Civic Intelligence

National Spasmodic Torticollis

EIN 33-0879421 • 501(c)3 • Fountain Valley, CA

Profile

The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.

9920 Talbert AvenueFountain Valley, CA 92708

www.torticollis.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

5th percentile

-324%

Higher net margin than 5% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2025

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2025

Balance Sheet
Liabilities / Assets59th percentile

Assets

Down

$94,045

Down $176,867 (-65%) from 2024

Liabilities

Flat

$0

Flat from 2024

Net Assets

Down

$94,045

Down $176,867 (-65%) from 2024

Operations
Liabilities / Revenue61st percentileNet Margin5th percentile

Revenue

Down

$54,564

Down $15,177 (-22%) from 2024

Expenses

Up

$231,431

Up $33,817 (+17%) from 2024

Net Income

Down

-$176,867

Down $48,994 (-38%) from 2024

Trend Graphs

Balance Sheet Trend

Asset GrowthScore unavailable

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$200K$0-$200KAssets 2014: $15,335Liabilities 2014: $0Net Assets 2014: $15,3352014Assets 2016: -$57,012Liabilities 2016: $0Net Assets 2016: -$57,0122016Assets 2017: -$53,021Liabilities 2017: $0Net Assets 2017: -$53,0212017Assets 2018: -$87,265Liabilities 2018: $0Net Assets 2018: -$87,2652018Assets 2019: -$79,988Liabilities 2019: $0Net Assets 2019: -$79,9882019Assets 2020: -$61,713Liabilities 2020: $0Net Assets 2020: -$61,7132020Assets 2021: -$81,495Liabilities 2021: $0Net Assets 2021: -$81,4952021Assets 2022: $146,673Liabilities 2022: $0Net Assets 2022: $146,6732022Assets 2023: $398,785Liabilities 2023: $0Net Assets 2023: $398,7852023Assets 2024: $270,912Liabilities 2024: $0Net Assets 2024: $270,9122024Assets 2025: $94,045Liabilities 2025: $0Net Assets 2025: $94,0452025

Highlighted filing

2025

Assets$94,045
Liabilities$0
Net Assets$94,045
Open 2025 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2014: $132,085Expenses 2014: $184,603Net Income 2014: -$52,5182014Revenue 2016: $93,541Expenses 2016: $161,469Net Income 2016: -$67,9282016Revenue 2017: $134,032Expenses 2017: $130,041Net Income 2017: $3,9912017Revenue 2018: $75,501Expenses 2018: $109,745Net Income 2018: -$34,2442018Revenue 2019: $95,964Expenses 2019: $88,687Net Income 2019: $7,2772019Revenue 2020: $90,953Expenses 2020: $72,678Net Income 2020: $18,2752020Revenue 2021: $77,423Expenses 2021: $97,205Net Income 2021: -$19,7822021Revenue 2022: $411,670Expenses 2022: $183,502Net Income 2022: $228,1682022Revenue 2023: $436,033Expenses 2023: $183,921Net Income 2023: $252,1122023Revenue 2024: $69,741Expenses 2024: $197,614Net Income 2024: -$127,8732024Revenue 2025: $54,564Expenses 2025: $231,431Net Income 2025: -$176,8672025

Highlighted filing

2025

Revenue$54,564
Expenses$231,431
Net Income-$176,867
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$94,045
Liabilities
$0
Net assets
$94,045
Revenue
$54,564
Expenses
$231,431
Net income
-$176,867
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.94$0.00$0.94$0.55$2.31$1.77
2024Detailed filing. Detailed filing data is available for this year.$2.71$0.00$2.71$0.70$1.98$1.28
2023Detailed filing. Detailed filing data is available for this year.$3.99$0.00$3.99$4.36$1.84$2.52
2022Detailed filing. Detailed filing data is available for this year.$1.47$0.00$1.47$4.12$1.84$2.28
2021Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.77$0.97$0.20
2020Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.91$0.73$0.18
2019Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$0.96$0.89$0.07
2018Detailed filing. Detailed filing data is available for this year.$0.87$0.00$0.87$0.76$1.10$0.34
2017Detailed filing. Detailed filing data is available for this year.$0.53$0.00$0.53$1.34$1.30$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.57$0.00$0.57$0.94$1.61$0.68
2014Detailed filing. Detailed filing data is available for this year.$0.15$0.00$0.15$1.32$1.85$0.53
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2024 to Sep 30, 2025
Signed
Oct 21, 2025
Return Version
2024v5.2
Gross Receipts
$54,564
Mission and Program Overview

Mission

The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$269,829$92,962▼ $176,867
Land, Buildings, and Equipment, Net$1,083$1,083→ $0
Total Assets$270,912$94,045▼ $176,867
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$270,912$94,045▼ $176,867
Total Net Assets Fund Balance$270,912$94,045▼ $176,867
Total Liabilities and Net Assets / Fund Balance$270,912$94,045▼ $176,867

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,083$13,899-
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Kenneth PricePresident
Karen Frei MDChariman
Sandra LevineSecretary
Justin AquinesTreasurer
Kenneth PriceTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$54,557
Program Service Revenue
$0
Investment Income
$7
Other Revenue
$0
All Other Contributions
$43,384
Change in Net Assets
$-176,867
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$139,672
Other Expenses$91,759
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages-$129,538-$129,538
All Other Expenses$70,352$18,206-$88,558
Payroll Taxes-$10,134-$10,134
Insurance-$3,175-$3,175
Depreciation Depletion-$26-$26
Total Functional Expenses$70,352$161,079$0$231,431
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Member election for additional members Part VI line 7A

“Only board members are able to nominate and elect a board member, and appoint additional board members. A person can submit a request to become a board member to the main NSTA office.”

