Civic Intelligence

Epilepsy Foundation New England Inc.

990 • Fiscal year 2017 • EIN 22-2505819

Jul 01, 2016 to Jun 30, 2017 • Filed on Feb 19, 2018

Organization ProfileWWW.EPILEPSYNEWENGLAND.ORG
335 Main StreetWilmington, MA 01887

(617) 506-6041

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

40th percentile

0.09x

Higher debt load relative to assets than 40% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Liabilities / Revenue

24th percentile

0.05x

Higher debt load relative to revenue than 24% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Net Margin

71st percentile

13%

Higher net margin than 71% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Top Officer Pay

76th percentile

$199,542

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 2.7% of source-year revenue.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2017

Asset Growth

87th percentile

28%

Faster asset growth than 87% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Revenue Growth

77th percentile

24%

Faster revenue growth than 77% of similar nonprofits.

2017 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$4,366,391

Up $964,008 (+28%) from 2016

Net Assets

Up

$3,965,695

Up $964,398 (+32%) from 2016

Liabilities

Down

$400,696

Down $390 (-0.1%) from 2016

Revenue And Expenses
Liabilities / Revenue24th percentileNet Margin71st percentile

Revenue

Up

$7,397,128

Up $1,436,615 (+24%) from 2016

Expenses

Up

$6,457,954

Up $1,195,631 (+23%) from 2016

Net Income

Up

$939,174

Up $240,984 (+35%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth87th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2011: $787,726Liabilities 2011: $159,798Net Assets 2011: $627,9282011Assets 2012: $1,075,929Liabilities 2012: $157,064Net Assets 2012: $918,8652012Assets 2014: $1,844,163Liabilities 2014: $135,614Net Assets 2014: $1,708,5492014Assets 2015: $2,443,198Liabilities 2015: $151,298Net Assets 2015: $2,291,9002015Assets 2016: $3,402,383Liabilities 2016: $401,086Net Assets 2016: $3,001,2972016Assets 2017: $4,366,391Liabilities 2017: $400,696Net Assets 2017: $3,965,6952017Assets 2018: $4,726,128Liabilities 2018: $235,158Net Assets 2018: $4,490,9702018Assets 2019: $5,569,131Liabilities 2019: $723,706Net Assets 2019: $4,845,4252019Assets 2020: $6,252,451Liabilities 2020: $730,007Net Assets 2020: $5,522,4442020Assets 2021: $9,132,602Liabilities 2021: $382,713Net Assets 2021: $8,749,8892021Assets 2022: $9,060,661Liabilities 2022: $305,995Net Assets 2022: $8,754,6662022Assets 2023: $10,402,302Liabilities 2023: $418,683Net Assets 2023: $9,983,6192023Assets 2024: $13,877,043Liabilities 2024: $1,575,165Net Assets 2024: $12,301,8782024Assets 2025: $15,377,474Liabilities 2025: $1,533,044Net Assets 2025: $13,844,4302025

Highlighted filing

2017

Assets$4,366,391
Liabilities$400,696
Net Assets$3,965,695
Open 2017 Filing

Operations Trend

Revenue Growth77th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0Revenue 2011: $786,595Expenses 2011: $458,978Net Income 2011: $327,6172011Expenses 2012: $3,235,9592012Revenue 2014: $3,827,034Expenses 2014: $3,356,672Net Income 2014: $470,3622014Revenue 2015: $4,338,633Expenses 2015: $3,740,732Net Income 2015: $597,9012015Revenue 2016: $5,960,513Expenses 2016: $5,262,323Net Income 2016: $698,1902016Revenue 2017: $7,397,128Expenses 2017: $6,457,954Net Income 2017: $939,1742017Revenue 2018: $6,902,554Expenses 2018: $6,314,386Net Income 2018: $588,1682018Revenue 2019: $6,054,061Expenses 2019: $5,787,898Net Income 2019: $266,1632019Revenue 2020: $5,439,977Expenses 2020: $4,917,110Net Income 2020: $522,8672020Revenue 2021: $6,402,351Expenses 2021: $4,110,889Net Income 2021: $2,291,4622021Revenue 2022: $5,980,042Expenses 2022: $4,674,503Net Income 2022: $1,305,5392022Revenue 2023: $6,573,455Expenses 2023: $5,905,898Net Income 2023: $667,5572023Revenue 2024: $7,355,741Expenses 2024: $6,455,357Net Income 2024: $900,3842024Revenue 2025: $7,486,018Expenses 2025: $6,800,011Net Income 2025: $686,0072025

Highlighted filing

2017

Revenue$7,397,128
Expenses$6,457,954
Net Income$939,174
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
Feb 19, 2018
Return Version
2016v3.0
Gross Receipts
$7,597,959
Mission and Program Overview

Mission

The mission of epilepsy foundation new england is to stop seizures and sudden unexpected death in epilepsy (sudep), find a cure and overcome the challenges of epilepsy through education, advocacy, and research.

