Civic Intelligence

International Foundation for Cdkl5 Research

990 • Fiscal year 2016 • EIN 27-0950477

Jan 01, 2016 to Dec 31, 2016 • Filed on Jan 08, 2018

Organization Profilewww.cdkl5.com
P O Box 926Wadsworth, OH 44282

(979) 265-3411

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.02x

Higher debt load relative to assets than 45% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Liabilities / Revenue

53rd percentile

0.05x

Higher debt load relative to revenue than 53% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Net Margin

5th percentile

-69%

Higher net margin than 5% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Asset Growth

7th percentile

-25%

Faster asset growth than 7% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Revenue Growth

86th percentile

46%

Faster revenue growth than 86% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets45th percentile

Assets

Down

$806,546

Down $274,132 (-25%) from 2015

Net Assets

Down

$786,546

Down $294,132 (-27%) from 2015

Liabilities

Up

$20,000

Up $20,000 from 2015

Revenue And Expenses
Liabilities / Revenue53rd percentileNet Margin5th percentile

Revenue

Up

$431,749

Up $136,682 (+46%) from 2015

Expenses

Up

$730,686

Up $329,654 (+82%) from 2015

Net Income

Down

-$298,937

Down $192,972 (-182%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth7th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2010: $142,496Net Assets 2010: $142,4962010Assets 2011: $363,636Liabilities 2011: $0Net Assets 2011: $363,6362011Assets 2012: $532,481Liabilities 2012: $25,970Net Assets 2012: $506,5112012Assets 2013: $741,346Liabilities 2013: $83,290Net Assets 2013: $658,0562013Assets 2014: $1,182,785Liabilities 2014: $10,000Net Assets 2014: $1,172,7852014Assets 2015: $1,080,678Liabilities 2015: $0Net Assets 2015: $1,080,6782015Assets 2016: $806,546Liabilities 2016: $20,000Net Assets 2016: $786,5462016Assets 2017: $913,861Liabilities 2017: $29,924Net Assets 2017: $883,9372017Assets 2018: $649,889Liabilities 2018: $90,508Net Assets 2018: $559,3812018Assets 2019: $329,464Liabilities 2019: $3,280Net Assets 2019: $326,1842019Assets 2020: $415,038Liabilities 2020: $156,414Net Assets 2020: $258,6242020Assets 2021: $544,139Liabilities 2021: $107,751Net Assets 2021: $436,3882021Assets 2022: $631,046Liabilities 2022: $312,257Net Assets 2022: $318,7892022Assets 2023: $761,142Liabilities 2023: $196,191Net Assets 2023: $564,9512023Assets 2024: $976,798Liabilities 2024: $12,536Net Assets 2024: $964,2622024

Highlighted filing

2016

Assets$806,546
Liabilities$20,000
Net Assets$786,546
Open 2016 Filing

Operations Trend

Revenue Growth86th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2010: $144,316Expenses 2010: $1,820Net Income 2010: $142,4962010Expenses 2011: $106,9162011Expenses 2012: $155,7582012Revenue 2013: $296,348Expenses 2013: $151,278Net Income 2013: $145,0702013Revenue 2014: $740,737Expenses 2014: $237,605Net Income 2014: $503,1322014Revenue 2015: $295,067Expenses 2015: $401,032Net Income 2015: -$105,9652015Revenue 2016: $431,749Expenses 2016: $730,686Net Income 2016: -$298,9372016Revenue 2017: $327,200Expenses 2017: $260,632Net Income 2017: $66,5682017Revenue 2018: $490,009Expenses 2018: $807,652Net Income 2018: -$317,6432018Revenue 2019: $462,544Expenses 2019: $720,098Net Income 2019: -$257,5542019Revenue 2020: $635,334Expenses 2020: $699,706Net Income 2020: -$64,3722020Revenue 2021: $678,047Expenses 2021: $487,865Net Income 2021: $190,1822021Revenue 2022: $606,589Expenses 2022: $725,710Net Income 2022: -$119,1212022Revenue 2023: $639,182Expenses 2023: $414,598Net Income 2023: $224,5842023Revenue 2024: $716,340Expenses 2024: $357,011Net Income 2024: $359,3292024

