Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
EIN 13-5641857 • 501(c)3 • New York, NY
Profile
The national bleeding disorders foundation (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Liabilities / Revenue
42nd percentile
Higher debt load relative to revenue than 42% of similar nonprofits.
Net Margin
11th percentile
Higher net margin than 11% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 2.5% of source-year revenue.
Asset Growth
10th percentile
Faster asset growth than 10% of similar nonprofits.
Revenue Growth
15th percentile
Faster revenue growth than 15% of similar nonprofits.
Assets
Down$30,813,469
Down $2,675,082 (-8.0%) from 2023
Liabilities
Down$3,449,324
Down $339,254 (-9.0%) from 2023
Net Assets
Down$27,364,145
Down $2,335,828 (-7.9%) from 2023
Revenue
Down$16,570,137
Down $2,477,711 (-13%) from 2023
Expenses
Down$19,646,649
Down $3,433,699 (-15%) from 2023
Net Income
Up-$3,076,512
Up $955,988 (+24%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
The national hemophilia foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
The national bleeding disorders foundation (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $22,412,096 | $21,794,651 | ▼ $617,445 |
| Cash and Non-Interest-Bearing Accounts | $7,217,991 | $4,943,233 | ▼ $2,274,758 |
| Investments Program Related | $806,849 | $1,626,904 | ▲ $820,055 |
| Pledges and Grants Receivable | $1,474,349 | $1,039,650 | ▼ $434,699 |
| Savings and Temporary Cash Investments | $520,560 | $523,074 | ▲ $2,514 |
| Prepaid Expenses and Deferred Charges | $484,222 | $329,625 | ▼ $154,597 |
| Land, Buildings, and Equipment, Net | $40,998 | $19,132 | ▼ $21,866 |
| Accounts Receivable | $0 | $16,000 | ▲ $16,000 |
| Other Notes and Loans Receivable, Net | $0 | $2,875 | ▲ $2,875 |
| Total Assets | $33,488,551 | $30,813,469 | ▼ $2,675,082 |
| Other Assets Total | $531,486 | $518,325 | ▼ $13,161 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $2,147,290 | $1,977,199 | ▼ $170,091 |
| Grants Payable | $899,697 | $933,044 | ▲ $33,347 |
| Other Liabilities | $522,506 | $509,744 | ▼ $12,762 |
| Deferred Revenue | $219,085 | $29,337 | ▼ $189,748 |
| Total Liabilities | $3,788,578 | $3,449,324 | ▼ $339,254 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $20,009,403 | $18,818,497 | ▼ $1,190,906 |
| Net Assets With Donor Restrictions | $9,690,570 | $8,545,648 | ▼ $1,144,922 |
| Total Net Assets Fund Balance | $29,699,973 | $27,364,145 | ▼ $2,335,828 |
| Total Liabilities and Net Assets / Fund Balance | $33,488,551 | $30,813,469 | ▼ $2,675,082 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $19,132 | $90,196 | $109,328 |
| Investment Program Related Org | $700,000 | - | - |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2024 | $1,916,569 | - | ▲ $209,638 | $78,078 | $2,048,129 |
| 2023 | $1,785,311 | - | ▲ $131,258 | - | $1,916,569 |
| 2022 | $2,146,385 | - | ▼ $361,074 | - | $1,785,311 |
| 2021 | $1,983,771 | - | ▲ $211,918 | $49,304 | $2,146,385 |
| 2020 | $1,795,609 | - | ▲ $203,554 | $15,392 | $1,983,771 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Michael Recht | Chief Scientific Officer | FT | $370,865 | $44,429 | $415,294 |
| Philip Gattone | President & CEO | FT | $302,939 | $47,426 | $350,365 |
| Teri Willey | Managing Director | FT | $302,808 | $45,870 | $348,678 |
| Peter Harvey | Chief Business Officer | FT | $211,743 | $78,791 | $290,534 |
| Sandra D Rotellini | Chief Operating Officer | FT | $217,047 | $59,243 | $276,290 |
| Timothy Brent | Venture Principal | FT | $174,658 | $72,277 | $246,935 |
| Nathan Schaefer | S.v.p. of Public Policy | FT | $174,808 | $61,717 | $236,525 |
