Liabilities / Assets
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Autoinflammatory Alliance Inc
990EZ • Fiscal year 2014 • EIN 20-4915307
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
21st percentile
Higher net margin than 21% of similar nonprofits.
Top Officer Pay
78th percentile
Higher top officer pay than 78% of similar nonprofits.
Top officer pay equals 7.7% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Balance Sheet
Assets
$9,289
No earlier filing loaded for comparison.
Net Assets
$9,289
No earlier filing loaded for comparison.
Liabilities
$0
No earlier filing loaded for comparison.
Revenue And Expenses
Revenue
$107,638
No earlier filing loaded for comparison.
Expenses
$120,838
No earlier filing loaded for comparison.
Net Income
-$13,200
No earlier filing loaded for comparison.
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2014 to Dec 31, 2014
- Signed
- May 31, 2015
- Return Version
- 2014v5.0
- Gross Receipts
- $107,638
Mission and Program Overview
Mission
Rare Disease Organization. The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases.
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. We help medical professionals to be more aware and informed about these rare diseases, newly classified autoinflammatory diseases, and also help to direct doctors and patients to clinical research, as needed to help with the care of these patients, so they can get the right medications and treatment. We help patients and their families to be more informed about their disease and care needs, empowered through out patient communities to advocate for their care and the needs for patients with these diseases on all levels, and help them be more connected with others suffering from these diseases.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Development of a digital, searchable database of systemic autoinflammatory diseases, and expansion of our resources and content online. This project was to take our current wall chart and pdf of the comparative chart of autoinflammatory diseases that have in print, and online as a download into a more user-friendly and informative format. There is nothing like this online, and our current pdf and wall chart has become the leading resource worldwide for use by medical professionals to learn and refer to when considering autoinflammatory diseases as a possible diagnosis in patients, and has been distributed worldwide in print and downloaded thousands of times in the past year. But it is a large file, difficult to update for all the new diseases that have been recently classified, and difficult to search. So this new website database will allow for ease of use and aid medical professionals and others to learn more about these diseases, and aid them in considering autoinflammatory diseases when seeking a diagnosis for their patients. In addition, this project has a companion project where we are developing disease-specific websites for a number of these diseases in common terms for patients that are in need of information that they can understand, and resources. This is known as our digital universe project, that is more directed at educating the patient and community about these diseases, in more detail than our current website. Both projects are coming about due to unusual grant funding-outside our normal funding. Our current website has over 40,000 hits a month, and our blog has over 8,000 a month, so we expect that these new sites, that will be linked to our other sites will have an even larger impact. We have consulted with medical advisors for this project and will have the content reviewed by them too. | $96,945 | $96,945 |
| Blog development and content creation/editing. In 2014, we launched our saidsupport.org blog online, which was developed to address common questions that come up in our patient community, and build more online resources for patients and medical professionals to access. This project was started in 2013, but launched for Rare Disease Day in 2014. The site has become a leading resource online, and has a global reach, with thousands of visitors every month, which is increasing monthly. In addition, engagement by the community has been immense, with some blog posts having been shared on social media thousands of times, which has helped the general population to better know and understand these diseases, and how it affects our patients. The initial costs to develop this blog site were mostly to create the website, and content, and all the security and other needs. The ongoing costs will be more for basic maintenance and some hourly work for programming, writing/ editing and upkeep of the site. This blog has become one of the most popular new things we have offered to patients, and has also helped for us to better communicate to many about what our organization does, and how we help people, in addition to bringing helpful content about newly classified diseases, or new insights on known diseases, plus articles on topics that the patients want to know about, from dealing with education needs for children with these chronic diseases to how to safely travel with injectable medications that need refrigeration. | $4,409 | $4,409 |
| Autoinflammatory Disease Patient Picnics in 4 locations in 2014. New Jersey, Ohio, Northern and Southern California. These picnics were for patients with autoinflammatory diseases of all ages, and their loved ones. Most patients have not had a chance to meet others in person with their disease, so these picnics were greatly wanted by our community. This was the first year for these picnics, and we will do them in other locations in future years. Each site was set up to host 50-100 people, with the option to expand as needed. We had a great turnout, and community engagement with many in-kind donations for food, games and activities from a number of local and national companies, so we were able to keep the costs lower. We also received pro-bono identity, signage, flyer design, bean bag toss and a highlights video of the picnics by The Cement Bloc as an in-kind donation that made the events even more special. These are rare diseases, so these gatherings were the largest gatherings of patients with autoinflammatory diseases in the US. | $4,206 | $4,206 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Karen Durrant | Rn-President | FT | $8,262 | - | $8,262 |
| Jennifer Tousseau | Board Member-Blog Manager/Development | PT | $4,118 | - | $4,118 |
| Nathan Durrant | Secretary & Treasurer | PT | $0 | - | - |
| Dorelia Rivera | Board Member-Advocate | PT | $0 | - | - |
| Carla Herbert | Board Member-Advocate/Community Engagement | PT | $0 | - | - |
| Colleen Paduani | Board Member-Advocacy And Outreach | PT | $0 | - | - |
| Julie Cunningham | Board Member-Advocacy And Outreach | PT | $0 | - | - |
