Civic Intelligence

Congenital Hyperinsulinism International

990 • Fiscal year 2017 • EIN 20-3068945

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 13, 2018

Organization Profilewww.congenitalhi.org

View Organization Page

PO Box 135Glen Ridge, NJ 07028

(973) 566-0334

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.03x

Higher debt load relative to assets than 46% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Liabilities / Revenue

50th percentile

0.03x

Higher debt load relative to revenue than 50% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Net Margin

89th percentile

41%

Higher net margin than 89% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Top Officer Pay

76th percentile

$69,600

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 14.8% of source-year revenue.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Asset Growth

88th percentile

47%

Faster asset growth than 88% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Revenue Growth

86th percentile

54%

Faster revenue growth than 86% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets46th percentile

Assets

Flat

$653,182

Flat from 2017

Net Assets

Flat

$636,682

Flat from 2017

Liabilities

Flat

$16,500

Flat from 2017

Revenue And Expenses
Liabilities / Revenue50th percentileNet Margin89th percentile

Revenue

Flat

$471,505

Flat from 2017

Expenses

Flat

$280,408

Flat from 2017

Net Income

Flat

$191,097

Flat from 2017

Historical Trend

Balance Sheet Trend

Asset Growth88th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2011: $74,353Liabilities 2011: $02011Assets 2012: $95,114Liabilities 2012: $02012Assets 2013: $129,869Net Assets 2013: $129,8692013Assets 2014: $254,302Liabilities 2014: $37Net Assets 2014: $254,2652014Assets 2015: $344,440Liabilities 2015: $0Net Assets 2015: $344,4402015Assets 2016: $445,585Liabilities 2016: $0Net Assets 2016: $445,5852016Assets 2017: $653,182Liabilities 2017: $16,500Net Assets 2017: $636,6822017Assets 2017: $653,182Liabilities 2017: $16,500Net Assets 2017: $636,6822017Assets 2018: $618,444Liabilities 2018: $8,234Net Assets 2018: $610,2102018Assets 2019: $593,116Liabilities 2019: $10,718Net Assets 2019: $582,3982019Assets 2020: $1,097,548Liabilities 2020: $275,040Net Assets 2020: $822,5082020Assets 2021: $1,177,701Liabilities 2021: $8,582Net Assets 2021: $1,169,1192021Assets 2022: $1,644,315Liabilities 2022: $46,626Net Assets 2022: $1,597,6892022Assets 2023: $1,803,323Liabilities 2023: $98,789Net Assets 2023: $1,704,5342023Assets 2024: $2,173,955Liabilities 2024: $320,502Net Assets 2024: $1,853,4532024

Highlighted filing

2017

Assets$653,182
Liabilities$16,500
Net Assets$636,682
Open 2017 Filing

Operations Trend

Revenue Growth86th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $43,554Expenses 2011: $40,415Net Income 2011: $3,1392011Revenue 2012: $69,508Expenses 2012: $50,250Net Income 2012: $19,2582012Revenue 2013: $112,094Expenses 2013: $77,339Net Income 2013: $34,7552013Revenue 2014: $217,087Expenses 2014: $92,691Net Income 2014: $124,3962014Revenue 2015: $219,950Expenses 2015: $129,775Net Income 2015: $90,1752015Revenue 2016: $305,957Expenses 2016: $204,812Net Income 2016: $101,1452016Revenue 2017: $471,505Expenses 2017: $280,408Net Income 2017: $191,0972017Revenue 2017: $471,505Expenses 2017: $280,408Net Income 2017: $191,0972017Revenue 2018: $355,579Expenses 2018: $382,051Net Income 2018: -$26,4722018Revenue 2019: $466,689Expenses 2019: $494,501Net Income 2019: -$27,8122019Revenue 2020: $707,807Expenses 2020: $467,697Net Income 2020: $240,1102020Revenue 2021: $888,439Expenses 2021: $541,828Net Income 2021: $346,6112021Revenue 2022: $1,262,625Expenses 2022: $834,055Net Income 2022: $428,5702022Revenue 2023: $1,150,291Expenses 2023: $1,043,446Net Income 2023: $106,8452023Revenue 2024: $1,275,774Expenses 2024: $1,126,855Net Income 2024: $148,9192024

