Civic Intelligence

Epilepsy Foundation New England

EIN 22-2505819 • 501(c)3 • Lowell, MA

Profile

To help people and families affected by epilepsy in new england. Efne aims to serve the approximately 110,000 people in maine, massachusetts, new hampshire, rhode island, and vermont affected by epilepsy and the people who care for them. Efne's services are designed to provide help for today and hope for tomorrow.

175 Cabot Street 301Lowell, MA 01854

www.epilepsynewengland.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

40th percentile

0.10x

Higher debt load relative to assets than 40% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Liabilities / Revenue

48th percentile

0.20x

Higher debt load relative to revenue than 48% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Net Margin

60th percentile

9.2%

Higher net margin than 60% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Top Officer Pay

77th percentile

$298,029

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 4.0% of source-year revenue.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Asset Growth

69th percentile

11%

Faster asset growth than 69% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2024 to 2025

Revenue Growth

38th percentile

1.8%

Faster revenue growth than 38% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2024 to 2025

Assets

Up

$15,377,474

Up $1,500,431 (+11%) from 2024

Liabilities

Down

$1,533,044

Down $42,121 (-2.7%) from 2024

Net Assets

Up

$13,844,430

Up $1,542,552 (+13%) from 2024

Revenue

Up

$7,486,018

Up $130,277 (+1.8%) from 2024

Expenses

Up

$6,800,011

Up $344,654 (+5.3%) from 2024

Net Income

Down

$686,007

Down $214,377 (-24%) from 2024

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$20M$15M$10M$5.0M$0Assets 2011: $787,726Liabilities 2011: $159,798Net Assets 2011: $627,9282011Assets 2012: $1,075,929Liabilities 2012: $157,064Net Assets 2012: $918,8652012Assets 2014: $1,844,163Liabilities 2014: $135,614Net Assets 2014: $1,708,5492014Assets 2015: $2,443,198Liabilities 2015: $151,298Net Assets 2015: $2,291,9002015Assets 2016: $3,402,383Liabilities 2016: $401,086Net Assets 2016: $3,001,2972016Assets 2017: $4,366,391Liabilities 2017: $400,696Net Assets 2017: $3,965,6952017Assets 2018: $4,726,128Liabilities 2018: $235,158Net Assets 2018: $4,490,9702018Assets 2019: $5,569,131Liabilities 2019: $723,706Net Assets 2019: $4,845,4252019Assets 2020: $6,252,451Liabilities 2020: $730,007Net Assets 2020: $5,522,4442020Assets 2021: $9,132,602Liabilities 2021: $382,713Net Assets 2021: $8,749,8892021Assets 2022: $9,060,661Liabilities 2022: $305,995Net Assets 2022: $8,754,6662022Assets 2023: $10,402,302Liabilities 2023: $418,683Net Assets 2023: $9,983,6192023Assets 2024: $13,877,043Liabilities 2024: $1,575,165Net Assets 2024: $12,301,8782024Assets 2025: $15,377,474Liabilities 2025: $1,533,044Net Assets 2025: $13,844,4302025

Highlighted filing

2025

Assets$15,377,474
Liabilities$1,533,044
Net Assets$13,844,430

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0Revenue 2011: $786,595Expenses 2011: $458,978Net Income 2011: $327,6172011Expenses 2012: $3,235,9592012Revenue 2014: $3,827,034Expenses 2014: $3,356,672Net Income 2014: $470,3622014Revenue 2015: $4,338,633Expenses 2015: $3,740,732Net Income 2015: $597,9012015Revenue 2016: $5,960,513Expenses 2016: $5,262,323Net Income 2016: $698,1902016Revenue 2017: $7,397,128Expenses 2017: $6,457,954Net Income 2017: $939,1742017Revenue 2018: $6,902,554Expenses 2018: $6,314,386Net Income 2018: $588,1682018Revenue 2019: $6,054,061Expenses 2019: $5,787,898Net Income 2019: $266,1632019Revenue 2020: $5,439,977Expenses 2020: $4,917,110Net Income 2020: $522,8672020Revenue 2021: $6,402,351Expenses 2021: $4,110,889Net Income 2021: $2,291,4622021Revenue 2022: $5,980,042Expenses 2022: $4,674,503Net Income 2022: $1,305,5392022Revenue 2023: $6,573,455Expenses 2023: $5,905,898Net Income 2023: $667,5572023Revenue 2024: $7,355,741Expenses 2024: $6,455,357Net Income 2024: $900,3842024Revenue 2025: $7,486,018Expenses 2025: $6,800,011Net Income 2025: $686,0072025

