Liabilities / Assets
23rd percentile
Higher debt load relative to assets than 23% of similar nonprofits.
990 • Fiscal year 2018 • EIN 26-1195248
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
23rd percentile
Higher debt load relative to assets than 23% of similar nonprofits.
Liabilities / Revenue
20th percentile
Higher debt load relative to revenue than 20% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
72nd percentile
Higher top officer pay than 72% of similar nonprofits.
Top officer pay equals 7.8% of source-year revenue.
Asset Growth
92nd percentile
Faster asset growth than 92% of similar nonprofits.
Revenue Growth
24th percentile
Faster revenue growth than 24% of similar nonprofits.
Assets
Up$1,393,281
Up $501,937 (+56%) from 2017
Net Assets
Up$1,385,459
Up $501,427 (+57%) from 2017
Liabilities
Up$7,822
Up $510 (+7.0%) from 2017
Revenue
Down$1,388,677
Down $119,166 (-7.9%) from 2017
Expenses
Down$887,250
Down $169,627 (-16%) from 2017
Net Income
Up$501,427
Up $50,461 (+11%) from 2017
The mission of the Foundation is to dramatically improve the lives of people living with peripheral neuropathy. It is focused on discovering more effective treatment options and finding a cure for peripheral neuropathy. The Foundation funds collaborative medical research and clinical investigations and strives to raise awareness through education to patients and healthcare providers.
Our mission is to dramatically improve the lives of people living with Peripheral Neuropathy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $885,335 | $1,383,038 | ▲ $497,703 |
| Prepaid Expenses and Deferred Charges | - | $9,371 | - |
| Pledges and Grants Receivable | $5,137 | - | - |
| Total Assets | $891,344 | $1,393,281 | ▲ $501,937 |
| Other Assets Total | $872 | $872 | → $0 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $7,312 | $7,822 | ▲ $510 |
| Total Liabilities | $7,312 | $7,822 | ▲ $510 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $640,271 | $1,340,459 | ▲ $700,188 |
| Temporarily Rstr Net Assets | $243,761 | $45,000 | ▼ $198,761 |
| Total Net Assets Fund Balance | $884,032 | $1,385,459 | ▲ $501,427 |
| Total Liabilities and Net Assets / Fund Balance | $891,344 | $1,393,281 | ▲ $501,937 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Lindsay Colbert | - | - | $105,000 | $14,264 | $119,264 |
| Lindsay Colbert | Executive Director | FT | $108,721 | - | $108,721 |
| Name | Title |
|---|---|
| Louis Mazawey | President |
| A Gordon Smith | Director |
| Adam Helper | Director |
| Alicia Oberman | Director |
| David Cornblath | Director |
| Senda Ajroud-Driss | Executive Director |
| Scott Hirsch | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $312,150 |
| Salaries, Compensation, and Employee Benefits | $309,048 |
| Other Expenses | $266,052 |
| Total Fundraising Expense | $180,807 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $312,150 | - | - | $312,150 |
| All Other Expenses | $110,173 | $7,667 | $36,518 | $154,358 |
| Other Salaries and Wages | $63,180 | $19,902 | $59,391 | $142,473 |
| Current Officers, Directors, Trustees, and Key Employees | $36,240 | $36,240 | $36,241 | $108,721 |
| Advertising | $18,754 | $0 | $19,916 | $38,670 |
| Information Technology | $0 | $27,996 | $0 | $27,996 |
| Payroll Taxes | $12,216 | $3,887 | $11,660 | $27,763 |
| Other Employee Benefits | $23,046 | $0 | $2,736 | $25,782 |
| Fees for Services Accounting | $0 | $15,000 | $0 | $15,000 |
| Pension Plan Contributions | $2,736 | $1,573 | $0 | $4,309 |
| Insurance | $0 | $2,250 | $0 | $2,250 |
| Other Expenses | $0 | $1,441 | $0 | $1,441 |
| Fees for Services Legal | $1,171 | $0 | $0 | $1,171 |
| Travel | $0 | $60 | $527 | $587 |
| Total Functional Expenses | $586,759 | $119,684 | $180,807 | $887,250 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $887,250 |
| Total Expenses per Audited Statements | $887,250 |
| Total Expenses per Form 990 | $887,250 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| John Hopkins Univertsity | Baltimore, MD | - | Bio Marker Study | $168,750 |
| University of Kansas | Kansas City, KS | - | Database | $143,400 |
| John Hopkins University | Baltimore, MD | - | Database | $81,000 |
| Mt Sinai Medical Center | New York, NY | - | Database | $24,000 |
| Northwestern University | Evanston, IL | - | Database | $22,400 |
| University of Utah | Salt Lake City, UT | - | Database | $8,200 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| - | Related party | Accounting/ Computer Services | No | $42,996 |
“Related Party Questionnaires”
“Board Approval”
“Board Approval”
“Upon Request”
“Accounting & Computer Services provided by Related Party”
“Registration Fees 3088. 0. 0. 3088.”
“Contract Services 9460. 0. 960. 8500.”
“Medical Reimbursement 6491. 0. 6491. 0.”
“Misc 216. 0. 216. 0.”
“On Line Service Fees 3561. 0. 0. 3561.”
“Web Site Expenses 9729. 4360. 0. 5369.”
“Software License Fees 16000. 0. 0. 16000.”
“Education Programs 9296. 9296. 0. 0.”
