Civic Intelligence

National Spasmodic Torticollis Association

990 • Fiscal year 2017 • EIN 33-0879421

Oct 01, 2016 to Sep 30, 2017 • Filed on Oct 17, 2017

Organization Profilewww.torticollis.org
14772 Moran StreetWestminster, CA 92683

(714) 378-9837

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2017

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

49th percentile

3.0%

Higher net margin than 49% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

Score unavailable

No value available

A valid growth rate could not be computed from the available filing history.

Annualized from 2016 to 2017

Revenue Growth

84th percentile

43%

Faster revenue growth than 84% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Up

-$53,021

Up $3,991 (+7.0%) from 2016

Net Assets

Up

-$53,021

Up $3,991 (+7.0%) from 2016

Liabilities

Flat

$0

Flat from 2016

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin49th percentile

Revenue

Up

$134,032

Up $40,491 (+43%) from 2016

Expenses

Down

$130,041

Down $31,428 (-19%) from 2016

Net Income

Up

$3,991

Up $71,919 (+106%) from 2016

Historical Trend

Balance Sheet Trend

Asset GrowthScore unavailable

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$400K$200K$0-$200KAssets 2014: $15,335Liabilities 2014: $0Net Assets 2014: $15,3352014Assets 2016: -$57,012Liabilities 2016: $0Net Assets 2016: -$57,0122016Assets 2017: -$53,021Liabilities 2017: $0Net Assets 2017: -$53,0212017Assets 2018: -$87,265Liabilities 2018: $0Net Assets 2018: -$87,2652018Assets 2019: -$79,988Liabilities 2019: $0Net Assets 2019: -$79,9882019Assets 2020: -$61,713Liabilities 2020: $0Net Assets 2020: -$61,7132020Assets 2021: -$81,495Liabilities 2021: $0Net Assets 2021: -$81,4952021Assets 2022: $146,673Liabilities 2022: $0Net Assets 2022: $146,6732022Assets 2023: $398,785Liabilities 2023: $0Net Assets 2023: $398,7852023Assets 2024: $270,912Liabilities 2024: $0Net Assets 2024: $270,9122024Assets 2025: $94,045Liabilities 2025: $0Net Assets 2025: $94,0452025

Highlighted filing

2017

Assets-$53,021
Liabilities$0
Net Assets-$53,021
Open 2017 Filing

Operations Trend

Revenue Growth84th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2014: $132,085Expenses 2014: $184,603Net Income 2014: -$52,5182014Revenue 2016: $93,541Expenses 2016: $161,469Net Income 2016: -$67,9282016Revenue 2017: $134,032Expenses 2017: $130,041Net Income 2017: $3,9912017Revenue 2018: $75,501Expenses 2018: $109,745Net Income 2018: -$34,2442018Revenue 2019: $95,964Expenses 2019: $88,687Net Income 2019: $7,2772019Revenue 2020: $90,953Expenses 2020: $72,678Net Income 2020: $18,2752020Revenue 2021: $77,423Expenses 2021: $97,205Net Income 2021: -$19,7822021Revenue 2022: $411,670Expenses 2022: $183,502Net Income 2022: $228,1682022Revenue 2023: $436,033Expenses 2023: $183,921Net Income 2023: $252,1122023Revenue 2024: $69,741Expenses 2024: $197,614Net Income 2024: -$127,8732024Revenue 2025: $54,564Expenses 2025: $231,431Net Income 2025: -$176,8672025

Highlighted filing

2017

Revenue$134,032
Expenses$130,041
Net Income$3,991
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2016 to Sep 30, 2017
Signed
Oct 17, 2017
Return Version
2016v3.0
Gross Receipts
$134,032
Mission and Program Overview

Mission

The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Land, Buildings, and Equipment, Net$1,083$1,083→ $0
Savings and Temporary Cash Investments$-58,095$-54,104▲ $3,991
Total Assets$-57,012$-53,021▲ $3,991
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$-57,012$-53,021▲ $3,991
Total Net Assets Fund Balance$-57,012$-53,021▲ $3,991
Total Liabilities and Net Assets / Fund Balance$-57,012$-53,021▲ $3,991

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,083$13,899-
Compensation and Service Providers
Top Officer Pay76th percentile

Board Members and Trustees

NameTitle
Mark LeDouxChairman
Diane TruongVice President Secretary
Justin AquinesExecutive Director
Kenneth PriceTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$134,031
Program Service Revenue
$0
Investment Income
$1
Other Revenue
$0
All Other Contributions
$6,562
Change in Net Assets
$3,991
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$80,175
Other Expenses$49,866
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
All Other Expenses$25,401$18,913-$44,314
Current Officers, Directors, Trustees, and Key Employees-$38,404-$38,404
Other Salaries and Wages-$35,165-$35,165
Payroll Taxes-$6,606-$6,606
Insurance-$2,937-$2,937
Conferences and Meetings$1,690--$1,690
Travel$350--$350
Depreciation Depletion-$210-$210
Advertising-$200-$200
Other Expenses-$165-$165
Total Functional Expenses$27,441$102,600$0$130,041
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Member election for additional members Part VI line 7A

“Only board members are able to nominate and elect a board member, and appoint additional board members. A person can submit a request to become a board member to the main NSTA office.”