Highlighted filing

2017

Revenue$471,505
Expenses$280,408
Net Income$191,097
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 13, 2018
Return Version
2017v2.2
Gross Receipts
$567,281
Mission and Program Overview

Mission

CHI is dedicated to improving the lives of babies, children, and adults affected by HI. CHI provides education, information and support to families of diagnosed children and adults living with the condition. CHI works to promote knowledge and awareness of the disorder as it leads to timely diagnosis and decreases death and brain damage, better care and better neurological outcomes. CHI supports research and development for a better understanding of the condition, leading to a better quality of life, better treatments and management of the condition, and ultimately, a cure.

Congenital Hyperinsulinism International (CHI) is dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism. CHI provides education, information and support to families of diagnosed children and adults living with the condition. CHI works to promote knowledge and awareness of the disorder as it leads to timely diagnosis and decreases death and brain damage, better care and better neurological outcomes. CHI supports research and development for a better understanding of the condition, leading to a better quality of life, better treatments and management of the condition, and ultimately, a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$445,585$595,157▲ $149,572
Pledges and Grants Receivable-$48,025-
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$445,585$653,182▲ $207,597
Other Assets Total-$10,000-
Liabilities
Accounts Payable and Accrued Expenses-$16,500-
Total Liabilities$0$16,500▲ $16,500
Net Assets / Fund Balance
Unrestricted Net Assets$445,585$562,066▲ $116,481
Temporarily Rstr Net Assets-$74,616-
Total Net Assets Fund Balance$445,585$636,682▲ $191,097
Total Liabilities and Net Assets / Fund Balance$445,585$653,182▲ $207,597
Compensation and Service Providers
Top Officer Pay76th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Julie RaskinExecutive DirectorFT$69,600$69,600

Board Members and Trustees

NameTitle
Davelyn HoodPresident
Isabel CalderonVice President
Jeffrey R HartDirector
Margaret MaherDirector
Matthew M HopkinsDirector
Randy a HartDirector
Sheila BoseDirector
Pam WilliamsSecretary
Mason SmithTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$466,999
Program Service Revenue
$37,057
Investment Income
$0
Other Revenue
$-32,551
All Other Contributions
$184,784
Change in Net Assets
$191,097

Audited Revenue Reconciliation

Revenue per Audited Statements
$471,505
Total Revenue per Audited Statements
$471,505
Total Revenue per Form 990
$471,505
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$131,232
Other Expenses$92,476
Grants and Similar Amounts Paid$56,700
Total Fundraising Expense$18,863
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$62,640$3,480$3,480$69,600
Grants to Domestic Orgs$56,700--$56,700
Other Salaries and Wages$45,108$3,125$3,125$51,358
Conferences and Meetings$34,217--$34,217
Payroll Taxes$9,246$514$514$10,274
Fees for Services Accounting$546$7,046$546$8,138
Office Expenses$2,520$1,878$1,880$6,278
Travel$3,296--$3,296
Other Expenses$2,476$553$553$2,476
Insurance$576$575$576$1,727
All Other Expenses$1,181--$1,181
Total Functional Expenses$243,860$17,685$18,863$280,408

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$280,408
Total Expenses per Audited Statements$280,408
Total Expenses per Form 990$280,408
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PennsylvaniaUniversity Park, PA-Research$40,000
Childrens Hospital of PhilaPhiladelphia, PA-Support$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$95,776
Fundraising Gross Income$63,225
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Sugar Soiree$332,288$50,073$4,639$45,434
Individual Fund-raising Events$13,152$13,152-$13,152
Total Events$345,440$63,225$95,776$-32,551
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“Randy and Jeffrey Hart are married.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“A copy of the Form 990 is provided to the President and Treasurer of the Board of Trustees for review prior to filing.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The President of the Board oversees and monitors the adherence to the Conflict of Interest policy. Board members are required to sign and submit the Conflict of Interest policy forms which are reviewed and maintained by the President.”

