Civic Intelligence

Endometriosis Foundation of America Inc

EIN 20-4904437 • 501(c)3 • New York, NY

Profile

The endometriosis foundation of america (endofound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, endofound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

872 Fifth AvenueNew York, NY 10065

www.endofound.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

64th percentile

0.02x

Higher debt load relative to assets than 64% of similar nonprofits.

NTEE T30 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

66th percentile

0.03x

Higher debt load relative to revenue than 66% of similar nonprofits.

NTEE T30 • $1M-$5M nonprofits • Source year 2024

Net Margin

51st percentile

7.6%

Higher net margin than 51% of similar nonprofits.

NTEE T30 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

87th percentile

$138,203

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 7.2% of source-year revenue.

NTEE T30 • $1M-$5M nonprofits • Source year 2024

Asset Growth

42nd percentile

6.2%

Faster asset growth than 42% of similar nonprofits.

NTEE T30 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

35th percentile

1.3%

Faster revenue growth than 35% of similar nonprofits.

NTEE T30 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$2,836,213

Up $164,323 (+6.2%) from 2023

Liabilities

Down

$63,476

Down $30,835 (-33%) from 2023

Net Assets

Up

$2,772,737

Up $195,158 (+7.6%) from 2023

Revenue

Up

$1,930,447

Up $24,878 (+1.3%) from 2023

Expenses

Up

$1,783,373

Up $250,553 (+16%) from 2023

Net Income

Down

$147,074

Down $225,675 (-61%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2010: $186,751Liabilities 2010: $0Net Assets 2010: $186,7512010Assets 2011: $265,173Liabilities 2011: $0Net Assets 2011: $265,1732011Assets 2012: $424,742Liabilities 2012: $0Net Assets 2012: $424,7422012Assets 2014: $286,358Liabilities 2014: $0Net Assets 2014: $286,3582014Assets 2015: $567,881Liabilities 2015: $0Net Assets 2015: $567,8812015Assets 2016: $1,063,245Liabilities 2016: $0Net Assets 2016: $1,063,2452016Assets 2017: $963,047Liabilities 2017: $0Net Assets 2017: $963,0472017Assets 2018: $1,553,339Liabilities 2018: $0Net Assets 2018: $1,553,3392018Assets 2019: $1,001,383Liabilities 2019: $0Net Assets 2019: $1,001,3832019Assets 2020: $1,381,269Liabilities 2020: $154,891Net Assets 2020: $1,226,3782020Assets 2021: $2,157,273Liabilities 2021: $173,677Net Assets 2021: $1,983,5962021Assets 2022: $2,270,980Liabilities 2022: $124,210Net Assets 2022: $2,146,7702022Assets 2023: $2,671,890Liabilities 2023: $94,311Net Assets 2023: $2,577,5792023Assets 2024: $2,836,213Liabilities 2024: $63,476Net Assets 2024: $2,772,7372024

Highlighted filing

2024

Assets$2,836,213
Liabilities$63,476
Net Assets$2,772,737

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2010: $310,694Expenses 2010: $271,942Net Income 2010: $38,7522010Revenue 2011: $462,830Expenses 2011: $384,408Net Income 2011: $78,4222011Revenue 2012: $360,391Expenses 2012: $200,822Net Income 2012: $159,5692012Revenue 2014: $798,812Expenses 2014: $732,189Net Income 2014: $66,6232014Revenue 2015: $942,387Expenses 2015: $660,864Net Income 2015: $281,5232015Revenue 2016: $1,038,525Expenses 2016: $543,161Net Income 2016: $495,3642016Revenue 2017: $655,734Expenses 2017: $755,930Net Income 2017: -$100,1962017Revenue 2018: $1,350,233Expenses 2018: $759,941Net Income 2018: $590,2922018Revenue 2019: $629,467Expenses 2019: $1,181,422Net Income 2019: -$551,9552019Revenue 2020: $1,078,238Expenses 2020: $991,421Net Income 2020: $86,8172020Revenue 2021: $1,893,554Expenses 2021: $1,142,579Net Income 2021: $750,9752021Revenue 2022: $1,527,339Expenses 2022: $1,097,794Net Income 2022: $429,5452022Revenue 2023: $1,905,569Expenses 2023: $1,532,820Net Income 2023: $372,7492023Revenue 2024: $1,930,447Expenses 2024: $1,783,373Net Income 2024: $147,0742024

