Liabilities / Assets
15th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2019 • EIN 26-1195248
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
15th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
15th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
72nd percentile
Higher net margin than 72% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 13.1% of source-year revenue.
Asset Growth
65th percentile
Faster asset growth than 65% of similar nonprofits.
Revenue Growth
8th percentile
Faster revenue growth than 8% of similar nonprofits.
Assets
Up$1,521,346
Up $128,065 (+9.2%) from 2018
Net Assets
Up$1,521,346
Up $135,887 (+9.8%) from 2018
Liabilities
Down$0
Down $7,822 (-100%) from 2018
Revenue
Down$907,175
Down $481,502 (-35%) from 2018
Expenses
Down$776,026
Down $111,224 (-13%) from 2018
Net Income
Down$131,149
Down $370,278 (-74%) from 2018
The mission of the Foundation is to dramatically improve the lives of people living with peripheral neuropathy. It is focused on discovering more effective treatment options and finding a cure for peripheral neuropathy. The Foundation funds collaborative medical research and clinical investigations and strives to raise awareness through education to patients and healthcare providers.
To dramatically improve the lives of people living with Peripheral Neuropathy
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | - | $1,217,287 | - |
| Cash and Non-Interest-Bearing Accounts | $1,383,038 | $304,059 | ▼ $1,078,979 |
| Prepaid Expenses and Deferred Charges | $9,371 | - | - |
| Total Assets | $1,393,281 | $1,521,346 | ▲ $128,065 |
| Other Assets Total | $872 | - | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $7,822 | $0 | ▼ $7,822 |
| Total Liabilities | $7,822 | $0 | ▼ $7,822 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,340,459 | $1,394,346 | ▲ $53,887 |
| Net Assets With Donor Restrictions | $45,000 | $127,000 | ▲ $82,000 |
| Total Net Assets Fund Balance | $1,385,459 | $1,521,346 | ▲ $135,887 |
| Total Liabilities and Net Assets / Fund Balance | $1,393,281 | $1,521,346 | ▲ $128,065 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Lindsay Colbert | Executive Director | FT | $115,500 | $3,465 | $118,965 |
| Name | Title |
|---|---|
| Lou Mazawey | President |
| A Gordon Smith MD | Director |
| Adam Helper | Director |
| Alicia Oberman | Director |
| Senda Ajroud-Driss MD | Director |
| Val Salmans | Director |
| Scott Hirsh | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $311,932 |
| Other Expenses | $236,894 |
| Grants and Similar Amounts Paid | $227,200 |
| Total Fundraising Expense | $167,881 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $227,200 | - | - | $227,200 |
| Other Salaries and Wages | $67,407 | $20,605 | $66,373 | $154,385 |
| Current Officers, Directors, Trustees, and Key Employees | $39,258 | $39,258 | $40,448 | $118,964 |
| Fees for Services Lobbying | $35,049 | - | - | $35,049 |
| Advertising | $14,661 | - | $18,438 | $33,099 |
| Information Technology | - | $13,060 | $10,751 | $23,811 |
| Payroll Taxes | $9,059 | $5,042 | $9,070 | $23,171 |
| Fees for Services Accounting | - | $16,004 | $6,390 | $22,394 |
| Office Expenses | $1,616 | $5,581 | $9,651 | $16,848 |
| Conferences and Meetings | $12,380 | $2,412 | $620 | $15,412 |
| Fees for Services Other | $14,840 | - | $330 | $15,170 |
| Other Employee Benefits | $9,353 | $1,614 | - | $10,967 |
| Pension Plan Contributions | $2,637 | $548 | $1,260 | $4,445 |
| Fees for Services Legal | $2,514 | - | - | $2,514 |
| Insurance | - | $2,250 | - | $2,250 |
| Other Expenses | $4,664 | $750 | $4,123 | $750 |
| All Other Expenses | - | $87 | - | $87 |
| Total Functional Expenses | $486,094 | $122,051 | $167,881 | $776,026 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $776,026 |
| Total Expenses per Audited Statements | $776,026 |
| Total Expenses per Form 990 | $776,026 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Johns Hopkins University | Baltimore, MA | 501(c)(3) | database | $110,200 |
| Mt Sinai Medical Center | New York, NY | 501(c)(3) | database | $29,600 |
| Harvard Unversity | Cambridge, MA | 501(c)(3) | database | $28,600 |
| Washington University | St Louis, MO | 501(c)(3) | ddatabase | $22,800 |
| University of Kansas | Kaaansas City, KS | 501(c)(3) | database | $17,600 |
| Northwestern University | Chicago, IL | 501(c)(3) | database | $12,000 |
| University of Utah | Salt Lake City, UT | 501(c)(3) | database | $6,400 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| - | Foundation's Treasurer | Scott Hirsh, Board Treasurer, is an officer of the Benida Group LLC which provided accounting and computer services ($43,904) to the Foundation and the Jack Miller Family Foundation which is a funder of the Foundation ($200,000) | No | $243,904 |
| Scott Hirsh | Foundation's Founder is part owner of Benida Group. | Computer and accounting services provided by Benida Group, LLC | No | $43,904 |
“The Form 990 was initially reviewed by the Executive Director, Board President and Treasurer. The 990 was shared with the entire Board of Directors prior to filing.”
“Directors review and certify they meet the conflict of interest policy annually.”
“Human Resources works closely with the Board of Directors on comparability studies for all positions. Salaries are approved by the Board of Directors and employment contracts are signed by employees.”
“Governing documents, conflict of interst policy and financial statements are available upon request. Audited fianacials are available on the Illinois Attorney General's website.”
“FIN 48 Note from Audited Financial Statements The Foundation was granted an exemption from federal income taxes by the Internal Revenue Service pursuant to the provisions of Internal Revenue Code Section 501(c)(3). The tax-exempt purpose of the Foundation and the nature in which it operates is described above. Management believes the Foundation continues to operate in compliance with its tax-exempt purpose, thus, no provision for income tax has been provided for in the financial statements. The Foundation's Form 990, Return of Organization Exempt from Income Tax, is subject to examination by the IRS, generally for three years after they have been filed. The Foundation has adopted the requirements for accounting for uncertain tax positions and management has determined that the Foundation was not required to record a liability related to uncertain tax positions as of December 31, 2019 and 2018.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 7822 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | To dramatically improve the lives of people living with Peripheral Neuropathy |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 18438 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 14661 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 33099 |
