Liabilities / Assets
94th percentile
Higher debt load relative to assets than 94% of similar nonprofits.
990 • Fiscal year 2019 • EIN 30-0752401
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
94th percentile
Higher debt load relative to assets than 94% of similar nonprofits.
Liabilities / Revenue
78th percentile
Higher debt load relative to revenue than 78% of similar nonprofits.
Net Margin
20th percentile
Higher net margin than 20% of similar nonprofits.
Top Officer Pay
50th percentile
Higher top officer pay than 50% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
88th percentile
Faster asset growth than 88% of similar nonprofits.
Revenue Growth
93rd percentile
Faster revenue growth than 93% of similar nonprofits.
Assets
Up$161,868
Up $50,505 (+45%) from 2018
Net Assets
Down-$1,040
Down $73,457 (-101%) from 2018
Liabilities
Up$162,908
Up $123,962 (+318%) from 2018
Revenue
Up$670,750
Up $350,837 (+110%) from 2018
Expenses
Up$744,207
Up $421,711 (+131%) from 2018
Net Income
Down-$73,457
Down $70,874 (-2744%) from 2018
The arm foundation serves as the educational and information resource on issues fundamental to making gene and cell therapies, tissue-engineered products and other regenerative medicine treatments available to patients. By examining, quantifying, clarifying and informing stakeholders of the clinical and societal benefits of these therapies, as well as convening discussions to raise awareness about the sectors progress, challenges and results, the foundation accelerates patient access to safe, efficacious and potentially curative therapies.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Accounts Receivable | $45,000 | $100,000 | ▲ $55,000 |
| Cash and Non-Interest-Bearing Accounts | $66,363 | $61,868 | ▼ $4,495 |
| Total Assets | $111,363 | $161,868 | ▲ $50,505 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $38,946 | $162,908 | ▲ $123,962 |
| Total Liabilities | $38,946 | $162,908 | ▲ $123,962 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $72,417 | $-1,040 | ▼ $73,457 |
| Total Net Assets Fund Balance | $72,417 | $-1,040 | ▼ $73,457 |
| Total Liabilities and Net Assets / Fund Balance | $111,363 | $161,868 | ▲ $50,505 |
| Name | Title |
|---|---|
| Stewart Parker | Chair |
| Adrian Mckemey | Director |
| Alison Finger | Director |
| Amy Duross | Director |
| Bethany Kraynack | Director |
| Brett Kopelan | Director |
| Brock Reeve | Director |
| Cindy Collins | Director |
| Claudia Zylberberg | Director |
| Dennis Purcell | Director |
| Don Gibbons | Director |
| Ellen Feigal | Director |
| Frank Sasinowski | Director |
| Janet Lambert | Director |
| Jennifer Mound Smoter | Director |
| Karin Hehenberger | Director |
| Lin Macmaster | Director |
| Maria Millan | Director |
| Marshall Summar | Director |
| Martha Rook | Director |
| Nicole Boice | Director |
| Phil Vanek | Director |
| Robin Smith | Director |
| Morrie Ruffin | Executive Di |
| David Nagler | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Conduit Health Corporation | Communications | 1487 ZION CHURCH RD, Sanford, NC 27330 | $378,562 |
| Adjuvant Partners LLC | Management | 1340 SMITH AVE STE 200, Baltimore, MD 21209 | $131,323 |
| Line Item | Amount |
|---|---|
| Other Expenses | $744,207 |
| Total Fundraising Expense | $151,604 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $225,522 | $11,621 | $69,796 | $306,939 |
| Conferences and Meetings | $128,766 | - | $14,307 | $143,073 |
| Fees for Services Management | $39,600 | $40,800 | $39,600 | $120,000 |
| Travel | $36,600 | $4,366 | $21,291 | $62,257 |
| Advertising | $49,417 | $3,825 | $1,138 | $54,380 |
| Information Technology | $30,363 | $876 | $3,934 | $35,173 |
| Fees for Services Accounting | - | $8,375 | - | $8,375 |
| Fees for Services Legal | - | $7,067 | - | $7,067 |
| Occupancy | $1,452 | $1,496 | $1,452 | $4,400 |
| Insurance | - | $2,237 | - | $2,237 |
| Office Expenses | $86 | $89 | $86 | $261 |
| Other Expenses | - | $45 | - | $45 |
| Total Functional Expenses | $511,806 | $80,797 | $151,604 | $744,207 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| - | E.D. OWNS 100% | Management Fees | No | $131,323 |
“Management delegated to adjuvant partners, llc.”