Highlighted filing

2024

Revenue$1,930,447
Expenses$1,783,373
Net Income$147,074

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.84$0.06$2.77$1.93$1.78$0.15
2023Summary only. Only limited summary data is available for this year.$2.67$0.09$2.58$1.91$1.53$0.37
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.27$0.12$2.15$1.53$1.10$0.43
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.16$0.17$1.98$1.89$1.14$0.75
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.38$0.15$1.23$1.08$0.99$0.09
2019Summary only. Only limited summary data is available for this year.$1.00$0.00$1.00$0.63$1.18$0.55
2018Summary only. Only limited summary data is available for this year.$1.55$0.00$1.55$1.35$0.76$0.59
2017Summary only. Only limited summary data is available for this year.$0.96$0.00$0.96$0.66$0.76$0.10
2016Summary only. Only limited summary data is available for this year.$1.06$0.00$1.06$1.04$0.54$0.50
2015Summary only. Only limited summary data is available for this year.$0.57$0.00$0.57$0.94$0.66$0.28
2014Summary only. Only limited summary data is available for this year.$0.29$0.00$0.29$0.80$0.73$0.07
2012Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.36$0.20$0.16
2011Summary only. Only limited summary data is available for this year.$0.27$0.00$0.27$0.46$0.38$0.08
2010Summary only. Only limited summary data is available for this year.$0.19$0.00$0.19$0.31$0.27$0.04
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 29, 2025
Return Version
2024v5.2
Gross Receipts
$2,019,596
Mission and Program Overview

Mission

The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

The endometriosis foundation of america (endofound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,166,484$2,078,382▲ $911,898
Cash and Non-Interest-Bearing Accounts$504,876$279,523▼ $225,353
Savings and Temporary Cash Investments$533,231$224,723▼ $308,508
Pledges and Grants Receivable$416,130$204,188▼ $211,942
Prepaid Expenses and Deferred Charges$49,229$46,790▼ $2,439
Land, Buildings, and Equipment, Net$1,940$2,607▲ $667
Total Assets$2,671,890$2,836,213▲ $164,323
Liabilities
Accounts Payable and Accrued Expenses$94,311$63,476▼ $30,835
Total Liabilities$94,311$63,476▼ $30,835
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,832,145$2,027,303▲ $195,158
Net Assets With Donor Restrictions$745,434$745,434→ $0
Total Net Assets Fund Balance$2,577,579$2,772,737▲ $195,158
Total Liabilities and Net Assets / Fund Balance$2,671,890$2,836,213▲ $164,323

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$2,607$7,936$10,543
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Carolyn MayerSenior Program ManagerFT$125,000$13,203$138,203
Carolynn RicciChief Development OfficerFT$102,273$9,570$111,843

Board Members and Trustees

NameTitle
Tamer Seckin MdPresident
Harry Reich MdDirector
Kristy CurryDirector
Lawrence LivorneseDirector
Madeleine K RudinDirector
Piraye Yurttas Beim PhdDirector
Michael S Brodherson MdDirector (through 5/24)
Karli Goldstein DoDirector (through 6/24)
Elif SeckinTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Rebillard Public RelationsPr Relation464 OLD ROUTE 22, Amenia, NY 12501$202,925
Gotham Hall Operating Entity LLCFee For Eventspace Blossom Ball1356 BROADWAY, New York, NY 10018$114,540
Revenue and Support

Revenue Composition

Contributions and Grants
$1,895,490
Program Service Revenue
$0
Investment Income
$34,957
Other Revenue
$0
All Other Contributions
$1,322,767
Change in Net Assets
$147,074