Highlighted filing

2025

Revenue$7,486,018
Expenses$6,800,011
Net Income$686,007

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.4$1.53$13.8$7.49$6.80$0.69
2024Detailed filing. Detailed filing data is available for this year.$13.9$1.58$12.3$7.36$6.46$0.90
2023Detailed filing. Detailed filing data is available for this year.$10.4$0.42$9.98$6.57$5.91$0.67
2022Detailed filing. Detailed filing data is available for this year.$9.06$0.31$8.75$5.98$4.67$1.31
2021Detailed filing. Detailed filing data is available for this year.$9.13$0.38$8.75$6.40$4.11$2.29
2020Detailed filing. Detailed filing data is available for this year.$6.25$0.73$5.52$5.44$4.92$0.52
2019Detailed filing. Detailed filing data is available for this year.$5.57$0.72$4.85$6.05$5.79$0.27
2018Detailed filing. Detailed filing data is available for this year.$4.73$0.24$4.49$6.90$6.31$0.59
2017Detailed filing. Detailed filing data is available for this year.$4.37$0.40$3.97$7.40$6.46$0.94
2016Detailed filing. Detailed filing data is available for this year.$3.40$0.40$3.00$5.96$5.26$0.70
2015Detailed filing. Detailed filing data is available for this year.$2.44$0.15$2.29$4.34$3.74$0.60
2014Detailed filing. Detailed filing data is available for this year.$1.84$0.14$1.71$3.83$3.36$0.47
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.08$0.16$0.92$3.24
2011Summary only. Only limited summary data is available for this year.$0.79$0.16$0.63$0.79$0.46$0.33
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Nov 12, 2025
Return Version
2024v5.2
Gross Receipts
$7,868,112
Mission and Program Overview

Mission

The mission of epilepsy foundation new england is to stop seizures and sudden unexpected death in epilepsy (sudep), find a cure and overcome the challenges of epilepsy through education, advocacy, and research.

Epilepsy foundation new england's (efne) mission is to improve the lives of people affected by epilepsy through education, advocacy, research, and connection.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$10,457,343$12,061,851▲ $1,604,508
Savings and Temporary Cash Investments$721,715$769,005▲ $47,290
Accounts Receivable$766,398$620,425▼ $145,973
Cash and Non-Interest-Bearing Accounts$626,418$595,055▼ $31,363
Pledges and Grants Receivable$44,500$206,107▲ $161,607
Prepaid Expenses and Deferred Charges$139,799$191,804▲ $52,005
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$13,877,043$15,377,474▲ $1,500,431
Other Assets Total$1,120,870$933,227▼ $187,643
Liabilities
Other Liabilities$1,125,824$964,726▼ $161,098
Accounts Payable and Accrued Expenses$420,695$522,645▲ $101,950
Deferred Revenue$28,646$45,673▲ $17,027
Total Liabilities$1,575,165$1,533,044▼ $42,121
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$11,920,155$13,542,505▲ $1,622,350
Net Assets With Donor Restrictions$381,723$301,925▼ $79,798
Total Net Assets Fund Balance$12,301,878$13,844,430▲ $1,542,552
Total Liabilities and Net Assets / Fund Balance$13,877,043$15,377,474▲ $1,500,431