“A copy of form 990 is reviewed by the executive director, chair, and treasurer prior to submission to the internal revenue service”
“Governing documents are available upon request”
“The arm foundation serves as the educational and information resource on issues fundamental to making gene and cell therapies, tissue-engineered products and other regenerative medicine treatments available to patients. By examining, quantifying, clarifying and informing stakeholders of the clinical and societal benefits of these therapies, as well as convening discussions to raise awareness about the sectors progress, challenges and results, the foundation accelerates patient access to safe, efficacious and potentially curative therapies.”
“Educational and information resource on issues fundamental to making gene and cell therapies, tissue-engineered products and other regenerative medicine treatments available to patients.”
“Administrative personnel 1,714 1,766 1,714 project management 112,500 0 37,500 communications & media rel. 26,763 9,855 4,069 clinical research education 38,700 0 4,300 contractors 45,845 0 15,000 fundraising contractor 0 0 7,213 total 225,522 11,621 69,796”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 38946 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 162908 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 45000 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 100000 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | THE ARM FOUNDATION SERVES AS THE EDUCATIONAL AND INFORMATION RESOURCE ON ISSUES FUNDAMENTAL TO MAKING GENE AND CELL THERAPIES, TISSUE-ENGINEERED PRODUCTS AND OTHER REGENERATIVE MEDICINE TREATMENTS AVAILABLE TO PATIENTS. BY EXAMINING, QUANTIFYING, CLARIFYING AND INFORMING STAKEHOLDERS OF THE CLINICAL AND SOCIETAL BENEFITS OF THESE THERAPIES, AS WELL AS CONVENING DISCUSSIONS TO RAISE AWARENESS ABOUT THE SECTORS PROGRESS, CHALLENGES AND RESULTS, THE FOUNDATION ACCELERATES PATIENT ACCESS TO SAFE, EFFICACIOUS AND POTENTIALLY CURATIVE THERAPIES. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 1138 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 3825 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 49417 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 54380 |
| IRS990/AllOtherContributionsAmt | 0 | 670750 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | THOMAS DULA |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7038551301 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 800 17TH STREET NW |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WASHINGTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | DC |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 20006 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | true |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 66363 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 61868 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 14307 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 128766 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 143073 |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 378562 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 131323 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 1487 ZION CHURCH RD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 1340 SMITH AVE STE 200 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | SANFORD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | BALTIMORE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | NC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | MD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 27330 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 21209 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | CONDUIT HEALTH CORPORATION |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | ADJUVANT PARTNERS LLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | COMMUNICATIONS |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | MANAGEMENT |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 670750 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 744207 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -73457 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 744207 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 151604 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 670750 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | true |
