Civic Intelligence

Sickle Cell Disease Association of America Inc.

990 • Fiscal year 2016 • EIN 23-7175985

Jan 01, 2016 to Dec 31, 2016 • Filed on Oct 12, 2017

Organization ProfileWWW.SICKLECELLDISEASE.ORG

View Organization Page

3700 Koppers St No 570Baltimore, MD 21227

(410) 528-1555

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

81st percentile

0.54x

Higher debt load relative to assets than 81% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

58th percentile

0.16x

Higher debt load relative to revenue than 58% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

47th percentile

1.4%

Higher net margin than 47% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

77th percentile

$123,549

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 3.2% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

73rd percentile

11%

Faster asset growth than 73% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

95th percentile

115%

Faster revenue growth than 95% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets81st percentile

Assets

Up

$1,127,694

Up $110,501 (+11%) from 2015

Net Assets

Up

$519,588

Up $68,287 (+15%) from 2015

Liabilities

Up

$608,106

Up $42,214 (+7.5%) from 2015

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin47th percentile

Revenue

Up

$3,857,809

Up $2,063,507 (+115%) from 2015

Expenses

Up

$3,805,147

Up $1,902,847 (+100%) from 2015

Net Income

Up

$52,662

Up $160,660 (+149%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth73rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2012: $784,547Liabilities 2012: $374,396Net Assets 2012: $410,1512012Assets 2013: $1,064,873Liabilities 2013: $356,294Net Assets 2013: $708,5792013Assets 2014: $987,565Liabilities 2014: $405,180Net Assets 2014: $582,3852014Assets 2015: $1,017,193Liabilities 2015: $565,892Net Assets 2015: $451,3012015Assets 2016: $1,127,694Liabilities 2016: $608,106Net Assets 2016: $519,5882016Assets 2017: $938,257Liabilities 2017: $434,420Net Assets 2017: $503,8372017Assets 2018: $1,315,287Liabilities 2018: $668,367Net Assets 2018: $646,9202018Assets 2019: $1,399,367Liabilities 2019: $646,607Net Assets 2019: $752,7602019Assets 2020: $2,209,830Liabilities 2020: $653,053Net Assets 2020: $1,556,7772020Assets 2021: $2,467,677Liabilities 2021: $342,953Net Assets 2021: $2,124,7242021Assets 2022: $1,952,170Liabilities 2022: $254,972Net Assets 2022: $1,697,1982022Assets 2023: $2,256,766Liabilities 2023: $518,736Net Assets 2023: $1,738,0302023Assets 2024: $2,250,168Liabilities 2024: $423,888Net Assets 2024: $1,826,2802024

Highlighted filing

2016

Assets$1,127,694
Liabilities$608,106
Net Assets$519,588
Open 2016 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2012: $783,9742012Revenue 2013: $1,085,513Expenses 2013: $824,760Net Income 2013: $260,7532013Revenue 2014: $816,721Expenses 2014: $951,094Net Income 2014: -$134,3732014Revenue 2015: $1,794,302Expenses 2015: $1,902,300Net Income 2015: -$107,9982015Revenue 2016: $3,857,809Expenses 2016: $3,805,147Net Income 2016: $52,6622016Revenue 2017: $2,647,289Expenses 2017: $2,727,128Net Income 2017: -$79,8392017Revenue 2018: $4,227,112Expenses 2018: $3,984,238Net Income 2018: $242,8742018Revenue 2019: $4,314,746Expenses 2019: $4,208,906Net Income 2019: $105,8402019Revenue 2020: $5,839,599Expenses 2020: $5,030,834Net Income 2020: $808,7652020Revenue 2021: $3,493,721Expenses 2021: $2,806,839Net Income 2021: $686,8822021Revenue 2022: $1,104,795Expenses 2022: $1,342,644Net Income 2022: -$237,8492022Revenue 2023: $1,811,601Expenses 2023: $1,810,923Net Income 2023: $6782023Revenue 2024: $1,791,972Expenses 2024: $1,707,722Net Income 2024: $84,2502024

Highlighted filing

2016

Revenue$3,857,809
Expenses$3,805,147
Net Income$52,662
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Oct 12, 2017
Return Version
2016v3.0
Gross Receipts
$3,922,072
Mission and Program Overview

Mission

Advocate for better funding, research, and healthcare. Enhance membership capacity.

