Civic Intelligence

National Leiomyosarcoma Foundation Inc

EIN 14-1834266 • 501(c)3 • Denver, CO

Profile

Our Mission is to provide leadership in supporting research of Leiomyosarcoma, improving treatment outcomes of those affected by this disease as well as fostering awareness in the medical community and general public.

1685 S Colorado BlvdDenver, CO 80222

www.nlmsf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

35th percentile

-6.1%

Higher net margin than 35% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

49th percentile

-2.3%

Faster asset growth than 49% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

25th percentile

-30%

Faster revenue growth than 25% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets59th percentile

Assets

Down

$452,766

Down $10,697 (-2.3%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$452,766

Down $10,697 (-2.3%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin35th percentile

Revenue

Down

$181,152

Down $76,431 (-30%) from 2023

Expenses

Down

$192,162

Down $67,244 (-26%) from 2023

Net Income

Down

-$11,010

Down $9,187 (-504%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth49th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2010: $219,245Liabilities 2010: $0Net Assets 2010: $219,2452010Assets 2011: $162,022Liabilities 2011: $0Net Assets 2011: $162,0222011Assets 2012: $220,991Liabilities 2012: $0Net Assets 2012: $220,9912012Assets 2013: $168,390Liabilities 2013: $0Net Assets 2013: $168,3902013Assets 2014: $201,151Liabilities 2014: $0Net Assets 2014: $201,1512014Assets 2015: $189,126Liabilities 2015: $0Net Assets 2015: $189,1262015Assets 2016: $113,529Liabilities 2016: $0Net Assets 2016: $113,5292016Assets 2017: $145,825Liabilities 2017: $0Net Assets 2017: $145,8252017Assets 2018: $215,707Liabilities 2018: $0Net Assets 2018: $215,7072018Assets 2019: $238,088Liabilities 2019: $0Net Assets 2019: $238,0882019Assets 2020: $245,143Liabilities 2020: $0Net Assets 2020: $245,1432020Assets 2021: $335,041Liabilities 2021: $0Net Assets 2021: $335,0412021Assets 2022: $465,287Liabilities 2022: $0Net Assets 2022: $465,2872022Assets 2023: $463,463Liabilities 2023: $0Net Assets 2023: $463,4632023Assets 2024: $452,766Liabilities 2024: $0Net Assets 2024: $452,7662024

Highlighted filing

2024

Assets$452,766
Liabilities$0
Net Assets$452,766
Open 2024 Filing

Operations Trend

Revenue Growth25th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$300K$200K$100K$0-$100KExpenses 2010: $72,3442010Revenue 2011: $67,282Expenses 2011: $124,505Net Income 2011: -$57,2232011Expenses 2012: $68,6612012Revenue 2013: $55,720Expenses 2013: $108,322Net Income 2013: -$52,6022013Revenue 2014: $65,605Expenses 2014: $32,844Net Income 2014: $32,7612014Revenue 2015: $34,853Expenses 2015: $46,878Net Income 2015: -$12,0252015Revenue 2016: $88,310Expenses 2016: $163,907Net Income 2016: -$75,5972016Revenue 2017: $88,341Expenses 2017: $52,095Net Income 2017: $36,2462017Revenue 2018: $157,886Expenses 2018: $97,773Net Income 2018: $60,1132018Revenue 2019: $126,852Expenses 2019: $105,568Net Income 2019: $21,2842019Revenue 2020: $129,087Expenses 2020: $122,051Net Income 2020: $7,0362020Revenue 2021: $180,436Expenses 2021: $90,478Net Income 2021: $89,9582021Revenue 2022: $264,822Expenses 2022: $134,575Net Income 2022: $130,2472022Revenue 2023: $257,583Expenses 2023: $259,406Net Income 2023: -$1,8232023Revenue 2024: $181,152Expenses 2024: $192,162Net Income 2024: -$11,0102024