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,930,447
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$48,084
Total Revenue per Audited Statements
$1,978,531
Total Revenue per Form 990
$1,930,447
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,291,250
Salaries, Compensation, and Employee Benefits$417,123
Total Fundraising Expense$175,570
Grants and Similar Amounts Paid$75,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$351,893$57,493$96,373$505,759
Other Salaries and Wages$305,924$5,114$39,568$350,606
Grants to Domestic Orgs$75,000--$75,000
Fees for Services Accounting-$63,452-$63,452
Travel$46,326$274$2,118$48,718
Advertising$31,660-$7,916$39,576
Office Expenses$33,910$550$4,149$38,609
Other Employee Benefits$33,444$559$4,326$38,329
Other Expenses$22,992$1,194$11,094$35,280
Payroll Taxes$24,596$411$3,181$28,188
Fees for Services Legal-$14,036-$14,036
Insurance$4,814$6,104$623$11,541
Depreciation Depletion$1,231$21$159$1,411
Total Functional Expenses$1,458,595$149,208$175,570$1,783,373

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,783,373
Total Expenses per Audited Statements$1,783,373
Total Expenses per Form 990$1,783,373
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mayo Clinic ArizonaScottdale, AZ501 (c) (3)For Research on Cure for Endometriosis$25,000
Morehouse School of MedicineAtlanta, GA501 (c) (3)For Research on Cure for Endometriosis$25,000
The Jackson LaboratoryFarmington, CT501 (c) (3)For Research on Cure for Endometriosis$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$89,149
Fundraising Gross Income$89,149
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$661,872$89,149$89,149$0
Total Events$661,872$89,149$89,149$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

There is a family relationship between tamer seckin and elif seckin.

Form 990, Part VI, Section B, Line 11B

Management reviewed a draft of the form 990 and provided edits to the tax preparer. After this process was performed, the form 990 was sent to the full board of directors prior to being filed with the irs. Email sent to board members with place to sign off

Form 990, Part VI, Section B, Line 12C

The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.

Form 990, Part VI, Section B, Line 15A

Executive compensation is approved by the executive committee.

Form 990, Part VI, Section C, Line 19

Documents are available upon request.

Filing and Contact Details

Filer

Filer Name
Endometriosis Foundation of America Inc
EIN
20-4904437
Phone
2129881644
Address
872 FIFTH AVENUE, NEW YORK, NY 10065

Signing Officer

Name
Elif Seckin
Title
Treasurer
Phone
2129881644
Signed
2025-08-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Tamer Seckin Md
Formed
2006
Legal Domicile
Ny
Voting Board Members
7
Independent Board Members
7
Employees
4
Volunteers
41

Preparer

Firm
Sax Llp
Address
1040 AVENUE OF THE AMERICAS-16TH FL, NEW YORK, NY 10018
Preparer
Marqus White
Phone
2126618640
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Other professional fees: program service expenses 351,893. Management and general expenses 57,493. Fundraising expenses 96,373. Total expenses 505,759.

Financial Statement Notes

PART X, LINE 2:

The organization does not believe its financial statements include any material, uncertain tax positions. Tax filings for periods ending december 31, 2021 and later are subject to examination by applicable taxing authorities.