The mission of epilepsy foundation new england is to stop seizure and sudden unexpected death in epilepsy (sudep), find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy, and research to accelerate ideas into therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities-$2,294,578-
Savings and Temporary Cash Investments$1,645,391--
Cash and Non-Interest-Bearing Accounts$336,380$995,813▲ $659,433
Accounts Receivable$902,748$538,882▼ $363,866
Investments in Publicly Traded Securities$313,022--
Land, Buildings, and Equipment, Net$137,287$242,641▲ $105,354
Prepaid Expenses and Deferred Charges$51,205$93,036▲ $41,831
Pledges and Grants Receivable-$80,000-
Total Assets$3,402,383$4,366,391▲ $964,008
Other Assets Total$16,350$121,441▲ $105,091
Liabilities
Accounts Payable and Accrued Expenses$355,428$275,686▼ $79,742
Other Liabilities$45,658$118,505▲ $72,847
Deferred Revenue-$6,505-
Total Liabilities$401,086$400,696▼ $390
Net Assets / Fund Balance
Unrestricted Net Assets$2,941,041$3,484,951▲ $543,910
Temporarily Rstr Net Assets$60,256$480,744▲ $420,488
Total Net Assets Fund Balance$3,001,297$3,965,695▲ $964,398
Total Liabilities and Net Assets / Fund Balance$3,402,383$4,366,391▲ $964,008

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$188,536$1,056,154$1,244,690
Equipment$54,105$57,926$112,031
Other Securities$2,294,578--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$60,256$541,624-$121,136$480,744
2015$81,425$38,280-$59,449$60,256
2014$62,538$68,675-$49,788$81,425
2013$50,964$54,064-$42,490$62,538
2012$6,767$44,197--$50,964
Compensation and Service Providers
Top Officer Pay76th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Bradley RichPresident - Donation CenterFT$194,553$4,989$199,542
Susan LinnPresident & CEO (as of 07/05/16)FT$160,000$8,252$168,252
Leslie BrodyPresident & CEO, Former-$129,262$129,262$129,262

Board Members and Trustees

NameTitle
James BoudrotChair
Edward BunnVice Chair
Adam GianunzioDirector
Francesco SalituroDirector
Jeffrey GliddenDirector
Joseph SiravoDirector
Kerry CollinsDirector
Lisa PhillipsDirector
Mark FinneganDirector
Nicole DerosiersDirector
Richard McilveenDirector
Susan KantorDirector
Telly TheodoropoulosDirector
Tracey MilliganDirector
William BraunlichDirector
Steve SiravoSecretary
Audrey KadisTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Graphic CommunicationsAdvertising & OutreachPO BOX 933233, Atlanta, GA 31193$424,547
Ryder Transporation ServicesTruck LeasesPO BOX 96723, Chicago, IL 60693$417,193
Balance ProfessionalTemp. Staffing3325 HOLLYWOOD BOULEVARD, Hollywood, FL 33021$164,764
The Fenway GroupAdvertising & Outreach870 COMMONWEALTH AVENUE, Boston, MA 02215$160,397
Revenue and Support

Revenue Composition

Contributions and Grants
$2,285,379
Program Service Revenue
$5,124,171
Investment Income
$14,522
Other Revenue
$-26,944
All Other Contributions
$1,921,227
Change in Net Assets
$939,174

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Clothing and Household Goods-$991,805Fair Market Value (FMV)
Other Non Cash Contri Table86$27,756Fair Market Value (FMV)
Other Non Cash Contri Table1$13,605Fair Market Value (FMV)
Total Noncash Contributions87$1,033,166-

