Civic Intelligence

Spina Bifida Assoc of Jacksonville Inc.

990 • Fiscal year 2024 • EIN 23-7432288

Jul 01, 2023 to Jun 30, 2024 • Filed on Mar 04, 2025

2970 Mercury Road SouthJacksonville, FL 32207

(904) 699-6640

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

13th percentile

-22%

Higher net margin than 13% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

46th percentile

$43,417

Higher top officer pay than 46% of similar nonprofits.

Top officer pay equals 20.8% of source-year revenue.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

26th percentile

-3.5%

Faster asset growth than 26% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

1st percentile

-82%

Faster revenue growth than 1% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Down

$1,350,143

Down $49,514 (-3.5%) from 2023

Net Assets

Down

$1,350,143

Down $45,841 (-3.3%) from 2023

Liabilities

Down

$0

Down $3,673 (-100%) from 2023

Revenue

Down

$208,543

Down $946,006 (-82%) from 2023

Expenses

Up

$254,412

Up $4,998 (+2.0%) from 2023

Net Income

Down

-$45,869

Down $951,004 (-105%) from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2022: $490,849Liabilities 2022: $0Net Assets 2022: $490,8492022Assets 2023: $1,399,657Liabilities 2023: $3,673Net Assets 2023: $1,395,9842023Assets 2024: $1,350,143Liabilities 2024: $0Net Assets 2024: $1,350,1432024Assets 2025: $1,216,390Liabilities 2025: $22,631Net Assets 2025: $1,193,7592025

Highlighted filing

2024

Assets$1,350,143
Liabilities$0
Net Assets$1,350,143

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2022: $236,097Expenses 2022: $111,043Net Income 2022: $125,0542022Revenue 2023: $1,154,549Expenses 2023: $249,414Net Income 2023: $905,1352023Revenue 2024: $208,543Expenses 2024: $254,412Net Income 2024: -$45,8692024Revenue 2025: $97,737Expenses 2025: $254,121Net Income 2025: -$156,3842025

Highlighted filing

2024

Revenue$208,543
Expenses$254,412
Net Income-$45,869
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
Mar 4, 2025
Return Version
2023v6.0
Gross Receipts
$208,543
Mission and Program Overview

Mission

Spina bifida of jacksonville, established in 1973, is a 501(c)(3) non- profit organization dedicated to supporting individuals and families affected by spina bifida. Their mission focuses on advocacy, education, and providing essential services to the local community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments-$1,311,689-
Land, Buildings, and Equipment, Net$6,242$34,975▲ $28,733
Cash and Non-Interest-Bearing Accounts$1,393,415$3,479▼ $1,389,936
Total Assets$1,399,657$1,350,143▼ $49,514
Liabilities
Accounts Payable and Accrued Expenses$3,673--
Total Liabilities$3,673$0▼ $3,673
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,395,984$1,350,143▼ $45,841
Total Net Assets Fund Balance$1,395,984$1,350,143▼ $45,841
Total Liabilities and Net Assets / Fund Balance$1,399,657$1,350,143▼ $49,514

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$34,975$3,941$38,916
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Demery WebberExecutive DiFT$43,417$43,417

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$203,423
Program Service Revenue
$0
Investment Income
$5,120
Other Revenue
$0
Change in Net Assets
$-45,869
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$153,781
Other Expenses$100,631
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$84,540--$84,540
Current Officers, Directors, Trustees, and Key Employees$43,417--$43,417
Other Employee Benefits$15,324--$15,324
Payroll Taxes$10,500--$10,500
Information Technology$6,249--$6,249
Insurance$6,247--$6,247
Depreciation Depletion$3,941--$3,941
Other Expenses$1,292--$1,292
Travel$1,256--$1,256
All Other Expenses$1,176--$1,176
Office Expenses$734--$734
Conferences and Meetings$708--$708
Total Functional Expenses$254,412$0$0$254,412
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

No review was or will be conducted.

Form 990, Page 6, Part VI, Line 19

No documents available to the public

Filing and Contact Details

Filer

Filer Name
Spina Bifida Assocation of
EIN
23-7432288
Phone
9046996640
Address
2970 MERCURY ROAD SOUTH, JACKSONVILLE, FL 32207

Signing Officer

Name
Demery Webber
Title
Executive Director
Phone
9046996640
Signed
2025-03-04

Organization Details

Principal Officer
Demery Webber
Voting Board Members
11
Independent Board Members
11
Employees
4

Preparer

Firm
The Forde Firm LLC
Address
5150 BELFORT RD BLDG 300, JACKSONVILLE, FL 32256
Preparer
Megan Mcatee
Phone
9047255832
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

Spina bifida of jacksonville, established in 1973, is a 501(c)(3) non- profit organization dedicated to supporting individuals and families affected by spina bifida. Their mission focuses on advocacy, education, and providing essential services to the local community.

