Liabilities / Assets
26th percentile
Higher debt load relative to assets than 26% of similar nonprofits.
990 • Fiscal year 2020 • EIN 26-1195248
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
26th percentile
Higher debt load relative to assets than 26% of similar nonprofits.
Liabilities / Revenue
26th percentile
Higher debt load relative to revenue than 26% of similar nonprofits.
Net Margin
69th percentile
Higher net margin than 69% of similar nonprofits.
Top Officer Pay
79th percentile
Higher top officer pay than 79% of similar nonprofits.
Top officer pay equals 16.2% of source-year revenue.
Asset Growth
59th percentile
Faster asset growth than 59% of similar nonprofits.
Revenue Growth
30th percentile
Faster revenue growth than 30% of similar nonprofits.
Assets
Up$1,673,339
Up $151,993 (+10.0%) from 2019
Net Assets
Up$1,655,817
Up $134,471 (+8.8%) from 2019
Liabilities
Up$17,522
Up $17,522 from 2019
Revenue
Down$790,110
Down $117,065 (-13%) from 2019
Expenses
Down$660,456
Down $115,570 (-15%) from 2019
Net Income
Down$129,654
Down $1,495 (-1.1%) from 2019
The mission of the Foundation is to dramatically improve the lives of people living with peripheral neuropathy. It is focused on discovering more effective treatment options and finding a cure for peripheral neuropathy. The Foundation funds collaborative medical research and clinical investigations and strives to raise awareness through education to patients and healthcare providers.
To dramatically improve the lives of people living with Peripheral Neuropathy
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $1,217,287 | $1,235,914 | ▲ $18,627 |
| Cash and Non-Interest-Bearing Accounts | $304,059 | $374,778 | ▲ $70,719 |
| Accounts Receivable | - | $62,647 | - |
| Total Assets | $1,521,346 | $1,673,339 | ▲ $151,993 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $17,522 | - |
| Total Liabilities | $0 | $17,522 | ▲ $17,522 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,394,346 | $1,418,157 | ▲ $23,811 |
| Net Assets With Donor Restrictions | $127,000 | $237,660 | ▲ $110,660 |
| Total Net Assets Fund Balance | $1,521,346 | $1,655,817 | ▲ $134,471 |
| Total Liabilities and Net Assets / Fund Balance | $1,521,346 | $1,673,339 | ▲ $151,993 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Lindsay Colbert | Executive Director | FT | $124,277 | $3,739 | $128,016 |
| Name | Title |
|---|---|
| Lou Mazawey | President |
| A Gordon Smith MD | Director |
| Adam Halper | Director |
| Ronald Lissak | Director |
| Senda Ajroud-Driss MD | Director |
| Val Salmans | Director |
| Scott Hirsh | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 4 | $36,130 | Fair Market Value |
| Total Noncash Contributions | 4 | $36,130 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $319,373 |
| Other Expenses | $223,883 |
| Total Fundraising Expense | $147,412 |
| Grants and Similar Amounts Paid | $117,200 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $70,165 | $9,510 | $64,972 | $144,647 |
| Current Officers, Directors, Trustees, and Key Employees | $42,245 | $42,245 | $43,525 | $128,015 |
| Grants to Domestic Orgs | $117,200 | - | - | $117,200 |
| Fees for Services Lobbying | $42,034 | - | - | $42,034 |
| Information Technology | - | $17,725 | $10,846 | $28,571 |
| Fees for Services Accounting | - | $15,504 | $8,995 | $24,499 |
| Payroll Taxes | $13,175 | $3,928 | $4,221 | $21,324 |
| Other Employee Benefits | $12,791 | $3,813 | $4,098 | $20,702 |
| Advertising | $12,752 | - | $3,759 | $16,511 |
| Office Expenses | $528 | $5,294 | $2,566 | $8,388 |
| Pension Plan Contributions | $3,971 | $318 | $396 | $4,685 |
| Conferences and Meetings | $2,944 | $200 | $90 | $3,234 |
| Insurance | - | $2,250 | - | $2,250 |
| Fees for Services Legal | $1,008 | $380 | - | $1,388 |
| Other Expenses | $15,291 | $765 | $3,944 | $765 |
| All Other Expenses | - | $335 | - | $335 |
| Total Functional Expenses | $410,777 | $102,267 | $147,412 | $660,456 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $660,456 |
| Total Expenses per Audited Statements | $660,456 |
| Total Expenses per Form 990 | $660,456 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Johns Hopkins University | Baltimore, MA | 501(c)(3) | database | $61,200 |
| Washington University | St Louis, MO | 501(c)(3) | ddatabase | $26,000 |
| University of Utah | Salt Lake City, UT | 501(c)(3) | database | $11,600 |
| Mt Sinai Medical Center | New York, NY | 501(c)(3) | database | $10,200 |
| Northwestern University | Chicago, IL | 501(c)(3) | database | $5,800 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Scott Hirsch | Foundation's Treasurer | Scott Hirsch, Board Treasurer, is an officer of the Benida Group LLC which provided accounting and computer services ($33,229) to the Foundation and the Jack Miller Family Foundation which is a funder of the Foundation ($175,000) | No | $208,229 |
“Once the 990 Form is completed, the Foundation's Executive Director, Treasurer, and Board President will review the Form. Upon sign off, it will be shared with the entire Board for their review and approval.”