Governing body decisions Part VI line 7B

“Only board members can approve governing body decisions.”

Form 990 governing body review Part VI line 11

“The board members review the 990 at the official board meeting and can ask the office manager if they have any questions.”

Governing documents etc available to public Part VI line 19

“Anyone can come to the NSTA office to look at the governing documents. They would need to call the office to make an appointment beforehand.”

Filing and Contact Details

Filer

Filer Name
National Spasmodic Torticollis
EIN
33-0879421
Address
14772 Moran Street, Westminster, CA 92683
Doing Business As
Association

Signing Officer

Name
Diane Truong
Title
Officer
Phone
7143789837
Signed
2017-10-17
Discuss with paid preparer
No

Organization Details

Principal Officer
Mark LeDoux
Formed
2012
Legal Domicile
CA
Voting Board Members
8
Independent Board Members
2
Employees
3

Preparer

Firm
Joseph S Yung and Co
Address
10221 Slater Avenue Suite 101, Fountain Valley, CA 92708
Preparer
Joseph Yung
Phone
7143781430
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Accounting fees for the year.”

List of other expenses Part IX line 24E

“Other expenses include: magazine expenses, printing, postage, rent, telephone, internet, license and permits, ST handbook, software, taxes, education, and supplies.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0People who receive the ST Quarterly magazine use it as a continuous source of up-to-date information regarding spasmodic torticollis. From the information they learn through the articles written by medical professionals and people inflicted with ST, they are able to communicate clearly with the medical professionals involved with their healthcare. In addition to information, readers are using the magazine as a source of emotional support. They take comfort knowing there are people who understand what they are going through and there is a place to contact if they should ever need information or support.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Information and support for Spasmodic Torticollis is available through the 1-800 Hotline. By contacting our organization, they can acquire the knowledge to manage their healthcare so they can find the best treatment(s) possible for their symptoms. Through the support received from the call to the 1-800 hotline, conversations with the NSTA staff and contact people and by attending support group meetings, callers will gain self-confidence and assurance by knowing they are not the only ones with ST and there are people that understand.The NSTA responded to 754 phone calls to the NSTA requesting information and support and mailed the callers information that includes the treatments available for cervical dystonia.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0Conference attendees will have the opportunity to communicate with the physician and medical professionals involved with their healthcare about spasmodic torticollis. This will help them become more involved in their healthcare. Through the knowledge they gain at the symposium, they will have a better understanding of the available treatments for spasmodic torticollis. In addition to the newly acquired knowledge, attendees find support through the NSTA and the people they meet in person at the symposium
IRS990/ProgSrvcAccomActyOtherGrp/Desc1Zenathon FundraiserAwaremess Campaign - SummerfestAdditional:Consistently updated the information on the NSTA website (www.torticolis.org) regarding the various treatments available for cervical dystonia. Continuously restructure the NSTA website making it easier to navigate through and more visually appealing.Sent information packets about spasmodic torticollis and NSTA to neurologists offices all over the United States.Sent 226 information packets about spasmodic torticollis and NSTA to people inquiring about spasmodic torticollis/cervical dystonia via email and the 1-800 hotline. Responded to 234 phone calls to the NSTA requesting information and support and mailed the callers information that includes the treatments available for cervical dystonia. Responded to 241 emails about spasmodic torticollis
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IRS990/ProgSrvcAccomActyOtherGrp/Desc3Dystonia advocates, which include people with spasmodic torticollis (also referred to as cervical dystonia) come from all over the country to gather in Washington, DC for two-days to receive updates on dystonia research from leading investigators, comprehensive advocacy training, and the opportunity to network with other dystonia-affected individuals from across the country. Dystonia Advocacy Day culminated with a trip to Capitol Hill so that participants can meet with members of Congress and urge their support on key legislative issues. Without exception, volunteers who have participated in these in the past have found Dystonia Advocacy Day to be an incredibly rewarding and empowering experience.
IRS990/ProgSrvcAccomActyOtherGrp/Desc4Provided a forum where people who are diagnosed with spasmodic torticollis can log on and post messages and get answers from others who have the same movement disorder. The people emailing the NSTA office and visiting the message forum do so to learn more about spasmodic torticollis and the different treatments available. They also look for people in their area as a source of support. The NSTA primarily responds to emails from the United States but we have also responded to inquires internationally. We have helped people find specialists who treat Spasmodic Torticollis in places like, Canada, Mexico, Asia and Saudi Arabia. The website has the most up to date information on treatment and activities of NSTA.
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IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0184886
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0132833
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0139411
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
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IRS990ScheduleD/EquipmentGrp/BookValueAmt01083
IRS990ScheduleD/EquipmentGrp/DepreciationAmt013899
