,957,2122023Revenue 2024: $2,956,706Expenses 2024: $2,090,325Net Income 2024: $866,3812024Revenue 2025: $2,508,810Expenses 2025: $2,383,106Net Income 2025: $125,7042025

Highlighted filing

2020

Revenue$1,156,554
Expenses$1,391,377
Net Income-$234,823
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
Oct 30, 2020
Return Version
2019v5.0
Gross Receipts
$1,168,030
Mission and Program Overview

Mission

The vasculitis foundation supports medical research and empowers our community through education and awareness.

Building upon the collective strength of the vasculitis community, the foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,679,894$1,499,403▼ $180,491
Cash and Non-Interest-Bearing Accounts$75,130$102,938▲ $27,808
Land, Buildings, and Equipment, Net$54,218$36,267▼ $17,951
Pledges and Grants Receivable$9,996$18,253▲ $8,257
Prepaid Expenses and Deferred Charges$25,405$4,705▼ $20,700
Savings and Temporary Cash Investments$10,795$100▼ $10,695
Total Assets$1,855,438$1,661,666▼ $193,772
Liabilities
Unsecured Notes Loans Payable-$72,960-
Deferred Revenue$48,660--
Other Liabilities$21,704$27,318▲ $5,614
Accounts Payable and Accrued Expenses$5,634$5,900▲ $266
Total Liabilities$75,998$106,178▲ $30,180
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,455,014$1,117,790▼ $337,224
Net Assets Without Donor Restrictions$324,426$437,698▲ $113,272
Total Net Assets Fund Balance$1,779,440$1,555,488▼ $223,952
Total Liabilities and Net Assets / Fund Balance$1,855,438$1,661,666▼ $193,772

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$36,267$78,871$115,138

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$242,458-▲ $12,482-$253,378
2018$229,195-▲ $14,696-$242,458
2017$214,763-▲ $16,005-$229,195
2016$194,569-▲ $21,616-$214,763
2015$193,597-▲ $2,413-$194,569
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joyce a KullmanExecutive DiFT$82,555$10,770$93,325

Board Members and Trustees

NameTitle
Suzanne DepaolisPresident
Anisha B Dua MdDirector
Brian GoldmanDirector
Jacquelyn EidsonDirector
Jason M Springer MdDirector
Jason WadlerDirector
Kevin Byram MdDirector
Peter C Grayson MdDirector
Sara Baird Amodio EddDirector
Victor JamesDirector
Karen HirschPast Preside
Allison LintSecretary
Don NagleTreasurer
Pamela PekermanVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$994,550
Program Service Revenue
$107,307
Investment Income
$42,407
Other Revenue
$12,290
All Other Contributions
$985,030
Change in Net Assets
$-234,823

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,156,554
Revenue Not Reported on Form 990
$22,347
Total Revenue per Audited Statements
$1,178,901
Total Revenue per Form 990
$1,156,554
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$721,697
Salaries, Compensation, and Employee Benefits$354,139
Grants and Similar Amounts Paid$315,541
Total Fundraising Expense$72,041
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$263,074--$263,074
Conferences and Meetings$244,421--$244,421
Other Salaries and Wages$142,474$28,220$53,022$223,716
Office Expenses$105,536$10,122$4,138$119,796
Current Officers, Directors, Trustees, and Key Employees$57,788$20,639$4,128$82,555
Foreign Grants$52,467--$52,467
Information Technology$24,484$14,939$5,367$44,790
Advertising$42,206--$42,206
Fees for Services Accounting$4,960$29,095-$34,055
Other Employee Benefits$25,845$296$128$26,269
Payroll Taxes$13,716$3,855$4,028$21,599
Depreciation Depletion$14,727$4,909-$19,636
Travel$9,688$3,147$96$12,931
Fees for Service Investment Mgmnt Fees$7,849$1,183$511$9,543
Fees for Services Other$5,549--$5,549
Fees for Services Legal$5,112$120-$5,232
Insurance$1,192$1,192$323$2,707
Other Expenses$900$694$300$900
All Other Expenses$225$225-$450
Total Functional Expenses$1,200,200$119,136$72,041$1,391,377

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,402,853
Expenses per Audited Statements$1,391,377
Total Expenses per Form 990$1,391,377
Expenses Not Reported on Form 990$11,476
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
American College of RheumatologyAtlanta, GA501c3Vasculitis Research$100,609
Johns Hopkins UniversityBaltimore, MD501c 3Vasculitis Research$75,000
Hospital for Special SurgeryNew York, NY501c3Vasculitis Research$50,000
University of PittsburghPittsburgh, PA501c3Vasculitis Research$12,500
Yale UniversityNew Haven, CT501c3Vasculitis Research$12,500
Duke UniversityDurham, NC501c3Vasculitis Research$12,465

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$23,766
Fundraising Direct Expenses$11,476
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Vf Pj Party$14,570$14,570$11,472$3,098
Golf Tournament$5,770$5,770-$5,770
Total Events$20,340$20,340$11,472$8,868
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Payroll$23,816
Credit Card Payable$1,606
Health Insurance Payable$1,292
Payroll Taxes$604
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 6

“The organization has members.”