Form 990, Page 2, Part III, Line 4A

Advocacy and education: the organization actively raises awareness about spina bifida, a neural tube defect resulting from the spine's failure to close properly during early pregnancy. We provide information and support to families, helping them navigate the challenges associated with the condition. Support programs: spina bifida of jacksonville offers various programs, including: -medical resources: provide information and specialized medical resources. We also provide medical reimbursements for medically necessary items not covered by insurance. -medical supplies: assisting families in obtaining necessary medical equipment. -medical education opportunities: sponsor families at an annual medical convention. -transportation resources: offering support for transportation needs. -family socials and gatherings: events and dinners for the whole family catered to their unique needs. "love what drives you" campaign: this initiative collaborates with the automotive community to enhance mobility for families affected by spina bifida. The campaign focuses on updating vehicles with ramps and adaptive equipment, which are then donated to families in need. Our goal is to "fuel independence in the spina bifida community." "fostering community partnerships to raise funds and open up opportunities for our families. The amelia concours is an example. "annual jacksonville grand prix: spina bifida of jacksonville organizes the jacksonville grand prix, a go-kart racing event that has raises approximately 10,000 for the organization. This event not only serves as a fundraiser but also as a unique community gathering to support the cause. "avonlea antiques and art booth is stocked with donated items. Not only is it great exposure for us but is also good advertising. Through these initiatives, spina bifida of jacksonville continues to make significant strides in supporting individuals and families impacted by spina bifida, fostering a sense of community, and enhancing the quality of life for those affected.

Form 990, Part XI, Line 9

Prior period correction 28

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0SPINA BIFIDA OF JACKSONVILLE, ESTABLISHED IN 1973, IS A 501(C)(3) NON- PROFIT ORGANIZATION DEDICATED TO SUPPORTING INDIVIDUALS AND FAMILIES AFFECTED BY SPINA BIFIDA. THEIR MISSION FOCUSES ON ADVOCACY, EDUCATION, AND PROVIDING ESSENTIAL SERVICES TO THE LOCAL COMMUNITY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ADVOCACY AND EDUCATION: THE ORGANIZATION ACTIVELY RAISES AWARENESS ABOUT SPINA BIFIDA, A NEURAL TUBE DEFECT RESULTING FROM THE SPINE'S FAILURE TO CLOSE PROPERLY DURING EARLY PREGNANCY. WE PROVIDE INFORMATION AND SUPPORT TO FAMILIES, HELPING THEM NAVIGATE THE CHALLENGES ASSOCIATED WITH THE CONDITION. SUPPORT PROGRAMS: SPINA BIFIDA OF JACKSONVILLE OFFERS VARIOUS PROGRAMS, INCLUDING: -MEDICAL RESOURCES: PROVIDE INFORMATION AND SPECIALIZED MEDICAL RESOURCES. WE ALSO PROVIDE MEDICAL REIMBURSEMENTS FOR MEDICALLY NECESSARY ITEMS NOT COVERED BY INSURANCE. -MEDICAL SUPPLIES: ASSISTING FAMILIES IN OBTAINING NECESSARY MEDICAL EQUIPMENT. -MEDICAL EDUCATION OPPORTUNITIES: SPONSOR FAMILIES AT AN ANNUAL MEDICAL CONVENTION. -TRANSPORTATION RESOURCES: OFFERING SUPPORT FOR TRANSPORTATION NEEDS. -FAMILY SOCIALS AND GATHERINGS: EVENTS AND DINNERS FOR THE WHOLE FAMILY CATERED TO THEIR UNIQUE NEEDS. "LOVE WHAT DRIVES YOU" CAMPAIGN: THIS INITIATIVE COLLABORATES WITH THE AUTOMOTIVE COMMUNITY TO ENHANCE MOBILITY FOR FAMILIES AFFECTED BY SPINA BIFIDA. THE CAMPAIGN FOCUSES ON UPDATING VEHICLES WITH RAMPS AND ADAPTIVE EQUIPMENT, WHICH ARE THEN DONATED TO FAMILIES IN NEED. OUR GOAL IS TO "FUEL INDEPENDENCE IN THE SPINA BIFIDA COMMUNITY." "FOSTERING COMMUNITY PARTNERSHIPS TO RAISE FUNDS AND OPEN UP OPPORTUNITIES FOR OUR FAMILIES. THE AMELIA CONCOURS IS AN EXAMPLE. "ANNUAL JACKSONVILLE GRAND PRIX: SPINA BIFIDA OF JACKSONVILLE ORGANIZES THE JACKSONVILLE GRAND PRIX, A GO-KART RACING EVENT THAT HAS RAISES APPROXIMATELY 10,000 FOR THE ORGANIZATION. THIS EVENT NOT ONLY SERVES AS A FUNDRAISER BUT ALSO AS A UNIQUE COMMUNITY GATHERING TO SUPPORT THE CAUSE. "AVONLEA ANTIQUES AND ART BOOTH IS STOCKED WITH DONATED ITEMS. NOT ONLY IS IT GREAT EXPOSURE FOR US BUT IS ALSO GOOD ADVERTISING. THROUGH THESE INITIATIVES, SPINA BIFIDA OF JACKSONVILLE CONTINUES TO MAKE SIGNIFICANT STRIDES IN SUPPORTING INDIVIDUALS AND FAMILIES IMPACTED BY SPINA BIFIDA, FOSTERING A SENSE OF COMMUNITY, AND ENHANCING THE QUALITY OF LIFE FOR THOSE AFFECTED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2NO REVIEW WAS OR WILL BE CONDUCTED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4PRIOR PERIOD CORRECTION 28
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 2, PART III, LINE 4A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART XI, LINE 9
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ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0DEMERY WEBBER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0EXECUTIVE DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum09046996640
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-03-04
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0SPINA BIFIDA ASSOCATION OF
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ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0824388106
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0THE FORDE FIRM LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt05150 BELFORT RD BLDG 300
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ReturnHeader/PreparerPersonGrp/PreparationDt02025-03-05
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MEGAN MCATEE
ReturnHeader/ReturnTs02025-03-05T10:45:00-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02023-07-01
ReturnHeader/TaxPeriodEndDt02024-06-30
ReturnHeader/TaxYr02023

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