Civic Intelligence

Sickle Cell Disease Association of America Inc.

990 • Fiscal year 2017 • EIN 23-7175985

Jan 01, 2017 to Dec 31, 2017 • Filed on Oct 02, 2018

Organization ProfileWWW.SICKLECELLDISEASE.ORG

View Organization Page

3700 Koppers St No 570Baltimore, MD 21227

(410) 528-1555

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

79th percentile

0.46x

Higher debt load relative to assets than 79% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

60th percentile

0.16x

Higher debt load relative to revenue than 60% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

31st percentile

-3.0%

Higher net margin than 31% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

77th percentile

$123,479

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 4.7% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

7th percentile

-17%

Faster asset growth than 7% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

8th percentile

-31%

Faster revenue growth than 8% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets79th percentile

Assets

Down

$938,257

Down $189,437 (-17%) from 2016

Net Assets

Down

$503,837

Down $15,751 (-3.0%) from 2016

Liabilities

Down

$434,420

Down $173,686 (-29%) from 2016

Revenue And Expenses
Liabilities / Revenue60th percentileNet Margin31st percentile

Revenue

Down

$2,647,289

Down $1,210,520 (-31%) from 2016

Expenses

Down

$2,727,128

Down $1,078,019 (-28%) from 2016

Net Income

Down

-$79,839

Down $132,501 (-252%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth7th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2012: $784,547Liabilities 2012: $374,396Net Assets 2012: $410,1512012Assets 2013: $1,064,873Liabilities 2013: $356,294Net Assets 2013: $708,5792013Assets 2014: $987,565Liabilities 2014: $405,180Net Assets 2014: $582,3852014Assets 2015: $1,017,193Liabilities 2015: $565,892Net Assets 2015: $451,3012015Assets 2016: $1,127,694Liabilities 2016: $608,106Net Assets 2016: $519,5882016Assets 2017: $938,257Liabilities 2017: $434,420Net Assets 2017: $503,8372017Assets 2018: $1,315,287Liabilities 2018: $668,367Net Assets 2018: $646,9202018Assets 2019: $1,399,367Liabilities 2019: $646,607Net Assets 2019: $752,7602019Assets 2020: $2,209,830Liabilities 2020: $653,053Net Assets 2020: $1,556,7772020Assets 2021: $2,467,677Liabilities 2021: $342,953Net Assets 2021: $2,124,7242021Assets 2022: $1,952,170Liabilities 2022: $254,972Net Assets 2022: $1,697,1982022Assets 2023: $2,256,766Liabilities 2023: $518,736Net Assets 2023: $1,738,0302023Assets 2024: $2,250,168Liabilities 2024: $423,888Net Assets 2024: $1,826,2802024

Highlighted filing

2017

Assets$938,257
Liabilities$434,420
Net Assets$503,837
Open 2017 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2012: $783,9742012Revenue 2013: $1,085,513Expenses 2013: $824,760Net Income 2013: $260,7532013Revenue 2014: $816,721Expenses 2014: $951,094Net Income 2014: -$134,3732014Revenue 2015: $1,794,302Expenses 2015: $1,902,300Net Income 2015: -$107,9982015Revenue 2016: $3,857,809Expenses 2016: $3,805,147Net Income 2016: $52,6622016Revenue 2017: $2,647,289Expenses 2017: $2,727,128Net Income 2017: -$79,8392017Revenue 2018: $4,227,112Expenses 2018: $3,984,238Net Income 2018: $242,8742018Revenue 2019: $4,314,746Expenses 2019: $4,208,906Net Income 2019: $105,8402019Revenue 2020: $5,839,599Expenses 2020: $5,030,834Net Income 2020: $808,7652020Revenue 2021: $3,493,721Expenses 2021: $2,806,839Net Income 2021: $686,8822021Revenue 2022: $1,104,795Expenses 2022: $1,342,644Net Income 2022: -$237,8492022Revenue 2023: $1,811,601Expenses 2023: $1,810,923Net Income 2023: $6782023Revenue 2024: $1,791,972Expenses 2024: $1,707,722Net Income 2024: $84,2502024

Highlighted filing

2017

Revenue$2,647,289
Expenses$2,727,128
Net Income-$79,839
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Oct 2, 2018
Return Version
2017v2.3
Gross Receipts
$2,691,766
Mission and Program Overview

Mission

Advocate for better funding, research, and healthcare. Enhance membership capacity.

