Civic Intelligence

National Bleeding Disorders Foundation

EIN 13-5641857 • 501(c)3 • New York, NY

Profile

The national bleeding disorders foundation (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.

1230 Avenue Of The Americas 16th FNew York, NY 10020

www.bleeding.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

38th percentile

0.11x

Higher debt load relative to assets than 38% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Liabilities / Revenue

42nd percentile

0.21x

Higher debt load relative to revenue than 42% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Net Margin

11th percentile

-19%

Higher net margin than 11% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Top Officer Pay

76th percentile

$415,294

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 2.5% of source-year revenue.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Asset Growth

10th percentile

-8.0%

Faster asset growth than 10% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2023 to 2024

Revenue Growth

15th percentile

-13%

Faster revenue growth than 15% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2023 to 2024

Assets

Down

$30,813,469

Down $2,675,082 (-8.0%) from 2023

Liabilities

Down

$3,449,324

Down $339,254 (-9.0%) from 2023

Net Assets

Down

$27,364,145

Down $2,335,828 (-7.9%) from 2023

Revenue

Down

$16,570,137

Down $2,477,711 (-13%) from 2023

Expenses

Down

$19,646,649

Down $3,433,699 (-15%) from 2023

Net Income

Up

-$3,076,512

Up $955,988 (+24%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$60M$40M$20M$0Assets 2010: $10,291,209Liabilities 2010: $4,683,187Net Assets 2010: $5,608,0222010Assets 2011: $13,060,987Liabilities 2011: $5,854,452Net Assets 2011: $7,206,5352011Assets 2012: $13,208,932Liabilities 2012: $3,708,561Net Assets 2012: $9,500,3712012Assets 2013: $19,463,103Liabilities 2013: $8,196,542Net Assets 2013: $11,266,5612013Assets 2014: $19,647,371Liabilities 2014: $7,043,701Net Assets 2014: $12,603,6702014Assets 2015: $22,146,226Liabilities 2015: $7,887,628Net Assets 2015: $14,258,5982015Assets 2016: $27,537,638Liabilities 2016: $7,505,528Net Assets 2016: $20,032,1102016Assets 2017: $32,136,406Liabilities 2017: $8,925,866Net Assets 2017: $23,210,5402017Assets 2018: $29,804,582Liabilities 2018: $7,809,143Net Assets 2018: $21,995,4392018Assets 2019: $33,540,186Liabilities 2019: $4,290,536Net Assets 2019: $29,249,6502019Assets 2020: $38,811,644Liabilities 2020: $5,491,167Net Assets 2020: $33,320,4772020Assets 2021: $46,786,068Liabilities 2021: $5,925,104Net Assets 2021: $40,860,9642021Assets 2022: $37,819,346Liabilities 2022: $6,435,629Net Assets 2022: $31,383,7172022Assets 2023: $33,488,551Liabilities 2023: $3,788,578Net Assets 2023: $29,699,9732023Assets 2024: $30,813,469Liabilities 2024: $3,449,324Net Assets 2024: $27,364,1452024

Highlighted filing

2024

Assets$30,813,469
Liabilities$3,449,324
Net Assets$27,364,145

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$30M$20M$10M$0-$10MExpenses 2010: $10,046,8972010Expenses 2011: $10,878,2412011Expenses 2012: $12,024,9252012Revenue 2013: $15,289,330Expenses 2013: $13,878,812Net Income 2013: $1,410,5182013Revenue 2014: $16,849,714Expenses 2014: $15,424,651Net Income 2014: $1,425,0632014Revenue 2015: $20,427,654Expenses 2015: $18,282,538Net Income 2015: $2,145,1162015Revenue 2016: $25,211,163Expenses 2016: $19,824,825Net Income 2016: $5,386,3382016Revenue 2017: $22,117,595Expenses 2017: $20,576,103Net Income 2017: $1,541,4922017Revenue 2018: $22,443,825Expenses 2018: $22,083,997Net Income 2018: $359,8282018Revenue 2019: $27,253,151Expenses 2019: $22,378,233Net Income 2019: $4,874,9182019Revenue 2020: $21,485,204Expenses 2020: $19,037,685Net Income 2020: $2,447,5192020Revenue 2021: $26,439,522Expenses 2021: $18,557,069Net Income 2021: $7,882,4532021Revenue 2022: $18,150,168Expenses 2022: $23,065,785Net Income 2022: -$4,915,6172022Revenue 2023: $19,047,848Expenses 2023: $23,080,348Net Income 2023: -$4,032,5002023Revenue 2024: $16,570,137Expenses 2024: $19,646,649Net Income 2024: -$3,076,5122024