Highlighted filing

2024

Revenue$181,152
Expenses$192,162
Net Income-$11,010
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$452,766
Liabilities
$0
Net assets
$452,766
Revenue
$181,152
Expenses
$192,162
Net income
-$11,010
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.53$0.00$4.53$1.81$1.92$0.11
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.63$0.00$4.63$2.58$2.59$0.02
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.65$0.00$4.65$2.65$1.35$1.30
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.35$0.00$3.35$1.80$0.90$0.90
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.45$0.00$2.45$1.29$1.22$0.07
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.38$0.00$2.38$1.27$1.06$0.21
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.16$0.00$2.16$1.58$0.98$0.60
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.46$0.00$1.46$0.88$0.52$0.36
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.14$0.00$1.14$0.88$1.64$0.76
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.89$0.00$1.89$0.35$0.47$0.12
2014Detailed filing. Detailed filing data is available for this year.$2.01$0.00$2.01$0.66$0.33$0.33
2013Detailed filing. Detailed filing data is available for this year.$1.68$0.00$1.68$0.56$1.08$0.53
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.21$0.00$2.21$0.69
2011Summary only. Only limited summary data is available for this year.$1.62$0.00$1.62$0.67$1.25$0.57
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.19$0.00$2.19$0.72
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jun 27, 2025
Return Version
2024v5.2
Gross Receipts
$181,152
Mission and Program Overview

Mission

Our Mission is to provide leadership in supporting research of Leiomyosarcoma, improving treatment outcomes of those affected by this disease as well as fostering awareness in the medical community and general public.

Providing education, advocacy, research and support for the lms community as we move forward in a quest for a cure. We strive to gather critical mass of patients, physicians, scientist and patient advocates to learn, study and test for a cure to lms. The lms roundtable organizes cutting edge research and innovates the ways to treat the disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$463,463$452,766▼ $10,697
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$463,463$452,766▼ $10,697
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$465,287$452,766▼ $12,521
Net Assets With Donor Restrictions$-1,824$0▲ $1,824
Total Net Assets Fund Balance$463,463$452,766▼ $10,697
Total Liabilities and Net Assets / Fund Balance$463,463$452,766▼ $10,697
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Annie AcheePresident
Alex AguileraBoard Member
Dale AyscueBoard Member
David BollesBoard Member
Mitchell Achee MdAssistant Treasurer
Jim MatthewsCommunity Awareness
Chandalyn WilliamsCommunity Outreach
Gregg LeeCommunity Outreach
Marlana Stoddard HayesCommunity Outreach
Jacqueline SebanyMarketing
Lynn ForgesTreasurer
Chris HancockWeb It Support
Revenue and Support

Revenue Composition

Contributions and Grants
$180,769
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$383
All Other Contributions
$176,504
Change in Net Assets
$-11,010
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$161,400
Other Expenses$30,762
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$160,000--$160,000
Conferences and Meetings$16,415--$16,415
Other Expenses$6,016$3,503-$3,503
Insurance-$1,512-$1,512
Grants to Domestic Individuals$1,400--$1,400
Information Technology-$1,170-$1,170
Office Expenses-$1,071-$1,071
Advertising-$750-$750
Fees for Services Accounting-$325-$325
Total Functional Expenses$183,831$8,331$0$192,162
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Frederic AmantLeuven Belgium, MI-Research Grant$50,000
General Hospital CorpSomerville, MA-Research Award-nucci$50,000
Lms SporeAnn Arbor, MI-Lms Spore Award$50,000
SassAnn Arbor, MI-Research Meeting$10,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI, Section A, Line 1A

“Board provides the annual 990 for review by all board members via electronic share for review, discussion and approval.”

Part VI, Section A, Line 2

“BOARD MEMBERS AT LARGE”

Part VI, Section B, Line 12C

“Board monitors the policy binder annually. Review of board relationships within the organization and outside, like grant interactions are reviewed for independence and/or full discloure.”

Part VI, Section C, Line 19

“Board provides a the annual 990 upon written request.”

