Civic Intelligence

Arm Foundation for Regenerative

EIN 30-0752401 • 501(c)3 • Baltimore, MD

Profile

The arm foundation serves as the educational and information resource on issues fundamental to making gene and cell therapies, tissue-engineered products and other regenerative medicine treatments available to patients. By examining, quantifying, clarifying and informing stakeholders of the clinical and societal benefits of these therapies, as well as convening discussions to raise awareness about the sectors progress, challenges and results, the foundation accelerates patient access to safe, efficacious and potentially curative therapies.

1340 Smith Avenue Suite 200Baltimore, MD 21209

thearmfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

78th percentile

0.09x

Higher debt load relative to assets than 78% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

91st percentile

0.44x

Higher debt load relative to revenue than 91% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

8th percentile

-126%

Higher net margin than 8% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2023

Asset Growth

31st percentile

-21%

Faster asset growth than 31% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

98th percentile

528%

Faster revenue growth than 98% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Assets

Down

$121,351

Down $32,780 (-21%) from 2022

Liabilities

Down

$11,082

Down $1,301 (-11%) from 2022

Net Assets

Down

$110,269

Down $31,479 (-22%) from 2022

Revenue

Up

$25,000

Up $21,016 (+528%) from 2022

Expenses

Down

$56,479

Down $12,831 (-19%) from 2022

Net Income

Up

-$31,479

Up $33,847 (+52%) from 2022

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0-$100KAssets 2018: $111,363Liabilities 2018: $38,946Net Assets 2018: $72,4172018Assets 2019: $161,868Liabilities 2019: $162,908Net Assets 2019: -$1,0402019Assets 2020: $392,496Liabilities 2020: $117,770Net Assets 2020: $274,7262020Assets 2021: $214,306Liabilities 2021: $7,232Net Assets 2021: $207,0742021Assets 2022: $154,131Liabilities 2022: $12,383Net Assets 2022: $141,7482022Assets 2023: $121,351Liabilities 2023: $11,082Net Assets 2023: $110,2692023

Highlighted filing

2023

Assets$121,351
Liabilities$11,082
Net Assets$110,269

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2018: $319,913Expenses 2018: $322,496Net Income 2018: -$2,5832018Revenue 2019: $670,750Expenses 2019: $744,207Net Income 2019: -$73,4572019Revenue 2020: $959,071Expenses 2020: $683,305Net Income 2020: $275,7662020Revenue 2021: $493,318Expenses 2021: $560,970Net Income 2021: -$67,6522021Revenue 2022: $3,984Expenses 2022: $69,310Net Income 2022: -$65,3262022Revenue 2023: $25,000Expenses 2023: $56,479Net Income 2023: -$31,4792023

Highlighted filing

2023

Revenue$25,000
Expenses$56,479
Net Income-$31,479

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Oct 17, 2024
Return Version
2023v5.0
Gross Receipts
$25,000
Mission and Program Overview

Mission

The arm foundation serves as the educational and information resource on issues fundamental to making gene and cell therapies, tissue-engineered products and other regenerative medicine treatments available to patients. By examining, quantifying, clarifying and informing stakeholders of the clinical and societal benefits of these therapies, as well as convening discussions to raise awareness about the sectors progress, challenges and results, the foundation accelerates patient access to safe, efficacious and potentially curative therapies.

Program Services

DescriptionGrantsExpenses
GENE MEDICINE EDUCATION - A STRATEGIC COMMUNICATIONS PROGRAM DESIGNED TO INCREASE AWARENESS AND UNDERSTANDING OF CELL AND GENE THERAPIES AS TRANSFORMATIVE MEDICINES AND IMPORTANT THERAPEUTIC OPTIONS FOR TREATING DISEASE AND EQUIP PEOPLE TO MAKE INFORMED DECISIONS ABOUT CELL AND GENE MEDICINE. THIS INFORMATION IS MADE AVAILABLE TO PATIENTS, CAREGIVERS, PROVIDERS, AND THE GENERAL PUBLIC.-$14,622
EDUCATIONAL AND INFORMATION RESOURCE ON ISSUES FUNDAMENTAL TO MAKING GENE AND CELL THERAPIES, TISSUE-ENGINEERED PRODUCTS AND OTHER REGENERATIVE MEDICINE TREATMENTS AVAILABLE TO PATIENTS.-$3,432
HEALTH & ECONOMIC IMPACT ANALYSIS - DEVELOP AN IN-DEPTH ANALYSIS OF CELL AND GENE THERAPY AND OTHER REGENERATIVE MEDICINES ON THE NATIONAL AND INTERNATIONAL HEALTHCARE ECONOMIES TO SUPPORT MARKET ACCESS INITIATIVES AND PUBLIC AWARENESS. COMMUNICATING THE SOCIETAL AND ECONOMIC VALUE OF RM THERAPIES THROUGH DATA REPORTING AND STRATEGIC ENGAGEMENT WITH HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC.-$1,534
CONVENING OF PATIENT GROUP LEADERSHIP WORKSHOP FOR ROUGHLY 25 LEADERS FROM THE PATIENT COMMUNITY TO DISCUSS INITIATIVES TO HELP THEM EDUCATE THEIR CONSTITUENTS ABOUT THE BENEFITS OF CELL AND GENE MEDICINE.-$1,263
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
BRETT KOPELANChair-$0--
MARTHA ROOKTreasurer-$0--
ADRIAN MCKEMEYSecretary-$0--
NICOLE BOICEDirector-$0--
SARAH CREVISTONDirector-$0--
JILL ELLIOTTDirector-$0--
ELLEN FEIGALDirector-$0--
PAT FURLONGDirector-$0--
DON GIBBONSDirector-$0--
CHRISTINA HARTMANDirector-$0--
MICHAEL MAYDirector-$0--
MARIA MILLANDirector-$0--
DAVID NAGLERDirector-$0--
EMILE NUWAYSIRDirector-$0--
STEWART PARKERDirector-$0--
DENNIS PURCELLDirector-$0--
BROCK REEVEDirector-$0--
MORRIE RUFFINDirector-$0--
DAVID SMITHDirector-$0--
ROBERT SMITHDirector-$0--
PHIL VANEKDirector-$0--
JAMES VALENTINEDirector-$0--
MICHAEL WERNERDirector-$0--
CLAUDIA ZYLBERBERGDirector-$0--
Filing and Contact Details