“Directors review and certify they meet the conflict of interest policy annually.”
“Human Resources works closely with the Board of Directors on comparability studies for all positions. Salaries are approved by the Board of Directors and employment contracts are signed by employees.”
“Governing documents, conflict of interest policy and financial statements are available upon request. Audited financials are available on the Illinois Attorney General's website.”
“The process has not changed from the prior year.”
“FIN 48 Note from Audited Financial Statements The Foundation was granted an exemption from federal income taxes by the Internal Revenue Service pursuant to the provisions of Internal Revenue Code Section 501(c)(3). The tax-exempt purpose of the Foundation and the nature in which it operates is described above. Management believes the Foundation continues to operate in compliance with its tax-exempt purpose, thus, no provision for income tax has been provided for in the financial statements. The Foundation's Form 990, Return of Organization Exempt from Income Tax, is subject to examination by the IRS, generally for three years after they have been filed. The Foundation has adopted the requirements for accounting for uncertain tax positions and management has determined that the Foundation was not required to record a liability related to uncertain tax positions as of December 31, 2020 and 2019.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 17522 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 62647 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | To dramatically improve the lives of people living with Peripheral Neuropathy |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 3759 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 12752 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 16511 |
| IRS990/AllOtherContributionsAmt | 0 | 776137 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 335 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 335 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | Lindsay Colbert |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8478839951 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 485 Half Day Road |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Buffalo Grove |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 60089 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 1 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 304059 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 374778 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 43525 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 42245 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 42245 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 128015 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 90 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 200 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 2944 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 3234 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 776137 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 117200 |
| IRS990/CYInvestmentIncomeAmt | 0 | 13973 |
| IRS990/CYOtherExpensesAmt | 0 | 223883 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 129654 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 319373 |
| IRS990/CYTotalExpensesAmt | 0 | 660456 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 147412 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 790110 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | Grants and research programs to fund collaborative medical research and clinical investigations. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 127000 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 237660 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 410777 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 8995 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 15504 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 24499 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 380 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 1008 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 1388 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 42034 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 42034 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 3739 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Lou Mazawey |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Scott Hirsh |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Senda Ajroud-Driss MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Adam Halper |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Ronald Lissak |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Val Salmans |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | A Gordon Smith MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Lindsay Colbert |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 124277 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Executive Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2007 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantAmt | 0 | 117200 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 117200 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 117200 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 790110 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 10846 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 17725 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 28571 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2250 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2250 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 13973 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 13973 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1217287 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1235914 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | IL |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | The mission of the Foundation is to dramatically improve the lives of people living with peripheral neuropathy. It is focused on discovering more effective treatment options and finding a cure for peripheral neuropathy. The Foundation funds collaborative medical research and clinical investigations and strives to raise awareness through education to patients and healthcare providers. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1521346 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1655817 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 4817 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1394346 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1418157 |
| IRS990/NoncashContributionsAmt | 0 | 36130 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 2566 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5294 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 528 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 8388 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 4098 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 3813 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 12791 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 20702 |
| IRS990/OtherExpensesGrp/Desc | 0 | Research data base |
| IRS990/OtherExpensesGrp/Desc | 1 | Website |
| IRS990/OtherExpensesGrp/Desc | 2 | Registration fees |
| IRS990/OtherExpensesGrp/Desc | 3 | Dues and memberships |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3944 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 765 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 76673 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 15291 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 76673 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 15291 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3944 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 765 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 64972 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 9510 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 70165 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 144647 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4221 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3928 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 13175 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 21324 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 396 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 318 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 3971 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 4685 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | Lindsay Colbert |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 894608 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 227200 |