| IRS990/Desc | 0 | GENE MEDICINE EDUCATION - A STRATEGIC COMMUNICATIONS PROGRAM DESIGNED TO INCREASE AWARENESS AND UNDERSTANDING OF CELL AND GENE THERAPIES AS TRANSFORMATIVE MEDICINES AND IMPORTANT THERAPEUTIC OPTIONS FOR TREATING DISEASE AND EQUIP PEOPLE TO MAKE INFORMED DECISIONS ABOUT CELL AND GENE MEDICINE. THIS INFORMATION IS MADE AVAILABLE TO PATIENTS, CAREGIVERS, PROVIDERS, AND THE GENERAL PUBLIC. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 204681 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 8375 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 8375 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 7067 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 7067 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 39600 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 40800 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 39600 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 120000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 69796 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 11621 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 225522 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 306939 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 20 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 21 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 22 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 23 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 24 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 19 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 20 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 21 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 22 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 23 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 24 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | NICOLE BOICE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | CINDY COLLINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | AMY DUROSS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ELLEN FEIGAL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ALISON FINGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DON GIBBONS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | KARIN HEHENBERGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | BRETT KOPELAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | BETHANY KRAYNACK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JANET LAMBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | LIN MACMASTER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ADRIAN MCKEMEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | MARIA MILLAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | DAVID NAGLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | STEWART PARKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | DENNIS PURCELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | BROCK REEVE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | MARTHA ROOK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | MORRIE RUFFIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | FRANK SASINOWSKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | ROBIN SMITH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | JENNIFER MOUND SMOTER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | MARSHALL SUMMAR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | PHIL VANEK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | CLAUDIA ZYLBERBERG |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | CONVENING OF PATIENT GROUP LEADERSHIP WORKSHOP FOR ROUGHLY 25 LEADERS FROM THE PATIENT COMMUNITY TO DISCUSS INITIATIVES TO HELP THEM EDUCATE THEIR CONSTITUENTS ABOUT THE BENEFITS OF CELL AND GENE MEDICINE. |