Audited Revenue Reconciliation

Revenue per Audited Statements
$7,397,128
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$346,692
Total Revenue per Audited Statements
$7,743,820
Total Revenue per Form 990
$7,397,128
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$3,471,360
Other Expenses$2,942,929
Total Fundraising Expense$1,631,722
Grants and Similar Amounts Paid$43,665
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,924,137$97,929$737,939$2,760,005
Other Employee Benefits$283,698$18,976$145,003$447,677
Fees for Services Other$80,711$125,452$130,848$337,011
Depreciation Depletion$263,539$31,688-$295,227
Occupancy$200,828$8,529$64,319$273,676
All Other Expenses$79,774$17,227$85,641$182,642
Current Officers, Directors, Trustees, and Key Employees$117,250$8,490$42,512$168,252
Advertising$4,845$325$142,419$147,589
Office Expenses$88,963$7,988$46,406$143,357
Other Expenses$106,393$2,596$77,163$106,393
Payroll Taxes$65,722$3,545$26,159$95,426
Travel$27,511$2,478$44,025$74,014
Information Technology$57,063--$57,063
Fees for Services Accounting$44,379--$44,379
Grants to Domestic Individuals$43,665--$43,665
Fees for Services Lobbying$2,700--$2,700
Total Functional Expenses$4,500,340$325,893$1,631,722$6,457,954

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,773,876
Expenses per Audited Statements$6,457,954
Total Expenses per Form 990$6,457,954
Expenses Not Reported on Form 990$315,922
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$200,831
Fundraising Gross Income$147,915
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$284,688$93,427$63,412$30,015
Walks for Epilepsy$207,873$54,488$56,665$-2,177
Total Events$512,067$147,915$200,831$-52,916
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Capital Lease Obligation$118,505
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Board members, steve siravo and joseph siravo have a family relationship.”

Form 990, Part VI, Section B, Line 11B

“The form 990 is reviewed in detail by both management and the executive committee. The return is approved by the board of directors upon recommendation by the executive committee.”

Form 990, Part VI, Section B, Line 12C

“All board members annually sign a conflict of interest statement indicating acknowledgement and support of the policy, as well as disclosure of any potential conflicts. The minute of the board meetings evidence recusals from meetings, when appropriate, and record any waivers in the minutes.”

Form 990, Part VI, Section B, Line 15A

“The compensation for the ceo is reviewed annually. The board uses comparability data to look at salaries in similar charitable organizations, as well as a performance review to determine salary rates. The process and decisions are both documented in the board minutes.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Epilepsy Foundation New England
EIN
22-2505819
Phone
6175066041
Address
335 MAIN STREET, WILMINGTON, MA 01887

Signing Officer

Name
Susan Linn
Title
President & CEO
Phone
6175066041
Signed
2018-02-19
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Linn
Formed
1983
Legal Domicile
Ma
Voting Board Members
17
Independent Board Members
17
Employees
274
Volunteers
350

Preparer

Firm
Cliftonlarsonallen Llp
Address
300 CROWN COLONY DRIVE SUITE 310, QUINCY, MA 02169
Preparer
Judy Daley
Phone
6179848100
Supplemental Narrative

Financial Statement Notes

PART V, LINE 4:

“To be used for future scholarships, camp, e-studio, and advocacy programs.”

PART X, LINE 2:

