Civic Intelligence

National Spasmodic Torticollis Association

990 • Fiscal year 2014 • EIN 33-0879421

Oct 01, 2013 to Sep 30, 2014 • Filed on Apr 15, 2014

Organization Profilewww.torticollis.org
18430 Brookhurst Street92708

(714) 378-9837

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2014 filings • 501(c)3 • <$500k nonprofits • Source year 2014

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2014 filings • 501(c)3 • <$500k nonprofits • Source year 2014

Net Margin

9th percentile

-40%

Higher net margin than 9% of similar nonprofits.

2014 filings • 501(c)3 • <$500k nonprofits • Source year 2014

Top Officer Pay

88th percentile

$37,244

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 28.2% of source-year revenue.

2014 filings • 501(c)3 • <$500k nonprofits • Source year 2014

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2014

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2014

Balance Sheet
Liabilities / Assets55th percentile

Assets

$15,335

No earlier filing loaded for comparison.

Net Assets

$15,335

No earlier filing loaded for comparison.

Liabilities

$0

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin9th percentile

Revenue

$132,085

No earlier filing loaded for comparison.

Expenses

$184,603

No earlier filing loaded for comparison.

Net Income

-$52,518

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset GrowthScore unavailable

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$400K$200K$0-$200KAssets 2014: $15,335Liabilities 2014: $0Net Assets 2014: $15,3352014Assets 2016: -$57,012Liabilities 2016: $0Net Assets 2016: -$57,0122016Assets 2017: -$53,021Liabilities 2017: $0Net Assets 2017: -$53,0212017Assets 2018: -$87,265Liabilities 2018: $0Net Assets 2018: -$87,2652018Assets 2019: -$79,988Liabilities 2019: $0Net Assets 2019: -$79,9882019Assets 2020: -$61,713Liabilities 2020: $0Net Assets 2020: -$61,7132020Assets 2021: -$81,495Liabilities 2021: $0Net Assets 2021: -$81,4952021Assets 2022: $146,673Liabilities 2022: $0Net Assets 2022: $146,6732022Assets 2023: $398,785Liabilities 2023: $0Net Assets 2023: $398,7852023Assets 2024: $270,912Liabilities 2024: $0Net Assets 2024: $270,9122024Assets 2025: $94,045Liabilities 2025: $0Net Assets 2025: $94,0452025

Highlighted filing

2014

Assets$15,335
Liabilities$0
Net Assets$15,335
Open 2014 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2014: $132,085Expenses 2014: $184,603Net Income 2014: -$52,5182014Revenue 2016: $93,541Expenses 2016: $161,469Net Income 2016: -$67,9282016Revenue 2017: $134,032Expenses 2017: $130,041Net Income 2017: $3,9912017Revenue 2018: $75,501Expenses 2018: $109,745Net Income 2018: -$34,2442018Revenue 2019: $95,964Expenses 2019: $88,687Net Income 2019: $7,2772019Revenue 2020: $90,953Expenses 2020: $72,678Net Income 2020: $18,2752020Revenue 2021: $77,423Expenses 2021: $97,205Net Income 2021: -$19,7822021Revenue 2022: $411,670Expenses 2022: $183,502Net Income 2022: $228,1682022Revenue 2023: $436,033Expenses 2023: $183,921Net Income 2023: $252,1122023Revenue 2024: $69,741Expenses 2024: $197,614Net Income 2024: -$127,8732024Revenue 2025: $54,564Expenses 2025: $231,431Net Income 2025: -$176,8672025

Highlighted filing

2014

Revenue$132,085
Expenses$184,603
Net Income-$52,518
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2013 to Sep 30, 2014
Signed
Apr 15, 2014
Return Version
2013v4.0
Gross Receipts
$132,085
Mission and Program Overview

Mission

The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$62,200$14,000▼ $48,200
Land, Buildings, and Equipment, Net$1,533$1,083▼ $450
Cash and Non-Interest-Bearing Accounts$4,120$252▼ $3,868
Total Assets$67,853$15,335▼ $52,518
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$62,386$9,868▼ $52,518
Temporarily Rstr Net Assets$5,467$5,467→ $0
Total Net Assets Fund Balance$67,853$15,335▼ $52,518
Total Liabilities and Net Assets / Fund Balance$67,853$15,335▼ $52,518

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,083$13,899-
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Mr Justin AquinesExecutive DirectorFT$37,244$37,244

Board Members and Trustees

NameTitle
Dr Mark LeDouxChairman
Mrs Diane TruongVice President Secretary
Mr Kenneth PriceTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$132,071
Program Service Revenue
$0
Investment Income
$14
Other Revenue
$0
All Other Contributions
$19,844
Change in Net Assets
$-52,518
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$103,759
Other Expenses$80,844
Total Fundraising Expense$2,593
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
All Other Expenses$26,944$15,059$2,593$44,596
Other Salaries and Wages-$37,722-$37,722
Current Officers, Directors, Trustees, and Key Employees-$37,243-$37,243
Payroll Taxes-$28,794-$28,794
Conferences and Meetings$22,469--$22,469
Travel-$8,418-$8,418
Insurance-$2,529-$2,529
Fees for Services Accounting-$2,500-$2,500
Information Technology-$167-$167
Depreciation Depletion-$95-$95
Other Expenses-$70-$70
Total Functional Expenses$49,413$132,597$2,593$184,603
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Member election for additional members Part VI line 7A

“Only board members are able to nominate and elect a board member, and appoint additional board members. A person can submit a request to become a board member to the main NSTA office.”