| IRS990/PYInvestmentIncomeAmt | 0 | 12567 |
| IRS990/PYOtherExpensesAmt | 0 | 236894 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 131149 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 311932 |
| IRS990/PYTotalExpensesAmt | 0 | 776026 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 907175 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 129654 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 776137 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 894608 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1388677 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1507843 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1145639 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 5712904 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 13973 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 12567 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 5076 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 4430 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1201 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 37247 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3241140 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 2471764 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 776137 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 894608 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1388677 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1507843 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1145639 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 5712904 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 5750151 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt | 0 | 31017 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt | 0 | 35351 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt | 0 | 66368 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt | 0 | 124068 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt | 0 | 141404 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt | 0 | 265472 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt | 0 | 42034 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt | 0 | 35049 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt | 0 | 77083 |
| IRS990ScheduleC/GrassrootsCeilingAmt | 0 | 99552 |
| IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt | 0 | 31017 |
| IRS990ScheduleC/LobbyingCeilingAmt | 0 | 398208 |
| IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt | 0 | 124068 |
| IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 618422 |
| IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt | 0 | 42034 |
| IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 660456 |
| IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt | 0 | 42034 |
| IRS990ScheduleC/TotLbbyExpendMnsLbbyngNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleC/TotLbbyngGrassrootMnsNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 660456 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 4817 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 4817 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 790110 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | FIN 48 Note from Audited Financial Statements The Foundation was granted an exemption from federal income taxes by the Internal Revenue Service pursuant to the provisions of Internal Revenue Code Section 501(c)(3). The tax-exempt purpose of the Foundation and the nature in which it operates is described above. Management believes the Foundation continues to operate in compliance with its tax-exempt purpose, thus, no provision for income tax has been provided for in the financial statements. The Foundation's Form 990, Return of Organization Exempt from Income Tax, is subject to examination by the IRS, generally for three years after they have been filed. The Foundation has adopted the requirements for accounting for uncertain tax positions and management has determined that the Foundation was not required to record a liability related to uncertain tax positions as of December 31, 2020 and 2019. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part X, Line 2: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 660456 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 790110 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 794927 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 660456 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 5800 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 10200 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 61200 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 11600 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 26000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | ddatabase |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Northwestern University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Mt Sinai Medical Center |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | Johns Hopkins University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | University of Utah |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | Washington University |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 362167817 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 136171197 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 520595110 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 876000525 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 430653611 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 633 Clark Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | One Gustave Levy Place |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 855 N Wolfe Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 201 S Presidents Drive |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | One Brookings Drive |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Chicago |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | New York |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | Baltimore |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | Salt Lake City |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | St Louis |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | UT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | MO |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 60208 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 10029 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 21205 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 84112 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 63130 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | Every quarter, the site reports to the Foundation the number of fully enrolled patients that were enrolled during the reporting period. The site then certifies to the Foundation that the information contained in the report is in accordance with the terms of the grant agreement. Enclosed within the report is a financial statement which shows the budget and spent monies toward the project. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part I, Line 2: |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 5 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 0 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 0 | Scott Hirsch |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | Foundation's Treasurer |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 0 | 0 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 0 | 208229 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 0 | Scott Hirsch, Board Treasurer, is an officer of the Benida Group LLC which provided accounting and computer services ($33,229) to the Foundation and the Jack Miller Family Foundation which is a funder of the Foundation ($175,000) |
| IRS990ScheduleM/AnyPropertyThatMustBeHeldInd | 0 | 0 |
| IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd | 0 | 0 |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/ContributionCnt | 0 | 4 |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/MethodOfDeterminingRevenuesTxt | 0 | Fair Market Value |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NonCashCheckboxInd | 0 | X |
| IRS990ScheduleM/SecuritiesPubliclyTradedGrp/NoncashContributionsRptF990Amt | 0 | 36130 |
| IRS990ScheduleM/ThirdPartiesUsedInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Once the 990 Form is completed, the Foundation's Executive Director, Treasurer, and Board President will review the Form. Upon sign off, it will be shared with the entire Board for their review and approval. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Directors review and certify they meet the conflict of interest policy annually. |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.