Civic Intelligence

Vasculitis Foundation

990 • Fiscal year 2019 • EIN 43-1492959

Jul 01, 2018 to Jun 30, 2019 • Filed on Oct 11, 2019

Organization ProfileWWW.VASCULITISFOUNDATION.ORG
PO Box 28660Kansas City, MO 64188

(816) 436-8211

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

41st percentile

0.04x

Higher debt load relative to assets than 41% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

41st percentile

0.05x

Higher debt load relative to revenue than 41% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

80th percentile

23%

Higher net margin than 80% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2019

Asset Growth

83rd percentile

24%

Faster asset growth than 83% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

82nd percentile

31%

Faster revenue growth than 82% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets41st percentile

Assets

Up

$1,855,438

Up $354,479 (+24%) from 2018

Net Assets

Up

$1,779,440

Up $346,484 (+24%) from 2018

Liabilities

Up

$75,998

Up $7,995 (+12%) from 2018

Revenue And Expenses
Liabilities / Revenue41st percentileNet Margin80th percentile

Revenue

Up

$1,413,621

Up $332,464 (+31%) from 2018

Expenses

Up

$1,086,332

Up $100,456 (+10%) from 2018

Net Income

Up

$327,289

Up $232,008 (+243%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth83rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $889,885Liabilities 2010: $66,182Net Assets 2010: $823,7032010Assets 2011: $949,068Liabilities 2011: $26,124Net Assets 2011: $922,9442011Assets 2012: $1,117,238Liabilities 2012: $28,932Net Assets 2012: $1,088,3062012Assets 2013: $1,178,462Liabilities 2013: $66,965Net Assets 2013: $1,111,4972013Assets 2014: $1,214,554Liabilities 2014: $34,930Net Assets 2014: $1,179,6242014Assets 2015: $1,191,428Liabilities 2015: $36,992Net Assets 2015: $1,154,4362015Assets 2016: $1,150,881Liabilities 2016: $65,464Net Assets 2016: $1,085,4172016Assets 2017: $1,391,746Liabilities 2017: $60,828Net Assets 2017: $1,330,9182017Assets 2018: $1,500,959Liabilities 2018: $68,003Net Assets 2018: $1,432,9562018Assets 2019: $1,855,438Liabilities 2019: $75,998Net Assets 2019: $1,779,4402019Assets 2020: $1,661,666Liabilities 2020: $106,178Net Assets 2020: $1,555,4882020Assets 2021: $2,082,111Liabilities 2021: $30,802Net Assets 2021: $2,051,3092021Assets 2022: $2,457,931Liabilities 2022: $28,409Net Assets 2022: $2,429,5222022Assets 2023: $4,528,503Liabilities 2023: $82,762Net Assets 2023: $4,445,7412023Assets 2024: $5,594,826Liabilities 2024: $53,633Net Assets 2024: $5,541,1932024Assets 2025: $6,087,497Liabilities 2025: $146,118Net Assets 2025: $5,941,3792025

Highlighted filing

2019

Assets$1,855,438
Liabilities$75,998
Net Assets$1,779,440
Open 2019 Filing

Operations Trend

Revenue Growth82nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $500,5632010Revenue 2011: $750,830Expenses 2011: $697,917Net Income 2011: $52,9132011Expenses 2012: $679,3912012Expenses 2013: $674,6472013Revenue 2014: $903,616Expenses 2014: $836,904Net Income 2014: $66,7122014Revenue 2015: $958,934Expenses 2015: $984,832Net Income 2015: -$25,8982015Revenue 2016: $878,515Expenses 2016: $951,054Net Income 2016: -$72,5392016Revenue 2017: $1,380,842Expenses 2017: $1,161,346Net Income 2017: $219,4962017Revenue 2018: $1,081,157Expenses 2018: $985,876Net Income 2018: $95,2812018Revenue 2019: $1,413,621Expenses 2019: $1,086,332Net Income 2019: $327,2892019Revenue 2020: $1,156,554Expenses 2020: $1,391,377Net Income 2020: -$234,8232020Revenue 2021: $1,330,516Expenses 2021: $895,702Net Income 2021: $434,8142021Revenue 2022: $1,569,283Expenses 2022: $1,080,323Net Income 2022: $488,9602022Revenue 2023: $3,247,457Expenses 2023: $1,290,245Net Income 2023: $1,957,2122023Revenue 2024: $2,956,706Expenses 2024: $2,090,325Net Income 2024: $866,3812024Revenue 2025: $2,508,810Expenses 2025: $2,383,106Net Income 2025: $125,7042025

Highlighted filing

2019

Revenue$1,413,621
Expenses$1,086,332
Net Income$327,289
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2018 to Jun 30, 2019
Signed
Oct 11, 2019
Return Version
2018v3.2
Gross Receipts
$1,462,623
Mission and Program Overview

Mission

The vasculitis foundation supports medical research and empowers our community through education and awareness.