To advocate for and enhance scdaa membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$489,085$459,488▼ $29,597
Pledges and Grants Receivable$284,538$383,577▲ $99,039
Cash and Non-Interest-Bearing Accounts$219,968$225,842▲ $5,874
Accounts Receivable$6,268$42,541▲ $36,273
Inventories for Sale or Use$4,379$7,599▲ $3,220
Land, Buildings, and Equipment, Net$5,170$3,502▼ $1,668
Prepaid Expenses and Deferred Charges$2,640$0▼ $2,640
Total Assets$1,017,193$1,127,694▲ $110,501
Other Assets Total$5,145$5,145→ $0
Liabilities
Accounts Payable and Accrued Expenses$220,630$304,591▲ $83,961
Mortgage Notes Payable Secured by Investment Property$175,580$284,265▲ $108,685
Deferred Revenue$146,718--
Other Liabilities$22,964$19,250▼ $3,714
Total Liabilities$565,892$608,106▲ $42,214
Net Assets / Fund Balance
Unrestricted Net Assets$369,957$487,124▲ $117,167
Temporarily Rstr Net Assets$81,344$32,464▼ $48,880
Total Net Assets Fund Balance$451,301$519,588▲ $68,287
Total Liabilities and Net Assets / Fund Balance$1,017,193$1,127,694▲ $110,501

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$127,717$127,717
Equipment$3,502$6,696$10,198
Other Securities$459,488--
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Sonja BanksPresident and COOFT$115,000$8,549$123,549

Board Members and Trustees

NameTitle
Christopher HollinsChair
David BraxtonVice Chair
Kim Smith-whitleyChief Medical Officer
Genice NelsonMember
Lennette BenjaminMember
Lewis HsuMember
Lisa J HallMember
Dennis TaylorTreasurer
Biree AndemariamVice Chief Medical Officer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,355,400
Program Service Revenue
$474,820
Investment Income
$14,106
Other Revenue
$13,483
All Other Contributions
$177,827
Change in Net Assets
$52,662

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,857,809
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$19,129
Total Revenue per Audited Statements
$3,876,938
Total Revenue per Form 990
$3,857,809
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,280,727
Other Expenses$797,754
Salaries, Compensation, and Employee Benefits$726,666
Total Fundraising Expense$81,072
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,280,727--$2,280,727
Other Salaries and Wages$363,762$110,182$9,392$483,336
Fees for Services Other$323,337$21,261-$344,598
Conferences and Meetings$145,451$10,000-$155,451
Current Officers, Directors, Trustees, and Key Employees$92,633$28,487$2,428$123,548
Office Expenses$25,244$49,912-$75,156
Other Employee Benefits$52,790$19,711$1,680$74,181
Other Expenses$71,585$-71,585$64,046$0
Occupancy-$62,664-$62,664
Payroll Taxes$32,451$12,117$1,033$45,601
Travel$26,627$2,921-$29,548
Fees for Services Accounting-$27,882-$27,882
Fees for Services Legal-$8,600-$8,600
Interest-$8,094-$8,094
Insurance-$4,194-$4,194
Advertising--$2,493$2,493
Depreciation Depletion-$1,668-$1,668
Royalties-$1,605-$1,605
Total Functional Expenses$3,414,607$309,468$81,072$3,805,147