| Keri Norris Svp of Health | Access & Strategic Innovation | FT | $177,531 | $47,434 | $224,965 |
| Renee Peck | Senior Development Director | FT | $205,118 | $5,152 | $210,270 |
| Leonard Valentino | President & CEO - Thru 3/31/24 | FT | $98,444 | $52,693 | $151,137 |
| Name | Title |
|---|---|
| Ryan Griffith | Chair |
| Susan Hartmann | Vice Chair |
| James R Christensen | Director |
| Joseph J Helfert Ii | Director |
| Kelly Wornall | Director |
| Lucas Taylor | Director |
| Megan Lee | Director |
| Peter a Kouides Md | Director |
| Scott Miller CPA Esq | Director |
| Sharon Richardson Phd | Director |
| Ziva Mann | Director |
| Paulette Bryant Md | Secretary |
| Joseph Alioto Md | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Manifest LLC | Production/hemaware Publication | 4110 N SCOTTSDALE ROAD SUITE 315, Scottsdale, AZ 85251, Ca | $481,417 |
| Impact Education LLC | Consultant For Medical Education | 589 SKIPPACK PIKE SUITE 200, Blue Bell, PA 19422 | $308,014 |
| Ccr Solutions INC | Audiovisual Services | 25 WALPOLE SOUTH BOULEVARD 1 UNI, Walpole, MA 02081 | $227,500 |
| Artemis Policy Group LLC | Strategic Advisory Services | 1150 CONNECTICUT AVE NW STE 803, Washington, DC 20036 | $187,500 |
| Etk Communications | Leadership Solution Services | - | $137,738 |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $11,237,387 |
| Other Expenses | $7,270,942 |
| Total Fundraising Expense | $1,357,159 |
| Grants and Similar Amounts Paid | $1,138,320 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $4,999,069 | $1,497,008 | $817,911 | $7,313,988 |
| Fees for Services Other | $1,565,647 | $213,748 | $16,582 | $1,795,977 |
| Current Officers, Directors, Trustees, and Key Employees | $717,341 | $766,278 | - | $1,483,619 |
| Conferences and Meetings | $1,374,359 | $90,488 | $15,253 | $1,480,100 |
| Travel | $1,301,077 | $85,663 | $81,016 | $1,467,756 |
| Other Employee Benefits | $840,902 | $263,938 | $162,543 | $1,267,383 |
| Grants to Domestic Orgs | $1,014,936 | - | - | $1,014,936 |
| Payroll Taxes | $403,615 | $152,047 | $75,991 | $631,653 |
| Pension Plan Contributions | $387,503 | $120,731 | $32,510 | $540,744 |
| Information Technology | $322,473 | $52,778 | $24,460 | $399,711 |
| Other Expenses | $270,027 | $17,962 | $10,099 | $298,088 |
| Office Expenses | $219,472 | $44,851 | $21,499 | $285,822 |
| Fees for Services Lobbying | $187,500 | - | - | $187,500 |
| Grants to Domestic Individuals | $118,384 | - | - | $118,384 |
| Occupancy | $39,968 | $62,307 | $5,552 | $107,827 |
| Insurance | $57,489 | $14,112 | $12,655 | $84,256 |
| Fees for Services Accounting | - | $59,000 | - | $59,000 |
| All Other Expenses | $21,332 | $35,223 | $2,380 | $58,935 |
| Fees for Service Investment Mgmnt Fees | - | $58,801 | - | $58,801 |
| Depreciation Depletion | $14,628 | $5,012 | $2,226 | $21,866 |
| Advertising | $13,073 | $1,390 | - | $14,463 |
| Foreign Grants | $5,000 | - | - | $5,000 |
| Fees for Services Legal | - | $3,271 | - | $3,271 |
| Total Functional Expenses | $14,619,765 | $3,669,725 | $1,357,159 | $19,646,649 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $19,740,734 |
| Total Expenses per Form 990 | $19,646,649 |
| Expenses per Audited Statements | $19,587,848 |
| Expenses Not Reported on Form 990 | $152,886 |
| Expenses Not Reported on Financial Statements | $58,801 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of North Carolina at Chapel Hill | Chapel Hill, NC | 501(c)(3) | Clinical Fellowship Award | $200,000 |
| Beth Israel Deaconess Medical Center | Boston, MA | 501(c)(3) | Research Judith Graham Pool Award | $104,000 |
| The Board of Trustees of the Leland Stanford Junior University | Los Angeles, CA | 501(c)(3) | Research Judith Graham Pool Award | $104,000 |