Form 990, Part VI, Line 18: Explanation of Other Means Forms Available For Public Inspection

“The Form 990 is made available to the public upon request.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The Form 990 is made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Congenital Hyperinsulinism International
EIN
20-3068945
Phone
9735660334
Address
PO BOX 135, GLEN RIDGE, NJ 07028

Signing Officer

Name
Mason Smith
Title
Treasurer
Signed
2018-11-13
Discuss with paid preparer
Yes

Organization Details

Formed
2006
Legal Domicile
Nm
Voting Board Members
10
Independent Board Members
9
Employees
3
Volunteers
116

Preparer

Firm
Maureen a Leidl CPA
Address
223 LORRAINE AVE, MONTCLAIR, NJ 07043-1948
Preparer
Maureen A Leidl CPA
Phone
9737832000
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 1: Change of Accounting Method

“For 2017, the entity changed from the cash basis to accrual basis of accounting in 2017 to agree to the audited Financial statements prepared in accordance with Generally Accepted Accounting Principles.”

Raw XML AppendixShowing 400 of 484 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt016500
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0Congenital Hyperinsulinism International (CHI) is dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism. CHI provides education, information and support to families of diagnosed children and adults living with the condition. CHI works to promote knowledge and awareness of the disorder as it leads to timely diagnosis and decreases death and brain damage, better care and better neurological outcomes. CHI supports research and development for a better understanding of the condition, leading to a better quality of life, better treatments and management of the condition, and ultimately, a cure.
IRS990/AdvertisingGrp/TotalAmt00
IRS990/AllAffiliatesIncludedInd0false
IRS990/AllOtherContributionsAmt0184784
IRS990/AllOtherExpensesGrp/ProgramServicesAmt01181
IRS990/AllOtherExpensesGrp/TotalAmt01181
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0JULIE RASKIN
IRS990/BooksInCareOfDetail/PhoneNum09735448372
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0117 WATCHUNG AVENUE REAR
IRS990/BooksInCareOfDetail/USAddress/CityNm0MONTCLAIR
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NJ
IRS990/BooksInCareOfDetail/USAddress/ZIPCd007042
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0445585
IRS990/CashNonInterestBearingGrp/EOYAmt0595157
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt03480
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt03480
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt062640
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt069600
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt034217
IRS990/ConferencesMeetingsGrp/TotalAmt034217
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt0282215
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0466999
IRS990/CYGrantsAndSimilarPaidAmt056700
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt092476
IRS990/CYOtherRevenueAmt0-32551
IRS990/CYProgramServiceRevenueAmt037057
IRS990/CYRevenuesLessExpensesAmt0191097
IRS990/CYSalariesCompEmpBnftPaidAmt0131232
IRS990/CYTotalExpensesAmt0280408
IRS990/CYTotalFundraisingExpenseAmt018863
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0471505
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0CHI supports research and development to better understand, treat, manage and hopefully cure congenital hyperinsulinism. CHI shares the patient perspective with researchers, members of the pharmaceutical industry to encourage patient-centered treatments. CHI has created a grant program with the University of Pennsylvanias Center for Orphan Diseases. CHI is working to develop a patient registry that will include information that will foster research and knowledge of the natural history of hyperinsulinism patients.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt03
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExpenseAmt095322
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt0546
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt07046
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt0546
IRS990/FeesForServicesAccountingGrp/TotalAmt08138
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/TotalAmt00
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt240.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt610.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt75.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0SHEILA BOSE
IRS990/Form990PartVIISectionAGrp/PersonNm1MATTHEW M HOPKINS
IRS990/Form990PartVIISectionAGrp/PersonNm2JULIE RASKIN
IRS990/Form990PartVIISectionAGrp/PersonNm3JEFFREY R HART
IRS990/Form990PartVIISectionAGrp/PersonNm4RANDY A HART
IRS990/Form990PartVIISectionAGrp/PersonNm5MARGARET MAHER
IRS990/Form990PartVIISectionAGrp/PersonNm6DAVELYN HOOD
IRS990/Form990PartVIISectionAGrp/PersonNm7ISABEL CALDERON
IRS990/Form990PartVIISectionAGrp/PersonNm8MASON SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm9PAM WILLIAMS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt269600
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1Director
IRS990/Form990PartVIISectionAGrp/TitleTxt2Executive Dir.
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6President
IRS990/Form990PartVIISectionAGrp/TitleTxt7Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt8Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt9Secretary
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/Form990TFiledInd0false
IRS990/FormationYr02006
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt0282215
IRS990/FundraisingDirectExpensesAmt095776
IRS990/FundraisingGrossIncomeAmt063225
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt056700
IRS990/GrantsToDomesticOrgsGrp/TotalAmt056700
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0567281
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/FundraisingAmt0576
IRS990/InsuranceGrp/ManagementAndGeneralAmt0575
IRS990/InsuranceGrp/ProgramServicesAmt0576
IRS990/InsuranceGrp/TotalAmt01727
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt00
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LegalDomicileStateCd0NM
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0Congenital Hyperinsulinism International (CHI) is dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism. CHI provides education, information and support to families of diagnosed children and adults living with the condition. CHI works to promote knowledge and awareness of the disorder as it leads to timely diagnosis and decreases death and brain damage, better care and better neurological outcomes. CHI supports research and development for a better understanding of the condition, leading to a better quality of life, better treatments and management of the condition, and ultimately, a cure.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0445585
IRS990/NetAssetsOrFundBalancesEOYAmt0636682
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-32551
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NondeductibleContributionsInd0true
IRS990/NondeductibleContriDisclInd0true
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt01880
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01878
IRS990/OfficeExpensesGrp/ProgramServicesAmt02520
IRS990/OfficeExpensesGrp/TotalAmt06278
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
IRS990/OtherAssetsTotalGrp/EOYAmt010000
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0TELECOMMUNICATION & TECHNOLOGY