| Saskya Appelman | Board Member-Advocacy, Outreach,Community Engagement | PT | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Autoinflammatory Alliance Inc
- EIN
- 20-4915307
- Phone
- 4158318782
- Address
- PO Box 590354, San Francisco, CA 94159
Signing Officer
- Name
- Karen Durrant
- Title
- President
- Phone
- 4158318782
- Signed
- 2015-05-31
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 16
“1. Patient Picnics in NJ, Northern CA, Southern CA, and Ohio. Food, permits for venue rental, activities, drinks for all sites for the benefit of hundreds of autoinflammatory disease patients. Total cost:$4206. 2. Non-profit booths at medical conferences to outreach to Drs and other medical professionals to increase awareness for autoinflammatory diseases at the Pediatric Rheumatology Conference at NYU and the Pediatric Rheumatology Symposium (PRYSM). Total costs were for the non-profit booth rental, hotel, some food travel and entrance to the PRYSM medical conference lectures. Total cost for travel and outreach at conferences in 2014: $3232. 3. Blog development costs for site, security, Wordpress site, multiple domains, server fees, images for blog, site security and back up of all sites and other digital needs for 2014: $1622. 4. State, federal, county yearly fees and to do a DBA change, late fee and e filing of payroll for the IRS: $148. 5. Business Insurance: $500. 6. Access to online medical journals to aid in the development of awareness materials: $75. 7. Membership in rare disease orgs and summit meeting fee: $125. 8. International calls regarding development of the digital chart database project: $46 (other phone US service access is donated.) 9. banking fees, paypal and eventbrite fees, credit card processing, wire transfer fees, purchasing new checks $397. 10. Thank you ornament for end of year gift to top donors and other items: $496. 11. Some 2013 out of pocket expenses reimbursed in 2014 to board member. Total $767. 12. overpaid reimbursement for 2014 out of pocket expenses (deducted and accounted for in 2015). $56.41”
Form 990-EZ, Part V, Line 34
“In 2014, we officially changed or name to the Autoinflammatory Alliance, Inc. from The NOMID Alliance, Inc. We have kept The NOMID Alliance, Inc and NOMID Alliance as DBA's but the Autoinflammatory Alliance, Inc, aka Autoinflammatory Alliance is our official main name now. We have updated this with all local, state and federal agencies, and I will attach our updated Articles of Incorporation and IRS letter to this 990.”
Raw XML Appendix273 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. We help medical professionals to be more aware and informed about these rare diseases, newly classified autoinflammatory diseases, and also help to direct doctors and patients to clinical research, as needed to help with the care of these patients, so they can get the right medications and treatment. We help patients and their families to be more informed about their disease and care needs, empowered through out patient communities to advocate for their care and the needs for patients with these diseases on all levels, and help them be more connected with others suffering from these diseases. |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 7850 |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | Development of a digital, searchable database of systemic autoinflammatory diseases, and expansion of our resources and content online. This project was to take our current wall chart and pdf of the comparative chart of autoinflammatory diseases that have in print, and online as a download into a more user-friendly and informative format. There is nothing like this online, and our current pdf and wall chart has become the leading resource worldwide for use by medical professionals to learn and refer to when considering autoinflammatory diseases as a possible diagnosis in patients, and has been distributed worldwide in print and downloaded thousands of times in the past year. But it is a large file, difficult to update for all the new diseases that have been recently classified, and difficult to search. So this new website database will allow for ease of use and aid medical professionals and others to learn more about these diseases, and aid them in considering autoinflammatory diseases when seeking a diagnosis for their patients. In addition, this project has a companion project where we are developing disease-specific websites for a number of these diseases in common terms for patients that are in need of information that they can understand, and resources. This is known as our digital universe project, that is more directed at educating the patient and community about these diseases, in more detail than our current website. Both projects are coming about due to unusual grant funding-outside our normal funding. Our current website has over 40,000 hits a month, and our blog has over 8,000 a month, so we expect that these new sites, that will be linked to our other sites will have an even larger impact. We have consulted with medical advisors for this project and will have the content reviewed by them too. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | Autoinflammatory Disease Patient Picnics in 4 locations in 2014. New Jersey, Ohio, Northern and Southern California. These picnics were for patients with autoinflammatory diseases of all ages, and their loved ones. Most patients have not had a chance to meet others in person with their disease, so these picnics were greatly wanted by our community. This was the first year for these picnics, and we will do them in other locations in future years. Each site was set up to host 50-100 people, with the option to expand as needed. We had a great turnout, and community engagement with many in-kind donations for food, games and activities from a number of local and national companies, so we were able to keep the costs lower. We also received pro-bono identity, signage, flyer design, bean bag toss and a highlights video of the picnics by The Cement Bloc as an in-kind donation that made the events even more special. These are rare diseases, so these gatherings were the largest gatherings of patients with autoinflammatory diseases in the US. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | Blog development and content creation/editing. In 2014, we launched our saidsupport.org blog online, which was developed to address common questions that come up in our patient community, and build more online resources for patients and medical professionals to access. This project was started in 2013, but launched for Rare Disease Day in 2014. The site has become a leading resource online, and has a global reach, with thousands of visitors every month, which is increasing monthly. In addition, engagement by the community has been immense, with some blog posts having been shared on social media thousands of times, which has helped the general population to better know and understand these diseases, and how it affects our patients. The initial costs to develop this blog site were mostly to create the website, and content, and all the security and other needs. The ongoing costs will be more for basic maintenance and some hourly work for programming, writing/ editing and upkeep of the site. This blog has become one of the most popular new things we have offered to patients, and has also helped for us to better communicate to many about what our organization does, and how we help people, in addition to bringing helpful content about newly classified diseases, or new insights on known diseases, plus articles on topics that the patients want to know about, from dealing with education needs for children with these chronic diseases to how to safely travel with injectable medications that need refrigeration. |