| World Federation of Hemophilia USA | Albany, NY | 501(c)(3) | Women & Girls With Bleeding Disorders, and Chapters Challenge Grants | $90,000 |
| BRIGHAM AND WOMEN'S HOSPITAL | Boston, MA | 501(c)(3) | Career Development Award | $70,000 |
| Emory University | Atlanta, GA | 501(c)(3) | Career Development Award | $70,000 |
| Asociacion Puertorriquena De Hemofilia | San Juan, PR | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $18,000 |
| Intermountain Healthcare Foundation Inc | Salt Lake City, UT | 501(c)(3) | Social Work Excellence Fellowship | $15,000 |
| Maine Health | Westbrook, ME | 501(c)(3) | Nursing Excellence Fellowship | $15,000 |
| University of Florida | Gainesville, FL | 501(c)(3) | Physical Therapy Excellence Fellowship | $15,000 |
| Bleeding Disorder Association of Sc | Greenville, SC | 501(c)(3) | State Based Advocacy Coalition & Chapter Capacity Grants | $14,000 |
| Hemophilia Foundation of Michigan | Ypsilanti, MI | 501(c)(3) | Chapter Capacity Building & Unite Walk Grants | $14,000 |
| Great Lakes Hemophilia Foundation | Milwaukee, WI | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $13,500 |
| Western Pennsylvania Bleeding Disorders | Beaver, PA | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $13,500 |
| Greater Ohio Bleeding Disorders Foundation | Cleveland, OH | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $12,500 |
| Pacific Northwest Bleeding Disorders | Corvallis, OR | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $12,500 |
| Bleeding Disorders Foundation of Nc | Morrisville, NC | 501(c)(3) | State Based Advocacy Coalition Grant | $12,000 |
| Hemophilia Council of California | Sacramento, CA | 501(c)(3) | State Based Advocacy Coalition Grant | $11,500 |
| Texas Central Bleeding Disorders | Dallas, TX | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $8,750 |
| Gateway Hemophlia Association | St Louis, MO | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $8,500 |
| New England Hemophilia Association | Dedham, MA | 501(c)(3) | State Based Advocacy Coalition & Unite Walk Grants | $6,000 |
| Virginia Hemophilia Foundation | Richmond, VA | 501(c)(3) | Chapter Capacity Building & Unite Walk Grants | $5,500 |
| Bleeding Disorder Alliance of N Dakota | Fargo, ND | 501(c)(3) | Chapter Capacity Building & Unite Walk Grants | $5,250 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America | Program Services | Leadership Solution Services | 0 | 1 | $137,738 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $152,886 |
| Fundraising Gross Income | $65,782 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walks | $204,056 | $34,509 | $27,934 | $6,575 |
| Red Tie Soiree | $236,340 | $16,350 | $20,572 | $-4,222 |
| Total Events | $512,072 | $65,782 | $152,886 | $-87,104 |
| Liability | Amount |
|---|---|
| Deferred Pension Liability | $469,986 |
| Operating Lease Liabilities | $39,758 |
“The organization has chapter members who are voting members of the organization. An organization whose mission and purpose is consistent with the mission of nhf may apply to be a chapter member. The organization must meet certain standards in order to be approved as a chapter. The ceo is authorized to accept or deny chapter member status.”
“Chapter members are entitled to vote for directors for each of the vacancies to be filled during elections.”
“A copy of form 990 is circulated electronically to the organization's board members. The full board will have the opportunity to have the form 990 presented to them by the auditor by conference call prior to being submitted. The ceo, cbo, coo and controller are also present on the call.”
