Liabilities / Assets
56th percentile
Higher debt load relative to assets than 56% of similar nonprofits.
Cardio-Facio-Cutaneous International Co Nawrocki Smith LLP
990EZ • Fiscal year 2013 • EIN 16-1569293
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
58th percentile
Higher debt load relative to revenue than 58% of similar nonprofits.
Net Margin
65th percentile
Higher net margin than 65% of similar nonprofits.
Top Officer Pay
82nd percentile
Higher top officer pay than 82% of similar nonprofits.
Top officer pay equals 15.0% of source-year revenue.
Asset Growth
53rd percentile
Faster asset growth than 53% of similar nonprofits.
Revenue Growth
88th percentile
Faster revenue growth than 88% of similar nonprofits.
Balance Sheet
Assets
Up$420,422
Up $14,098 (+3.5%) from 2012
Net Assets
Up$420,094
Up $13,877 (+3.4%) from 2012
Liabilities
Up$328
Up $221 (+207%) from 2012
Revenue And Expenses
Revenue
Up$133,637
Up $52,397 (+64%) from 2012
Expenses
Up$119,760
Up $76,589 (+177%) from 2012
Net Income
Down$13,877
Down $24,192 (-64%) from 2012
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2013 to Dec 31, 2013
- Signed
- Jun 24, 2014
- Return Version
- 2013v3.1
- Gross Receipts
- $133,637
Mission and Program Overview
Mission
We are a rare disease advocacy organizaton that provides education and literature to families and agencies who assist children born with the rare cardio-facio-cutaneous syndrome. We host a website, biennial international family conferences, and a private family computer listserve and facebook page. We support researchers and their projects so the families can continue to learn more about this rare condition and hopefully obtain treatments for their affected family member(s).
To improve the quality of life through family support, research, and education. We are a rare disease advocacy group that provides literature to families and agencies that assist children born with the rare Cardio-Facio-Cutaneous syndrome. We host a website, biennial International family conferences, and a private family computer listserv and closed Facebook page. We support research projects on CFC syndrome.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Conference Our conference is held every 2 years and brings affected families, research scientists and clinicians together in one place at one time so that they collaborate and share with knowledge to gain a greater understanding of CFC syndrome and learn about the latest discoveries and scientific research available. Families have a unique opportunity to be seen by the worlds greatest experts. Families are also provided workshop classes on a variety of topics to help them gain skills providing the best possible life for their child. | $56,011 | - |
| Research We funded a research grant on Growth Failure found in CFC Syndrome thought the National Organization of Rare Disorders. $33,500. The growth in CFC has never been studied and there are currently no growth charts for doctors to use on this population of children. | $33,500 | - |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Brenda Conger | President | PT | $20,000 | - | $20,000 |
| Judy Doyle | List Serv Lias | - | $0 | - | - |
| Luba Djurdjnovic | Board Member | - | $0 | - | - |
| Shelley Greenhaw | Board Member | - | $0 | - | - |
| Jenny Iacobelli | Board Member | - | $0 | - | - |
| Pilar Magoulas | Secretary | - | $0 | - | - |
| Molly Santa Cruz | Vice President | - | $0 | - | - |
| Kayla Stein | Treasurer | PT | $0 | - | - |
Fundraising, Events, and Gaming
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Event 1 | $59,456 | $59,456 | - | $59,456 |
| Event 2 | $5,051 | $5,051 | - | $5,051 |
| Total Events | $64,507 | $64,507 | - | $64,507 |
Filing and Contact Details
Filer
- EIN
- 16-1569293
- Phone
- 6077729666
Signing Officer
- Name
- Kayla Stein
- Title
- Treasurer
- Signed
- 2014-06-24
- Discuss with paid preparer
- Yes
Preparer
- Preparer
- Michael E Nawrocki
- Phone
- 6317569500
Supplemental Narrative
Additional Explanations
Other Expenses.1002
“Office Expenses $846”
Other Expenses.1005
“Travel $463”
Other Expenses.1007
“Conferences, Conventions, and Meetings $47409”
Other Expenses.1009
“Depreciation $216”
Other Expenses.1012
“Insurance $1151”
Other Expenses.1
“Restricted Research Fund $33500”
Other Expenses.2
“Transportation expense $3534”
Other Expenses.3
“Hotel Expense $2629”
Other Expenses.4
“OUTSIDE SERVICES $2500”
Other Expenses.5
“TELEPHONE $1621”
Other Expenses.8
“CREDIT CARD EXPENSE $498”
Other Expenses.9
“DUES AND MEMBERSHIP $461”
Other Expenses.10
“board meeting expense $357”
Other Expenses.11
“Consensus meeting $328”
Other Expenses.12
“LICENSE AND PERMITS $115”
Other Expenses.13
“PROMOTIONAL ITEMS $50”
Other Expenses.14
“Bank and other service charges $30”
Other Assets.1003
“Machinery and Equipment - Beginning $753 Machinery and Equipment - Ending $430”
Total Liabilities.1001
“Accounts Payable and Accrued Expenses - Beginning $107 Accounts Payable and Accrued Expenses - Ending $328”
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | To improve the quality of life through family support, research, and education. We are a rare disease advocacy group that provides literature to families and agencies that assist children born with the rare Cardio-Facio-Cutaneous syndrome. We host a website, biennial International family conferences, and a private family computer listserv and closed Facebook page. We support research projects on CFC syndrome. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Depreciation $216 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Insurance $1151 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | Restricted Research Fund $33500 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | Transportation expense $3534 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | Hotel Expense $2629 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | OUTSIDE SERVICES $2500 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | TELEPHONE $1621 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 10 | CREDIT CARD EXPENSE $498 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 12 | board meeting expense $357 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 15 | PROMOTIONAL ITEMS $50 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 16 | Bank and other service charges $30 |
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| ReturnHeader/BuildTS | 0 | 2015-11-30 17:44:51Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Kayla Stein |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Treasurer |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2014-06-24 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1 | 0 | CARDIO-FACIO-CUTANEOUS INTERNATIONAL |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | CARD |
| ReturnHeader/Filer/EIN | 0 | 161569293 |
| ReturnHeader/Filer/PhoneNum | 0 | 6077729666 |
| ReturnHeader/Filer/USAddress/AddressLine1 | 0 | 183 BROWN ROAD |
| ReturnHeader/Filer/USAddress/City | 0 | VESTAL |
| ReturnHeader/Filer/USAddress/State | 0 | NY |
| ReturnHeader/Filer/USAddress/ZIPCode | 0 | 13850 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1 | 0 | NAWROCKI SMITH LLP |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1 | 0 | 290 BROADHOLLOW RD STE 115E |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/City | 0 | MELVILLE |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State | 0 | NY |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode | 0 | 117474822 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 6317569500 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | Michael E Nawrocki |
| ReturnHeader/ReturnTs | 0 | 2014-06-24T12:00:21-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2013-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2013-12-31 |
| ReturnHeader/TaxYr | 0 | 2013 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2013 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $420,422
- Liabilities
- $328
- Net assets
- $420,094
- Revenue
- $133,637
- Expenses
- $119,760
- Net income
- $13,877