IRS990/OtherExpensesGrp/Desc1BANK FEES
IRS990/OtherExpensesGrp/Desc2Printing and Publications
IRS990/OtherExpensesGrp/Desc3SUPPL, MATERIALS, SFTWR, CMPT
IRS990/OtherExpensesGrp/FundraisingAmt06471
IRS990/OtherExpensesGrp/FundraisingAmt11718
IRS990/OtherExpensesGrp/FundraisingAmt2553
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0514
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1553
IRS990/OtherExpensesGrp/ProgramServicesAmt021981
IRS990/OtherExpensesGrp/ProgramServicesAmt11716
IRS990/OtherExpensesGrp/ProgramServicesAmt21657
IRS990/OtherExpensesGrp/ProgramServicesAmt32476
IRS990/OtherExpensesGrp/TotalAmt028966
IRS990/OtherExpensesGrp/TotalAmt13434
IRS990/OtherExpensesGrp/TotalAmt22763
IRS990/OtherExpensesGrp/TotalAmt32476
IRS990/OtherInd0X
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt03125
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt03125
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt045108
IRS990/OtherSalariesAndWagesGrp/TotalAmt051358
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0514
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0514
IRS990/PayrollTaxesGrp/ProgramServicesAmt09246
IRS990/PayrollTaxesGrp/TotalAmt010274
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt048025
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCES
IRS990/ProgramServiceRevenueGrp/ExclusionAmt037057
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt037057
IRS990/ProgSrvcAccomActy2Grp/Desc0CHI advocates on behalf of families living around the world with congenital hyperinsulinism and supports them in their quest to access medical care, services, medication, and supplies they need to live a healthy life. CHI provides emotional support to families for whom the demands of the disorder take an emotional toll through online forums, by telephone, and by visiting patient families. CHI establishes funds at hospitals to support families from out of town who must travel for patient care.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt078980
IRS990/ProgSrvcAccomActy3Grp/Desc0CHI increases awareness of congenital hyperinsulinism in order to improve timely diagnosis among the public and medical personnel who have a direct opportunity to detect it, to decrease neurodevelopmental outcomes and death. CHI works with volunteers around the world to spread awareness of the condition, distributes brochures to medical professionals, provides information on the CHI website and CHI social media channels about the dangers of prolonged hypoglycemia, holds events for the public, and works with endocrinologists to improve standards of care and early detection of HI. CHI provides educational resources on congenital hyperinsulinism to patients, families, medical professionals, school personnel, and other interested parties. CHI organizes conferences and meetings for patient, patient family populations, and interested medical personnel.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt069558
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0292520
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt035943
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt090306
IRS990/PYOtherRevenueAmt0-24899
IRS990/PYProgramServiceRevenueAmt038336
IRS990/PYRevenuesLessExpensesAmt0101145
IRS990/PYSalariesCompEmpBnftPaidAmt078563
IRS990/PYTotalExpensesAmt0204812
IRS990/PYTotalRevenueAmt0305957
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0191097
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0221840
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0290221
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0224417
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0220851
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt064363
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01021692
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt00
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.91700
IRS990ScheduleA/PublicSupportTotal170Amt0936894
IRS990ScheduleA/SubstantialContributorsTotAmt084798
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0221840
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0290221
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0224417
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0220851
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt064363
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01021692
IRS990ScheduleA/TotalSupportAmt01021692
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/ExpensesSubtotalAmt0280408
IRS990ScheduleD/RevenueSubtotalAmt0471505
IRS990ScheduleD/TotalExpensesPerForm990Amt0280408
IRS990ScheduleD/TotalRevenuePerForm990Amt0471505
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0471505
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0280408
IRS990ScheduleG/AgrmtProfFundraisingActyInd0false
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0282215
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0282215
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt095776
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0SUGAR SOIREE
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0INDIVIDUAL FUND-RAISING EVENTS
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0332288
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt013152
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0345440
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt050073
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt013152
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt063225
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-32551
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt04639
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt04639
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt087985
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt03152
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt091137
IRS990ScheduleI/GrantRecordsMaintainedInd0false
IRS990ScheduleI/RecipientTable/CashGrantAmt010000
IRS990ScheduleI/RecipientTable/CashGrantAmt140000
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0SUPPORT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CHILDRENS HOSPITAL OF PHILA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UNIVERSITY OF PENNSYLVANIA
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt034TH ST AND CIVIC CENTER BLVD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1201 OLD MAIN
IRS990ScheduleI/RecipientTable/USAddress/CityNm0PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/CityNm1UNIVERSITY PARK
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0PA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1PA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd019104
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd116802
IRS990ScheduleI/Total501c3OrgCnt00
IRS990ScheduleI/TotalOtherOrgCnt02
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Randy and Jeffrey Hart are married.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A copy of the Form 990 is provided to the President and Treasurer of the Board of Trustees for review prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The President of the Board oversees and monitors the adherence to the Conflict of Interest policy. Board members are required to sign and submit the Conflict of Interest policy forms which are reviewed and maintained by the President.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Form 990 is made available to the public upon request.