“All employees, officers and directors must complete a conflict of interest form stating that they have no conflict of interest or if they do, they must disclose such conflict on this form. This form must be completed at the time of hire and every year thereafter. For matters concerning conflicts of interest by a voting member of the board, the member will be prohibited from participating in deliberations and decisions concerning items that give rise to such conflicts. In the event a conflict of interest is disclosed, the matter will be reviewed by the ceo, cbo and coo. The ceo, cbo and coo may decide to permit exceptions to this policy if it is determined, in good faith, that such proposed contract or transaction is on terms which are materially advantageous to nhf or the employee involved will provide a unique service to nhf on terms which are fair and reasonable to nhf.”
“The board of directors sets the compensation of ceo at hire and thereafter uses an independent consultant's analysis of comparable salary surveys (biannually). 990 part vi, section b, line 15b the ceo sets compensation for key employees within a designated salary range in alignment with a structure that incorporates a comprehensive salary analysis provided by a compensation consulting company as well as input from coo/cbo/hr. This was last undertaken in 2023.”
“The organization makes its form 990, financial statements, articles of incorporation, conflicts of interest, form 1023, and by-laws available on the organization's website at www.bleeding.org or upon written request or by calling the organization directly.”
“The organization has a committee that assumes responsibility for oversight of the audit of its financial statements and selection of the independent accountant. This process is unchanged from the prior year.”
“To provide funding for research fellowship grants. The foundation has decided to appropriate funds on an annual basis for expenditure at the rate up to 4% of the fund's average fair market value over the most recent 36-month period taking into consideration relevant economic, investment, and financial conditions. Net amounts available for release accumulated from previous years total $548,129 and $416,569 as of december 31, 2024 and 2023, respectively, and are recorded as donor restricted net assets until designated as research awards.”
“The foundation recognizes the effect of income tax positions only if those positions are more likely than not of being sustained. Management has determined that the foundation had no uncertain tax positions that would require financial statement recognition or disclosure. The organization is no longer subject to examinations by the applicable taxing jurisdictions for tax years prior to 2021.”
“Special events expense netted against revenue 152,886.”
“Special events expense netted against revenue 152,886.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 2147290 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 1977199 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 0 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 16000 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE NATIONAL BLEEDING DISORDERS FOUNDATION (FORMERLY THE NATIONAL HEMOPHILIA FOUNDATION) IS DEDICATED TO FINDING CURES FOR INHERITABLE BLOOD AND BLEEDING DISORDERS AND TO ADDRESSING AND PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH RESEARCH, EDUCATION, AND ADVOCACY ENABLING PEOPLE AND FAMILIES TO THRIVE. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1390 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 13073 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 14463 |
| IRS990/AllOtherContributionsAmt | 0 | 12692212 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2380 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 35223 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 21332 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 58935 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | PETER HARVEY |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2123283700 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1230 AVENUE OF THE AMERICAS 16TH FL |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10020 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 7217991 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 4943233 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 7 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 766278 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 717341 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 1483619 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 15253 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 90488 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1374359 