Governing body decisions Part VI line 7B

“Only board members can approve governing body decisions.”

Form 990 governing body review Part VI line 11

“The board members review the 990 at the official board meeting and can ask the office manager if they have any questions.”

Governing documents etc available to public Part VI line 19

“Anyone can come to the NSTA office to look at the governing documents. They would need to call the office to make an appointment beforehand.”

Filing and Contact Details

Filer

EIN
33-0879421

Signing Officer

Name
Mrs Diane Truong
Title
Officer
Phone
7143789837
Signed
2014-04-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Dr Mark LeDoux
Formed
2012
Legal Domicile
CA
Voting Board Members
8
Independent Board Members
2
Employees
3
Volunteers
2

Preparer

Preparer
Joseph Yung
Phone
7143781430
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Accounting fees for the year.”

List of other expenses Part IX line 24E

“Other expenses include: magazine expenses, printing, postage, rent, telephone, internet, license and permits, ST handbook, software, taxes, education, and supplies.”

Raw XML Appendix336 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0We continue to make improvements to the website so it can provide information efficiently and provide an environment for people to find support through the internet.The people emailing the NSTA office and visiting the message forum do so to learn more about spasmodic torticollis and the different treatments available. They also look for people in their area as a source of support. The NSTA primarily responds to emails from the United States but we have also responded to inquires internationally. We have helped people find specialists who treat Spasmodic Torticollis in places like, Canada, Mexico, Asia and Saudi Arabia. The website has the most up to date information on treatment and activities of NSTA. Consistently updated the information on the NSTA website (www.torticolis.org) regarding the various treatments available for cervical dystonia. Continuously restructure the NSTA website making it easier to navigate through and more visually appealing.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Only board members are able to nominate and elect a board member, and appoint additional board members. A person can submit a request to become a board member to the main NSTA office.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Only board members can approve governing body decisions.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The board members review the 990 at the official board meeting and can ask the office manager if they have any questions.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Anyone can come to the NSTA office to look at the governing documents. They would need to call the office to make an appointment beforehand.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Accounting fees for the year.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Other expenses include: magazine expenses, printing, postage, rent, telephone, internet, license and permits, ST handbook, software, taxes, education, and supplies.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Member election for additional members Part VI line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Governing body decisions Part VI line 7b
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Governing documents etc available to public Part VI line 19
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IRS990/TotalEmployeeCnt03
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt02593
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0132597
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt049413
IRS990/TotalFunctionalExpensesGrp/TotalAmt0184603
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt067853
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt015335
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt022469
IRS990/TotalOtherProgSrvcRevenueAmt014813
IRS990/TotalProgramServiceExpensesAmt049413
IRS990/TotalReportableCompFromOrgAmt037244
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt014
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0132085
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt02
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt067853
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt015335
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt08418
IRS990/TravelGrp/TotalAmt08418
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt062386
IRS990/UnrestrictedNetAssetsGrp/EOYAmt09868
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine10855 Monroe Avenue 415
IRS990/USAddress/City0Memphis
IRS990/USAddress/State0TN
IRS990/USAddress/ZIPCode038163
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt02
IRS990/WebsiteAddressTxt0www.torticollis.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02016-02-25 16:41:14Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Mrs Diane Truong
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Officer
ReturnHeader/BusinessOfficerGrp/PhoneNum07143789837
ReturnHeader/BusinessOfficerGrp/SignatureDt02014-04-15
ReturnHeader/Filer/BusinessName/BusinessNameLine10National Spasmodic Torticollis Assn
ReturnHeader/Filer/BusinessNameControlTxt0NATI
ReturnHeader/Filer/EIN0330879421
ReturnHeader/Filer/USAddress/AddressLine1018430 Brookhurst Street
ReturnHeader/Filer/USAddress/City0Fountain Valley
ReturnHeader/Filer/USAddress/State0CA
ReturnHeader/Filer/USAddress/ZIPCode092708
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0330294439
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine10Joseph S Yung and Co
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1010221 Slater Avenue Suite 101
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/City0Fountain Valley
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode092708
ReturnHeader/PreparerPersonGrp/PhoneNum07143781430
ReturnHeader/PreparerPersonGrp/PreparationDt02015-03-24
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Joseph Yung
ReturnHeader/ReturnTs02015-03-24T16:14:08-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02013-10-01
ReturnHeader/TaxPeriodEndDt02014-09-30
ReturnHeader/TaxYr02013

Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$15,335
Liabilities
$0
Net assets
$15,335
Revenue
$132,085
Expenses
$184,603
Net income
-$52,518
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.94$0.00$0.94$0.55$2.31$1.77
2024Detailed filing. Detailed filing data is available for this year.$2.71$0.00$2.71$0.70$1.98$1.28
2023Detailed filing. Detailed filing data is available for this year.$3.99$0.00$3.99$4.36$1.84$2.52
2022Detailed filing. Detailed filing data is available for this year.$1.47$0.00$1.47$4.12$1.84$2.28
2021Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.77$0.97$0.20
2020Detailed filing. Detailed filing data is available for this year.$0.62$0.00$0.62$0.91$0.73$0.18
2019Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$0.96$0.89$0.07
2018Detailed filing. Detailed filing data is available for this year.$0.87$0.00$0.87$0.76$1.10$0.34
2017Detailed filing. Detailed filing data is available for this year.$0.53$0.00$0.53$1.34$1.30$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.57$0.00$0.57$0.94$1.61$0.68
2014Detailed filing. Detailed filing data is available for this year.$0.15$0.00$0.15$1.32$1.85$0.53