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$80,241$80,241
Leasehold Improvements$0$38,432$38,432
Other Assets Org$856,421--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$9,048,282$360,000▲ $1,298,168-$10,703,966
2023$6,788,976$1,137,521▲ $1,123,747-$9,048,282
2022$5,392,670$1,068,279▲ $580,133$250,252$6,788,976
2021$5,004,726$1,351,977▼ $890,702$71,394$5,392,670
2020$3,274,882$1,007,023▲ $794,540$70,719$5,004,726
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Susan LinnFormer President & CEO - Efne Thru May25FT$278,893$19,136$298,029
Susan LinnFormer President & CEO - Efne Thru M-$263,893$34,136$298,029
Jeffrey GanzChief Operating Officer -FT$152,681$6,129$158,810
Chanda LinnVP of Programs & Services - EfneFT$100,217$9,212$109,429
David SearlesVP for Development & Communications - EfneFT$103,824$3,704$107,528

Board Members and Trustees

NameTitle
Alison ZetterquistChair
Kimberlee SchumacherInterim-president & CEO Beginning Jun25
Bradley RichPresident - Dc
Marc FirenzeFormer Vice Chair
Andrew Cole MdDirector
Brett DowningDirector
Darlene WilsonDirector
Don HolmesDirector
Ika NoviawatyDirector
Jennifer CardilloDirector
Joe SiravoDirector
Philip Haydon PhdDirector
Steve SiravoDirector
Tamara SacharczykDirector
Jacquelyn BreaultDirector of Operations - D
Kimberlee SchumacherDirector Thru Jun25
Aimee StevensFormer Director
Dara Freedman-weissFormer Director
John Gaitanis MdFormer Director
Jason BourqueClerk
Tim YoungTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Non Profit Capital Management LLCAccounting & Tax153 CLINTON ROAD PO BOX 211, Sterling, MA 01564$124,103
Revenue and Support

Revenue Composition

Contributions and Grants
$2,116,162
Program Service Revenue
$5,125,409
Investment Income
$507,561
Other Revenue
$-263,114
All Other Contributions
$301,862
Change in Net Assets
$686,007
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$4,473,548
Other Expenses$2,098,946
Total Fundraising Expense$1,495,178
Grants and Similar Amounts Paid$227,517
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,276,150$267,361$646,961$3,190,472
Fees for Services Other$306,763$174,353$76,525$557,641
Current Officers, Directors, Trustees, and Key Employees$221,780$27,723$302,945$552,448
Other Employee Benefits$215,884$41,785$82,658$340,327
Payroll Taxes$215,731$31,971$88,746$336,448
Office Expenses$98,592$37,846$62,183$198,621
Depreciation Depletion$106,368$9,562$62,489$178,419
Fees for Services Accounting$102,330$36,652$26,626$165,608
Grants to Domestic Orgs$150,000--$150,000
Occupancy$71,446$9,602$33,822$114,870
Insurance$88,218$2,940$9,730$100,888
Travel$57,972$5,953$23,917$87,842
Grants to Domestic Individuals$77,517--$77,517
Other Expenses$19,661$8,631$29,509$57,801
Pension Plan Contributions$23,925$25,757$4,171$53,853
Interest$42,023--$42,023
Advertising$7,948$8,397$14,387$30,732
All Other Expenses$4,869$1,131$2,823$8,823
Total Functional Expenses$4,594,903$709,930$1,495,178$6,800,011
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Beth Israel Deaconess Medical CenterCharlestown, MA501(c)(3)Research$75,000
CHILDREN'S HOSPITAL CORPORATIONBoston, MA501(c)(3)Research$75,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$382,094
Fundraising Gross Income$113,186
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Galas$223,340$60,705$18,256$42,449
Walks for Epilepsy$279,769$50,845$21,468$29,377
Total Events$830,709$113,186$382,094$-268,908
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Finance Lease Liability$884,795
Operating Lease Liability$79,931
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

The executive committee is composed of the officers, the president and ceo, and additional directors appointed by the chair and approved by the board of directors. The president & ceo is a non-voting member of the executive committee. The chair is the chair of the executive committee, which meets as needed. The president and ceo or any two other members of the executive committee may call a meeting of the committee. It shall have primary responsibility for routine fiscal matters and personnel, and may make recommendations to the board of directors as to annual budget and other matters. It may act for the board of directors upon matters, which will not await the next regular meeting of the board of directors. Motions shall be ratified at the full board meeting immediately following the executive committee meeting at which motions were approved. A majority of current members of the executive committee shall constitute a quorum.