Filing and Contact Details

Filer

Filer Name
National Leiomyosarcoma Foundation Inc
EIN
14-1834266
In Care Of
% ANNIE ACHEE PRESIDENT
Phone
3037830924
Address
1685 S COLORADO BLVD, DENVER, CO 80222
Doing Business As
Nlmsf

Signing Officer

Name
Annie Achee
Title
President
Phone
3038183859
Signed
2025-06-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Annie Achee
Formed
2001
Legal Domicile
Ny
Voting Board Members
12
Independent Board Members
12
Employees
0

Preparer

Firm
John C Morey CPA
Address
1000 IOWA ST, ALMA, MI 48801
Preparer
John C Morey
Phone
9893125086
Supplemental Narrative

Additional Explanations

Other

“Patient eduation expenditures and other related costs are fully funded by non-individual and corporate donations. Grant dollars for patient and family education symposia and lms international roundtable are funded by separate grant funds.”

Raw XML AppendixShowing 400 of 430 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0PROVIDING EDUCATION, ADVOCACY, RESEARCH AND SUPPORT FOR THE LMS COMMUNITY AS WE MOVE FORWARD IN A QUEST FOR A CURE. WE STRIVE TO GATHER CRITICAL MASS OF PATIENTS, PHYSICIANS, SCIENTIST AND PATIENT ADVOCATES TO LEARN, STUDY AND TEST FOR A CURE TO LMS. THE LMS ROUNDTABLE ORGANIZES CUTTING EDGE RESEARCH AND INNOVATES THE WAYS TO TREAT THE DISEASE.
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0750
IRS990/AdvertisingGrp/TotalAmt0750
IRS990/AllOtherContributionsAmt0176504
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0MITCH ACHEE
IRS990/BooksInCareOfDetail/PhoneNum03037830924
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt06 SEDGWICK DRIVE
IRS990/BooksInCareOfDetail/USAddress/CityNm0ENGLEWOOD
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CO
IRS990/BooksInCareOfDetail/USAddress/ZIPCd080113
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt00
IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt00
IRS990/CashNonInterestBearingGrp/BOYAmt0463463
IRS990/CashNonInterestBearingGrp/EOYAmt0452766
IRS990/ChangeToOrgDocumentsInd00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt016415
IRS990/ConferencesMeetingsGrp/TotalAmt016415
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0180769
IRS990/CYGrantsAndSimilarPaidAmt0161400
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt030762
IRS990/CYOtherRevenueAmt0383
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-11010
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0192162
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0181152
IRS990/DAFExcessBusinessHoldingsInd00
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0RESEARCH GRANTS TO VARIOUS MEDICAL RESERACH PARTNERS SEE SCHEDULE I
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DistributionToDonorInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DoingBusinessAsName/BusinessNameLine1Txt0NLMSF
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0-1824
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/EscrowAccountInd00
IRS990/ExpenseAmt0160000
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt0325
IRS990/FeesForServicesAccountingGrp/TotalAmt0325
IRS990/ForeignActivitiesInd00
IRS990/ForeignCountryCd0AF
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form1098CFiledInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form8899Filedind00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt0020.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1005.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2020.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt3005.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt4001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt5001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt6001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt7001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt8001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt9001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt10001.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11001.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/PersonNm0ANNIE ACHEE
IRS990/Form990PartVIISectionAGrp/PersonNm1LYNN FORGES
IRS990/Form990PartVIISectionAGrp/PersonNm2MITCHELL ACHEE MD
IRS990/Form990PartVIISectionAGrp/PersonNm3JIM MATTHEWS
IRS990/Form990PartVIISectionAGrp/PersonNm4CHRIS HANCOCK
IRS990/Form990PartVIISectionAGrp/PersonNm5JACQUELINE SEBANY
IRS990/Form990PartVIISectionAGrp/PersonNm6ALEX AGUILERA
IRS990/Form990PartVIISectionAGrp/PersonNm7GREGG LEE
IRS990/Form990PartVIISectionAGrp/PersonNm8DAVID BOLLES
IRS990/Form990PartVIISectionAGrp/PersonNm9MARLANA STODDARD HAYES
IRS990/Form990PartVIISectionAGrp/PersonNm10CHANDALYN WILLIAMS
IRS990/Form990PartVIISectionAGrp/PersonNm11DALE AYSCUE
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2ASSISTANT TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3COMMUNITY AWARENESS
IRS990/Form990PartVIISectionAGrp/TitleTxt4WEB IT SUPPORT
IRS990/Form990PartVIISectionAGrp/TitleTxt5MARKETING