| IRS990/AllOtherContributionsAmt | 0 | 894608 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 87 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 87 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | Lindsay Colbert |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8478084374 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 485 Half Day Road |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Buffalo Grove |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 60089 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 1 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1383038 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 304059 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 40448 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 39258 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 39258 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 118964 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 620 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 2412 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 12380 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 15412 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 894608 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 227200 |
| IRS990/CYInvestmentIncomeAmt | 0 | 12567 |
| IRS990/CYOtherExpensesAmt | 0 | 236894 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 131149 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 311932 |
| IRS990/CYTotalExpensesAmt | 0 | 776026 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 167881 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 907175 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | Grants and research programs to fund collaborative medical research and clinical investigations. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 45000 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 127000 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 486094 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 6390 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 16004 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 22394 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 2514 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 2514 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 35049 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 35049 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 330 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 14840 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 15170 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 3465 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Lou Mazawey |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Scott Hirsh |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Senda Ajroud-Driss MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Adam Helper |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Alicia Oberman |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Val Salmans |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | A Gordon Smith MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Lindsay Colbert |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 115500 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Executive Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2007 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantAmt | 0 | 227200 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 227200 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 227200 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 907175 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 10751 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 13060 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 23811 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2250 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2250 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 12567 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 12567 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1217287 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | IL |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | The mission of the Foundation is to dramatically improve the lives of people living with peripheral neuropathy. It is focused on discovering more effective treatment options and finding a cure for peripheral neuropathy. The Foundation funds collaborative medical research and clinical investigations and strives to raise awareness through education to patients and healthcare providers. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1385459 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1521346 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 4738 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1340459 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1394346 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 9651 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5581 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1616 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 16848 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 872 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 1614 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 9353 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 10967 |
| IRS990/OtherExpensesGrp/Desc | 0 | Research data base |
| IRS990/OtherExpensesGrp/Desc | 1 | Website |
| IRS990/OtherExpensesGrp/Desc | 2 | Registration fees |
| IRS990/OtherExpensesGrp/Desc | 3 | Dues and memberships |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 427 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 4123 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 14840 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 750 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 45456 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 4664 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 60296 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 5091 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4123 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 750 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 66373 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 20605 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 67407 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 154385 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 9070 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 5042 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9059 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 23171 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1260 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 548 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2637 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 4445 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 9371 |
| IRS990/PrincipalOfficerNm | 0 | Lindsay Colbert |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1383601 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 312150 |
| IRS990/PYInvestmentIncomeAmt | 0 | 5076 |
| IRS990/PYOtherExpensesAmt | 0 | 266052 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 501427 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 309048 |