To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$459,488$523,203▲ $63,715
Cash and Non-Interest-Bearing Accounts$225,842$231,229▲ $5,387
Pledges and Grants Receivable$383,577$148,063▼ $235,514
Accounts Receivable$42,541$23,450▼ $19,091
Inventories for Sale or Use$7,599$4,330▼ $3,269
Land, Buildings, and Equipment, Net$3,502$1,834▼ $1,668
Prepaid Expenses and Deferred Charges-$1,002-
Total Assets$1,127,694$938,257▼ $189,437
Other Assets Total$5,145$5,146▲ $1
Liabilities
Mortgage Notes Payable Secured by Investment Property$284,265$264,206▼ $20,059
Accounts Payable and Accrued Expenses$304,591$139,195▼ $165,396
Other Liabilities$19,250$31,019▲ $11,769
Total Liabilities$608,106$434,420▼ $173,686
Net Assets / Fund Balance
Unrestricted Net Assets$487,124$471,373▼ $15,751
Temporarily Rstr Net Assets$32,464$32,464→ $0
Total Net Assets Fund Balance$519,588$503,837▼ $15,751
Total Liabilities and Net Assets / Fund Balance$1,127,694$938,257▼ $189,437

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$127,717$127,717
Equipment$1,834$8,364$10,198
Other Securities$523,203--
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Sonja BanksPresident and COOFT$115,000$8,479$123,479

Board Members and Trustees

NameTitle
David BraxtonChair
Dennis TaylorVice Chair
Biree AndemariamChief Medical Officer
Bernie Lawrence-watkinsMember
Christopher HollinsMember
Crystal RileyMember
Dr Gladys RobinsonMember
Ed FlowersMember
Gwendolyn PolesMember
Kim Smith-whitleyMember
Lennette BenjaminMember
Lisa HallMember
Wanda Whitten-shurneyMember
Genice NelsonSecretary
Jakela ParkerTreasurer
Lewis HsuVice Chief Medical Officer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,106,792
Program Service Revenue
$535,761
Investment Income
$-373
Other Revenue
$5,109
All Other Contributions
$375,821
Change in Net Assets
$-79,839

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,647,289
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$73,092
Total Revenue per Audited Statements
$2,720,381
Total Revenue per Form 990
$2,647,289
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,040,055
Other Expenses$866,480
Salaries, Compensation, and Employee Benefits$820,593
Total Fundraising Expense$152,933
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,040,055--$1,040,055
Other Salaries and Wages$445,605$54,003$98,218$597,826
Fees for Services Other$347,995$43,273$15,037$406,305
Conferences and Meetings$228,796--$228,796
Current Officers, Directors, Trustees, and Key Employees$91,600$11,754$20,125$123,479
Office Expenses$15,668$71,462$364$87,494
Occupancy-$64,492-$64,492
Payroll Taxes$34,896$8,105$7,302$50,303
Other Employee Benefits$33,981$7,893$7,111$48,985
Travel$16,730$10,869$99$27,698
Fees for Services Accounting-$14,271-$14,271
Interest-$13,967-$13,967
Advertising-$5,071$4,677$9,748
Fees for Services Legal-$7,561-$7,561
Insurance-$4,105-$4,105
Depreciation Depletion-$1,668-$1,668
Other Expenses$81,267$-81,267-$0
Total Functional Expenses$2,336,593$237,602$152,933$2,727,128