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7COMMUNITY OUTREACH
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9COMMUNITY OUTREACH
IRS990/Form990PartVIISectionAGrp/TitleTxt10COMMUNITY OUTREACH
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02001
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd00
IRS990/FundraisingAmt04265
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantAmt0160000
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt01400
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt01400
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0160000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0160000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0181152
IRS990/GrossSalesOfInventoryAmt0383
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt012
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01170
IRS990/InformationTechnologyGrp/TotalAmt01170
IRS990/InsuranceGrp/ManagementAndGeneralAmt01512
IRS990/InsuranceGrp/TotalAmt01512
IRS990/InvestmentInJointVentureInd00
IRS990/InvestTaxExemptBondsInd00
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0NY
IRS990/LicensedMoreThanOneStateInd00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0A NBSP;QUEST NBSP;FOR NBSP;THE NBSP;CURE NBSP;OF NBSP;LMS NBSP;DISEASE
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0463463
IRS990/NetAssetsOrFundBalancesEOYAmt0452766
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0383
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0465287
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0452766
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01071
IRS990/OfficeExpensesGrp/TotalAmt01071
IRS990/OfficerMailingAddressInd00
IRS990/OnBehalfOfIssuerInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind00
IRS990/OtherExpensesGrp/Desc0PATIENT EDUCATION
IRS990/OtherExpensesGrp/Desc1BANK & PROCESSING CHARGES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03503
IRS990/OtherExpensesGrp/ProgramServicesAmt06016
IRS990/OtherExpensesGrp/TotalAmt06016
IRS990/OtherExpensesGrp/TotalAmt13503
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0ANNIE ACHEE
IRS990/PriorPeriodAdjustmentsAmt0313
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT EDUCATION PROGRAMMING
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt06489
IRS990/ProgSrvcAccomActy3Grp/Desc0LMS INTERNATIONAL ROUNDTABLE CONFERENCE
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt021759
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYContributionsGrantsAmt0257583
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0235000
IRS990/PYOtherExpensesAmt024406
IRS990/PYRevenuesLessExpensesAmt0-1823
IRS990/PYTotalExpensesAmt0259406
IRS990/PYTotalRevenueAmt0257583
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-11010
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt00
IRS990ScheduleA/DistributableAmountGrp/CYAdjNetIncomeDistributableAmt00
IRS990ScheduleA/DistributableAmountGrp/CYDistributableAsAdjustedAmt00
IRS990ScheduleA/DistributableAmountGrp/CYGreaterAdjustedMinimumAmt00
IRS990ScheduleA/DistributableAmountGrp/CYIncomeTaxImposedPYAmt00
IRS990ScheduleA/DistributableAmountGrp/CYPct85AdjustedNetIncomeAmt00
IRS990ScheduleA/DistributableAmountGrp/CYTotalMinAstDistributableAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0186412
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0257353
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0264863
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0180436
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0129086
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01018150
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01.00000
IRS990ScheduleA/PublicSupportPY509Pct00.00000
IRS990ScheduleA/PublicSupportTotal509Amt01018150
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0186412
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0257353
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0264863
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0180436
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0129086
IRS990ScheduleA/Total509Grp/TotalAmt01018150
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0186412
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0257353
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0264863
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0180436
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0129086
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01018150
IRS990/ScheduleBRequiredInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt01400
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0EARLY CAREER AWARD
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/ValuationMethodUsedDesc0BOOK
IRS990ScheduleI/RecipientTable/CashGrantAmt050000
IRS990ScheduleI/RecipientTable/CashGrantAmt150000
IRS990ScheduleI/RecipientTable/CashGrantAmt250000