Form 990, Part VI, Section A, Line 2

Officer susan linn and key employee chanda linn have a family relationship. Susan linn left the organization in may, 2025. Chanda linn left the organization in september, 2025. Board members steve siravo and joe siravo have a family relationship

Form 990, Part VI, Section B, Line 11B

Efne shall submit the form 990 to its board of directors prior to the filing of the form 990. Efne's 990 shall be submitted to each member of the board of director's via hard copy or email at least 10 days before the form 990 is filed with the irs.

Form 990, Part VI, Section B, Line 12C

All board members sign a conflict of interest statement indicating acknowledgement and support of the policy, as well as disclosure of any potential conflicts. The minutes of the board meetings evidence recusals from meetings, when appropriate, and record any waivers in the minutes. The conflict of interest policy is monitored through annual board meetings which include orientation for new board members and review of policies for all members (the board chair and president/ceo monitor administer these tasks). When a conflict is suspected or reported, the president/ceo and board chair meet with the board member to discuss the conflict and to determine the appropriate course of action

Form 990, Part VI, Section B, Line 15

The board of directors established a personnel committee comprised of volunteer experts in the field of human resources. The personnel committee recommends annual compensation of the president and ceo and key employees. The committee uses comparability data to look at salaries in similar charitable organizations, as well as a performance review to determine salary rates. The process and decisions would both be documented in the board minutes.

Form 990, Part VI, Section C, Line 19

Efne makes its governing documents, conflict of interest policy and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Epilepsy Foundation New England
EIN
22-2505819
Phone
6175066041
Address
175 CABOT STREET 301, LOWELL, MA 01854

Signing Officer

Name
Kimberlee Schumacher
Title
Interim President & CEO
Phone
6175066041
Signed
2025-11-12

Organization Details

Principal Officer
Kimberlee Schumacher
Formed
1983
Legal Domicile
Ma
Voting Board Members
17
Independent Board Members
17
Employees
124
Volunteers
100

Preparer

Firm
Non Profit Capital Management LLC
Address
153 CLINTON RD, STERLING, MA 01564-2357
Preparer
Brian Kindorf
Phone
7819336726
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

The financial accounting standards board ("fasb") has issued a standard that clarifies the accounting and recognition of income tax positions taken or expected to be taken in the organization's income tax returns. The organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. If the organization incurs interest or penalties as a result of unrecognized tax positions the policy is to classify interest accrued with interest expense discussionand penalties thereon with operating expenses. The organization's tax filings are subject to audit by various taxing authorities. The organization is not currently under examination by any taxing jurisdiction.

PART V, LINE 4:

To be used for future scholarships, camp, e-studio and advocacy programs.

Raw XML AppendixShowing 400 of 837 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0FORMER DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1CLERK
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4FORMER VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6FORMER DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7FORMER DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR THRU JUN25
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18FORMER PRESIDENT & CEO - EFNE THRU MAY25
IRS990/Form990PartVIISectionAGrp/TitleTxt19PRESIDENT - DC
IRS990/Form990PartVIISectionAGrp/TitleTxt20INTERIM-PRESIDENT & CEO BEGINNING JUN25
IRS990/Form990PartVIISectionAGrp/TitleTxt21CHIEF OPERATING OFFICER -
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR OF OPERATIONS - D
IRS990/Form990PartVIISectionAGrp/TitleTxt23VP FOR DEVELOPMENT & COMMUNICATIONS - EFNE
IRS990/Form990PartVIISectionAGrp/TitleTxt24VP OF PROGRAMS & SERVICES - EFNE
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IRS990/MissionDesc0TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW.
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