Building upon the collective strength of the vasculitis community, the foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,353,658$1,679,894▲ $326,236
Cash and Non-Interest-Bearing Accounts$83,561$75,130▼ $8,431
Land, Buildings, and Equipment, Net$1,386$54,218▲ $52,832
Prepaid Expenses and Deferred Charges$4,226$25,405▲ $21,179
Savings and Temporary Cash Investments$2,079$10,795▲ $8,716
Pledges and Grants Receivable$56,049$9,996▼ $46,053
Total Assets$1,500,959$1,855,438▲ $354,479
Liabilities
Deferred Revenue$300$48,660▲ $48,360
Other Liabilities$51,003$21,704▼ $29,299
Accounts Payable and Accrued Expenses$16,700$5,634▼ $11,066
Total Liabilities$68,003$75,998▲ $7,995
Net Assets / Fund Balance
Temporarily Rstr Net Assets$939,744$1,455,014▲ $515,270
Unrestricted Net Assets$493,212$324,426▼ $168,786
Total Net Assets Fund Balance$1,432,956$1,779,440▲ $346,484
Total Liabilities and Net Assets / Fund Balance$1,500,959$1,855,438▲ $354,479

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$54,218$59,234$113,452

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$229,195-▲ $14,696-$242,458
2017$214,763-▲ $16,005-$229,195
2016$194,569-▲ $21,616-$214,763
2015$193,597-▲ $2,413-$194,569
2014$155,182$33,743▲ $6,064-$193,597
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Joyce a KullmanExecutive DiFT$112,540$9,844$122,384

Board Members and Trustees

NameTitle
Suzanne DepaolisPresident
Gregory LeskoDirector
Jacquelyn EidsonDirector
Jason M Springer MdDirector
Jason WadlerDirector
Peter Grayson MdDirector
Sara Baird Amodio EddDirector
Victor JamesDirector
Karen HirschPast Preside
Allison LintSecretary
Don NagleTreasurer
Pamela PekermanVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$1,172,195
Program Service Revenue
$79,681
Investment Income
$51,381
Other Revenue
$110,364
All Other Contributions
$1,147,156
Change in Net Assets
$327,289

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,403,786
Revenue Not Reported on Financial Statements
$9,835
Revenue Not Reported on Form 990
$68,197
Other Revenue Adjustments
$9,835
Total Revenue per Audited Statements
$1,471,983
Total Revenue per Form 990
$1,413,621
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$500,313
Salaries, Compensation, and Employee Benefits$359,195
Grants and Similar Amounts Paid$226,824
Total Fundraising Expense$79,802
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$123,935$38,578$36,235$198,748
Grants to Domestic Orgs$137,500--$137,500
Current Officers, Directors, Trustees, and Key Employees$70,225$21,833$20,482$112,540
Foreign Grants$89,324--$89,324
Office Expenses$64,230$9,506$4,111$77,847
Conferences and Meetings$62,516$37$286$62,839
Travel$38,407$6,870$270$45,547
Information Technology$18,027$9,311$11,318$38,656
Fees for Services Other$35,100--$35,100
Fees for Services Accounting$2,756$29,167-$31,923
Payroll Taxes$14,853$6,194$4,069$25,116
Advertising$24,758--$24,758
Other Employee Benefits$22,231$391$169$22,791
Other Expenses$16,720$5,859$2,539$16,720
Fees for Service Investment Mgmnt Fees-$9,835-$9,835
Fees for Services Legal-$4,645-$4,645
Depreciation Depletion$2,719$906-$3,625
Insurance$595$595$323$1,513
All Other Expenses$-7,853$1,435-$-6,418
Total Functional Expenses$861,368$145,162$79,802$1,086,332

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,125,499
Total Expenses per Form 990$1,086,332
Expenses per Audited Statements$1,076,497
Expenses Not Reported on Form 990$49,002
Expenses Not Reported on Financial Statements$9,835
Other Expense Adjustments$9,835
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Georgetown UniversityWashington, DC501c3Fellowship Grant$50,000
La Jolla Institute for Allergy & ImLajolla, CA501c3Vasculitis Reasearch$25,000
Northwestern Medicine Galter PavChicago, IL501c3General Fund Grant$25,000
Yale UniversityNew Haven, CT501c3Vasculitis Research$25,000
Baylor College of MedicineHouston, TX501c3Vasculitis Research$12,500

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$159,366
Fundraising Direct Expenses$49,002
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Chicagolnd Golf$99,246$99,246$36,867$62,379
Spaghetti Weste$24,038$24,038$11,653$12,385
Total Events$159,366$159,366$49,002$110,364
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Payroll$21,326
Payroll Taxes$378
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 6

“The organization has members.”

Form 990, Page 6, Part VI, Line 7A

“The members of the organization vote to elect members to the board of directors.”

Form 990, Page 6, Part VI, Line 7B

“By-laws of the organization can not be changed without a vote of the members.”

Form 990, Page 6, Part VI, Line 11B

“The 990 is reviewed and approved by the organization's finance committee and then shared with the board of directors before filing with the irs.”

Form 990, Page 6, Part VI, Line 12C

“Board of director members are required to complete a conflict of interest statement annually.”

Form 990, Page 6, Part VI, Line 15A

“Annual performance review and comparison to industry.”

Form 990, Page 6, Part VI, Line 19

“UPON WRITTEN REQUEST.”