“Research Data Base 96517. 96517. 0. 0.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 7312 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 7822 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Our mission is to dramatically improve the lives of people living with Peripheral Neuropathy. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 19916 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 18754 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 38670 |
| IRS990/AllOtherContributionsAmt | 0 | 1383601 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 36518 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 7667 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 110173 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 154358 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | false |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Lindsay Colbert |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8478084374 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 485 Half Day Road |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Buffalo Grove |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 60089 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | true |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 885335 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1383038 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 36241 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 36240 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 36240 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 108721 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1383601 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 312150 |
| IRS990/CYInvestmentIncomeAmt | 0 | 5076 |
| IRS990/CYOtherExpensesAmt | 0 | 266052 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 501427 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 309048 |
| IRS990/CYTotalExpensesAmt | 0 | 887250 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 180807 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1388677 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | Grants and Research Programs to fund collaborative medical research and clinical investigations. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 586759 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 15000 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 15000 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 1171 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 1171 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Adam Helper |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Scott Hirsch |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Senda Ajroud-Driss |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Alicia Oberman |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Louis Mazawey |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | David Cornblath |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Lindsay Colbert |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | A Gordon Smith |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 108721 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2007 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | true |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 312150 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 312150 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 312150 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1388677 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 4 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 0 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 27996 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 27996 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2250 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2250 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 5076 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | IL |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Our mission is to dramatically improve the lives of people living with Peripheral Neuropathy. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 884032 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1385459 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 872 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 872 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 2736 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 23046 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 25782 |
| IRS990/OtherExpensesGrp/Desc | 0 | Payroll Fees |
| IRS990/OtherExpensesGrp/Desc | 1 | Dues and Memberships |
| IRS990/OtherExpensesGrp/Desc | 2 | Postage and Mailing |
| IRS990/OtherExpensesGrp/Desc | 3 | Telephone / Communications |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 13818 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 750 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 2918 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 1441 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 5655 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1438 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 5655 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 750 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 18174 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 1441 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 59391 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 19902 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 63180 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 142473 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 11660 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3887 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 12216 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 27763 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 1573 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2736 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 4309 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 5137 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 9371 |
| IRS990/PrincipalOfficerNm | 0 | Lindsay Colbert |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1503413 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 387395 |
| IRS990/PYInvestmentIncomeAmt | 0 | 4430 |
| IRS990/PYOtherExpensesAmt | 0 | 314820 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 450966 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 354662 |
| IRS990/PYTotalExpensesAmt | 0 | 1056877 |
| IRS990/PYTotalRevenueAmt | 0 | 1507843 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 501427 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1388677 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1507843 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1145639 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 4042159 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/OtherSupportSumAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 4042159 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1388677 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1507843 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1145639 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 4042159 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 4042159 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 887250 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1388677 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 887250 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1388677 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1388677 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 887250 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 22400 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 24000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 81000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 8200 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 143400 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 5 | 168750 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | Database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | Database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | Database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | Database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | Database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 5 | Bio Marker Study |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Northwestern University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Mt Sinai Medical Center |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | John Hopkins University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | University of Utah |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | University of Kansas |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 5 | John Hopkins Univertsity |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 362167817 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 136171197 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 520595110 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 876000525 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 481108830 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 5 | 520595110 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 633 Clark Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | One Gustave Levy Place |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 855 N Wolfe Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 201 South Presidents Drive |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 3901 Rainbow Blvd |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 5 | 855 N Wofe Street |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Evanston |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | New York |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | Baltimore |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | Salt Lake City |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | Kansas City |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 5 | Baltimore |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | UT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | KS |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 5 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 60208 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 10029 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 21205 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 84112 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 66160 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 5 | 21205 |
| IRS990ScheduleJ/AnyNonFixedPaymentsInd | 0 | false |
| IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd | 0 | false |
| IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd | 0 | false |
| IRS990ScheduleJ/CompBsdNetEarnsRltdOrgsInd | 0 | false |
| IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd | 0 | false |
| IRS990ScheduleJ/EquityBasedCompArrngmInd | 0 | false |
| IRS990ScheduleJ/InitialContractExceptionInd | 0 | false |
| IRS990/ScheduleJRequiredInd | 0 | true |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt | 0 | 105000 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusFilingOrganizationAmount | 0 | 5250 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusRelatedOrganizationsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompensationBasedOnRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990FilingOrgAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990RltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompensationFlngOrgAmt | 0 | 3308 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsFilingOrgAmt | 0 | 7235 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/OtherCompensationFilingOrgAmt | 0 | -1529 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/OtherCompensationRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm | 0 | Lindsay Colbert |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt | 0 | 119264 |
| IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationRltdOrgsAmt | 0 | 0 |
| IRS990ScheduleJ/SeverancePaymentInd | 0 | false |
| IRS990ScheduleJ/SupplementalNonqualRtrPlanInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine1Txt | 0 | The Benida Group LLC |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | Related party |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 0 | 42996 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 0 | Accounting/ Computer Services |
| IRS990/ScheduleORequiredInd | 0 | false |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Related Party Questionnaires |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Board Approval |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Board Approval |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Upon Request |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Accounting & Computer Services provided by Related Party |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | Registration Fees 3088. 0. 0. 3088. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | Contract Services 9460. 0. 960. 8500. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | Medical Reimbursement 6491. 0. 6491. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | Misc 216. 0. 216. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | On Line Service Fees 3561. 0. 0. 3561. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 10 | Web Site Expenses 9729. 4360. 0. 5369. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 11 | Software License Fees 16000. 0. 0. 16000. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 12 | Education Programs 9296. 9296. 0. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 13 | Research Data Base 96517. 96517. 0. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt VI, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Pt VI, Line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Pt VI, Line 15b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Pt VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Pt VI, Line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | Form 990, Part IX, Line 24e |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.