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| IRS990ScheduleA/FactsAndCircumstancesTestTxt | 0 | THE ARM FOUNDATION FOR REGENERATIVE MEDICINE EDUCATION AND RESEARCH, ALSO KNOWN AS THE ARM FOUNDATION FOR CELL & GENE MEDICINE OR THE ARM FOUNDATION, IS A 501C3 PUBLIC CHARITY. THE ARM FOUNDATION WAS INITIALLY ESTABLISHED IN DECEMBER 2013, BUT DID NOT BECOME OPERATIONAL UNTIL JANUARY 2018, AND THEREFORE HAS ONLY BEEN FUNDRAISING FOR TWO YEARS, AND HAS LIMITED ITS SCOPE OF FUNDRAISING TO PERSONS AND ORGANIZATIONS DEEMED MOST LIKELY TO CONTRIBUTE TO THE CURRENT PROGRAM OFFERINGS. AS THE ORGANIZATION GROWS, THERE WILL CONTINUE TO BE A FOCUS ON GROWING THE DONOR BASE AND CONTRIBUTION AMOUNTS PROPORTIONATELY TO SUPPORT EXPANDED PROGRAMMATIC OFFERINGS. IN ADDITION, THE ARM FOUNDATION MAINTAINS A CONTINUOUS AND BONA FIDE PROGRAM FOR SOLICITATION FOR FUNDS FROM THE GENERAL PUBLIC, OUR COMMUNITIES, FOUNDATIONS PUBLIC AND PRIVATE, AND OTHER PUBLIC CHARITIES. CONTRIBUTIONS THAT ARE INTENDED AS A DONATION, GIVEN VOLUNTARILY AND WITHOUT EXPECTATION OF CONSIDERATION, ARE SOLICITED AS GIFTS. THE CONTINUOUS AND BONA FIDE PROGRAM IS EVIDENCED AS FOLLOWS: - ALL CONTRACTORS OF THE ORGANIZATION WHO ARE RESPONSIBLE FOR PROGRAM DEVELOPMENT, OPERATIONS AND ADVISORY SERVICES ALSO AGREE TO PROVIDE CONTINUOUS AND BONA FIDE SOLICITATION OF CHARITABLE CONTRIBUTIONS FROM THE PUBLIC TO SUPPORT BOTH THE PROGRAMS AND THE ORGANIZATION AT-LARGE, AND THIS IS OUTLINED VIA A SCOPE OF WORK. - REGULARLY SCHEDULED MEETINGS OF THE BOARD OF DIRECTORS (2-3 MEETINGS/ YEAR) AND EXECUTIVE COMMITTEE (3-4 MEETINGS/YEAR) OF THE ORGANIZATION THROUGHOUT THE YEAR INCLUDE DISCUSSION, UPDATES, AND REQUEST FOR BOARD ASSISTANCE ON OPEN SOLICITATION OF CHARITABLE CONTRIBUTIONS. - FINANCIAL REPORTING TO THE BOARD OF DIRECTORS AND EXECUTIVE COMMITTEE IN REGULARLY SCHEDULED MEETINGS INCLUDE REPORTS ON SPECIFIC SUCCESSES AND FAILURES RESULTING FROM THE ARM FOUNDATIONS' CONTINUOUS SOLICITATION OF CONTRIBUTIONS AND GIFTS. - THE ARM FOUNDATION WEBSITE - THEARMFOUNDATION.ORG - HOSTS A PUBLICLY AVAILABLE LOCATION (HTTPS://WWW.THEARMFOUNDATION.ORG/DONATE) TO MAKE CONTRIBUTIONS BOTH LARGE AND SMALL USING A CREDIT CARD. USE OF THIS ON-LINE GIVING FUNCTION VARIES THROUGHOUT THE YEAR AS A RESULT OF SPECIFIC APPEALS, SCHEDULED AND UNSCHEDULED. THE SOURCES OF SUPPORT FOR THE ORGANIZATION ARE RECOGNIZED ON SLIDE SHOWS, PRINTED MEETING MATERIALS, WEBSITES, AND AUDIBLE DURING IN-PERSON AND VIRTUAL MEETINGS. THE ARM FOUNDATION HAS A GOVERNING BODY, ITS BOARD OF DIRECTORS, THAT REPRESENTS THE BROAD INTERESTS OF THE PUBLIC THROUGH ITS COMPOSITION. MEMBERS OF THE ARM FOUNDATION BOARD OF DIRECTORS REPRESENT THE CELL AND GENE MEDICINE AND BROADER REGENERATIVE MEDICINE COMMUNITY IN THE AREAS OF COMMUNICATIONS, INDUSTRY - BOTH BIOTECH AND PHARMACEUTICAL, SCIENTIFIC RESEARCH, MEDICINE, EDUCATION/ACADEMIA, NON-PROFIT, PATIENT ADVOCACY, HEALTH ECONOMICS, LAW AND SEVERAL OTHER AREAS OF EXPERTISE. THE ARM FOUNDATION PROVIDES EDUCATIONAL SERVICES DIRECTLY FOR THE BENEFIT OF THE GENERAL PUBLIC ON A CONTINUING BASIS THROUGHOUT THE YEAR BY MEANS OF FREELY ACCESSIBLE WEBSITES, AND NO-OR-LOW COST SEMINARS AND WEBINARS HOSTED BY THE FOUNDATION AND OUR NON-PROFIT PARTNERS. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | THE ARM FOUNDATION FOR REGENERATIVE MEDICINE EDUCATION AND RESEARCH, ALSO KNOWN AS THE ARM FOUNDATION FOR CELL & GENE MEDICINE OR THE ARM FOUNDATION, IS A 501C3 PUBLIC CHARITY. THE ARM FOUNDATION WAS INITIALLY ESTABLISHED IN DECEMBER 2013, BUT DID NOT BECOME OPERATIONAL UNTIL JANUARY 2018, AND THEREFORE HAS ONLY BEEN FUNDRAISING FOR TWO YEARS, AND HAS LIMITED ITS SCOPE OF FUNDRAISING TO PERSONS AND ORGANIZATIONS DEEMED MOST LIKELY TO CONTRIBUTE TO THE CURRENT PROGRAM OFFERINGS. AS THE ORGANIZATION GROWS, THERE WILL CONTINUE TO BE A FOCUS ON GROWING THE DONOR BASE AND CONTRIBUTION AMOUNTS PROPORTIONATELY TO SUPPORT EXPANDED PROGRAMMATIC OFFERINGS. IN ADDITION, THE ARM FOUNDATION MAINTAINS A CONTINUOUS AND BONA FIDE PROGRAM FOR SOLICITATION FOR FUNDS FROM THE GENERAL