Liabilities / Assets
29th percentile
Higher debt load relative to assets than 29% of similar nonprofits.
990 • Fiscal year 2019 • EIN 27-2906662
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
29th percentile
Higher debt load relative to assets than 29% of similar nonprofits.
Liabilities / Revenue
29th percentile
Higher debt load relative to revenue than 29% of similar nonprofits.
Net Margin
77th percentile
Higher net margin than 77% of similar nonprofits.
Top Officer Pay
50th percentile
Higher top officer pay than 50% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
77th percentile
Faster asset growth than 77% of similar nonprofits.
Revenue Growth
95th percentile
Faster revenue growth than 95% of similar nonprofits.
Assets
Up$574,956
Up $95,833 (+20%) from 2018
Net Assets
Up$574,613
Up $97,083 (+20%) from 2018
Liabilities
Down$343
Down $1,250 (-78%) from 2018
Revenue
Up$471,753
Up $282,826 (+150%) from 2018
Expenses
Up$374,670
Up $213,384 (+132%) from 2018
Net Income
Up$97,083
Up $69,442 (+251%) from 2018
To support research to improve knowledge and understanding of smith-magenis syndrome so that viable therapeutic options can be developed in order to improve the quality of life for those with smith-magenis syndrome.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $476,785 | $573,682 | ▲ $96,897 |
| Land, Buildings, and Equipment, Net | $2,338 | $1,274 | ▼ $1,064 |
| Savings and Temporary Cash Investments | - | $0 | - |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $479,123 | $574,956 | ▲ $95,833 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Other Liabilities | $1,593 | $343 | ▼ $1,250 |
| Total Liabilities | $1,593 | $343 | ▼ $1,250 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $477,530 | $574,613 | ▲ $97,083 |
| Total Net Assets Fund Balance | $477,530 | $574,613 | ▲ $97,083 |
| Total Liabilities and Net Assets / Fund Balance | $479,123 | $574,956 | ▲ $95,833 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $1,274 | $10,854 | $12,128 |
| Name | Title |
|---|---|
| Jennifer Iannuzzi | President |
| Christopher Iannuzzi | Vice President |
| Melissa Longman | Vice President |
| Paul Diamond | Vice President |
| Laura Staich | Director |
| Michael Kingston | Director |
| Susan Diamond | Director |
| Daniel Longman | CFO |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $331,000 |
| Other Expenses | $43,670 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $331,000 | - | - | $331,000 |
| Fees for Services Other | - | $10,354 | - | $10,354 |
| Advertising | - | $8,581 | - | $8,581 |
| Travel | - | $6,522 | - | $6,522 |
| Conferences and Meetings | - | $4,977 | - | $4,977 |
| Fees for Services Accounting | - | $1,805 | - | $1,805 |
| All Other Expenses | - | $1,291 | - | $1,291 |
| Depreciation Depletion | - | $1,064 | - | $1,064 |
| Insurance | - | $980 | - | $980 |
| Other Expenses | - | $743 | - | $743 |
| Office Expenses | - | $248 | - | $248 |
| Total Functional Expenses | $331,000 | $43,670 | $0 | $374,670 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Baylor College of Medicine | Houston, TX, CA | - | Medical Research | $250,000 |
| McGILL UNIVERSITY | - | - | Medical Research | $81,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $89,836 |
| Fundraising Direct Expenses | $9,324 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| La Walk CA | $26,738 | $26,738 | $2,467 | $24,271 |
| 2019 June Appeal Fl | $17,741 | $17,741 | - | $17,741 |
| Total Events | $86,243 | $86,243 | $9,324 | $76,919 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Credit Card Liabilities | $343 |
“Melissa longman and daniel longman are husband and wifejennifer iannuzzi and christopher iannuzzi are husband and wifepaul diamond and susan diamond are husband and wife”
“A copy of the form 990 is sent to all board members for review before filing.”