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,808,651
Expenses per Audited Statements$3,805,147
Total Expenses per Form 990$3,805,147
Expenses Not Reported on Form 990$3,504
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Sickle Cell Disease Foundation of CaliforniaOntario, CA501(c)(3)To Fund Scd Research$302,813
Piedmont Health ServicesGreensboro, NC501(c)(3)To Fund Scd Research$238,276
Sickle Cell Disease Association of IllinoisChicago, IL501(c)(3)To Fund Scd Research$235,847
Sickle Cell Disease Association of America - Michigan Chapter IncDetroit, MI501(c)(3)To Fund Scd Research$232,724
Sickle Cell Association of New Jersey IncNewark, NJ501(c)(3)To Fund Scd Research$203,972
Sickle Cell Foundation of GeorgiaAtlanta, GA501(c)(3)To Fund Scd Research$203,760
Childrens Sickle Cell Foundation IncPittsburgh, PA501(c)(3)To Fund Scd Research$198,478
Scdaa Philadelphiadelaware Valley ChapterPhiladelphia, PA501(c)(3)To Fund Scd Research$133,104
Sickle Cell Anemia Foundation of OregonPortland, OR501(c)(3)To Fund Scd Research$117,028
St Louis Sickle Cell AssociationFlorissant, MO501(c)(3)To Fund Scd Research$90,663
Sickle Cell Foundation of TennesseeMemphis, TN501(c)(3)To Funds Scd Research$48,267
Scdaa Central Alabama ChapterBirmingham, AL501(c)(3)To Funds Scd Research$45,219
Martin Center Sickle CellIndianapolis, IN501(c)(3)To Funds Scd Research$42,256
Maryland Sickle Cell Disease Association IncColumbia, MD501(c)(3)To Funds Scd Research$27,136
Alliance for Childhood - CscnLas Vegas, NV501(c)(3)To Funds Scd Research$26,076
Queens Sickle Cell AdvocacyQueens Village, NY501(c)(3)To Funds Scd Research$26,007
James R Clark Memorial Sickle Cell FoundationColumbia, SC501(c)(3)To Funds Scd Research$25,093
Sickle Cell Foundation of Greater Montgomery IncWest Montgomery, AL501(c)(3)To Funds Scd Research$23,076
Ohio Sickle Cell & HealthColumbus, OH501(c)(3)To Funds Scd Research$16,314
Community Health InterventionsFayetteville, NC501(c)(3)To Funds Scd Research$15,835
Cayenne Wellness CenterGlendale, CA501(c)(3)To Funds Scd Research$13,621
Tova Healthcare LLCWilmington, DE501(c)(3)To Funds Scd Research$13,063
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$19,250
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 is presented at a special board meeting for review and comment.”

Form 990, Part VI, Section B, Line 12C

“Officers and directors are required to submit an annual questionnaire”

Form 990, Part VI, Section B, Line 15

“Compensation policy is reviewed and approved by the board of directors”

Form 990, Part VI, Section C, Line 18

“The organization makes its financial statements available to the public on the federal website.”

Form 990, Part VI, Section C, Line 19

“Governing documents along with conflict of interest policy and financial statements are available to the public upon request”

Filing and Contact Details

Filer

Filer Name
Sickle Cell Disease Association
EIN
23-7175985
Phone
4105281555
Address
3700 KOPPERS ST NO 570, BALTIMORE, MD 21227

Signing Officer

Name
Sonja Banks
Title
President
Phone
4105281555
Signed
2017-10-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Sonja Banks
Formed
1972
Legal Domicile
Md
Voting Board Members
9
Independent Board Members
9
Employees
15
Volunteers
28

Preparer

Firm
Halt Buzas & Powell Ltd
Address
1199 N FAIRFAX ST 10TH FLOOR, ALEXANDRIA, VA 22314
Preparer
Svetlana Chebakina
Phone
7038361350
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The process has not changed from prior year.”