Filing and Contact Details

Filer

Filer Name
Vasculitis Foundation
EIN
43-1492959
Phone
8164368211
Address
PO BOX 28660, KANSAS CITY, MO 64188

Signing Officer

Name
Joyce a Kullman
Title
Executive Director
Phone
8164368211
Signed
2019-10-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Suzanne Depaolis
Formed
1988
Legal Domicile
Mo
Voting Board Members
12
Independent Board Members
12
Employees
6
Volunteers
200

Preparer

Firm
Novak Birks Pc
Address
4600 MADISON AVE STE 120, KANSAS CITY, MO 64112-3003
Preparer
William J Miller CPA
Phone
8169316111
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Building upon the collective strength of the vasculitis community, the foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.”

Form 990, Part XI, Line 9

“Fundraising expenses in revenue 49,002 investment fee expenses netted to income -9,835 fundraising expenses in revenue -49,002 investment fee expenses netted to income 9,835”

Financial Statement Notes

Schedule D, Page 2, Part V, Line 4

“The vasculitis foundation board has designated certain funds, to be treated similarly to an endowment, to generate a long-term total rate of return that will increase the value of the assets and provide a long term reserve fund for the organization.”

Schedule D, Page 4, Part XI, Line 2D

“Fundraising expenses in revenue 49,002”

Schedule D, Page 4, Part XI, Line 4B

“Investment fee expenses netted to income 9,835”

Schedule D, Page 4, Part XII, Line 2D

“Fundraising expenses in revenue 49,002”

Schedule D, Page 4, Part XII, Line 4B

“Investment fee expenses netted to income 9,835”

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IRS990/Form990PartVIISectionAGrp/TitleTxt0PAST PRESIDE
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IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5VICE PRESIDE
IRS990/Form990PartVIISectionAGrp/TitleTxt6PRESIDENT
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IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
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IRS990/OtherExpensesGrp/Desc1NEWSLETTER
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IRS990/OtherExpensesGrp/TotalAmt221576
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IRS990/OtherSalariesAndWagesGrp/FundraisingAmt036235
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IRS990/PartialLiquidationInd0false
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IRS990/PayrollTaxesGrp/FundraisingAmt04069
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06194
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IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt04226
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt025405
IRS990/PrincipalOfficerNm0SUZANNE DEPAOLIS
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IRS990/ProgramServiceRevenueGrp/Desc2OTHER PROGRAM INCOME
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IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt125040
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IRS990/ProgSrvcAccomActy2Grp/Desc0THE VASCULITIS FOUNDATION COLLABORATES WITH RESEARCHERS WORLDWIDE TO FUND RESEARCH INTO DETERMINING THE CAUSE, DEVELOPING MORE EFFECTIVE TREATMENTS, AND DISCOVERING A CURE FOR VASCULITIS. RESEARCH RANGES FROM BASIC SCIENCE TO IMPROVING QUALITY OF LIFE STUDIES. THE VASCULITIS FOUNDATION RESEARCH PROGRAM PROVIDES ONE-YEAR OR TWO-YEAR GRANTS TO SUPPORT PILOT STUDIES IN RESEARCHING ETIOLOGY/PATHOGENESIS, EPIDEMIOLOGY, DIAGNOSIS, AND TREATMENT/MANAGEMENT OF VASCULITIS.
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IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
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IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt079681
IRS990/SavingsAndTempCashInvstGrp/BOYAmt02079
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,855,438
Liabilities
$75,998
Net assets
$1,779,440
Revenue
$1,413,621
Expenses
$1,086,332
Net income
$327,289
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.09$0.15$5.94$2.51$2.38$0.13
2024Detailed filing. Detailed filing data is available for this year.$5.59$0.05$5.54$2.96$2.09$0.87
2023Detailed filing. Detailed filing data is available for this year.$4.53$0.08$4.45$3.25$1.29$1.96
2022Detailed filing. Detailed filing data is available for this year.$2.46$0.03$2.43$1.57$1.08$0.49
2021Detailed filing. Detailed filing data is available for this year.$2.08$0.03$2.05$1.33$0.90$0.43
2020Detailed filing. Detailed filing data is available for this year.$1.66$0.11$1.56$1.16$1.39$0.23
2019Detailed filing. Detailed filing data is available for this year.$1.86$0.08$1.78$1.41$1.09$0.33
2018Detailed filing. Detailed filing data is available for this year.$1.50$0.07$1.43$1.08$0.99$0.10
2017Detailed filing. Detailed filing data is available for this year.$1.39$0.06$1.33$1.38$1.16$0.22
2016Detailed filing. Detailed filing data is available for this year.$1.15$0.07$1.09$0.88$0.95$0.07
2015Detailed filing. Detailed filing data is available for this year.$1.19$0.04$1.15$0.96$0.98$0.03
2014Detailed filing. Detailed filing data is available for this year.$1.21$0.03$1.18$0.90$0.84$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.18$0.07$1.11$0.67
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.12$0.03$1.09$0.68
2011Summary only. Only limited summary data is available for this year.$0.95$0.03$0.92$0.75$0.70$0.05
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.07$0.82$0.50