Civic Intelligence

Cardio-Facio-Cutaneous International

EIN 16-1569293 • 501(c)3 • St James, NY

Profile

To improve the quality of life through family support, research, and education. We are a rare disease advocacy group that provides literature to families and agencies that assist children born with the rare Cardio-Facio-Cutaneous syndrome. We host a website, biennial International family conferences, and a private family computer listserv and closed Facebook page. We support research projects on CFC syndrome.

5 Wexford CourtSt James, NY 11780

www.cfcsyndrome.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

10th percentile

-94%

Higher net margin than 10% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

22nd percentile

-36%

Faster asset growth than 22% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

66th percentile

12%

Faster revenue growth than 66% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets59th percentile

Assets

Down

$344,835

Down $189,895 (-36%) from 2023

Liabilities

Down

$0

Down $1,531 (-100%) from 2023

Net Assets

Down

$344,835

Down $188,364 (-35%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin10th percentile

Revenue

Up

$207,106

Up $22,576 (+12%) from 2023

Expenses

Up

$401,040

Up $204,555 (+104%) from 2023

Net Income

Down

-$193,934

Down $181,979 (-1522%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth22nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2010: $316,425Liabilities 2010: $4532010Assets 2011: $368,837Liabilities 2011: $689Net Assets 2011: $368,1482011Assets 2012: $406,324Liabilities 2012: $107Net Assets 2012: $406,2172012Assets 2013: $420,422Liabilities 2013: $328Net Assets 2013: $420,0942013Assets 2014: $463,348Liabilities 2014: $3,366Net Assets 2014: $459,9822014Assets 2015: $499,088Liabilities 2015: $699Net Assets 2015: $498,3892015Assets 2016: $555,993Liabilities 2016: $1,412Net Assets 2016: $554,5812016Assets 2017: $617,729Liabilities 2017: $1,389Net Assets 2017: $616,3402017Assets 2018: $690,649Liabilities 2018: $45,001Net Assets 2018: $645,6482018Assets 2019: $606,840Liabilities 2019: $0Net Assets 2019: $606,8402019Assets 2020: $602,818Liabilities 2020: $0Net Assets 2020: $602,8182020Assets 2021: $647,650Liabilities 2021: $30,000Net Assets 2021: $617,6502021Assets 2022: $550,724Liabilities 2022: $0Net Assets 2022: $550,7242022Assets 2023: $534,730Liabilities 2023: $1,531Net Assets 2023: $533,1992023Assets 2024: $344,835Liabilities 2024: $0Net Assets 2024: $344,8352024

Highlighted filing

2024

Assets$344,835
Liabilities$0
Net Assets$344,835
Open 2024 Filing

Operations Trend

Revenue Growth66th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $75,835Expenses 2010: $26,071Net Income 2010: $49,7642010Revenue 2011: $112,952Expenses 2011: $60,776Net Income 2011: $52,1762011Revenue 2012: $81,240Expenses 2012: $43,171Net Income 2012: $38,0692012Revenue 2013: $133,637Expenses 2013: $119,760Net Income 2013: $13,8772013Revenue 2014: $87,289Expenses 2014: $47,401Net Income 2014: $39,8882014Revenue 2015: $163,766Expenses 2015: $125,359Net Income 2015: $38,4072015Revenue 2016: $101,719Expenses 2016: $45,527Net Income 2016: $56,1922016Revenue 2017: $248,050Expenses 2017: $186,291Net Income 2017: $61,7592017Revenue 2018: $147,967Expenses 2018: $118,659Net Income 2018: $29,3082018Revenue 2019: $241,652Expenses 2019: $282,034Net Income 2019: -$40,3822019Revenue 2020: $145,686Expenses 2020: $149,708Net Income 2020: -$4,0222020Revenue 2021: $210,113Expenses 2021: $195,281Net Income 2021: $14,8322021Revenue 2022: $108,197Expenses 2022: $175,123Net Income 2022: -$66,9262022Revenue 2023: $184,530Expenses 2023: $196,485Net Income 2023: -$11,9552023Revenue 2024: $207,106Expenses 2024: $401,040Net Income 2024: -$193,9342024

Highlighted filing

2024

Revenue$207,106
Expenses$401,040
Net Income-$193,934
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$344,835
Liabilities
$0
Net assets
$344,835
Revenue
$207,106
Expenses
$401,040
Net income
-$193,934
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.45$0.00$3.45$2.07$4.01$1.94
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.02$5.33$1.85$1.96$0.12
2022Detailed filing. Detailed filing data is available for this year.$5.51$0.00$5.51$1.08$1.75$0.67
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.48$0.30$6.18$2.10$1.95$0.15
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.03$0.00$6.03$1.46$1.50$0.04
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.07$0.00$6.07$2.42$2.82$0.40
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.91$0.45$6.46$1.48$1.19$0.29
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.18$0.01$6.16$2.48$1.86$0.62
2016Detailed filing. Detailed filing data is available for this year.$5.56$0.01$5.55$1.02$0.46$0.56
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.99$0.01$4.98$1.64$1.25$0.38
2014Detailed filing. Detailed filing data is available for this year.$4.63$0.03$4.60$0.87$0.47$0.40
2013Detailed filing. Detailed filing data is available for this year.$4.20$0.00$4.20$1.34$1.20$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.06$0.00$4.06$0.81$0.43$0.38
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.69$0.01$3.68$1.13$0.61$0.52
2010Summary only. Only limited summary data is available for this year.$3.16$0.00$0.76$0.26$0.50
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$207,154
Mission and Program Overview

Mission

To improve the quality of life through family support, research, and education. We are a rare disease advocacy group that provides literature to families and agencies that assist children born with the rare Cardio-Facio-Cutaneous syndrome. We host a website, biennial International family conferences, and a private family computer listserv and closed Facebook page. We support research projects on CFC syndrome.