PUBLIC, OUR COMMUNITIES, FOUNDATIONS PUBLIC AND PRIVATE, AND OTHER PUBLIC CHARITIES. CONTRIBUTIONS THAT ARE INTENDED AS A DONATION, GIVEN VOLUNTARILY AND WITHOUT EXPECTATION OF CONSIDERATION, ARE SOLICITED AS GIFTS. THE CONTINUOUS AND BONA FIDE PROGRAM IS EVIDENCED AS FOLLOWS: - ALL CONTRACTORS OF THE ORGANIZATION WHO ARE RESPONSIBLE FOR PROGRAM DEVELOPMENT, OPERATIONS AND ADVISORY SERVICES ALSO AGREE TO PROVIDE CONTINUOUS AND BONA FIDE SOLICITATION OF CHARITABLE CONTRIBUTIONS FROM THE PUBLIC TO SUPPORT BOTH THE PROGRAMS AND THE ORGANIZATION AT-LARGE, AND THIS IS OUTLINED VIA A SCOPE OF WORK. - REGULARLY SCHEDULED MEETINGS OF THE BOARD OF DIRECTORS (2-3 MEETINGS/ YEAR) AND EXECUTIVE COMMITTEE (3-4 MEETINGS/YEAR) OF THE ORGANIZATION THROUGHOUT THE YEAR INCLUDE DISCUSSION, UPDATES, AND REQUEST FOR BOARD ASSISTANCE ON OPEN SOLICITATION OF CHARITABLE CONTRIBUTIONS. - FINANCIAL REPORTING TO THE BOARD OF DIRECTORS AND EXECUTIVE COMMITTEE IN REGULARLY SCHEDULED MEETINGS INCLUDE REPORTS ON SPECIFIC SUCCESSES AND FAILURES RESULTING FROM THE ARM FOUNDATIONS' CONTINUOUS SOLICITATION OF CONTRIBUTIONS AND GIFTS. - THE ARM FOUNDATION WEBSITE - THEARMFOUNDATION.ORG - HOSTS A PUBLICLY AVAILABLE LOCATION (HTTPS://WWW.THEARMFOUNDATION.ORG/DONATE) TO MAKE CONTRIBUTIONS BOTH LARGE AND SMALL USING A CREDIT CARD. USE OF THIS ON-LINE GIVING FUNCTION VARIES THROUGHOUT THE YEAR AS A RESULT OF SPECIFIC APPEALS, SCHEDULED AND UNSCHEDULED. THE SOURCES OF SUPPORT FOR THE ORGANIZATION ARE RECOGNIZED ON SLIDE SHOWS, PRINTED MEETING MATERIALS, WEBSITES, AND AUDIBLE DURING IN-PERSON AND VIRTUAL MEETINGS. THE ARM FOUNDATION HAS A GOVERNING BODY, ITS BOARD OF DIRECTORS, THAT REPRESENTS THE BROAD INTERESTS OF THE PUBLIC THROUGH ITS COMPOSITION. MEMBERS OF THE ARM FOUNDATION BOARD OF DIRECTORS REPRESENT THE CELL AND GENE MEDICINE AND BROADER REGENERATIVE MEDICINE COMMUNITY IN THE AREAS OF COMMUNICATIONS, INDUSTRY - BOTH BIOTECH AND PHARMACEUTICAL, SCIENTIFIC RESEARCH, MEDICINE, EDUCATION/ACADEMIA, NON-PROFIT, PATIENT ADVOCACY, HEALTH ECONOMICS, LAW AND SEVERAL OTHER AREAS OF EXPERTISE. THE ARM FOUNDATION PROVIDES EDUCATIONAL SERVICES DIRECTLY FOR THE BENEFIT OF THE GENERAL PUBLIC ON A CONTINUING BASIS THROUGHOUT THE YEAR BY MEANS OF FREELY ACCESSIBLE WEBSITES, AND NO-OR-LOW COST SEMINARS AND WEBINARS HOSTED BY THE FOUNDATION AND OUR NON-PROFIT PARTNERS. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 17A |
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| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine1Txt | 0 | ADJUVANT PARTNERS LLC |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE ARM FOUNDATION SERVES AS THE EDUCATIONAL AND INFORMATION RESOURCE ON ISSUES FUNDAMENTAL TO MAKING GENE AND CELL THERAPIES, TISSUE-ENGINEERED PRODUCTS AND OTHER REGENERATIVE MEDICINE TREATMENTS AVAILABLE TO PATIENTS. BY EXAMINING, QUANTIFYING, CLARIFYING AND INFORMING STAKEHOLDERS OF THE CLINICAL AND SOCIETAL BENEFITS OF THESE THERAPIES, AS WELL AS CONVENING DISCUSSIONS TO RAISE AWARENESS ABOUT THE SECTORS PROGRESS, CHALLENGES AND RESULTS, THE FOUNDATION ACCELERATES PATIENT ACCESS TO SAFE, EFFICACIOUS AND POTENTIALLY CURATIVE THERAPIES. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | EDUCATIONAL AND INFORMATION RESOURCE ON ISSUES FUNDAMENTAL TO MAKING GENE AND CELL THERAPIES, TISSUE-ENGINEERED PRODUCTS AND OTHER REGENERATIVE MEDICINE TREATMENTS AVAILABLE TO PATIENTS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | MANAGEMENT DELEGATED TO ADJUVANT PARTNERS, LLC. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | A COPY OF FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR, CHAIR, AND TREASURER PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | ADMINISTRATIVE PERSONNEL 1,714 1,766 1,714 PROJECT MANAGEMENT 112,500 0 37,500 COMMUNICATIONS & MEDIA REL. 26,763 9,855 4,069 CLINICAL RESEARCH EDUCATION 38,700 0 4,300 CONTRACTORS 45,845 0 15,000 FUNDRAISING CONTRACTOR 0 0 7,213 TOTAL 225,522 11,621 69,796 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 2, PART III, LINE 4D |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.