Highlighted filing

2024

Revenue$16,570,137
Expenses$19,646,649
Net Income-$3,076,512

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$30.8$3.45$27.4$16.6$19.6$3.08
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$33.5$3.79$29.7$19.0$23.1$4.03
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$37.8$6.44$31.4$18.2$23.1$4.92
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$46.8$5.93$40.9$26.4$18.6$7.88
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$38.8$5.49$33.3$21.5$19.0$2.45
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$33.5$4.29$29.2$27.3$22.4$4.87
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$29.8$7.81$22.0$22.4$22.1$0.36
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$32.1$8.93$23.2$22.1$20.6$1.54
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$27.5$7.51$20.0$25.2$19.8$5.39
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$22.1$7.89$14.3$20.4$18.3$2.15
2014Detailed filing. Detailed filing data is available for this year.$19.6$7.04$12.6$16.8$15.4$1.43
2013Detailed filing. Detailed filing data is available for this year.$19.5$8.20$11.3$15.3$13.9$1.41
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$13.2$3.71$9.50$12.0
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$13.1$5.85$7.21$10.9
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.3$4.68$5.61$10.0
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 1, 2025
Return Version
2024v5.2
Gross Receipts
$18,860,927
Mission and Program Overview

Mission

The national hemophilia foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

The national bleeding disorders foundation (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$22,412,096$21,794,651▼ $617,445
Cash and Non-Interest-Bearing Accounts$7,217,991$4,943,233▼ $2,274,758
Investments Program Related$806,849$1,626,904▲ $820,055
Pledges and Grants Receivable$1,474,349$1,039,650▼ $434,699
Savings and Temporary Cash Investments$520,560$523,074▲ $2,514
Prepaid Expenses and Deferred Charges$484,222$329,625▼ $154,597
Land, Buildings, and Equipment, Net$40,998$19,132▼ $21,866
Accounts Receivable$0$16,000▲ $16,000
Other Notes and Loans Receivable, Net$0$2,875▲ $2,875
Total Assets$33,488,551$30,813,469▼ $2,675,082
Other Assets Total$531,486$518,325▼ $13,161
Liabilities
Accounts Payable and Accrued Expenses$2,147,290$1,977,199▼ $170,091
Grants Payable$899,697$933,044▲ $33,347
Other Liabilities$522,506$509,744▼ $12,762
Deferred Revenue$219,085$29,337▼ $189,748
Total Liabilities$3,788,578$3,449,324▼ $339,254
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$20,009,403$18,818,497▼ $1,190,906
Net Assets With Donor Restrictions$9,690,570$8,545,648▼ $1,144,922
Total Net Assets Fund Balance$29,699,973$27,364,145▼ $2,335,828
Total Liabilities and Net Assets / Fund Balance$33,488,551$30,813,469▼ $2,675,082

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$19,132$90,196$109,328
Investment Program Related Org$700,000--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$1,916,569-▲ $209,638$78,078$2,048,129
2023$1,785,311-▲ $131,258-$1,916,569
2022$2,146,385-▼ $361,074-$1,785,311
2021$1,983,771-▲ $211,918$49,304$2,146,385
2020$1,795,609-▲ $203,554$15,392$1,983,771
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michael RechtChief Scientific OfficerFT$370,865$44,429$415,294
Philip GattonePresident & CEOFT$302,939$47,426$350,365
Teri WilleyManaging DirectorFT$302,808$45,870$348,678
Peter HarveyChief Business OfficerFT$211,743$78,791$290,534
Sandra D RotelliniChief Operating OfficerFT$217,047$59,243$276,290
Timothy BrentVenture PrincipalFT$174,658$72,277$246,935
Nathan SchaeferS.v.p. of Public PolicyFT$174,808$61,717$236,525
Keri Norris Svp of HealthAccess & Strategic InnovationFT$177,531$47,434$224,965
Renee PeckSenior Development DirectorFT$205,118$5,152$210,270
Leonard ValentinoPresident & CEO - Thru 3/31/24FT$98,444$52,693$151,137