Highlighted filing

2016

Revenue$431,749
Expenses$730,686
Net Income-$298,937
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jan 8, 2018
Return Version
2016v3.0
Gross Receipts
$480,312
Mission and Program Overview

Mission

To fund research aimed at finding

To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$865,643$452,361▼ $413,282
Cash and Non-Interest-Bearing Accounts$137,752$255,796▲ $118,044
Investments in Publicly Traded Securities$77,283$97,389▲ $20,106
Pledges and Grants Receivable-$1,000-
Total Assets$1,080,678$806,546▼ $274,132
Liabilities
Accounts Payable and Accrued Expenses-$20,000-
Total Liabilities$0$20,000▲ $20,000
Net Assets / Fund Balance
Unrestricted Net Assets$1,080,678$786,546▼ $294,132
Total Net Assets Fund Balance$1,080,678$786,546▼ $294,132
Total Liabilities and Net Assets / Fund Balance$1,080,678$806,546▼ $274,132
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
Katheryn Elibri FramePresident
Amanda JakshaDirector
Kelly BarnesDirector
Megan StrokDirector
Miriam Blase ChurginDirector
Rick UppDirector
Melissa RalstonSecretary
Karen UtleyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$406,107
Program Service Revenue
$16,858
Investment Income
$8,784
Other Revenue
$0
All Other Contributions
$405,738
Change in Net Assets
$-298,937

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table45$25,337Retail Value
Total Noncash Contributions45$25,337-

Audited Revenue Reconciliation

Revenue per Audited Statements
$479,347
Revenue Not Reported on Financial Statements
$-47,598
Revenue Not Reported on Form 990
$311,805
Other Revenue Adjustments
$-47,598
Total Revenue per Audited Statements
$791,152
Total Revenue per Form 990
$431,749
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$661,856
Other Expenses$68,830
Total Fundraising Expense$5,799
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$524,356--$524,356
Foreign Grants$137,500--$137,500
Conferences and Meetings$37,474$0$0$37,474
All Other Expenses$8,252$1,261$5,077$14,590
Fees for Services Accounting$3,500$0$0$3,500
Other Expenses$2,858$0$0$2,858
Insurance$1,465$294$722$2,481
Fees for Services Legal$2,400$0$0$2,400
Office Expenses$1,140$0$0$1,140
Total Functional Expenses$719,068$5,819$5,799$730,686

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,085,284
Expenses per Audited Statements$730,686
Total Expenses per Form 990$730,686
Expenses Not Reported on Form 990$354,598
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PennsylvaniaPhiladelphia, PA-Research$210,500
Regents Univ of CAOakland, CA-Research$100,000
Psychogenics IncNew York, NY-Research$99,500
Boston Children's HospitalBoston, MA-Research$45,000
Int'l Rett SyndromeCincinnati, OH-Research$25,000
Purdue UniversityWest Lafayette, IN-Research$21,016
University of ColoradoDenver, CO-Research$15,000
Jaxon LabsBar Harbor, ME-Research$8,340

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$47,598
Fundraising Gross Income$47,598
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Biyala$18,092$5,526$5,526$0
Froy$24,951$2,057$2,057$0
Total Events$149,924$47,598$47,598-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
International Foundation For CDKL5 Research
EIN
27-0950477
Phone
9792653411
Address
P O Box 926, Wadsworth, OH 44282

Signing Officer

Name
Karen Utley
Title
Treasurer
Phone
9792653411
Signed
2018-01-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Karen Utley
Formed
2009
Legal Domicile
Oh
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
12

Preparer

Firm
Judy L Arfa CPA
Address
4265 SAN FELIPE 1100, HOUSTON, TX 77027
Preparer
Judy L Arfa CPA
Phone
7132403315
Supplemental Narrative

Additional Explanations

Pt VI, Line 6

“The Organization has members that pay a fee and are”

Pt VI, Line 6

“entitled to serve on special advisory Boards and”

Pt VI, Line 6

“committees.”