IRS990ScheduleI/RecipientTable/CashGrantAmt310000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0LMS SPORE AWARD
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH AWARD-NUCCI
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2RESEARCH GRANT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESEARCH MEETING
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0LMS SPORE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1GENERAL HOSPITAL CORP
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2FREDERIC AMANT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3SASS
IRS990ScheduleI/RecipientTable/RecipientEIN0386006309
IRS990ScheduleI/RecipientTable/RecipientEIN1104231290
IRS990ScheduleI/RecipientTable/RecipientEIN2389998888
IRS990ScheduleI/RecipientTable/RecipientEIN3861087705
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0GIFT RECORDS ADMIN
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1MARISA NUCCI MD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2INTERNAL MGT AND CONTRACTS
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3SARC
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt0777 E EISENHOWER PARKWAY
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt1THE BRIGHAM WOMEN S HOSPITIAL
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt2RESEARCH COORDIANTION OFFICE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt3PO BOX 406
IRS990ScheduleI/RecipientTable/USAddress/CityNm0ANN ARBOR
IRS990ScheduleI/RecipientTable/USAddress/CityNm1SOMERVILLE
IRS990ScheduleI/RecipientTable/USAddress/CityNm2LEUVEN BELGIUM
IRS990ScheduleI/RecipientTable/USAddress/CityNm3ANN ARBOR
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MI
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2MI
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3MI
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd0481083258
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd102145
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd248801
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd348106
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc0Book
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc1Book
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc2Book
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc3Book
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0WE FOLLOW UP ANNUAL ON THE RESERACH AND STUDIES. EACH GRANT PROVIDES REPORTING EVIDENCE OF THEIR PROGRESS, STUDIES AND TREATMENT PLANS AND TREATMENT TESTING RESULTS.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I , Line 2
IRS990ScheduleI/Total501c3OrgCnt03
IRS990ScheduleI/TotalOtherOrgCnt01
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0BOARD PROVIDES THE ANNUAL 990 FOR REVIEW BY ALL BOARD MEMBERS VIA ELECTRONIC SHARE FOR REVIEW, DISCUSSION AND APPROVAL.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1BOARD MEMBERS AT LARGE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2BOARD MONITORS THE POLICY BINDER ANNUALLY. REVIEW OF BOARD RELATIONSHIPS WITHIN THE ORGANIZATION AND OUTSIDE, LIKE GRANT INTERACTIONS ARE REVIEWED FOR INDEPENDENCE AND/OR FULL DISCLOURE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3BOARD PROVIDES A THE ANNUAL 990 UPON WRITTEN REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4PATIENT EDUATION EXPENDITURES AND OTHER RELATED COSTS ARE FULLY FUNDED BY NON-INDIVIDUAL AND CORPORATE DONATIONS. GRANT DOLLARS FOR PATIENT AND FAMILY EDUCATION SYMPOSIA AND LMS INTERNATIONAL ROUNDTABLE ARE FUNDED BY SEPARATE GRANT FUNDS.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0PART VI, SECTION A, LINE 1A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4OTHER
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxableDistributionsInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0463463
IRS990/TotalAssetsEOYAmt0452766
IRS990/TotalAssetsGrp/BOYAmt0463463
IRS990/TotalAssetsGrp/EOYAmt0452766
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0180769
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt08331
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0183831
IRS990/TotalFunctionalExpensesGrp/TotalAmt0192162
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0463463
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0452766
IRS990/TotalProgramServiceExpensesAmt0188248
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0181152
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0463463
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0452766
IRS990/TransactionWithControlEntInd00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/USAddress/AddressLine1Txt06 SEDGWICK DRIVE
IRS990/USAddress/CityNm0ENGLEWOOD
IRS990/USAddress/StateAbbreviationCd0CO
IRS990/USAddress/ZIPCd080113
IRS990/VotingMembersGoverningBodyCnt012
IRS990/VotingMembersIndependentCnt012
IRS990/WebsiteAddressTxt0www.nlmsf.org
IRS990/WhistleblowerPolicyInd01

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 501(c)3 • <$500k nonprofits