Board Members and Trustees

Highest Paid Contractors

ContractorServicesLocationCompensation
Manifest LLCProduction/hemaware Publication4110 N SCOTTSDALE ROAD SUITE 315, Scottsdale, AZ 85251, Ca$481,417
Impact Education LLCConsultant For Medical Education589 SKIPPACK PIKE SUITE 200, Blue Bell, PA 19422$308,014
Ccr Solutions INCAudiovisual Services25 WALPOLE SOUTH BOULEVARD 1 UNI, Walpole, MA 02081$227,500
Artemis Policy Group LLCStrategic Advisory Services1150 CONNECTICUT AVE NW STE 803, Washington, DC 20036$187,500
Etk CommunicationsLeadership Solution Services-$137,738
Revenue and Support

Revenue Composition

Contributions and Grants
$13,694,516
Program Service Revenue
$1,207,808
Investment Income
$1,743,292
Other Revenue
$-75,479
All Other Contributions
$12,692,212
Change in Net Assets
$-3,076,512

Audited Revenue Reconciliation

Revenue per Audited Statements
$16,511,336
Revenue Not Reported on Financial Statements
$58,801
Revenue Not Reported on Form 990
$893,570
Total Revenue per Audited Statements
$17,404,906
Total Revenue per Form 990
$16,570,137
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$11,237,387
Other Expenses$7,270,942
Total Fundraising Expense$1,357,159
Grants and Similar Amounts Paid$1,138,320
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$4,999,069$1,497,008$817,911$7,313,988
Fees for Services Other$1,565,647$213,748$16,582$1,795,977
Current Officers, Directors, Trustees, and Key Employees$717,341$766,278-$1,483,619
Conferences and Meetings$1,374,359$90,488$15,253$1,480,100
Travel$1,301,077$85,663$81,016$1,467,756
Other Employee Benefits$840,902$263,938$162,543$1,267,383
Grants to Domestic Orgs$1,014,936--$1,014,936
Payroll Taxes$403,615$152,047$75,991$631,653
Pension Plan Contributions$387,503$120,731$32,510$540,744
Information Technology$322,473$52,778$24,460$399,711
Other Expenses$270,027$17,962$10,099$298,088
Office Expenses$219,472$44,851$21,499$285,822
Fees for Services Lobbying$187,500--$187,500
Grants to Domestic Individuals$118,384--$118,384
Occupancy$39,968$62,307$5,552$107,827
Insurance$57,489$14,112$12,655$84,256
Fees for Services Accounting-$59,000-$59,000
All Other Expenses$21,332$35,223$2,380$58,935
Fees for Service Investment Mgmnt Fees-$58,801-$58,801
Depreciation Depletion$14,628$5,012$2,226$21,866
Advertising$13,073$1,390-$14,463
Foreign Grants$5,000--$5,000
Fees for Services Legal-$3,271-$3,271
Total Functional Expenses$14,619,765$3,669,725$1,357,159$19,646,649

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$19,740,734
Total Expenses per Form 990$19,646,649
Expenses per Audited Statements$19,587,848
Expenses Not Reported on Form 990$152,886
Expenses Not Reported on Financial Statements$58,801
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of North Carolina at Chapel HillChapel Hill, NC501(c)(3)Clinical Fellowship Award$200,000
Beth Israel Deaconess Medical CenterBoston, MA501(c)(3)Research Judith Graham Pool Award$104,000
The Board of Trustees of the Leland Stanford Junior UniversityLos Angeles, CA501(c)(3)Research Judith Graham Pool Award$104,000
World Federation of Hemophilia USAAlbany, NY501(c)(3)Women & Girls With Bleeding Disorders, and Chapters Challenge Grants$90,000
BRIGHAM AND WOMEN'S HOSPITALBoston, MA501(c)(3)Career Development Award$70,000
Emory UniversityAtlanta, GA501(c)(3)Career Development Award$70,000
Asociacion Puertorriquena De HemofiliaSan Juan, PR501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$18,000
Intermountain Healthcare Foundation IncSalt Lake City, UT501(c)(3)Social Work Excellence Fellowship$15,000
Maine HealthWestbrook, ME501(c)(3)Nursing Excellence Fellowship$15,000
University of FloridaGainesville, FL501(c)(3)Physical Therapy Excellence Fellowship$15,000
Bleeding Disorder Association of ScGreenville, SC501(c)(3)State Based Advocacy Coalition & Chapter Capacity Grants$14,000
Hemophilia Foundation of MichiganYpsilanti, MI501(c)(3)Chapter Capacity Building & Unite Walk Grants$14,000
Great Lakes Hemophilia FoundationMilwaukee, WI501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$13,500
Western Pennsylvania Bleeding DisordersBeaver, PA501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$13,500
Greater Ohio Bleeding Disorders FoundationCleveland, OH501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$12,500
Pacific Northwest Bleeding DisordersCorvallis, OR501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$12,500
Bleeding Disorders Foundation of NcMorrisville, NC501(c)(3)State Based Advocacy Coalition Grant$12,000
Hemophilia Council of CaliforniaSacramento, CA501(c)(3)State Based Advocacy Coalition Grant$11,500
Texas Central Bleeding DisordersDallas, TX501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$8,750
Gateway Hemophlia AssociationSt Louis, MO501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$8,500
New England Hemophilia AssociationDedham, MA501(c)(3)State Based Advocacy Coalition & Unite Walk Grants$6,000
Virginia Hemophilia FoundationRichmond, VA501(c)(3)Chapter Capacity Building & Unite Walk Grants$5,500
Bleeding Disorder Alliance of N DakotaFargo, ND501(c)(3)Chapter Capacity Building & Unite Walk Grants$5,250