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$653,182
Liabilities
$16,500
Net assets
$636,682
Revenue
$471,505
Expenses
$280,408
Net income
$191,097
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.32$1.85$1.28$1.13$0.15
2023Summary only. Only limited summary data is available for this year.$1.80$0.10$1.70$1.15$1.04$0.11
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.64$0.05$1.60$1.26$0.83$0.43
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$0.01$1.17$0.89$0.54$0.35
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.10$0.28$0.82$0.71$0.47$0.24
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.59$0.01$0.58$0.47$0.49$0.03
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.62$0.01$0.61$0.36$0.38$0.03
2017Detailed filing. Detailed filing data is available for this year.$0.65$0.02$0.64$0.47$0.28$0.19
2017Summary only. Only limited summary data is available for this year.$0.65$0.02$0.64$0.47$0.28$0.19
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.45$0.00$0.45$0.31$0.20$0.10
2015Summary only. Only limited summary data is available for this year.$0.34$0.00$0.34$0.22$0.13$0.09
2014Summary only. Only limited summary data is available for this year.$0.25$0.00$0.25$0.22$0.09$0.12
2013Detailed filing. Detailed filing data is available for this year.$0.13$0.13$0.11$0.08$0.03
2012Summary only. Only limited summary data is available for this year.$0.10$0.00$0.07$0.05$0.02
2011Summary only. Only limited summary data is available for this year.$0.07$0.00$0.04$0.04$0.00