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1480100 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 1 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 481417 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 308014 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 227500 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 3 | 187500 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 4 | 137738 |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/AddressLine1Txt | 0 | 7730 RUE DE BORDEAUX |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/CityNm | 0 | MONTREAL |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/CountryCd | 0 | CA |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/ForeignPostalCd | 0 | H2E 2NL |
| IRS990/ContractorCompensationGrp/ContractorAddress/ForeignAddress/ProvinceOrStateNm | 0 | QUEBEC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 4110 N SCOTTSDALE ROAD SUITE 315 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 589 SKIPPACK PIKE SUITE 200 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 2 | 25 WALPOLE SOUTH BOULEVARD 1 UNI |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 3 | 1150 CONNECTICUT AVE NW STE 803 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | SCOTTSDALE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | BLUE BELL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 2 | WALPOLE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 3 | WASHINGTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | AZ |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | PA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 2 | MA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 3 | DC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 85251 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 19422 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 2 | 02081 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 3 | 20036 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | MANIFEST LLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | IMPACT EDUCATION LLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 2 | CCR SOLUTIONS INC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 3 | ARTEMIS POLICY GROUP LLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 4 | ETK COMMUNICATIONS |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | PRODUCTION/HEMAWARE PUBLICATION |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | CONSULTANT FOR MEDICAL EDUCATION |
| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | AUDIOVISUAL SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 3 | STRATEGIC ADVISORY SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 4 | LEADERSHIP SOLUTION SERVICES |
| IRS990/ContriRptFundraisingEventAmt | 0 | 446290 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 13694516 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1138320 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1743292 |
| IRS990/CYOtherExpensesAmt | 0 | 7270942 |
| IRS990/CYOtherRevenueAmt | 0 | -75479 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 1207808 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -3076512 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 11237387 |
| IRS990/CYTotalExpensesAmt | 0 | 19646649 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 1357159 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 16570137 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 219085 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 29337 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 2226 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 5012 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 14628 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 21866 |
| IRS990/Desc | 0 | HEALTH EDUCATION AND TRAININGNBDF EXPANDED ITS HEALTH COACHING PROJECT, OWN YOUR PATH, FOR MEN AND WOMEN WITH HEMOPHILIA OR VON WILLEBRAND DISEASE (VWD). THE PROGRAM AIMS TO IMPROVE TREATMENT ADHERENCE. NBDF ALSO CONTINUES TO DISTRIBUTE ALL OF ITS EDUCATIONAL PUBLICATIONS FOR THOSE LIVING WITH INHERITABLE BLEEDING DISORDERS, FROM MASAC FOR YOU NEW PUBLICATIONS ON DIAGNOSIS, TREATMENT AND CARE FOR WOMEN AND GIRLS, TO NBDF'S NEW THRIVE CAMPAIGN SHOWCASING 6 EASY STEPS TO LIVING HEALTHY WITH A BLEEDING DISORDER. IN 2024, NBDF DISTRIBUTED 30,777 PUBLICATIONS.THE PRIMARY GOALS OF THE NATIONAL BLEEDING DISORDERS FOUNDATION'S (NBDF'S) VICTORY FOR WOMEN AND BETTER YOU KNOW PROGRAMS ARE: 1) IMPROVE THE AWARENESS OF SYMPTOMS OF BLEEDING DISORDERS IN WOMEN TO INCREASE DIAGNOSIS LONG TERM; AND 2) TO PROVIDE AFFECTED WOMEN WITH EDUCATION AND SUPPORT. IN 2024 NBDF REACHED OUT TO 26 COMMUNITY PARTNERS TO SHARE ABOUT SIGNS AND SYMPTOMS OF BLEEDING DISORDERS. IN ADDITION, CLOSE