International Summary

Offices
0
Employees
1
Spending
$137,738

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaProgram ServicesLeadership Solution Services01$137,738
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$152,886
Fundraising Gross Income$65,782
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walks$204,056$34,509$27,934$6,575
Red Tie Soiree$236,340$16,350$20,572$-4,222
Total Events$512,072$65,782$152,886$-87,104
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Pension Liability$469,986
Operating Lease Liabilities$39,758
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

The organization has chapter members who are voting members of the organization. An organization whose mission and purpose is consistent with the mission of nhf may apply to be a chapter member. The organization must meet certain standards in order to be approved as a chapter. The ceo is authorized to accept or deny chapter member status.

Form 990, Part VI, Section A, Line 7A

Chapter members are entitled to vote for directors for each of the vacancies to be filled during elections.

Form 990, Part VI, Section B, Line 11B

A copy of form 990 is circulated electronically to the organization's board members. The full board will have the opportunity to have the form 990 presented to them by the auditor by conference call prior to being submitted. The ceo, cbo, coo and controller are also present on the call.

Form 990, Part VI, Section B, Line 12C

All employees, officers and directors must complete a conflict of interest form stating that they have no conflict of interest or if they do, they must disclose such conflict on this form. This form must be completed at the time of hire and every year thereafter. For matters concerning conflicts of interest by a voting member of the board, the member will be prohibited from participating in deliberations and decisions concerning items that give rise to such conflicts. In the event a conflict of interest is disclosed, the matter will be reviewed by the ceo, cbo and coo. The ceo, cbo and coo may decide to permit exceptions to this policy if it is determined, in good faith, that such proposed contract or transaction is on terms which are materially advantageous to nhf or the employee involved will provide a unique service to nhf on terms which are fair and reasonable to nhf.

Form 990, Part VI, Section B, Line 15

The board of directors sets the compensation of ceo at hire and thereafter uses an independent consultant's analysis of comparable salary surveys (biannually). 990 part vi, section b, line 15b the ceo sets compensation for key employees within a designated salary range in alignment with a structure that incorporates a comprehensive salary analysis provided by a compensation consulting company as well as input from coo/cbo/hr. This was last undertaken in 2023.

Form 990, Part VI, Section C, Line 19

The organization makes its form 990, financial statements, articles of incorporation, conflicts of interest, form 1023, and by-laws available on the organization's website at www.bleeding.org or upon written request or by calling the organization directly.

Filing and Contact Details

Filer

Filer Name
National Bleeding Disorders Foundation
EIN
13-5641857
Phone
2123283700
Address
1230 AVENUE OF THE AMERICAS 16TH F, NEW YORK, NY 10020

Signing Officer

Name
Peter Harvey
Title
Chief Business Officer
Phone
2123283700
Signed
2025-10-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Peter Harvey
Formed
1948
Legal Domicile
Ny
Voting Board Members
13
Independent Board Members
13
Employees
99
Volunteers
1,078

Preparer

Firm
PKF O'CONNOR DAVIES ADVISORY LLC
Address
20 COMMERCE DRIVE SUITE 301, CRANFORD, NJ 07016-3618
Preparer
Garrett M Higgins
Phone
9082726200
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

The organization has a committee that assumes responsibility for oversight of the audit of its financial statements and selection of the independent accountant. This process is unchanged from the prior year.