Raw XML AppendixShowing 400 of 512 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/AccountsPayableAccrExpnssGrp/BOYAmt094311
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt063476
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE ENDOMETRIOSIS FOUNDATION OF AMERICA (ENDOFOUND) STRIVES TO INCREASE DISEASE RECOGNITION, PROVIDE ADVOCACY, FACILITATE EXPERT SURGICAL TRAINING, AND FUND LANDMARK ENDOMETRIOSIS RESEARCH.
IRS990/AdvertisingGrp/FundraisingAmt07916
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IRS990/ContriRptFundraisingEventAmt0572723
IRS990/CreditCounselingInd00
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IRS990/CYContributionsGrantsAmt01895490
IRS990/CYGrantsAndSimilarPaidAmt075000
IRS990/CYInvestmentIncomeAmt034957
IRS990/CYOtherExpensesAmt01291250
IRS990/CYOtherRevenueAmt00
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IRS990/CYTotalExpensesAmt01783373
IRS990/CYTotalFundraisingExpenseAmt0175570
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01930447
IRS990/DecisionsSubjectToApprovaInd00
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IRS990/Desc0THE ENDOFOUND EDUCATION PROGRAM IS A SCHOOL AND COMMUNITY-BASED EDUCATION PROGRAM DESIGNED TO EDUCATE HIGH SCHOOL STUDENTS AND RAISE AWARENESS ABOUT ENDOMETRIOSIS THROUGH AN INTERACTIVE PROGRAM WHICH INCLUDES BOTH EDUCATION OF THE DISEASE AND TO TEACH STUDENTS HOW TO ADVOCATE FOR THEMSELVES. TO DATE, THE PROGRAM HAS EDUCATED 40,000 STUDENTS IN THE US AND ABROAD.
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IRS990/Form990PartVIISectionAGrp/PersonNm3LAWRENCE LIVORNESE
IRS990/Form990PartVIISectionAGrp/PersonNm4HARRY REICH MD
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IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR (THROUGH 6/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR (THROUGH 5/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt9SENIOR PROGRAM MANAGER
IRS990/Form990PartVIISectionAGrp/TitleTxt10CHIEF DEVELOPMENT OFFICER
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IRS990/MissionDesc0THE ENDOMETRIOSIS FOUNDATION OF AMERICA (ENDOFOUND) STRIVES TO INCREASE DISEASE RECOGNITION, PROVIDE ADVOCACY, FACILITATE EXPERT SURGICAL TRAINING, AND FUND LANDMARK ENDOMETRIOSIS RESEARCH. ENGAGED IN A ROBUST CAMPAIGN TO INFORM BOTH THE MEDICAL COMMUNITY AND THE PUBLIC, ENDOFOUND PLACES PARTICULAR EMPHASIS ON THE CRITICAL IMPORTANCE OF EARLY DIAGNOSIS AND EFFECTIVE INTERVENTION WHILE SIMULTANEOUSLY PROVIDING EDUCATION TO THE NEXT GENERATION OF MEDICAL PROFESSIONALS AND THEIR PATIENTS.
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IRS990/PrincipalOfficerNm0TAMER SECKIN MD
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IRS990/ProgSrvcAccomActy2Grp/Desc0CONFERENCES AND WEBINARS: HISTORICALLY ENDOFOUND RUNS TWO LARGE ANNUAL CONFERENCES. THE FIRST IS A MEDICAL CONFERENCE WHICH GATHERS PHYSICIANS, SURGEONS, RESEARCHERS, NURSES, FROM ALL OVER THE WORLD TO LEARN ABOUT CURRENT TRENDS AND BEST PRACTICES FOR THE TREATMENT OF ENDOMETRIOSIS. THE SECOND IS A PATIENT CONFERENCE BRINGING PATIENTS AND PHYSICIANS TOGETHER TO LEARN IN DEPTH ABOUT ENDOMETRIOSIS, MANAGEMENT OF THE DISEASE, SUPPORT AVAILABLE AND WELLNESS TRAINING.
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IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH AND GRANTS - ENDOFOUND FUNDS CUTTING-EDGE MEDICAL RESEARCH AT MEDICAL INSTITUTIONS AND HOSPITALS IN THE US PREDOMINANTLY, AND IN OTHER COUNTRIES. RESEARCH IS CONDUCTED ON THE ETIOLOGY OF THE DISEASE, GENETIC IMPLICATIONS, AND ORGANS AFFECTED BY THE DISEASE, AMONG OTHERS, ALL WITH THE GOAL OF DEVELOPING BETTER DIAGNOSTICS AND BETTER TREATMENTS.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY MATERIAL, UNCERTAIN TAX POSITIONS. TAX FILINGS FOR PERIODS ENDING DECEMBER 31, 2021 AND LATER ARE SUBJECT TO EXAMINATION BY APPLICABLE TAXING AUTHORITIES.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
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IRS990ScheduleI/RecipientTable/CashGrantAmt225000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501 (C) (3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501 (C) (3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501 (C) (3)
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IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0FOR RESEARCH ON CURE FOR ENDOMETRIOSIS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1FOR RESEARCH ON CURE FOR ENDOMETRIOSIS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2FOR RESEARCH ON CURE FOR ENDOMETRIOSIS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0MOREHOUSE SCHOOL OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1MAYO CLINIC ARIZONA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2THE JACKSON LABORATORY
IRS990ScheduleI/RecipientTable/RecipientEIN0581438873
IRS990ScheduleI/RecipientTable/RecipientEIN1860800150

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