TO 2,000 WOMEN TOOK THE BETTER YOU KNOW RISK ASSESSMENT TOOL, 76% HAD SYMPTOMS OF A BLEEDING DISORDER, AND OVER 7,600 VISITED VICTORYFORWOMEN.ORG.STEPS FOR LIVING (SFL) IS A MULTIMEDIA EDUCATIONAL PROGRAM DESIGNED TO INCREASE ACCESS TO AGE AND CULTURALLY APPROPRIATE INFORMATION THAT CAN HELP IN THE MANAGEMENT OF DAILY CHALLENGES OF LIVING WITH A BLEEDING DISORDER. NBDF LAUNCHED THE REDESIGNED AND REWRITTEN SFL WEBSITE IN ENGLISH AND SPANISH IN JULY 2024 LEADING TO OVER 60,000 VIEWS IN 2024.NBDF'S EDUCATION FOR EMPOWERMENT PROGRAM BRINGS WORKSHOPS OUT TO LOCAL CHAPTER AND HTC EVENTS. NBDF FACILITATED 89 WORKSHOPS IN ENGLISH AND SPANISH, WITH OVER 1200 PARTICIPANTS IN 2024. OF THIS PROGRAM, 86% LEARNED SOMETHING NEW FROM THE SESSIONS, AND 84% PLANNED TO IMPLEMENT THE NEW LEARNINGS OR SKILLS.NBDF HAS DESIGNED THE NATIONAL YOUTH LEADERSHIP INSTITUTE (NYLI) TO ASSIST YOUNG PEOPLE FROM THE BLEEDING DISORDERS COMMUNITY TO BECOME WELL-TRAINED, RECOGNIZED LEADERS. NBDF PROVIDES YOUNG ADULTS WITH TRAINING, SUPPORT AND OPPORTUNITIES TO PROVIDE EDUCATION TO THE BLEEDING DISORDERS COMMUNITY. IN 2024, NBDF PROVIDED TRAININGS TO THE 7 MEMBERS OF NYLI ON TOPICS INCLUDING PUBLIC SPEAKING, ADVOCACY, NON-PROFIT MANAGEMENT AND FUNDRAISING. NBDF DEVELOPED NUMEROUS EDUCATIONAL COMPONENTS TO ITS INNOVATIVE THERAPIES PROGRAMMING TO ENSURE THAT COMMUNITY MEMBERS ARE AWARE OF THE LATEST TREATMENTS IN THE PIPELINE AND HOW TO HAVE CONVERSATIONS WITH THEIR HEALTHCARE PROVIDERS FOR THE BEST TREATMENT DECISIONS. IN 2024 NBDF EXPANDED ITS 3D VIDEO SERIES ON THE CLOTTING CASCADE WITH NEW VIDEOS ON FACTOR REPLACEMENT THERAPY AND BISPECIFIC ANTIBODY THERAPY, BOTH IN ENGLISH AND SPANISH. THERE ARE OVER 100,000 VIEWS ACROSS ALL THE SERIES VIDEOS COMBINED SINCE THEY LAUNCHED.AT NBDF'S 76TH BLEEDING DISORDERS CONFERENCE (BDC), HELD SEPTEMBER 12-14, 2024, AT THE WORLD CONGRESS CONVENTION CENTER IN ATLANTA, GEORGIA NBDF DELIVERED 64 CONSUMER TRACK EDUCATIONAL SESSIONS, AS WELL AS 4 NETWORKING HOURS FOR CONNECTIONS AND SUPPORT. OF THOSE WHO ATTENDED, 87% REPORTED LEARNING SOMETHING NEW AND 84% SAID THEY WOULD IMPLEMENT THOSE NEW LEARNINGS OR SKILLS. NBDF ALSO OFFERED 55 HOURS OF LIVE IN-PERSON TRAINING FOR HEALTH CARE PROVIDERS IN FOUR CONCURRENT EDUCATIONAL TRACKS. CONTINUING EDUCATION CREDITS WERE MADE AVAILABLE TO EIGHT DISTINCT LICENSED HEALTHCARE DISCIPLINES AS FOLLOWS: - PHYSICIANS/OTHER PRESCRIBERS MD/DO PHYSICIANS; PHYSICIAN ASSISTANTS; NURSE PRACTITIONERS - (A MAXIMUM OF 8.75 AMA PRA CATEGORY 1 CREDITS) - PHARMACISTS - (FOR 8.75 CONTACT HOURS (0.875 CEUS) OF THE ACCREDITATION COUNCIL FOR PHARMACY EDUCATION (ACPE) - REGISTERED NURSES AND NURSE PRACTITIONERS (A MAXIMUM OF 12.5 ANCC ACCREDITED NURSING CONTINUING PROFESSIONAL DEVELOPMENT CONTACT HOURS ) - MEDICAL AND CLINICAL SOCIAL WORKERS [12.50 CLINICAL/ETHICS ASWB-ACE APPROVED CONTINUING EDUCATION CREDITS (UP TO 11.0 CLINICAL AND 1.5 ETHICS)] - PHYSICAL THERAPISTS AND PHYSICAL THERAPY ASSISTANTS (UP TO 12.5 PT CEUS, STATE DEPENDENT)1,810 INDIVIDUALS AT |
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| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE NATIONAL BLEEDING DISORDERS FOUNDATION (FORMERLY THE NATIONAL HEMOPHILIA FOUNDATION) IS DEDICATED TO FINDING CURES FOR INHERITABLE BLOOD AND BLEEDING DISORDERS AND TO ADDRESSING AND PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH RESEARCH, EDUCATION, AND ADVOCACY ENABLING PEOPLE AND FAMILIES TO THRIVE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 29699973 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 27364145 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 940357 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 940357 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -87104 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -87104 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 45467 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 740684 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 20009403 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 18818497 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 5552 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 62307 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 39968 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 107827 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 21499 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 44851 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 219472 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 285822 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 531486 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 518325 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 162543 |
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