Hairy Cell Leukemia Foundation

“The Form 990 was made available to each member of the governing body prior to filing with the IRS.”

“The Organizations conflict of interest policy covers all of the organizations directors and sets forth the procedures as follows: 1) IN SITUATIONS WHERE A DIRECTOR OR MEMBER OF THE DIRECTORS IMMEDIATE FAMILY HOLDS A FIDUCIARY OR LEADING POSITION WITH A POTENTIAL GRANTEE, THAT RELATIONSHIP IS ALWAYS DISCLOSED AND EITHER THE DIRECTOR INVOLVED ABSTAINS FROM VOTING, OR THE MATTER IS DETERMINED WITHOUT CONSIDERING THE VOTE OF THE DIRECTOR. STAFF MEMBERS WHO HOLD A FIDUCIARY OR LEADING POSITION IN A GRANTEE ORGANIZATION OR A MEMBER OF WHOSE IMMEDIATE FAMILY HOLDS SUCH A POSITION MUST ALWAYS DISCLOSE THAT RELATIONSHIP. SUCH ASSOCIATION MUST BE NOTED IN ALL GRANT PRESENTATIONS AND REPORTED IN THE APPROPRIATE BOARD MINUTES. 2) DIRECTORS ALWAYS ABSTAIN FROM VOTING ON MATTERS REGARDING BUSINESS TRANSACTIONS BETWEEN HCLF AND ANY ORGANIZATION IN WHICH THE DIRECTOR OR MEMBER OF THE DIRECTORS IMMEDIATE FAMILY HOLDS A FIDUCIARY OR LEADING POSITION OR HAS A SIGNIFICANT FINANCIAL INTEREST. STAFF MEMBERS AND THEIR IMMEDIATE FAMILIES WHO HOLD A FIDUCIARY OR LEADING POSITION OR HAVE A SIGNIFICANT FINANCIAL INTEREST IN ANY ORGANIZATION WHICH HAS OR IS ENTERING INTO A BUSINESS ARRANGEMENT WITH HCLF MUST ALWAYS DISCLOSE THAT RELATIONSHIP. SUCH DISCLOSURE MUST BE RECORDED IN THE APPROPRIATE BOARD MINUTES. SPECIAL CARE IS TAKEN TO PREVENT ABUSE AS THE RESULT OF SUCH ARRANGEMENTS. 3) THE SECRETARY OF HCLF ANNUALLY CIRCULATES A DISCLOSURE FORM FOR DIRECTORS AND STAFF TO LIST ORGANIZATIONS IN WHICH THE DIRECTOR OR STAFF MEMBER OR A SPOUSE OR CHILD PLAYS A FIDUCIARY OR LEADING ROLE. IN ADDITION, DIRECTORS AND STAFF WILL LIST THOSE ORGANIZATIONS IN WHICH THEY, A SPOUSE OR A CHILD HOLD SIGNIFICANT FINANCIAL INTEREST AND WHICH HAVE A BUSINESS RELATIONSHIP WITH HCLF. ON THE SAME FORM, DIRECTORS AND STAFF ACKNOWLEDGE THAT THEY UNDERSTAND AND ADHERE TO THE HCLF'S CONFLICT OF INTEREST POLICY AND PROCEDURE. DIRECTORS AND STAFF WILL INFORM THE SECRETARY OF HCLF OF ANY CHANGES OR NEW RELATIONSHIPS.”

“Comparability salary data was purchased from guidestar and reviewed and evaluated by the entire board of directors prior to hiring the executive. The executive.”

“The organization's 990 is available upon request and on the organization's website. The organization's Form 1023 is available upon request and may be inspected at the office of the organization. Copies of the organization's governing documents, conflict of interest policy, and statement of receipts and disbursements are available to the public upon request and they may be inspected at the office of the organization.”

“Other Program service accomplishments: THE HAIRY CELL LEUKEMIA FOUNDATION HOSTED A 2-DAY ANNUAL CONFERENCE WHICH CONSISTED OF A SCIENTIFIC MEETING AND A FREE PATIENT SEMINAR IN 2016. THIS INTERNATIONAL CONFERENCE BROUGHT TOGETHER 100+ PATIENTS AND THEIR FAMILY MEMBERS AND 40 PHYSICIANS SPECIALIZING IN HAIRY CELL LEUKEMIA TO LEARN FROM EACH OTHER. AT EACH EVENT, A PANEL OF HCL EXPERTS PRESENTED THE LATEST ADVANCEMENTS IN THE DIAGNOSIS AND TREATMENT OF HAIRY CELL LEUKEMIA FOLLOWED BY A QUESTION AND ANSWERS SESSION. THE HAIRY CELL LEUKEMIA FOUNDATION PROVIDED PATIENT SUPPORT SERVICES WHICH INCLUDE A WEBSITE PORTAL TO ANSWER QUESTIONS, PHONE NUMBER, AND MAILING INFORMATION TO PATIENTS. THESE SERVICES BENEFIT APPROXIMATELY 600 PATIENTS.”