Financial Statement Notes

PART X, LINE 2:

“The association is exempt from federal and local income taxes under section 501(c)(3) of the internal revenue code on any net income derived from activities related to its exempt purpose. This code section enables the association to accept donations that qualify as charitable contributions to the donor. The association is subject to tax on net income from unrelated business activities. For the years ended december 31, 2016 and 2015, the association did not recognize income tax expense in the accompanying financial statements as there was no unrelated business taxable income. The association is not aware of any activities that would jeopardize its tax-exempt status that would require recognition in the accompanying financial statements. Generally, tax returns are subject to examination by taxing authorities for up to three years from the date a completed return is filed. If there are material omissions of income, tax returns may be subject to examination for up to six years. It is the association's policy to recognize interest and/or penalties related to uncertain tax positions, if any, in the accompanying financial statements. At december 31, 2016 and 2015, the association had no uncertain tax positions which should be recognized as a liability.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold 3,504.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold 3,504.”

Raw XML AppendixShowing 400 of 727 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt0-42
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt09
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IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02280727
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02280727
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt060717
IRS990/GrossReceiptsAmt03922072
IRS990/GrossSalesOfInventoryAmt012325
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
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IRS990/InsuranceGrp/TotalAmt04194
IRS990/InterestGrp/ManagementAndGeneralAmt08094
IRS990/InterestGrp/TotalAmt08094
IRS990/InventoriesForSaleOrUseGrp/BOYAmt04379
IRS990/InventoriesForSaleOrUseGrp/EOYAmt07599
IRS990/InvestmentIncomeGrp/ExclusionAmt014148
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt014148
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0489085
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0459488
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0134413
IRS990/LandBldgEquipBasisNetGrp/BOYAmt05170
IRS990/LandBldgEquipBasisNetGrp/EOYAmt03502
IRS990/LandBldgEquipCostOrOtherBssAmt0137915
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt060759
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt020066
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ADVOCATE FOR AND ENHANCE SCDAA MEMBERSHIP'S ABILITY TO IMPROVE THE QUALITY OF HEALTH, LIFE AND SERVICES FOR INDIVIDUALS, FAMILIES AND COMMUNITIES AFFECTED BY SICKLE CELL DISEASE AND RELATED CONDITIONS, WHILE PROMOTING THE SEARCH FOR A CURE FOR ALL PEOPLE IN THE WORLD WITH SICKLE CELL DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt0175580
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt0284265
IRS990/NetAssetsOrFundBalancesBOYAmt0451301
IRS990/NetAssetsOrFundBalancesEOYAmt0519588
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-42
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-42
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt08821
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt08821
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt015625
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt062664
IRS990/OccupancyGrp/TotalAmt062664
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt049912
IRS990/OfficeExpensesGrp/ProgramServicesAmt025244
IRS990/OfficeExpensesGrp/TotalAmt075156
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt05145
IRS990/OtherAssetsTotalGrp/EOYAmt05145
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01680
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt019711
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt052790
IRS990/OtherEmployeeBenefitsGrp/TotalAmt074181
IRS990/OtherExpensesGrp/Desc0WALKATHON EXPENSES
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc2INDIRECT COSTS
IRS990/OtherExpensesGrp/FundraisingAmt064046
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt011755
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1-71585
IRS990/OtherExpensesGrp/ProgramServicesAmt071585
IRS990/OtherExpensesGrp/TotalAmt064046
IRS990/OtherExpensesGrp/TotalAmt111755
IRS990/OtherExpensesGrp/TotalAmt20
IRS990/OtherLiabilitiesGrp/BOYAmt022964
IRS990/OtherLiabilitiesGrp/EOYAmt019250
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt062
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt062
IRS990/OtherRevenueTotalAmt062
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt09392
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0110182
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0363762
IRS990/OtherSalariesAndWagesGrp/TotalAmt0483336
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt01033
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt012117
IRS990/PayrollTaxesGrp/ProgramServicesAmt032451
IRS990/PayrollTaxesGrp/TotalAmt045601
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0284538
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0383577
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt02640
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0SONJA BANKS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONVENTION
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0474820
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0474820
IRS990/ProgSrvcAccomActy2Grp/Desc0PCORI: TO DEVELOP A NATIONAL ADVOCATE NETWORK OF SICKLE CELL DISEASE PATIENTS, FAMILIES, CAREGIVERS AND OTHER STAKEHOLDERS EXPERTS THAT CAN PARTNER WITH CLINICIANS AND RESEARCHERS TO DESIGN, IMPLEMENT AND EVENTUALLY DISSEMINATE PATIENT CENTERED OUTCOMES RESEARCH AND COMPARATIVE EFFECTIVENESS RESEARCH (PCOR/CER) PROJECTS THAT IMPROVE OUTCOMES TO PATIENTS WITH SICKLE CELL DISEASE (SCD).
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt034208