Form 990, Page 6, Part VI, Line 7A

“The members of the organization vote to elect members to the board of directors.”

Form 990, Page 6, Part VI, Line 7B

“By-laws of the organization can not be changed without a vote of the members.”

Form 990, Page 6, Part VI, Line 11B

“The 990 is reviewed and approved by the organization's finance committee and then shared with the board of directors before filing with the irs.”

Form 990, Page 6, Part VI, Line 12C

“Board of director members are required to complete a conflict of interest statement annually.”

Form 990, Page 6, Part VI, Line 15A

“Annual performance review and comparison to industry.”

Form 990, Page 6, Part VI, Line 19

“UPON WRITTEN REQUEST.”

Filing and Contact Details

Filer

Filer Name
Vasculitis Foundation
EIN
43-1492959
Phone
8164368211
Address
PO BOX 28660, KANSAS CITY, MO 64188

Signing Officer

Name
Joyce a Kullman
Title
Executive Director
Phone
8164368211
Signed
2020-10-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Suzanne Depaolis
Formed
1988
Legal Domicile
Mo
Voting Board Members
14
Independent Board Members
14
Employees
6
Volunteers
200

Preparer

Firm
Novak Birks Pc
Address
4600 MADISON AVE STE 120, KANSAS CITY, MO 64112-3003
Preparer
William J Miller CPA
Phone
8169316111
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Building upon the collective strength of the vasculitis community, the foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.”

Form 990, Part XI, Line 9

“Fundraising expenses in revenue 11,476 fundraising expenses in revenue -11,476”

Financial Statement Notes

Schedule D, Page 2, Part V, Line 4

“The vasculitis foundation board has designated certain funds, to be treated similarly to an endowment, to generate a long-term total rate of return that will increase the value of the assets and provide a long term reserve fund for the organization.”

Schedule D, Page 4, Part XI, Line 2D

“Fundraising expenses in revenue 11,476”

Schedule D, Page 4, Part XII, Line 2D

“Fundraising expenses in revenue 11,476”

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IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt7SECRETARY
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IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
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IRS990/OtherExpensesGrp/Desc1CLIENT SURVEY & DATA COLL
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Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,661,666
Liabilities
$106,178
Net assets
$1,555,488
Revenue
$1,156,554
Expenses
$1,391,377
Net income
-$234,823
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.09$0.15$5.94$2.51$2.38$0.13
2024Detailed filing. Detailed filing data is available for this year.$5.59$0.05$5.54$2.96$2.09$0.87
2023Detailed filing. Detailed filing data is available for this year.$4.53$0.08$4.45$3.25$1.29$1.96
2022Detailed filing. Detailed filing data is available for this year.$2.46$0.03$2.43$1.57$1.08$0.49
2021Detailed filing. Detailed filing data is available for this year.$2.08$0.03$2.05$1.33$0.90$0.43
2020Detailed filing. Detailed filing data is available for this year.$1.66$0.11$1.56$1.16$1.39$0.23
2019Detailed filing. Detailed filing data is available for this year.$1.86$0.08$1.78$1.41$1.09$0.33
2018Detailed filing. Detailed filing data is available for this year.$1.50$0.07$1.43$1.08$0.99$0.10
2017Detailed filing. Detailed filing data is available for this year.$1.39$0.06$1.33$1.38$1.16$0.22
2016Detailed filing. Detailed filing data is available for this year.$1.15$0.07$1.09$0.88$0.95$0.07
2015Detailed filing. Detailed filing data is available for this year.$1.19$0.04$1.15$0.96$0.98$0.03
2014Detailed filing. Detailed filing data is available for this year.$1.21$0.03$1.18$0.90$0.84$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.18$0.07$1.11$0.67
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.12$0.03$1.09$0.68
2011Summary only. Only limited summary data is available for this year.$0.95$0.03$0.92$0.75$0.70$0.05
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.07$0.82$0.50