Liabilities / Assets
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
81st percentile
Higher net margin than 81% of similar nonprofits.
Top Officer Pay
50th percentile
Higher top officer pay than 50% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
73rd percentile
Faster asset growth than 73% of similar nonprofits.
Revenue Growth
76th percentile
Faster revenue growth than 76% of similar nonprofits.
Assets
Up$503,748
Up $60,529 (+14%) from 2017
Net Assets
Up$503,748
Up $60,529 (+14%) from 2017
Liabilities
Flat$0
Flat from 2017
Revenue
Up$242,743
Up $49,439 (+26%) from 2017
Expenses
Up$182,214
Up $142,208 (+355%) from 2017
Net Income
Down$60,529
Down $92,769 (-61%) from 2017
The cchs family network's mission is to promote communication across physician/patient communities in the united states and around the world. The aim of the organization is to inform families about resources and research without prjudice or predisposition toward any particular provider, technology, treatment strategy, research team or medical practitioner. They have a multi-focused mission of education and support for our families and cchs patients, inter-family and family-physician communication, and supporting and facilitating cchs research.
The cchs family network's mission primarily focuses on providing education and support to families and patients with cchs (congenital central hypoventilation syndrome)as well as inter-family and family-physician communication and supporting and facilitating cchs research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $443,219 | $503,748 | ▲ $60,529 |
| Total Assets | $443,219 | $503,748 | ▲ $60,529 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $443,219 | $503,748 | ▲ $60,529 |
| Total Net Assets Fund Balance | $443,219 | $503,748 | ▲ $60,529 |
| Total Liabilities and Net Assets / Fund Balance | $443,219 | $503,748 | ▲ $60,529 |
| Name | Title |
|---|---|
| Mary Vanderlaan Phd | President |
| Melinda Riccitelli Phd | Vice President |
| Carissa Froyum-roise Phd | Director |
| Eddy Yang Md Phd | Director |
| Nico Myering Mpa | Director |
| Rachel Ballard | Director |
| Rebecca Martine Msn Rn Pmhcns | Director |
| Sarah Yang Phd | Director |
| Wendy Stroup | Director |
| Desiree Cougle | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $128,121 |
| Grants and Similar Amounts Paid | $54,093 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $109,376 | - | - | $109,376 |
| Grants to Domestic Orgs | $54,093 | - | - | $54,093 |
| Fees for Services Accounting | - | $7,000 | - | $7,000 |
| Fees for Services Other | - | $1,749 | - | $1,749 |
| Insurance | - | $672 | - | $672 |
| Other Expenses | - | $411 | - | $411 |
| Advertising | - | $370 | - | $370 |
| Travel | - | $318 | - | $318 |
| All Other Expenses | - | $223 | - | $223 |
| Total Functional Expenses | $163,469 | $18,745 | $0 | $182,214 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Instituto Giannina Gaslini | Birmingham, AL, It | - | Cchs Research Grant | $30,159 |
| University of Alabama at Birmingham | - | - | Cchs Research Grant | $23,934 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $46,742 |
| Fundraising Direct Expenses | $14,854 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Martine Family Event | $46,742 | $46,742 | $14,854 | $31,888 |
| Total Events | $46,742 | $46,742 | $14,854 | $31,888 |
“Eddy yang and sarah yang are husband and wife.”
“The organization provides a copy of form 990 for review and approval prior to filing.”
“All governing documents, conflict of interest policy and financial statements are made available upon request.”
“All governing documents, conflict of interest policy and financial statements are made available upon request.”
“The organization provides a copy of form 990 for review and approval prior to filing.”
“All governing documents, conflict of interest policy and financial statements are made available upon request.”