| IRS990/PYTotalExpensesAmt | 0 | 887250 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1388677 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 131149 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1388677 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1507843 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1145639 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4936767 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 12567 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 5076 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4430 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1201 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 23274 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2594294 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 2342473 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 894608 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1388677 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1507843 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1145639 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4936767 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4960041 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt | 0 | 35351 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt | 0 | 35351 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt | 0 | 141404 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt | 0 | 141404 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt | 0 | 35049 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt | 0 | 35049 |
| IRS990ScheduleC/GrassrootsCeilingAmt | 0 | 53027 |
| IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt | 0 | 35351 |
| IRS990ScheduleC/LobbyingCeilingAmt | 0 | 212106 |
| IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt | 0 | 141404 |
| IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 740977 |
| IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt | 0 | 35049 |
| IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 776026 |
| IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt | 0 | 35049 |
| IRS990ScheduleC/TotLbbyExpendMnsLbbyngNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleC/TotLbbyngGrassrootMnsNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
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| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 776026 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 4738 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 4738 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 907175 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | FIN 48 Note from Audited Financial Statements The Foundation was granted an exemption from federal income taxes by the Internal Revenue Service pursuant to the provisions of Internal Revenue Code Section 501(c)(3). The tax-exempt purpose of the Foundation and the nature in which it operates is described above. Management believes the Foundation continues to operate in compliance with its tax-exempt purpose, thus, no provision for income tax has been provided for in the financial statements. The Foundation's Form 990, Return of Organization Exempt from Income Tax, is subject to examination by the IRS, generally for three years after they have been filed. The Foundation has adopted the requirements for accounting for uncertain tax positions and management has determined that the Foundation was not required to record a liability related to uncertain tax positions as of December 31, 2019 and 2018. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part X, Line 2: |
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| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 776026 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 907175 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 911913 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 776026 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 12000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 28600 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 29600 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 110200 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 6400 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 5 | 17600 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 6 | 22800 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 5 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 6 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 5 | database |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 6 | ddatabase |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Northwestern University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Harvard Unversity |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | Mt Sinai Medical Center |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | Johns Hopkins University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | University of Utah |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 5 | University of Kansas |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 6 | Washington University |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 362167817 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 042103580 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 136171197 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 520595110 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 876000525 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 5 | 481108830 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 6 | 430653611 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 633 Clark Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 86 Brattle Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | One Gustave Levy Place |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 855 N Wolfe Street |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 201 S Presidents Drive |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 5 | 3901 Rainbow Blvd |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 6 | One Brookings Drive |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Chicago |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Cambridge |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | New York |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | Baltimore |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | Salt Lake City |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 5 | Kaaansas City |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 6 | St Louis |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | UT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 5 | KS |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 6 | MO |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 60208 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 02138 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 10029 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 21205 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 84112 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 5 | 66160 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 6 | 63130 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 7 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 0 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine1Txt | 0 | The Benida Group LLC |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 0 | Scott Hirsh |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | Foundation's Founder is part owner of Benida Group. |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.