Filer

Filer Name
Arm Foundation for Regenerative
EIN
30-0752401
Phone
2023453675
Address
1340 SMITH AVENUE SUITE 200, BALTIMORE, MD 21209

Signing Officer

Name
Brett Kopelan
Title
Chair
Phone
2023453675
Signed
2024-10-17
Discuss with paid preparer
Yes

Preparer

Firm
Kullman CPA LLC
Address
888 BESTGATE ROAD SUITE 316, ANNAPOLIS, MD 21401
Preparer
Stephen J Kullman CPA
Phone
4102669885
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16

Expenses advertising & marketing 479 general administrative ex 595 information technology ex 21,215 insurance 8,202 miscellaneous expenses 2,048 payroll processing 7,157 total 39,696

Form 990-ez, Part II, Line 26

Accounts payable and accrued expenses 5,151 3,850 401k payable 7,232 7,232

Form 990-ez, Part III

The arm foundation serves as the educational and information resource on issues fundamental to making gene and cell therapies, tissue-engineered products and other regenerative medicine treatments available to patients. By examining, quantifying, clarifying and informing stakeholders of the clinical and societal benefits of these therapies, as well as convening discussions to raise awareness about the sectors progress, challenges and results, the foundation accelerates patient access to safe, efficacious and potentially curative therapies.

Form 990-ez, Part III, Line 28

Gene medicine education - a strategic communications program designed to increase awareness and understanding of cell and gene therapies as transformative medicines and important therapeutic options for treating disease and equip people to make informed decisions about cell and gene medicine. This information is made available to patients, caregivers, providers, and the general public.

Form 990-ez, Part III, Line 30

Health & economic impact analysis - develop an in-depth analysis of cell and gene therapy and other regenerative medicines on the national and international healthcare economies to support market access initiatives and public awareness. Communicating the societal and economic value of rm therapies through data reporting and strategic engagement with healthcare providers and the general public.

Form 990-ez, Part III, Line 31

Convening of patient group leadership workshop for roughly 25 leaders from the patient community to discuss initiatives to help them educate their constituents about the benefits of cell and gene medicine.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE ARM FOUNDATION SERVES AS THE EDUCATIONAL AND INFORMATION RESOURCE ON ISSUES FUNDAMENTAL TO MAKING GENE AND CELL THERAPIES, TISSUE-ENGINEERED PRODUCTS AND OTHER REGENERATIVE MEDICINE TREATMENTS AVAILABLE TO PATIENTS. BY EXAMINING, QUANTIFYING, CLARIFYING AND INFORMING STAKEHOLDERS OF THE CLINICAL AND SOCIETAL BENEFITS OF THESE THERAPIES, AS WELL AS CONVENING DISCUSSIONS TO RAISE AWARENESS ABOUT THE SECTORS PROGRESS, CHALLENGES AND RESULTS, THE FOUNDATION ACCELERATES PATIENT ACCESS TO SAFE, EFFICACIOUS AND POTENTIALLY CURATIVE THERAPIES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3GENE MEDICINE EDUCATION - A STRATEGIC COMMUNICATIONS PROGRAM DESIGNED TO INCREASE AWARENESS AND UNDERSTANDING OF CELL AND GENE THERAPIES AS TRANSFORMATIVE MEDICINES AND IMPORTANT THERAPEUTIC OPTIONS FOR TREATING DISEASE AND EQUIP PEOPLE TO MAKE INFORMED DECISIONS ABOUT CELL AND GENE MEDICINE. THIS INFORMATION IS MADE AVAILABLE TO PATIENTS, CAREGIVERS, PROVIDERS, AND THE GENERAL PUBLIC.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4HEALTH & ECONOMIC IMPACT ANALYSIS - DEVELOP AN IN-DEPTH ANALYSIS OF CELL AND GENE THERAPY AND OTHER REGENERATIVE MEDICINES ON THE NATIONAL AND INTERNATIONAL HEALTHCARE ECONOMIES TO SUPPORT MARKET ACCESS INITIATIVES AND PUBLIC AWARENESS. COMMUNICATING THE SOCIETAL AND ECONOMIC VALUE OF RM THERAPIES THROUGH DATA REPORTING AND STRATEGIC ENGAGEMENT WITH HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5CONVENING OF PATIENT GROUP LEADERSHIP WORKSHOP FOR ROUGHLY 25 LEADERS FROM THE PATIENT COMMUNITY TO DISCUSS INITIATIVES TO HELP THEM EDUCATE THEIR CONSTITUENTS ABOUT THE BENEFITS OF CELL AND GENE MEDICINE.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART II, LINE 26
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART III
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990-EZ, PART III, LINE 28
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990-EZ, PART III, LINE 30
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990-EZ, PART III, LINE 31
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