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| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 16 | KS |
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| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 21 | ME |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 22 | MI |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 23 | MN |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 24 | MO |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 25 | MS |
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| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 35 | OH |
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| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 37 | OR |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 38 | PA |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 39 | RI |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 40 | SC |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 41 | SD |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 42 | TN |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 43 | TX |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 44 | UT |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 45 | VA |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 46 | VT |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 47 | WA |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 48 | WI |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 49 | WV |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 50 | WY |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 8465 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 7309 |
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| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.67556 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.63989 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 31234 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 15000 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 7597 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 12170 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 8465 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 7309 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | 1. Patient Picnics in NJ, Northern CA, Southern CA, and Ohio. Food, permits for venue rental, activities, drinks for all sites for the benefit of hundreds of autoinflammatory disease patients. Total cost:$4206. 2. Non-profit booths at medical conferences to outreach to Drs and other medical professionals to increase awareness for autoinflammatory diseases at the Pediatric Rheumatology Conference at NYU and the Pediatric Rheumatology Symposium (PRYSM). Total costs were for the non-profit booth rental, hotel, some food travel and entrance to the PRYSM medical conference lectures. Total cost for travel and outreach at conferences in 2014: $3232. 3. Blog development costs for site, security, Wordpress site, multiple domains, server fees, images for blog, site security and back up of all sites and other digital needs for 2014: $1622. 4. State, federal, county yearly fees and to do a DBA change, late fee and e filing of payroll for the IRS: $148. 5. Business Insurance: $500. 6. Access to online medical journals to aid in the development of awareness materials: $75. 7. Membership in rare disease orgs and summit meeting fee: $125. 8. International calls regarding development of the digital chart database project: $46 (other phone US service access is donated.) 9. banking fees, paypal and eventbrite fees, credit card processing, wire transfer fees, purchasing new checks $397. 10. Thank you ornament for end of year gift to top donors and other items: $496. 11. Some 2013 out of pocket expenses reimbursed in 2014 to board member. Total $767. 12. overpaid reimbursement for 2014 out of pocket expenses (deducted and accounted for in 2015). $56.41 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | In 2014, we officially changed or name to the Autoinflammatory Alliance, Inc. from The NOMID Alliance, Inc. We have kept The NOMID Alliance, Inc and NOMID Alliance as DBA's but the Autoinflammatory Alliance, Inc, aka Autoinflammatory Alliance is our official main name now. We have updated this with all local, state and federal agencies, and I will attach our updated Articles of Incorporation and IRS letter to this 990. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part V, Line 34 |
| ReasonableCauseExplanation/ExplanationTxt | 0 | We filed a 2014 e-postcard already on 5/15/15, which we understood was the requirement since we usually bring in less than $50,000 a year. But we got unusual grant funds in 2014 so we are also filing a full 990, and wanted to do so to also have it for state filings. |
| ReturnHeader/BuildTS | 0 | 2016-02-25 16:41:14Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Karen Durrant |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 4158318782 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2015-05-31 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | AUTOINFLAMMATORY ALLIANCE INC |
| ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt | 0 | aka The NOMID Alliance Inc |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | AUTO |
| ReturnHeader/Filer/EIN | 0 | 204915307 |
| ReturnHeader/Filer/PhoneNum | 0 | 4158318782 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | PO Box 590354 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | San Francisco |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 94159 |
| ReturnHeader/ReturnTs | 0 | 2015-06-03T15:40:09-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2014-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2014-12-31 |
| ReturnHeader/TaxYr | 0 | 2014 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2014 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $9,289
- Liabilities
- $0
- Net assets
- $9,289
- Revenue
- $107,638
- Expenses
- $120,838
- Net income
- -$13,200