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,736,132
Expenses per Audited Statements$2,727,128
Total Expenses per Form 990$2,727,128
Expenses Not Reported on Form 990$9,004
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Sickle Cell Foundation of GeorgiaAtlanta, GA501(c)(3)To Fund Scd Research and Scholarships$113,735
Sickle Cell Disease Foundation of CaliforniaOntario, CA501(c)(3)To Fund Scd Research$91,653
Piedmont Health ServicesGreensboro, NC501(c)(3)To Fund Scd Research and Scholarsihps$87,408
Scdaa Central Alabama ChapterBirmingham, AL501(c)(3)To Fund Scd Research$79,620
Sickle Cell Disease Association of IllinoisChicago, IL501(c)(3)To Fund Scd Research and Scholarships$69,661
Sickle Cell Disease Association of America - Michigan Chapter IncDetroit, MI501(c)(3)To Fund Scd Research and Scholarships$64,058
Childrens Sickle Cell Foundation IncPittsburgh, PA501(c)(3)To Fund Scd Research$56,316
James R Clark Memorial Sickle Cell FoundationColumbia, SC501(c)(3)To Fund Scd Research and Scholarships$48,664
Sickle Cell Association of New Jersey IncNewark, NJ501(c)(3)To Fund Scd Research and Scholarships$47,089
Martin Center Sickle CellIndianapolis, IN501(c)(3)To Fund Scd Research$46,700
Maryland Sickle Cell Disease Association IncColumbia, MD501(c)(3)To Fund Scd Research and Scholarships$41,508
Sickle Cell Foundation of TennesseeMemphis, TN501(c)(3)To Fund Scd Research and Scholarships$38,310
Queens Sickle Cell AdvocacyQueens Village, NY501(c)(3)To Fund Scd Research and Scholarships$35,003
St Louis Sickle Cell AssociationFlorissant, MO501(c)(3)To Fund Scd Research and Scholarships$33,142
Sickle Cell Anemia Foundation of OregonPortland, OR501(c)(3)To Fund Scd Research$29,689
Sickle Cell Thalassemia Patients NetworkBrooklyn, NY501(c)(3)To Fund Scd Research$28,768
Ohio Sickle Cell & HealthColumbus, OH501(c)(3)To Fund Scd Research and Scholarships$27,186
Scdaa Philadelphiadelaware Valley ChapterPhiladelphia, PA501(c)(3)To Fund Scd Research$19,864
Cayenne Wellness CenterGlendale, CA501(c)(3)To Fund Scd Research$16,656
Sickle Cell Foundation of Greater Montgomery IncWest Montgomery, AL501(c)(3)To Fund Scd Research$16,331
Community Health InterventionsFayetteville, NC501(c)(3)To Fund Scd Research$15,166
Tova Healthcare LLCWilmington, DE501(c)(3)To Fund Scd Research$8,315
South Central Pa SccHarrisburg, PA501(c)(3)To Fund Scd Research and Scholarships$6,645
Emory UniversityAtlanta, GA-To Fund Scholarships$6,468
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Refundable Advances$16,756
Deferred Rent$14,263
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is presented at a special board meeting for review and comments.”

Form 990, Part VI, Section B, Line 12C

“Officers and directors are required to submit an annual questionnaire”

Form 990, Part VI, Section B, Line 15

“Compensation policy is reviewed and approved by the board of directors”

Form 990, Part VI, Section C, Line 18

“The organization makes its financial statements available to the public via the federal audit clearinghouse.”

Form 990, Part VI, Section C, Line 19

“Governing documents along with conflict of interest policy and financial statements are available to the public upon request”

Filing and Contact Details

Filer

Filer Name
Sickle Cell Disease Association
EIN
23-7175985
Phone
4105281555
Address
3700 KOPPERS ST NO 570, BALTIMORE, MD 21227

Signing Officer

Name
Beverley Francis-gibson
Title
President
Phone
4105281555
Signed
2018-10-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Beverley Francis-gibson
Formed
1972
Legal Domicile
Md
Voting Board Members
16
Independent Board Members
16
Employees
12
Volunteers
28

Preparer

Firm
Halt Buzas & Powell Ltd
Address
1199 N FAIRFAX ST 10TH FLOOR, ALEXANDRIA, VA 22314
Preparer
Svetlana Chebakina
Phone
7038361350
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Consultants: program service expenses 347,995. Management and general expenses 43,273. Fundraising expenses 15,037. Total expenses 406,305.”

FORM 990, PART XII, LINE 2C:

“The process has not changed from prior year.”