IRS990/ProgSrvcAccomActy3Grp/Desc0HRSA: TO PROVIDE A NEWBORN SCREENING FOLLOW-UP PROGRAM THAT ENSURES ACCESS TO CARE FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD). IT INCLUDES PROVIDING FOLLOW-UP SERVICES: EDUCATION, COUNSELING, LEAD ADVOCACY INITIATIVES, AND ACCESS TO A MEDICAL HOME.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt02820499
IRS990/ProgSrvcAccomActy3Grp/GrantAmt02280727
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01355907
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0762009
IRS990/PYInvestmentIncomeAmt016764
IRS990/PYOtherExpensesAmt0700370
IRS990/PYOtherRevenueAmt09421
IRS990/PYProgramServiceRevenueAmt0412210
IRS990/PYRevenuesLessExpensesAmt0-107998
IRS990/PYSalariesCompEmpBnftPaidAmt0439921
IRS990/PYTotalExpensesAmt01902300
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01794302
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt052662
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0483641
IRS990/RoyaltiesGrp/ManagementAndGeneralAmt01605
IRS990/RoyaltiesGrp/TotalAmt01605
IRS990/RoyaltiesRevenueGrp/ExclusionAmt04600
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt04600
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt03355400
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01355907
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0488677
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0830356
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0905835
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt06936175
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt018748
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt019440
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt023446
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt012156
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt011743
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt085533
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt01597509
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt062
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0-2493
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt021060
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt014413
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt010474
IRS990ScheduleA/OtherIncome170Grp/TotalAmt043516
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.93310
IRS990ScheduleA/PublicSupportPY170Pct00.90080
IRS990ScheduleA/PublicSupportTotal170Amt06592783
IRS990ScheduleA/SubstantialContributorsTotAmt0343392
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt03355400
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01355907
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0488677
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0830356
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0905835
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt06936175
IRS990ScheduleA/TotalSupportAmt07065224
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt03502
IRS990ScheduleD/EquipmentGrp/DepreciationAmt06696
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt010198
IRS990ScheduleD/ExpensesNotReportedAmt03504
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt03805147
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/NetUnrealizedGainsInvstAmt015625
IRS990ScheduleD/OtherExpensesIncludedAmt03504
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt00
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt0127717
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt0127717
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt019250
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0DEFERRED RENT
IRS990ScheduleD/OtherRevenueAmt03504
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt0459488
IRS990ScheduleD/OtherSecuritiesGrp/Desc0INVESTMENTS
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/RevenueNotReportedAmt019129
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt03857809
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ASSOCIATION IS EXEMPT FROM FEDERAL AND LOCAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE ON ANY NET INCOME DERIVED FROM ACTIVITIES RELATED TO ITS EXEMPT PURPOSE. THIS CODE SECTION ENABLES THE ASSOCIATION TO ACCEPT DONATIONS THAT QUALIFY AS CHARITABLE CONTRIBUTIONS TO THE DONOR. THE ASSOCIATION IS SUBJECT TO TAX ON NET INCOME FROM UNRELATED BUSINESS ACTIVITIES. FOR THE YEARS ENDED DECEMBER 31, 2016 AND 2015, THE ASSOCIATION DID NOT RECOGNIZE INCOME TAX EXPENSE IN THE ACCOMPANYING FINANCIAL STATEMENTS AS THERE WAS NO UNRELATED BUSINESS TAXABLE INCOME. THE ASSOCIATION IS NOT AWARE OF ANY ACTIVITIES THAT WOULD JEOPARDIZE ITS TAX-EXEMPT STATUS THAT WOULD REQUIRE RECOGNITION IN THE ACCOMPANYING FINANCIAL STATEMENTS. GENERALLY, TAX RETURNS ARE SUBJECT TO EXAMINATION BY TAXING AUTHORITIES FOR UP TO THREE YEARS FROM THE DATE A COMPLETED RETURN IS FILED. IF THERE ARE MATERIAL OMISSIONS OF INCOME, TAX RETURNS MAY BE SUBJECT TO EXAMINATION FOR UP TO SIX YEARS. IT IS THE ASSOCIATION'S POLICY TO RECOGNIZE INTEREST AND/OR PENALTIES RELATED TO UNCERTAIN TAX POSITIONS, IF ANY, IN THE ACCOMPANYING FINANCIAL STATEMENTS. AT DECEMBER 31, 2016 AND 2015, THE ASSOCIATION HAD NO UNCERTAIN TAX POSITIONS WHICH SHOULD BE RECOGNIZED AS A LIABILITY.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1COST OF GOODS SOLD 3,504.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2COST OF GOODS SOLD 3,504.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt03502
IRS990ScheduleD/TotalBookValueSecuritiesAmt0459488
IRS990ScheduleD/TotalExpensesPerForm990Amt03805147
IRS990ScheduleD/TotalLiabilityAmt019250
IRS990ScheduleD/TotalRevenuePerForm990Amt03857809
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt03876938
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt03808651
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt0117028
IRS990ScheduleI/RecipientTable/CashGrantAmt1203760
IRS990ScheduleI/RecipientTable/CashGrantAmt2133104
IRS990ScheduleI/RecipientTable/CashGrantAmt3198478
IRS990ScheduleI/RecipientTable/CashGrantAmt490663
IRS990ScheduleI/RecipientTable/CashGrantAmt5302813
IRS990ScheduleI/RecipientTable/CashGrantAmt6235847
IRS990ScheduleI/RecipientTable/CashGrantAmt7232724

