Civic Intelligence

Care Beyond Diagnosis

990 • Fiscal year 2019 • EIN 38-4040391

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 11, 2020

71 Kinsale CTGarner, NC 27529

(615) 496-4608

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

28th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

69th percentile

13%

Higher net margin than 69% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

91st percentile

$116,973

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 14.0% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

81st percentile

26%

Faster asset growth than 81% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

11th percentile

-28%

Faster revenue growth than 11% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Assets

Up

$530,172

Up $110,857 (+26%) from 2018

Net Assets

Up

$530,172

Up $110,857 (+26%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue

Down

$834,214

Down $327,518 (-28%) from 2018

Expenses

Down

$723,357

Down $22,468 (-3.0%) from 2018

Net Income

Down

$110,857

Down $305,050 (-73%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2018: $419,315Liabilities 2018: $0Net Assets 2018: $419,3152018Assets 2019: $530,172Liabilities 2019: $0Net Assets 2019: $530,1722019Assets 2020: $325,918Liabilities 2020: $0Net Assets 2020: $325,9182020

Highlighted filing

2019

Assets$530,172
Liabilities$0
Net Assets$530,172

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2018: $1,161,732Expenses 2018: $745,825Net Income 2018: $415,9072018Revenue 2019: $834,214Expenses 2019: $723,357Net Income 2019: $110,8572019Revenue 2020: $162,125Expenses 2020: $386,688Net Income 2020: -$224,5632020

Highlighted filing

2019

Revenue$834,214
Expenses$723,357
Net Income$110,857
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 11, 2020
Return Version
2019v5.0
Gross Receipts
$834,214
Mission and Program Overview

Mission

Care beyond diagnosis supports patients, families, and communities after a rare disorder diagnosis through innovative and unique programs. Care beyond diagnosis (cbd) understands the issues faced by patients and families beyond their diagnosis and medical treatment. Through tailored programs that assist in financial support, logistics, employment opportunities, and general wellbeing cbd hopes to uplift and empower those dealing with a rare disorder in their life.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$130,857$311,493▲ $180,636
Savings and Temporary Cash Investments$288,458$218,679▼ $69,779
Total Assets$419,315$530,172▲ $110,857
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$419,315$530,172▲ $110,857
Total Net Assets Fund Balance$419,315$530,172▲ $110,857
Total Liabilities and Net Assets / Fund Balance$419,315$530,172▲ $110,857
Compensation and Service Providers

Employees

NameTitleFull / Part TimeOtherTotal
Jeffrey DonohueCo-CEOFT$116,973$116,973
Yanique DonohueCo-CEOFT$46,973$46,973

Board Members and Trustees

NameTitle
Rebecca SouthallChair
Dele OyebandeVice Chair
Justin MarksBoard Member
Sierra MyrickBoard Member
Revenue and Support

Revenue Composition

Contributions and Grants
$828,993
Program Service Revenue
$0
Investment Income
$5,221
Other Revenue
$0
All Other Contributions
$828,993
Change in Net Assets
$110,857
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$537,170
Salaries, Compensation, and Employee Benefits$186,187
Total Fundraising Expense$160,000
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$191,636--$191,636
Current Officers, Directors, Trustees, and Key Employees--$160,000$160,000
Travel$156,037--$156,037
Conferences and Meetings$125,065--$125,065
Information Technology$38,333$1,099-$39,432
Other Employee Benefits-$13,947-$13,947
Payroll Taxes$12,240--$12,240
Fees for Services Accounting-$3,180-$3,180
Office Expenses$480$1,789-$2,269
Other Expenses$1,612--$1,612
All Other Expenses-$1,168-$1,168
Occupancy-$1,088-$1,088
Total Functional Expenses$541,086$22,271$160,000$723,357
International Activity

International Summary

Spending
$445,908

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe - United KingdomProgram ServicesMedical Education--$242,180
Europe - United KingdomProgram ServicesMedical Guidelines--$172,678
Europe - ItalyProgram ServicesMedical Guidelines--$8,250
Europe - FranceProgram ServicesMedical Guidelines--$6,000
East Asia & Pacific - AustraliaProgram ServicesMedical Guidelines--$5,500
Sub Saharan Africa - BotswanaProgram ServicesDonations--$3,700
South America - ArgentinaProgram ServicesMedical Guidelines--$2,750
Europe- GermanyProgram ServicesMedical Guidelines--$2,500
Europe - United KingdomProgram ServicesDonations--$1,500
South Asia - PakistanProgram ServicesDonations--$850
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

Melody hendricksz yanique donohue secretary co-ceo sister-in-law

Form 990, Page 6, Part VI, Line 11B

A draft of form 990 is given to the appropriate board members and is reviewed prior to filing the return with the internal revenue service.

Form 990, Page 6, Part VI, Line 19

The organization provides all information and documents upon request directly to the requesting person(s) in a timely manner.

Filing and Contact Details

Filer

Filer Name
Care Beyond Diagnosis
EIN
38-4040391
Phone
6154964608
Address
71 KINSALE CT, GARNER, NC 27529

Signing Officer

Name
Yanique Donohue
Title
Co-CEO
Phone
6154964608
Signed
2020-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Yanique Donohue
Formed
2017
Voting Board Members
4
Independent Board Members
4
Employees
2
Volunteers
1

Preparer

Firm
Patterson Hardee & Ballentine Pc
Address
1889 GENERAL GEORGE PATTON DR SUIT, FRANKLIN, TN 37067-6294
Preparer
Sarah C Hardee CPA
Phone
6157505537
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

Care beyond diagnosis supports patients, families, and communities after a rare disorder diagnosis through innovative and unique programs. Care beyond diagnosis (cbd) understands the issues faced by patients and families beyond their diagnosis and medical treatment. Through tailored programs that assist in financial support, logistics, employment opportunities, and general wellbeing cbd hopes to uplift and empower those dealing with a rare disorder in their life.