Financial Statement Notes

PART X, LINE 2:

“The association is exempt from federal and local income taxes under section 501(c)(3) of the internal revenue code on income derived from activities related to its exempt purpose. This code section enables the association to accept donations that qualify as charitable contributions to the donor. The association is subject to income taxes on taxable income from unrelated business activities. For the years ended december 31, 2017 and 2016, the association did not recognize income tax expense in the accompanying financial statements as there was no unrelated business taxable income. The association is not aware of any activities that would jeopardize their tax-exempt status that would require recognition in the accompanying financial statements. Generally, tax returns are subject to examination by taxing authorities for up to three years from the date a completed return is filed. If there are material omissions of income, tax returns may be subject to examination for up to six years. It is the association's policy to recognize interest and/or penalties related to uncertain tax positions, if any, in the accompanying financial statements. As of december 31, 2017 and 2016, the association had no uncertain tax positions which should be recognized as a liability.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold 9,004.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold 9,004.”

Raw XML AppendixShowing 400 of 792 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm14DAVID BRAXTON
IRS990/Form990PartVIISectionAGrp/PersonNm15DR GLADYS ROBINSON
IRS990/Form990PartVIISectionAGrp/PersonNm16SONJA BANKS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16115000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2CHIEF MEDICAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE CHIEF MEDICAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt15MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16PRESIDENT AND COO
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01972
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt0-473
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GovernmentGrantsAmt01625944
IRS990/GrantAmt058798
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01040055
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01040055
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt035000
IRS990/GrossReceiptsAmt02691766
IRS990/GrossSalesOfInventoryAmt07677
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt04105
IRS990/InsuranceGrp/TotalAmt04105
IRS990/InterestGrp/ManagementAndGeneralAmt013967
IRS990/InterestGrp/TotalAmt013967
IRS990/InventoriesForSaleOrUseGrp/BOYAmt07599
IRS990/InventoriesForSaleOrUseGrp/EOYAmt04330
IRS990/InvestmentIncomeGrp/ExclusionAmt0100
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0100
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0459488
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0523203
IRS990/IRPDocumentCnt013
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0136081
IRS990/LandBldgEquipBasisNetGrp/BOYAmt03502
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01834
IRS990/LandBldgEquipCostOrOtherBssAmt0137915
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt035473
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt023980
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ADVOCATE FOR PEOPLE AFFECTED BY SICKLE CELL CONDITIONS AND EMPOWER COMMUNITY-BASED ORGANIZATIONS TO MAXIMIZE QUALITY OF LIFE AND RAISE PUBLIC CONSCIOUSNESS WHILE ADVANCING THE SEARCH FOR A UNIVERSAL CURE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt0284265
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt0264206
IRS990/NetAssetsOrFundBalancesBOYAmt0519588
IRS990/NetAssetsOrFundBalancesEOYAmt0503837
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-473
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-473
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt0-1327
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0-1327
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt064088
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt064492
IRS990/OccupancyGrp/TotalAmt064492
IRS990/OfficeExpensesGrp/FundraisingAmt0364
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt071462
IRS990/OfficeExpensesGrp/ProgramServicesAmt015668
IRS990/OfficeExpensesGrp/TotalAmt087494
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt05145
IRS990/OtherAssetsTotalGrp/EOYAmt05146
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt07111
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt07893
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt033981
IRS990/OtherEmployeeBenefitsGrp/TotalAmt048985
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc1INDIRECT COSTS
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0375
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1-81267
IRS990/OtherExpensesGrp/ProgramServicesAmt081267
IRS990/OtherExpensesGrp/TotalAmt0375
IRS990/OtherExpensesGrp/TotalAmt10
IRS990/OtherLiabilitiesGrp/BOYAmt019250
IRS990/OtherLiabilitiesGrp/EOYAmt031019
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt0530
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0530
IRS990/OtherRevenueTotalAmt0530
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt098218
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt054003
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0445605
IRS990/OtherSalariesAndWagesGrp/TotalAmt0597826
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt07302
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt08105
IRS990/PayrollTaxesGrp/ProgramServicesAmt034896
IRS990/PayrollTaxesGrp/TotalAmt050303
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0383577
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0148063
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01002
IRS990/PrincipalOfficerNm0BEVERLEY FRANCIS-GIBSON
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONVENTION & SPECIAL E
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0535761
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0535761
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE: TO DEVELOP A NATIONAL ADVOCATE NETWORK OF SICKLE CELL DISEASE PATIENTS, FAMILIES, CAREGIVERS AND OTHER STAKEHOLDERS EXPERTS THAT CAN PARTNER WITH CLINICIANS AND RESEARCHERS TO DESIGN, IMPLEMENT AND EVENTUALLY DISSEMINATE PATIENT CENTERED OUTCOMES RESEARCH AND COMPARATIVE EFFECTIVENESS RESEARCH (PCOR/CER) PROJECTS THAT IMPROVE OUTCOMES TO PATIENTS WITH SICKLE CELL DISEASE (SCD).
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0135088
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0HEALTH RESOURCES AND SERVICES ADMINISTRATION: TO PROVIDE A NEWBORN SCREENING FOLLOW-UP PROGRAM THAT ENSURES ACCESS TO CARE FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD). IT INCLUDES PROVIDING FOLLOW-UP SERVICES: EDUCATION, COUNSELING, LEAD ADVOCACY INITIATIVES, AND ACCESS TO A MEDICAL HOME.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01625156
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0981257
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03355400
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt02280727
IRS990/PYInvestmentIncomeAmt014106
IRS990/PYOtherExpensesAmt0797754
IRS990/PYOtherRevenueAmt013483
IRS990/PYProgramServiceRevenueAmt0474820
IRS990/PYRevenuesLessExpensesAmt052662
IRS990/PYSalariesCompEmpBnftPaidAmt0726666
IRS990/PYTotalExpensesAmt03805147
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03857809
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-79839
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0534434
IRS990/RoyaltiesRevenueGrp/ExclusionAmt05906
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt05906
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02106792
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03355400
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01355907
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0488677
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0830356
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt08137132
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt06006
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt018748
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt019440
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt023446
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt012156
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt079796
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt01965867
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt0530
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt062
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0-2493
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt021060
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt014413
IRS990ScheduleA/OtherIncome170Grp/TotalAmt033572
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.93120
IRS990ScheduleA/PublicSupportPY170Pct00.93310
IRS990ScheduleA/PublicSupportTotal170Amt07683057
IRS990ScheduleA/SubstantialContributorsTotAmt0454075
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02106792
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt03355400
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01355907
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0488677
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0830356
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt08137132
IRS990ScheduleA/TotalSupportAmt08250500
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt01834
IRS990ScheduleD/EquipmentGrp/DepreciationAmt08364