IRS990ScheduleD/EquipmentGrp/InvestmentCostOrOtherBasisAmt014982
IRS990ScheduleD/TotalBookValueLandBuildingsAmt01083
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Only board members are able to nominate and elect a board member, and appoint additional board members. A person can submit a request to become a board member to the main NSTA office.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Only board members can approve governing body decisions.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The board members review the 990 at the official board meeting and can ask the office manager if they have any questions.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Anyone can come to the NSTA office to look at the governing documents. They would need to call the office to make an appointment beforehand.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Accounting fees for the year.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Other expenses include: magazine expenses, printing, postage, rent, telephone, internet, license and permits, ST handbook, software, taxes, education, and supplies.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Member election for additional members Part VI line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Governing body decisions Part VI line 7b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4List of other fees for services expenses Part IX line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5List of other expenses Part IX line 24e
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IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0CA
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
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IRS990/TotalAssetsGrp/BOYAmt0-57012
IRS990/TotalAssetsGrp/EOYAmt0-53021
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IRS990/TotalContributionsAmt0134031
IRS990/TotalEmployeeCnt03
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0102600
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt027441
IRS990/TotalFunctionalExpensesGrp/TotalAmt0130041
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0-57012
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0-53021
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt03954
IRS990/TotalOtherProgSrvcRevenueAmt025530
IRS990/TotalProgramServiceExpensesAmt027441
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt01
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0134032
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0-57012
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0-53021
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TransactionWithControlEntInd0false
IRS990/TravelGrp/ProgramServicesAmt0350
IRS990/TravelGrp/TotalAmt0350
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IRS990/UnrestrictedNetAssetsGrp/BOYAmt0-57012
IRS990/UnrestrictedNetAssetsGrp/EOYAmt0-53021
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0855 Monroe Avenue 415
IRS990/USAddress/CityNm0Memphis
IRS990/USAddress/StateAbbreviationCd0TN
IRS990/USAddress/ZIPCd038163
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt02
IRS990/WebsiteAddressTxt0www.torticollis.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02018-03-14 21:41:22Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0false
ReturnHeader/BusinessOfficerGrp/PersonNm0Diane Truong
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Officer
ReturnHeader/BusinessOfficerGrp/PhoneNum07143789837
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-10-17
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0National Spasmodic Torticollis
ReturnHeader/Filer/BusinessNameControlTxt0NATI
ReturnHeader/Filer/EIN0330879421
ReturnHeader/Filer/USAddress/AddressLine1Txt014772 Moran Street
ReturnHeader/Filer/USAddress/CityNm0Westminster
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CA
ReturnHeader/Filer/USAddress/ZIPCd092683
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0F2F957F0C86146C3CBC92CB8F2261E80774A6CC4
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0F2F957F0C86146C3CBC92CB8F2261E80774A6CC4
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId03370702018079p4chlv0
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt02018-03-20
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0107.185.182.164
ReturnHeader/FilingSecurityInformation/IPDt02018-03-20
ReturnHeader/FilingSecurityInformation/IPTm012:56:11
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0330294439
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0JOSEPH S YUNG AND CO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt010221 Slater Avenue Suite 101
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Fountain Valley
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd092708
ReturnHeader/PreparerPersonGrp/PhoneNum07143781430
ReturnHeader/PreparerPersonGrp/PreparationDt02018-03-20
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Joseph Yung
ReturnHeader/ReturnTs02018-03-20T12:55:02-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02016-10-01
ReturnHeader/TaxPeriodEndDt02017-09-30
ReturnHeader/TaxYr02016

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
-$53,021
Liabilities
$0
Net assets
-$53,021
Revenue
$134,032
Expenses
$130,041
Net income
$3,991
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.94$0.00$0.94$0.55$2.31$1.77
2024Detailed filing. Detailed filing data is available for this year.$2.71$0.00$2.71$0.70$1.98$1.28
2023Detailed filing. Detailed filing data is available for this year.$3.99$0.00$3.99$4.36$1.84$2.52
2022Detailed filing. Detailed filing data is available for this year.$1.47$0.00$1.47$4.12$1.84$2.28
2021Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.77$0.97$0.20
2020Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.91$0.73$0.18
2019Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$0.96$0.89$0.07
2018Detailed filing. Detailed filing data is available for this year.$0.87$0.00$0.87$0.76$1.10$0.34
2017Detailed filing. Detailed filing data is available for this year.$0.53$0.00$0.53$1.34$1.30$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.57$0.00$0.57$0.94$1.61$0.68
2014Detailed filing. Detailed filing data is available for this year.$0.15$0.00$0.15$1.32$1.85$0.53