“The financial accounting standards board ("fasb") has issued a standard that clarifies the accounting and recognition of income tax positions taken or expected to be taken in the organization's income tax returns. The organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. If the organization incurs interest or penalties as a result of unrecognized tax positions the policy is to classify interest accrued with interest expense and penalties thereon with operating expenses. The organization's tax filings are subject to audit by various taxing authorities. The organization is not currently under examination by any taxing jurisdiction.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE MISSION OF EPILEPSY FOUNDATION NEW ENGLAND IS TO STOP SEIZURE AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY THROUGH EFFORTS INCLUDING EDUCATION, ADVOCACY, AND RESEARCH TO ACCELERATE IDEAS INTO THERAPIES.
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IRS990/Form990PartVIISectionAGrp/PersonNm0JAMES BOUDROT
IRS990/Form990PartVIISectionAGrp/PersonNm1EDWARD BUNN
IRS990/Form990PartVIISectionAGrp/PersonNm2AUDREY KADIS
IRS990/Form990PartVIISectionAGrp/PersonNm3STEVE SIRAVO
IRS990/Form990PartVIISectionAGrp/PersonNm4WILLIAM BRAUNLICH
IRS990/Form990PartVIISectionAGrp/PersonNm5KERRY COLLINS
IRS990/Form990PartVIISectionAGrp/PersonNm6NICOLE DEROSIERS
IRS990/Form990PartVIISectionAGrp/PersonNm7MARK FINNEGAN
IRS990/Form990PartVIISectionAGrp/PersonNm8ADAM GIANUNZIO
IRS990/Form990PartVIISectionAGrp/PersonNm9JEFFREY GLIDDEN
IRS990/Form990PartVIISectionAGrp/PersonNm10SUSAN KANTOR
IRS990/Form990PartVIISectionAGrp/PersonNm11RICHARD MCILVEEN
IRS990/Form990PartVIISectionAGrp/PersonNm12TRACEY MILLIGAN
IRS990/Form990PartVIISectionAGrp/PersonNm13LISA PHILLIPS
IRS990/Form990PartVIISectionAGrp/PersonNm14JOSEPH SIRAVO
IRS990/Form990PartVIISectionAGrp/PersonNm15FRANCESCO SALITURO
IRS990/Form990PartVIISectionAGrp/PersonNm16TELLY THEODOROPOULOS
IRS990/Form990PartVIISectionAGrp/PersonNm17SUSAN LINN
IRS990/Form990PartVIISectionAGrp/PersonNm18BRADLEY RICH
IRS990/Form990PartVIISectionAGrp/PersonNm19LESLIE BRODY
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IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17PRESIDENT & CEO (AS OF 07/05/16)
IRS990/Form990PartVIISectionAGrp/TitleTxt18PRESIDENT - DONATION CENTER
IRS990/Form990PartVIISectionAGrp/TitleTxt19PRESIDENT & CEO, FORMER
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IRS990/MissionDesc0THE MISSION OF EPILEPSY FOUNDATION NEW ENGLAND IS TO STOP SEIZURE AND SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP), FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY THROUGH EFFORTS INCLUDING EDUCATION, ADVOCACY, AND RESEARCH TO ACCELERATE IDEAS INTO THERAPIES.
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IRS990/OccupancyGrp/ManagementAndGeneralAmt08529
IRS990/OccupancyGrp/ProgramServicesAmt0200828
IRS990/OccupancyGrp/TotalAmt0273676
IRS990/OfficeExpensesGrp/FundraisingAmt046406
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt07988
IRS990/OfficeExpensesGrp/ProgramServicesAmt088963
IRS990/OfficeExpensesGrp/TotalAmt0143357
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt0121441
IRS990/OtherChangesInNetAssetsAmt00
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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt018976
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt0447677
IRS990/OtherExpensesGrp/Desc0POSTAGE, SHIPPING AND D
IRS990/OtherExpensesGrp/Desc1TRUCK EXPENSES
IRS990/OtherExpensesGrp/Desc2REPAIR AND RENTAL
IRS990/OtherExpensesGrp/Desc3LOGISTICS TRANSFER COST
IRS990/OtherExpensesGrp/FundraisingAmt089288
IRS990/OtherExpensesGrp/FundraisingAmt177163
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0670
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12596
IRS990/OtherExpensesGrp/ProgramServicesAmt0725626
IRS990/OtherExpensesGrp/ProgramServicesAmt1343411
IRS990/OtherExpensesGrp/ProgramServicesAmt240124
IRS990/OtherExpensesGrp/ProgramServicesAmt3106393
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IRS990/OtherExpensesGrp/TotalAmt1343411
IRS990/OtherExpensesGrp/TotalAmt2119883
IRS990/OtherExpensesGrp/TotalAmt3106393
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IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
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IRS990/PriorPeriodAdjustmentsAmt0-5546
IRS990/ProfessionalFundraisingInd00
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IRS990/ProgramServiceRevenueGrp/Desc0DONATION CENTER REVENUE
IRS990/ProgramServiceRevenueGrp/Desc1CAMP FEES AND CAMPERSHIPS
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IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt18594
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt18594