“The form 990 and all related financial and policy information are made available to the public upon written request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO SUPPORT RESEARCH TO IMPROVE KNOWLEDGE AND UNDERSTANDING OF SMITH-MAGENIS SYNDROME SO THAT VIABLE THERAPEUTIC OPTIONS CAN BE DEVELOPED IN ORDER TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH SMITH-MAGENIS SYNDROME. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 8581 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 8581 |
| IRS990/AllOtherContributionsAmt | 0 | 391241 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1291 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 1291 |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | DANIEL LONGMAN |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9544505445 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2768 MEADOWOOD DRIVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WESTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 33332 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 476785 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 573682 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 4977 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 4977 |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 391241 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 331000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 43670 |
| IRS990/CYOtherRevenueAmt | 0 | 80512 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 97083 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 374670 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 471753 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1064 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 1064 |
| IRS990/Desc | 0 | MEDICAL RESEARCH GRANT TO BAYLOR UNIVERSITY IN ORDER TO IMPROVE KNOWLEDGE AND UNDERSTANDING OF SMITH-MAGENIS SYNDROME SO THAT VIABLE THERAPEUTIC OPTIONS CAN BE DEVELOPED IN ORDER TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH SMITH-MAGENIS SYNDROME. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 250000 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 1805 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 1805 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 10354 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 10354 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MELISSA LONGMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DANIEL LONGMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JENNIFER IANNUZZI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHRISTOPHER IANNUZZI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | PAUL DIAMOND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SUSAN DIAMOND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MICHAEL KINGSTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | LAURA STAICH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CFO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2010 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 9324 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 89836 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 331000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 331000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 481077 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 980 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 980 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 10854 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 2338 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 1274 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 12128 |
| IRS990/LegalDomicileStateCd | 0 | FL |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | false |
| IRS990/MissionDesc | 0 | TO SUPPORT RESEARCH TO IMPROVE KNOWLEDGE AND UNDERSTANDING OF SMITH-MAGENIS SYNDROME SO THAT VIABLE THERAPEUTIC OPTIONS CAN BE DEVELOPED IN ORDER TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH SMITH-MAGENIS SYNDROME. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 477530 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 574613 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 80512 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 477530 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 574613 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 248 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 248 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | COMPUTER SERVICES |
| IRS990/OtherExpensesGrp/Desc | 1 | CREDIT CARD PROCESSING FEE |
| IRS990/OtherExpensesGrp/Desc | 2 | STAFFING FEE |
| IRS990/OtherExpensesGrp/Desc | 3 | WEBSITE FEES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3032 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2729 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 1344 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 743 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 3032 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 2729 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1344 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 743 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 1593 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 343 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 0 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | DANIEL LONGMAN |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | MEDICAL RESEARCH GRANT TO McGILL UNIVERSITY IN ORDER TO IMPROVE KNOWLEDGE AND UNDERSTANDING OF SMITH-MAGENIS SYNDROME SO THAT VIABLE THERAPEUTIC OPTIONS CAN BE DEVELOPED IN ORDER TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH SMITH-MAGENIS SYNDROME. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 81000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 65482 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 125000 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 36286 |
| IRS990/PYOtherRevenueAmt | 0 | 123445 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 27641 |
| IRS990/PYTotalExpensesAmt | 0 | 161286 |
| IRS990/PYTotalRevenueAmt | 0 | 188927 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 97083 |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 481076 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 204867 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 292228 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 290371 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 235689 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1504231 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1504231 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 481076 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 204867 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 292228 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 290371 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 235689 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1504231 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1504231 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 1274 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 10854 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 12128 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 343 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | CREDIT CARD LIABILITIES |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 1274 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 343 |
| IRS990ScheduleG/AgrmtProfFundraisingActyInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 9324 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | LA WALK CA |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | 2019 JUNE APPEAL FL |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 26738 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 17741 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 41764 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 86243 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 26738 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 17741 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 41764 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 86243 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 76919 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 6857 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 9324 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 2467 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 3 |
| IRS990ScheduleG/LicensedStatesCd | 0 | CA |
| IRS990ScheduleG/LicensedStatesCd | 1 | CT |
| IRS990ScheduleG/SpecialFundraisingEventsInd | 0 | X |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | false |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 250000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 81000 |
| IRS990ScheduleI/RecipientTable/ForeignAddress/AddressLine1Txt | 0 | 845 SHERBROOKE ST W |
| IRS990ScheduleI/RecipientTable/ForeignAddress/CityNm | 0 | MONTREAL |
| IRS990ScheduleI/RecipientTable/ForeignAddress/CountryCd | 0 | CA |
| IRS990ScheduleI/RecipientTable/ForeignAddress/ForeignPostalCd | 0 | H3A OG4 |
| IRS990ScheduleI/RecipientTable/ForeignAddress/ProvinceOrStateNm | 0 | QUEBEC |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | BAYLOR COLLEGE OF MEDICINE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | McGILL UNIVERSITY |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | PO BOX 201361 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | HOUSTON |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 77216 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 0 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 2 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | MELISSA LONGMAN AND DANIEL LONGMAN ARE HUSBAND AND WIFEJENNIFER IANNUZZI AND CHRISTOPHER IANNUZZI ARE HUSBAND AND WIFEPAUL DIAMOND AND SUSAN DIAMOND ARE HUSBAND AND WIFE |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | A COPY OF THE FORM 990 IS SENT TO ALL BOARD MEMBERS FOR REVIEW BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE FORM 990 AND ALL RELATED FINANCIAL AND POLICY INFORMATION ARE MADE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Line 11b: Form 990 Review Process |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Line 19: Other Organization Documents Publicly Available |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 1 | CT |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 479123 |
| IRS990/TotalAssetsEOYAmt | 0 | 574956 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 479123 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 574956 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 391241 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 43670 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 331000 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 374670 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 1593 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 343 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 1593 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 343 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 477530 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 574613 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 331000 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 471753 |
| IRS990/TotalVolunteersCnt | 0 | 40 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.