Pt VI, Line 11B

“The form is reviewed by the Board Treasurer and other”

Pt VI, Line 11B

“members of the Board. All questions are reviewed to make”

Pt VI, Line 11B

“certain that there are no incorrect answers.”

Pt VI, Line 12C

“Questionnaires are required to be completed by all”

Pt VI, Line 12C

“Board members annually. Should there be reasons for”

Pt VI, Line 12C

“concern, there is a detailed review of all”

Pt VI, Line 12C

“transactions that appear to be a cause for concern.”

Pt VI, Line 19

“Upon request, they are provided to grantors, contributors,”

Pt VI, Line 19

“and Board members.”

Pt XI

“Value of Volunteer Services $307,000”

Form 990EZ, Part I, Line 16

“Bank Fees”

Form 990EZ, Part I, Line 16

“Federal Fees”

Form 990EZ, Part I, Line 16

“Accounting Fees”

Form 990EZ, Part I, Line 16

“State Registration Fees”

Form 990EZ, Part I, Line 16

“Office Expense”

Form 990, Part IX, Line 24E

“Family Support 153. 153. 0. 0.”

Form 990, Part IX, Line 24E

“Operations 769. 769. 0. 0.”

Form 990, Part IX, Line 24E

“Printing 813. 813. 0. 0.”

Form 990, Part IX, Line 24E

“Telephone 3716. 2229. 372. 1115.”

Form 990, Part IX, Line 24E

“Volunteer Expenses 327. 327. 0. 0.”

Form 990, Part IX, Line 24E

“Memberships & Dues 200. 0. 200. 0.”

Form 990, Part IX, Line 24E

“Donor Management 8612. 3961. 689. 3962.”

Financial Statement Notes

Pt XI, Line 4B

“Fundraising Expenses $47,598”

