MID-Atlantic Connection for Pku Allied Disorder Inc

“We provided a $5000 grant to National PKU News to help them launch their new smart phone application, "Go Low Pro" for use by PKU patients. This App is used by PKU patients to help them calculate their phenylalinine intake and maintain strict control of their blood phenylalinine levels in order to prevent brain damage.”

“Expenses for 3 walks for PKU research where PKU families can meet each other, meet PKU vendors, and medical professionals in an informal setting to exchange ideas and information while raising money for PKU research, $3,465; Expenses for two cooking demonstrations to teach PKU families the art of low protein cooking, $8,856; expenses for a picnic for PKU families, PKU vendors, and medical professionals to meet each other, exchange ideas and information about dealing with PKU ,$1,809; expenses for a low protein cookie exchange for PKU families to meet each other and share ideas and information about dealing with PKU, $1,105; Expenses for PKU camp for PKU families, $6,601; purchase supplies for newborn baskets for families of children born with PKU and to mothers with PKU who are expecting a child, $325; purchase one year subscriptions to How Much Phe for PKU adults returning to treatment, $562; Travel expense to send MACPAD board member to National PKU Alliance board meeting, $1235.”