Form 990, Part IX, Line 11G

Consulting fees - conference 750 0 0 medical professionals 150,861 0 0 medical writer 10,000 0 0 medical writer 30,025 0 0 total 191,636 0 0

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IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt7MEDICAL GUIDELINES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt8MEDICAL GUIDELINES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt9MEDICAL GUIDELINES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt2PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt3PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt4PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt5PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt6PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt7PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt8PROGRAM SERVICES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt9PROGRAM SERVICES
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0false
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt0445908
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0EUROPE - UNITED KINGDOM 242,180 0 EUROPE - UNITED KINGDOM 172,678 0 EUROPE - UNITED KINGDOM 1,500 0 SUB SAHARAN AFRICA - BOTSWANA 3,700 0 SOUTH ASIA - PAKISTAN 850 0 EUROPE- GERMANY 2,500 0 EUROPE - ITALY 8,250 0 EUROPE - FRANCE 6,000 0 EAST ASIA & PACIFIC - AUSTRALIA 5,500 0 SOUTH AMERICA - ARGENTINA 2,750 0
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 3
IRS990ScheduleF/TotalSpentAmt0445908
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0CARE BEYOND DIAGNOSIS SUPPORTS PATIENTS, FAMILIES, AND COMMUNITIES AFTER A RARE DISORDER DIAGNOSIS THROUGH INNOVATIVE AND UNIQUE PROGRAMS. CARE BEYOND DIAGNOSIS (CBD) UNDERSTANDS THE ISSUES FACED BY PATIENTS AND FAMILIES BEYOND THEIR DIAGNOSIS AND MEDICAL TREATMENT. THROUGH TAILORED PROGRAMS THAT ASSIST IN FINANCIAL SUPPORT, LOGISTICS, EMPLOYMENT OPPORTUNITIES, AND GENERAL WELLBEING CBD HOPES TO UPLIFT AND EMPOWER THOSE DEALING WITH A RARE DISORDER IN THEIR LIFE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1MELODY HENDRICKSZ YANIQUE DONOHUE SECRETARY CO-CEO SISTER-IN-LAW
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2A DRAFT OF FORM 990 IS GIVEN TO THE APPROPRIATE BOARD MEMBERS AND IS REVIEWED PRIOR TO FILING THE RETURN WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION PROVIDES ALL INFORMATION AND DOCUMENTS UPON REQUEST DIRECTLY TO THE REQUESTING PERSON(S) IN A TIMELY MANNER.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4CONSULTING FEES - CONFERENCE 750 0 0 MEDICAL PROFESSIONALS 150,861 0 0 MEDICAL WRITER 10,000 0 0 MEDICAL WRITER 30,025 0 0 TOTAL 191,636 0 0
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0TN
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0419315
IRS990/TotalAssetsEOYAmt0530172
IRS990/TotalAssetsGrp/BOYAmt0419315
IRS990/TotalAssetsGrp/EOYAmt0530172
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0828993
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt0160000
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt022271
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0541086
IRS990/TotalFunctionalExpensesGrp/TotalAmt0723357
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0419315
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0530172
IRS990/TotalOtherCompensationAmt03946
IRS990/TotalProgramServiceExpensesAmt0541086
IRS990/TotalRevenueGrp/ExclusionAmt05221
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0834214
IRS990/TotalVolunteersCnt01
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0419315
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0530172
IRS990/TotReportableCompRltdOrgAmt0160000
IRS990/TravelGrp/ProgramServicesAmt0156037
IRS990/TravelGrp/TotalAmt0156037
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/USAddress/AddressLine1Txt071 KINSALE CT
IRS990/USAddress/CityNm0GARNER
IRS990/USAddress/StateAbbreviationCd0NC
IRS990/USAddress/ZIPCd027529
IRS990/VotingMembersGoverningBodyCnt04
IRS990/VotingMembersIndependentCnt04
IRS990/WebsiteAddressTxt0CAREBEYONDDIAGNOSIS.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0YANIQUE DONOHUE
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CO-CEO
ReturnHeader/BusinessOfficerGrp/PhoneNum06154964608
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-11-11
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0CARE BEYOND DIAGNOSIS
ReturnHeader/Filer/BusinessNameControlTxt0CARE
ReturnHeader/Filer/EIN0384040391
ReturnHeader/Filer/PhoneNum06154964608
ReturnHeader/Filer/USAddress/AddressLine1Txt071 KINSALE CT
ReturnHeader/Filer/USAddress/CityNm0GARNER
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NC
ReturnHeader/Filer/USAddress/ZIPCd027529
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0B75799B84AC5B908B0ED3FFA0EF917C3E11C4290
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0779842DED95E313BE470DA60A96AE21606F0D512
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt012.195.70.114
ReturnHeader/FilingSecurityInformation/IPDt02020-11-13
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0CS
ReturnHeader/FilingSecurityInformation/IPTm011:08:47
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0450784806
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0PATTERSON HARDEE & BALLENTINE PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01889 GENERAL GEORGE PATTON DR SUIT
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0FRANKLIN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0TN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0370676294
ReturnHeader/PreparerPersonGrp/PhoneNum06157505537
ReturnHeader/PreparerPersonGrp/PreparationDt02020-11-11
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0SARAH C HARDEE CPA
ReturnHeader/ReturnTs02020-11-13T11:08:47-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

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