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,127,694
Liabilities
$608,106
Net assets
$519,588
Revenue
$3,857,809
Expenses
$3,805,147
Net income
$52,662
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.25$0.42$1.83$1.79$1.71$0.08
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.26$0.52$1.74$1.81$1.81$0.00
2022Detailed filing. Detailed filing data is available for this year.$1.95$0.25$1.70$1.10$1.34$0.24
2021Detailed filing. Detailed filing data is available for this year.$2.47$0.34$2.12$3.49$2.81$0.69
2020Detailed filing. Detailed filing data is available for this year.$2.21$0.65$1.56$5.84$5.03$0.81
2019Detailed filing. Detailed filing data is available for this year.$1.40$0.65$0.75$4.31$4.21$0.11
2018Detailed filing. Detailed filing data is available for this year.$1.32$0.67$0.65$4.23$3.98$0.24
2017Detailed filing. Detailed filing data is available for this year.$0.94$0.43$0.50$2.65$2.73$0.08
2016Detailed filing. Detailed filing data is available for this year.$1.13$0.61$0.52$3.86$3.81$0.05
2015Detailed filing. Detailed filing data is available for this year.$1.02$0.57$0.45$1.79$1.90$0.11
2014Detailed filing. Detailed filing data is available for this year.$0.99$0.41$0.58$0.82$0.95$0.13
2013Detailed filing. Detailed filing data is available for this year.$1.06$0.36$0.71$1.09$0.82$0.26
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.78$0.37$0.41$0.78