“The organization accounts for uncertainty in income taxes using a recognition threshold of more-likely-than not to be sustained upon examination by the appropriate taxing authority. Measurement of the tax uncertainty occurs if the recognition threshold is met. Management determined there were no tax uncertainties that met the recognition threshold for the year ended december 31, 2018.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE CCHS FAMILY NETWORK'S MISSION PRIMARILY FOCUSES ON PROVIDING EDUCATION AND SUPPORT TO FAMILIES AND PATIENTS WITH CCHS (CONGENITAL CENTRAL HYPOVENTILATION SYNDROME)AS WELL AS INTER-FAMILY AND FAMILY-PHYSICIAN COMMUNICATION AND SUPPORTING AND FACILITATING CCHS RESEARCH. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 370 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 370 |
| IRS990/AllOtherContributionsAmt | 0 | 202698 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 223 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 223 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | DESIREE COUGLE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9085076844 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 7 BIRCH LANE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | HACKETTSTOWN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NJ |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 07840 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 443219 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 503748 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 109376 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 109376 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 202698 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 54093 |
| IRS990/CYInvestmentIncomeAmt | 0 | 7 |
| IRS990/CYOtherExpensesAmt | 0 | 128121 |
| IRS990/CYOtherRevenueAmt | 0 | 31888 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 8150 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 60529 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 182214 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 242743 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | DURING 2018 THE ORGANIZATION WAS ABLE TO AWARD 2 RESEARCH PROJECTS FOR CCHS RESEARCHERS |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 54093 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7000 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 7000 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1749 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 1749 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MARY VANDERLAAN PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MELINDA RICCITELLI PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DESIREE COUGLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CARISSA FROYUM-ROISE PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | REBECCA MARTINE MSN RN PMHCNS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | EDDY YANG MD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | SARAH YANG PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | NICO MYERING MPA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | RACHEL BALLARD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | WENDY STROUP |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1999 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 14854 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 46742 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantAmt | 0 | 54093 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 54093 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 54093 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 257597 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 672 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 672 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 7 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 7 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE CCHS FAMILY NETWORK'S MISSION IS TO PROMOTE COMMUNICATION ACROSS PHYSICIAN/PATIENT COMMUNITIES IN THE UNITED STATES AND AROUND THE WORLD. THE AIM OF THE ORGANIZATION IS TO INFORM FAMILIES ABOUT RESOURCES AND RESEARCH WITHOUT PREJUDICE OR PREDISPOSITION TOWARD ANY PARTICULAR PROVIDER, TECHNOLOGY, TREATMENT STRATEGY, RESEARCH TEAM, OR MEDICAL PRACTITIONER. THEY HAVE A MULTI-FOCUSED MISSION OF EDUCATION AND SUPPORT OF OUR FAMILIES AND C.C.H.S. PATIENTS, INTER-FAMILY AND FAMILY-PHYSICIAN COMMUNICATION, AND SUPPORTING AND FACILITATING C.C.H.S. RESEARCH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 443219 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 503748 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 31888 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 31888 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | MISCELLANEOUS EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK CHARGES |
| IRS990/OtherExpensesGrp/Desc | 3 | WEBSITE MAINTENANCE FEE |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 6317 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1220 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 465 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 411 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 6317 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 1220 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 465 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 411 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | DESIREE COUGLE |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE ATTENDANCE |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 8150 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 8150 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | REALIZED THE TRI-ANNUAL INTERNATIONAL CCHS CONFERENCE WHERE CURRENT RESEARCHERS REPORTED ON THEIR PROJECTS. FAMILIES MET AND INTERACTED WITH RESEARCHERS AND BOTH GAINED IMPORTANT INFORMATION FROM EACH OTHER. CHILDREN MET OTHER CHILDREN FROM AROUND THE WORLD WHO SUFFER WITH THE SAME ISSUES AND CONCERNS. PARENTS WERE SUPPORTED BY OTHERS FURTHER ALONE IN THEIR JOURNEY. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 109376 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 8150 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PARTNERED WITH NATIONAL ORGANIZATION OF RARE DISORDERS (NORD)WHICH HAS OPENED NEW DOORS FOR OUR FAMILY NETWORK REGARDING OUTREACH, REGISTRY AND RESEARCH OPPORTUNITIES. |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 142821 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 29997 |
| IRS990/PYInvestmentIncomeAmt | 0 | 4 |
| IRS990/PYOtherExpensesAmt | 0 | 10009 |
| IRS990/PYOtherRevenueAmt | 0 | 50479 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 153298 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 40006 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 193304 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 60529 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 202698 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 142822 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1463 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2681 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 349664 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 7 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 4 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 11 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 8150 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 8150 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 7 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 4 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 11 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 357814 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 210848 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 142822 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1463 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2681 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 357814 |
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| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES USING A RECOGNITION THRESHOLD OF MORE-LIKELY-THAN NOT TO BE SUSTAINED UPON EXAMINATION BY THE APPROPRIATE TAXING AUTHORITY. MEASUREMENT OF THE TAX UNCERTAINTY OCCURS IF THE RECOGNITION THRESHOLD IS MET. MANAGEMENT DETERMINED THERE WERE NO TAX UNCERTAINTIES THAT MET THE RECOGNITION THRESHOLD FOR THE YEAR ENDED DECEMBER 31, 2018. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION PROVIDES A COPY OF FORM 990 FOR REVIEW AND APPROVAL PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | ALL GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | ALL GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION PROVIDES A COPY OF FORM 990 FOR REVIEW AND APPROVAL PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | ALL GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST. |
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| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION C, LINE 18 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION B, LINE 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART VI, SECTION C, LINE 19 |
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| ReturnHeader/BuildTS | 0 | 2019-02-21 02:37:17Z |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.