To improve the quality of life through family support, research, and education.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$287,730$190,201▼ $97,529
Savings and Temporary Cash Investments$242,000$154,634▼ $87,366
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$534,730$344,835▼ $189,895
Other Assets Total$5,000$0▼ $5,000
Liabilities
Accounts Payable and Accrued Expenses$1,531--
Total Liabilities$1,531$0▼ $1,531
Net Assets / Fund Balance
Net Assets With Donor Restrictions$121,290$219,819▲ $98,529
Net Assets Without Donor Restrictions$411,909$125,016▼ $286,893
Total Net Assets Fund Balance$533,199$344,835▼ $188,364
Total Liabilities and Net Assets / Fund Balance$534,730$344,835▼ $189,895

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$4,695$4,695
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Troy GreisenFormer Executive DirectorPT$70,833$70,833
Tuesdi DyerExecutive DirectorPT$19,624$19,624

Board Members and Trustees

NameTitle
Jeff KohlerPast President
Alexis NashPresident
Pilar MagoulasVice President
Richard BoyceBoard Member
Vidya RamabadranBoard Member
Glenda HuxSecretary
Darin IacobelliTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$101,341
Program Service Revenue
$58,064
Investment Income
$12,187
Other Revenue
$35,514
All Other Contributions
$101,341
Change in Net Assets
$-193,934
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$229,164
Salaries, Compensation, and Employee Benefits$171,876
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Comp Disqual Persons-$70,833-$70,833
Other Salaries and Wages-$41,373-$41,373
Payroll Taxes-$34,244-$34,244
Current Officers, Directors, Trustees, and Key Employees-$19,624-$19,624
Travel$17,434--$17,434
Office Expenses-$7,408-$7,408
Other Employee Benefits-$5,802-$5,802
Fees for Services Other-$5,749-$5,749
All Other Expenses$1,691$1,718-$3,409
Insurance-$2,541-$2,541
Fees for Service Investment Mgmnt Fees-$1,927-$1,927
Fees for Services Accounting-$1,343-$1,343
Other Expenses$1,078--$1,078
Advertising-$137-$137
Total Functional Expenses$208,341$192,699$0$401,040
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$35,562
Fundraising Direct Expenses$48
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Lillian's Legacy$35,562$35,562-$35,562
Total Events$35,562$35,562-$35,562
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization circulates the 990 to the board of directors for comment prior to the filing of the form.”

Form 990, Part VI, Section B, Line 12C

“The organization required officers, board of directions and executive director to annually verify that they have read the conflict of interest policy and to sign a conflict of interest disclosure statement indicating any conflicts.”

Form 990, Part VI, Section C, Line 19

“All governing documents are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Cardio-facio-cutaneous International
EIN
16-1569293
Address
5 Wexford Court, St James, NY 11780

Signing Officer

Name
Alexis Nash
Title
President
Signed
2025-11-17

Organization Details

Legal Domicile
Ny
Voting Board Members
7
Independent Board Members
7
Employees
4
Volunteers
29
Raw XML AppendixShowing 400 of 455 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0Former Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1Executive Dir.
IRS990/Form990PartVIISectionAGrp/TitleTxt2President
IRS990/Form990PartVIISectionAGrp/TitleTxt3Past President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Board Member
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IRS990/Form990PartVIISectionAGrp/TitleTxt6Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt7Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt8Vice President
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IRS990/MissionDesc0CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management webinars, and disseminate vital information - like peer-reviewed treatment guidelines - to diagnosed patients and caregivers. We improve access to experts in the management of CFC syndrome by hosting a biennial medical conference as well as at least one Rasopathy Clinic care event per year. Our patient families convene for support in multiple ways: through a Facebook support group, six to eight virtual support groups per month, and regional family meetups. Through our Medical Advisory Board, we strive to ensure that healthcare professionals have immediate access to the most current information, facilitatin
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IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0Lillian's Legacy
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm0Troy Greisen
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt0Former Executive Director
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The organization circulates the 990 to the board of directors for comment prior to the filing of the form.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION REQUIRED OFFICERS, BOARD OF DIRECTIONS AND EXECUTIVE DIRECTOR TO ANNUALLY VERIFY THAT THEY HAVE READ THE CONFLICT OF INTEREST POLICY AND TO SIGN A CONFLICT OF INTEREST DISCLOSURE STATEMENT INDICATING ANY CONFLICTS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2All governing documents are available to the public upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section C, Line 19
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