Governing body decisions Part VI line 7B

“Only board members can approve governing body decisions.”

Form 990 governing body review Part VI line 11

“The board members review the 990 at the official board meeting and can ask the office manager if they have any questions.”

Governing documents etc available to public Part VI line 19

“Anyone can come to the NSTA office to look at the governing documents. They would need to call the office to make an appointment beforehand.”

Filing and Contact Details

Filer

Filer Name
National Spasmodic Torticollis
EIN
33-0879421
In Care Of
% Justin Aquines
Phone
6575540661
Address
9920 Talbert Avenue, Fountain Valley, CA 92708
Doing Business As
Association

Signing Officer

Name
Justin Aquines
Title
Officer
Phone
6575540661
Signed
2025-10-21
Discuss with paid preparer
No

Organization Details

Principal Officer
Karen Frei MD
Formed
2012
Legal Domicile
CA
Voting Board Members
8
Independent Board Members
2
Employees
2

Preparer

Firm
Joseph S Yung and Co
Address
16027 Brookhurst St No I-545, Fountain Valley, CA 92708
Preparer
Joseph Yung
Phone
7148686799
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Accounting fees for the year.”

List of other expenses Part IX line 24E

“Other expenses include: magazine expenses, printing, postage, rent, telephone, internet, license and permits, ST handbook, software, taxes, education, and supplies.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0452338
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0411670
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt077423
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01065737
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
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IRS990ScheduleD/EquipmentGrp/BookValueAmt01083
IRS990ScheduleD/EquipmentGrp/DepreciationAmt013899
IRS990ScheduleD/EquipmentGrp/InvestmentCostOrOtherBasisAmt014982
IRS990ScheduleD/TotalBookValueLandBuildingsAmt01083
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IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Only board members are able to nominate and elect a board member, and appoint additional board members. A person can submit a request to become a board member to the main NSTA office.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Only board members can approve governing body decisions.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The board members review the 990 at the official board meeting and can ask the office manager if they have any questions.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Anyone can come to the NSTA office to look at the governing documents. They would need to call the office to make an appointment beforehand.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Accounting fees for the year.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Other expenses include: magazine expenses, printing, postage, rent, telephone, internet, license and permits, ST handbook, software, taxes, education, and supplies.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Member election for additional members Part VI line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Governing body decisions Part VI line 7b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4List of other fees for services expenses Part IX line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5List of other expenses Part IX line 24e
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0CA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0270912
IRS990/TotalAssetsEOYAmt094045
IRS990/TotalAssetsGrp/BOYAmt0270912
IRS990/TotalAssetsGrp/EOYAmt094045
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt054557
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0161079
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt070352
IRS990/TotalFunctionalExpensesGrp/TotalAmt0231431
IRS990/TotalGrossUBIAmt07
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0270912
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt094045
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt08886
IRS990/TotalProgramServiceExpensesAmt070352
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt054564
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt07
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0270912
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt094045
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TransactionWithControlEntInd0false
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt011370 Anderson St Ste B 700
IRS990/USAddress/CityNm0Loma Linda
IRS990/USAddress/StateAbbreviationCd0CA
IRS990/USAddress/ZIPCd092354
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt02
IRS990/WebsiteAddressTxt0www.torticollis.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0false
ReturnHeader/BusinessOfficerGrp/PersonNm0JUSTIN AQUINES
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Officer
ReturnHeader/BusinessOfficerGrp/PhoneNum06575540661
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-10-21
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0National Spasmodic Torticollis
ReturnHeader/Filer/BusinessNameControlTxt0NATI
ReturnHeader/Filer/EIN0330879421
ReturnHeader/Filer/InCareOfNm0% Justin Aquines
ReturnHeader/Filer/PhoneNum06575540661
ReturnHeader/Filer/USAddress/AddressLine1Txt09920 Talbert Avenue
ReturnHeader/Filer/USAddress/CityNm0Fountain Valley
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CA
ReturnHeader/Filer/USAddress/ZIPCd092708
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0330294439
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Joseph S Yung and Co
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt016027 Brookhurst St No I-545
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Fountain Valley
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd092708
ReturnHeader/PreparerPersonGrp/PhoneNum07148686799
ReturnHeader/PreparerPersonGrp/PreparationDt02026-01-19
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JOSEPH YUNG
ReturnHeader/ReturnTs02026-01-19T16:56:02-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-10-01
ReturnHeader/TaxPeriodEndDt02025-09-30
ReturnHeader/TaxYr02024

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