Pt XII, Line 2D

“Fundraising Expenses $47,598”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0865643
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0452361
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0Other Income Part II, Line 10 Description: Sales of Merchandise 2012: 5695. 2013: 9617. 2014: 6594. 2015: 3282. 2016: 7054. Description: Cost of Goods Sold 2012: -2320. 2013: -5761. 2014: -3975. 2015: -6849. 2016: -965.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0Pt II Ln 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0406107
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0294935
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0734812
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0290262
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0289808
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02015924
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt02695
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt03699
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt03306
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt02230
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt02106
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt014036
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt049100
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt06089
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0-3567
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt02619
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt03856
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt03375
IRS990ScheduleA/OtherIncome170Grp/TotalAmt012372
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.69150
IRS990ScheduleA/PublicSupportCY509Pct00
IRS990ScheduleA/PublicSupportPY170Pct00.66750
IRS990ScheduleA/PublicSupportTotal170Amt01412356
IRS990ScheduleA/PublicSupportTotal509Amt00
IRS990ScheduleA/SubstantialContributorsTotAmt0603568
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0406107
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0294935
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0734812
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0290262
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0289808
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02015924
IRS990ScheduleA/TotalSupportAmt02042332
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0307000
IRS990ScheduleD/DonatedServicesUseFcltsAmt0307000
IRS990ScheduleD/ExpensesNotReportedAmt0354598
IRS990ScheduleD/ExpensesSubtotalAmt0730686
IRS990ScheduleD/NetUnrealizedGainsInvstAmt04805
IRS990ScheduleD/OtherExpensesIncludedAmt047598
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-47598
IRS990ScheduleD/RevenueNotReportedAmt0311805
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-47598
IRS990ScheduleD/RevenueSubtotalAmt0479347
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Fundraising Expenses $47,598
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1Fundraising Expenses $47,598
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt XI, Line 4b
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1Pt XII, Line 2d
IRS990ScheduleD/TotalExpensesPerForm990Amt0730686
IRS990ScheduleD/TotalRevenuePerForm990Amt0431749
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0791152
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01085284
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt045000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt137500
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt230000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt325000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0Check
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1Check
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt2Check
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt3Check
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt2Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt3Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0East Asia and Pacific
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1Europe
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt2East Asia and Pacific
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt3Europe
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/Total501c3OrgCnt04
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0102326
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt012566
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt022894
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt066866
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt047598
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0Biyala
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0Froy
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt018092
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt024951
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt0106881
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0149924
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt05526
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt02057
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt040015
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt047598
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt040015
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt047598
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt05526
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt02057
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt03
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0100000
IRS990ScheduleI/RecipientTable/CashGrantAmt1210500
IRS990ScheduleI/RecipientTable/CashGrantAmt215000
IRS990ScheduleI/RecipientTable/CashGrantAmt345000
IRS990ScheduleI/RecipientTable/CashGrantAmt425000
IRS990ScheduleI/RecipientTable/CashGrantAmt521016
IRS990ScheduleI/RecipientTable/CashGrantAmt699500
IRS990ScheduleI/RecipientTable/CashGrantAmt78340
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc0N/A
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc1N/A
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc2N/A
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc3N/A
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc4N/A
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc5N/A
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc6N/A
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc7N/A
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt6Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt7Research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Regents Univ of CA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of Pennsylvania
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2University of Colorado
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Boston Children's Hospital
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Int'l Rett Syndrome
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5Purdue University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6Psychogenics Inc
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt7Jaxon Labs
IRS990ScheduleI/RecipientTable/RecipientEIN0943067788
IRS990ScheduleI/RecipientTable/RecipientEIN1231352685
IRS990ScheduleI/RecipientTable/RecipientEIN2846000555
IRS990ScheduleI/RecipientTable/RecipientEIN3042774441
IRS990ScheduleI/RecipientTable/RecipientEIN4311682518
IRS990ScheduleI/RecipientTable/RecipientEIN5356002041
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01111 Franklin St
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt13451 Walnut St
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2P O Box 910238
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3300 Longwood Avenue
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt44600 Devitt Drive
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5155 S Grant Street
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt6257 Park Avenue South 7th Floor
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt7610 Main Street
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Oakland
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Philadelphia
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Denver
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Boston
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Cincinnati
IRS990ScheduleI/RecipientTable/USAddress/CityNm5West Lafayette
IRS990ScheduleI/RecipientTable/USAddress/CityNm6New York
IRS990ScheduleI/RecipientTable/USAddress/CityNm7Bar Harbor
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CA

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$806,546
Liabilities
$20,000
Net assets
$786,546
Revenue
$431,749
Expenses
$730,686
Net income
-$298,937
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.98$0.01$0.96$0.72$0.36$0.36
2023Detailed filing. Detailed filing data is available for this year.$0.76$0.20$0.56$0.64$0.41$0.22
2022Detailed filing. Detailed filing data is available for this year.$0.63$0.31$0.32$0.61$0.73$0.12
2021Detailed filing. Detailed filing data is available for this year.$0.54$0.11$0.44$0.68$0.49$0.19
2020Detailed filing. Detailed filing data is available for this year.$0.42$0.16$0.26$0.64$0.70$0.06
2019Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.33$0.46$0.72$0.26
2018Detailed filing. Detailed filing data is available for this year.$0.65$0.09$0.56$0.49$0.81$0.32
2017Detailed filing. Detailed filing data is available for this year.$0.91$0.03$0.88$0.33$0.26$0.07
2016Detailed filing. Detailed filing data is available for this year.$0.81$0.02$0.79$0.43$0.73$0.30
2015Detailed filing. Detailed filing data is available for this year.$1.08$0.00$1.08$0.30$0.40$0.11
2014Detailed filing. Detailed filing data is available for this year.$1.18$0.01$1.17$0.74$0.24$0.50
2013Detailed filing. Detailed filing data is available for this year.$0.74$0.08$0.66$0.30$0.15$0.15
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.53$0.03$0.51$0.16
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.36$0.00$0.36$0.11
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.14$0.14$0.14$0.00$0.14