IRS990/ProgSrvcAccomActy2Grp/Desc0RESOURCE AND SUPPORT CENTER & ADVOCACY:- HELPDESK: 1,800 HELP DESK CALLS PER YEAR. - SUPPORT GROUPS: 16 RECURRING IN-PERSON AND PHONE/ONLINE SUPPORT GROUPS.- PHYSICIAN OUTREACH TO EFNE: "INBOX" - 181+ (REQUESTS FROM MEDICAL TEAMS TO REACH OUT TO PATIENTS, INFO ON PROGRAMS, SUDEP FAMILIES, EDUCATION, AND SUPPORT GROUP).- NEURO GRAND ROUNDS OR EPILEPSY ROUNDS: MD (NEUROLOGY, NEUROSURGERY) RN, RESIDENTS/FELLOWS; TUFTS AND URI - APPROXIMATELY 90 ATTENDEES SUDEP OUTREACH: OUTREACH TO 53 FAMILIES WITH EMOTIONAL SUPPORT, REFERRALS TO NATIONAL RESOURCES, LOCAL BEREAVEMENT SUPPORT, EFNE EFFORTS TO HONOR LOVED ONES.- INTERN PROGRAM: 8 COLLEGE INTERNS PARTICIPATED IN RESOURCE AND SUPPORT PROJECTS OVER THE SUMMER AND FALL OF 2017 (OUTREACH, EDUCATION, NEUROSCIENCE, AWARENESS, PHARMACY AND PATIENT ASSISTANCE, ART THERAPY).- LINKING WITH RESOURCES IN COMMUNITY TO SUPPORT FAMILIES - MONTHLY INFORMATION SESSIONS: FIRST INFORMATION SESSION IN OCTOBER, OFFERED IN PARTNERSHIP WITH CAREGIVER HOMES TO PROVIDE RESOURCES TO FAMILIES CARING FOR LOVED ONES AT HOME; UPCOMING WORKSHOPS: EDUCATION: NAVIGATING IEP, 504C, HOUSING RESOURCES, TRANSPORTATION RESOURCES, RESPITE PROVIDER RESOURCES/PCA, PATIENT ASSISTANCE PROGRAMS FOR RX, FIRST AID FOR FAMILY MEMBERS (PARENTS, GRANDPARENTS, BABYSITTERS), SERVICE ANIMALS - TRAINING VOLUNTEER SUPPORT GROUP FACILITATION LEADERS: 2 TRAINING SESSIONS HELD (MARCH 2017 AND SEPTEMBER 2017); 27 PARTICIPANTS TOTAL (24 IN PERSON, 3 REMOTE).- TRAINING EFNE STAFF TO PROVIDE MENTAL HEALTH SKILLS SUPPORT WORKSHOPS: 4 EFNE STAFF MEMBERS COMPLETED UPLIFT TRAINING THROUGH EMORY UNIVERSITY TO BE ABLE TO PROVIDE REMOTE MENTAL HEALTH SKILLS (MINDFULNESS, MEDITATION, CBT) SUPPORT GROUPS. NOT A TREATMENT PARADIGM, UPLIFT CAN BE APPLIED AS A MENTAL HEALTH SKILLS WORKSHOP TO ASSIST PATIENTS WITH EPILEPSY AND COMORBID DEPRESSION, ANXIETY. THE GROUPS WILL BE CO-FACILITATED BY ONE EFNE STAFF MEMBER AND A PERSON LIVING WITH EPILEPSY.- SPRING 2017 PILOT PHONE COACHING PROGRAM: 43 PARTICIPANTS TOTAL.- ADVOCACY: EFNE IS COMMITTED TO PROTECTING THE RIGHTS OF PEOPLE WITH EPILEPSY AND ENSURING THAT THEY HAVE ACCESS TO NEEDED TREATMENTS AND SERVICES. WE DO THIS BY HELPING INDIVIDUALS AND ALSO BY ADVOCATING WITH OUR ELECTED OFFICIALS, COMMUNITY LEADERS, AND POLICYMAKERS THROUGH OUR PAID DIRECTOR OF ADVOCACY AND PUBLIC POLICY, THROUGH VOLUNTEERS, AND THROUGH SOCIAL MEDIA AND E-MAIL MARKETING.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0190779
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0FUNDING SUPPORT & DONATION CENTER:FUND EPILEPSY FOUNDATION OF NEW ENGLAND'S MISSION OF SUPPORTING EPILEPSY RESEARCH AND ADVOCACY THROUGH COLLECTING GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO SHOWCASE ADVANCES AND RAISE MONEY FOR RESEARCH, IN PARTNERSHIP WITH EPILEPSY FOUNDATION OF AMERICA'S EPILEPSY INNOVATION INSTITUTE. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN UNDERSTANDING RESEARCH IN EPILEPSY.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt03419634
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt05115577
IRS990/ProgSrvcAccomActyOtherGrp/Desc0OTHER PROGRAM SERVICES:- FINANCIAL AID & SCHOLARSHIPS:FINANCIAL AID: APPROXIMATELY 30 AWARDS OF $50-$1,000 IN ASSISTANCE PER YEAR TO FAMILIES IN FINANCIAL CRISIS - $15,000 PER YEAR. SCHOLARSHIPS: AWARDS TO 23 STUDENTS PURSING HIGHER EDUCATION, INCLUDING 6 AWARDS OF $2,500.- WALKS FOR EPILEPSY:SIX EPILEPSY WALKS AND RUNS PER YEAR ARE IMPORTANT OPPORTUNITIES TO BRING TOGETHER PEOPLE WITH EPILEPSY AND THEIR LOVED ONES, SHOWING SUPPORT OF EACH OTHER, BUILDING CONNECTIONS, AND RAISING AWARENESS. MORE THAN 2,000 PEOPLE WALK WITH US ACROSS 4 STATES.- CAMP:- SLEEPAWAY FAMILY CAMPS FOR 13 FAMILIES IN MAINE IN JULY AND 10 FAMILIES IN MASSACHUSETTS IN AUGUST.A)TWO 4-DAY THERAPEUTIC HORSEBACK RIDING CAMPS FOR 15 CHILDREN EACH. B)KIDS CAMP FOR 18 CHILDREN IN MAINE AND 16 IN MASSACHUSETTS C)YOUNG ADULT RETREAT FOR15 PEOPLE AGES 18-30. D)ADULT RETREAT FOR 10 ADULTS.- EMPLOYMENT SERVICES:EFNE'S CAREER NAVIGATOR OFFERS QUARTERLY HANDS-ON EDUCATIONAL PROGRAMMING, DESIGNED TO REMOVE BARRIERS TO EMPLOYMENT AND IMPROVE LONG TERM EMPLOYMENT OUTCOMES FOR PEOPLE WITH EPILEPSY. OVER 50 CLIENTS ARE SERVED VIA 1:1 COACHING, SMALL GROUP COACHING, JOB REFERRAL, AND JOB PLACEMENT.- VOLUNTEER ENGAGEMENT:MORE THAN 300 VOLUNTEERS PER YEAR WORK WITH THE FOUNDATION TO PROVIDE CAMP, JOB COACHING, SUPPORT FOR OUR WALKS, COMMUNITY EDUCATION, CLIENT OUTREACH, AND GENERAL OFFICE SUPPORT.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0475017
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt043665
IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt034566

