Xlh Network Inc.

“Our members are people with the XLH disorder, their family members, any medical personnel that are familiar with or treat patients with XLH. Members are not charged any fee to be members.”

“The subject matter of committee meetings was not documented in writing but presented verbally to the entire Board of Directors at their bi-monthly meetings. However that procedure will be superseded by committee meeting minutes to be submitted to the Board no later than 10 days subsequent to the meeting.”

“Form 990 is prepared by the President who has tax preparation experience. Once prepared, it is reviewed with the Treasurer. Subsequent to that review, it is made available to the Board of Directors at their discretion.”

“The Executive Committee regularly and consistently monitors and strictly enforces compliance with the conflict of interest policy.”

“The 990 is required by the following states: CA,CO,FL,HI,IL,ME,MD,MA,MN,MS,NV,NH,NJ,NY,NC,ND,OH,OK,OR,PA,RI,SC,UT,VA,WA,WV,WI”

“Governing documents, Conflict of Interest policy and Financial statements are available upon request through our website or Facebook page.”

“Books and Records are maintained by our Treasurer Geoffrey Edelson at 6 Paddock Lane, Andover, MA 01810 Telephone (603)425-9652”

“Compensation of key employees $13,146; Payroll Taxes $3,583: Information Technology $266; Travel $189; Insurance $757; Payroll preparation/reports $653; Postage $1,247; UGX Patient Day $36; Bank Charges $15; Virtual Board of Director's Annual Meeting $3,897; Educational Materials $1,499”

“Postage $1,289; Office Equipment/Supplies $989; Event Expense-XLH Days $13,810/UGX Patient Day $36/Cross Country Challenge $132; Bank Fees $15; Unforseen Administration Expense $395; Virtual Board of Director's Annual Meeting $7,793; Educational Materials $1,567”