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$938,257
Liabilities
$434,420
Net assets
$503,837
Revenue
$2,647,289
Expenses
$2,727,128
Net income
-$79,839
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.25$0.42$1.83$1.79$1.71$0.08
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.26$0.52$1.74$1.81$1.81$0.00
2022Detailed filing. Detailed filing data is available for this year.$1.95$0.25$1.70$1.10$1.34$0.24
2021Detailed filing. Detailed filing data is available for this year.$2.47$0.34$2.12$3.49$2.81$0.69
2020Detailed filing. Detailed filing data is available for this year.$2.21$0.65$1.56$5.84$5.03$0.81
2019Detailed filing. Detailed filing data is available for this year.$1.40$0.65$0.75$4.31$4.21$0.11
2018Detailed filing. Detailed filing data is available for this year.$1.32$0.67$0.65$4.23$3.98$0.24
2017Detailed filing. Detailed filing data is available for this year.$0.94$0.43$0.50$2.65$2.73$0.08
2016Detailed filing. Detailed filing data is available for this year.$1.13$0.61$0.52$3.86$3.81$0.05
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.57$0.45$1.79$1.90$0.11
2014Detailed filing. Detailed filing data is available for this year.$0.99$0.41$0.58$0.82$0.95$0.13
2013Detailed filing. Detailed filing data is available for this year.$1.06$0.36$0.71$1.09$0.82$0.26
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.78$0.37$0.41$0.78