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$4,366,391
Liabilities
$400,696
Net assets
$3,965,695
Revenue
$7,397,128
Expenses
$6,457,954
Net income
$939,174
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.4$1.53$13.8$7.49$6.80$0.69
2024Detailed filing. Detailed filing data is available for this year.$13.9$1.58$12.3$7.36$6.46$0.90
2023Detailed filing. Detailed filing data is available for this year.$10.4$0.42$9.98$6.57$5.91$0.67
2022Detailed filing. Detailed filing data is available for this year.$9.06$0.31$8.75$5.98$4.67$1.31
2021Detailed filing. Detailed filing data is available for this year.$9.13$0.38$8.75$6.40$4.11$2.29
2020Detailed filing. Detailed filing data is available for this year.$6.25$0.73$5.52$5.44$4.92$0.52
2019Detailed filing. Detailed filing data is available for this year.$5.57$0.72$4.85$6.05$5.79$0.27
2018Detailed filing. Detailed filing data is available for this year.$4.73$0.24$4.49$6.90$6.31$0.59
2017Detailed filing. Detailed filing data is available for this year.$4.37$0.40$3.97$7.40$6.46$0.94
2016Detailed filing. Detailed filing data is available for this year.$3.40$0.40$3.00$5.96$5.26$0.70
2015Detailed filing. Detailed filing data is available for this year.$2.44$0.15$2.29$4.34$3.74$0.60
2014Detailed filing. Detailed filing data is available for this year.$1.84$0.14$1.71$3.83$3.36$0.47
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.08$0.16$0.92$3.24
2011Summary only. Only limited summary data is available for this year.$0.79$0.16$0.63$0.79$0.46$0.33