Spina Bifida Assocation Of

“The 990 is reviewed prior to filing by the executive director, treasurer and chairman of the bod.”

“Governing documents are available upon written request.”

“Spina bifida of jacksonville, established in 1973, is a 501(c)(3) non- profit organization dedicated to supporting individuals and families affected by spina bifida. Their mission focuses on advocacy, education, and providing essential services to the local community.”

“Advocacy and education: the organization actively raises awareness about spina bifida, a neural tube defect resulting from the spine's failure to close properly during early pregnancy. We provide information and support to families, helping them navigate the challenges associated with the condition. Support programs: spina bifida of jacksonville offers various programs, including: -medical resources: provide information and specialized medical resources. We also provide medical reimbursements for medically necessary items not covered by insurance. -medical supplies: assisting families in obtaining necessary medical equipment. -medical education opportunities: sponsor families at an annual disabilities and medical services convention. -transportation resources: offering support for transportation needs. -family socials and gatherings: events and dinners for the whole family catered to their unique needs. "love what drives you" campaign: this initiative collaborates with the automotive community to enhance mobility for families affected by spina bifida. The campaign focuses on updating vehicles with ramps and adaptive equipment, which are then donated to families in need. Our goal is to "fuel independence in the spina bifida community." fostering community partnerships to raise funds and open up opportunities for our families. The amelia concours is an example. Annual jacksonville grand prix: spina bifida of jacksonville organizes the jacksonville grand prix, a go-kart racing event that has raises approximately 10,000 for the organization. This event not only serves as a fundraiser but also as a unique community gathering to support the cause. Avonlea antiques and art booth is stocked with donated items. Not only is it great exposure for us but is also good advertising. Through these initiatives, spina bifida of jacksonville continues to make significant strides in supporting individuals and families impacted by spina bifida, fostering a sense of community, and enhancing the quality of life for those affected.”