Financial Statement Notes

PART V, LINE 4:

To provide funding for research fellowship grants. The foundation has decided to appropriate funds on an annual basis for expenditure at the rate up to 4% of the fund's average fair market value over the most recent 36-month period taking into consideration relevant economic, investment, and financial conditions. Net amounts available for release accumulated from previous years total $548,129 and $416,569 as of december 31, 2024 and 2023, respectively, and are recorded as donor restricted net assets until designated as research awards.

PART X, LINE 2:

The foundation recognizes the effect of income tax positions only if those positions are more likely than not of being sustained. Management has determined that the foundation had no uncertain tax positions that would require financial statement recognition or disclosure. The organization is no longer subject to examinations by the applicable taxing jurisdictions for tax years prior to 2021.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Special events expense netted against revenue 152,886.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Special events expense netted against revenue 152,886.

Raw XML AppendixShowing 400 of 1,267 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE NATIONAL BLEEDING DISORDERS FOUNDATION (FORMERLY THE NATIONAL HEMOPHILIA FOUNDATION) IS DEDICATED TO FINDING CURES FOR INHERITABLE BLOOD AND BLEEDING DISORDERS AND TO ADDRESSING AND PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH RESEARCH, EDUCATION, AND ADVOCACY ENABLING PEOPLE AND FAMILIES TO THRIVE.
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IRS990/Desc0HEALTH EDUCATION AND TRAININGNBDF EXPANDED ITS HEALTH COACHING PROJECT, OWN YOUR PATH, FOR MEN AND WOMEN WITH HEMOPHILIA OR VON WILLEBRAND DISEASE (VWD). THE PROGRAM AIMS TO IMPROVE TREATMENT ADHERENCE. NBDF ALSO CONTINUES TO DISTRIBUTE ALL OF ITS EDUCATIONAL PUBLICATIONS FOR THOSE LIVING WITH INHERITABLE BLEEDING DISORDERS, FROM MASAC FOR YOU NEW PUBLICATIONS ON DIAGNOSIS, TREATMENT AND CARE FOR WOMEN AND GIRLS, TO NBDF'S NEW THRIVE CAMPAIGN SHOWCASING 6 EASY STEPS TO LIVING HEALTHY WITH A BLEEDING DISORDER. IN 2024, NBDF DISTRIBUTED 30,777 PUBLICATIONS.THE PRIMARY GOALS OF THE NATIONAL BLEEDING DISORDERS FOUNDATION'S (NBDF'S) VICTORY FOR WOMEN AND BETTER YOU KNOW PROGRAMS ARE: 1) IMPROVE THE AWARENESS OF SYMPTOMS OF BLEEDING DISORDERS IN WOMEN TO INCREASE DIAGNOSIS LONG TERM; AND 2) TO PROVIDE AFFECTED WOMEN WITH EDUCATION AND SUPPORT. IN 2024 NBDF REACHED OUT TO 26 COMMUNITY PARTNERS TO SHARE ABOUT SIGNS AND SYMPTOMS OF BLEEDING DISORDERS. IN ADDITION, CLOSE TO 2,000 WOMEN TOOK THE BETTER YOU KNOW RISK ASSESSMENT TOOL, 76% HAD SYMPTOMS OF A BLEEDING DISORDER, AND OVER 7,600 VISITED VICTORYFORWOMEN.ORG.STEPS FOR LIVING (SFL) IS A MULTIMEDIA EDUCATIONAL PROGRAM DESIGNED TO INCREASE ACCESS TO AGE AND CULTURALLY APPROPRIATE INFORMATION THAT CAN HELP IN THE MANAGEMENT OF DAILY CHALLENGES OF LIVING WITH A BLEEDING DISORDER. NBDF LAUNCHED THE REDESIGNED AND REWRITTEN SFL WEBSITE IN ENGLISH AND SPANISH IN JULY 2024 LEADING TO OVER 60,000 VIEWS IN 2024.NBDF'S EDUCATION FOR EMPOWERMENT PROGRAM BRINGS WORKSHOPS OUT TO LOCAL CHAPTER AND HTC EVENTS. NBDF FACILITATED 89 WORKSHOPS IN ENGLISH AND SPANISH, WITH OVER 1200 PARTICIPANTS IN 2024. OF THIS PROGRAM, 86% LEARNED SOMETHING NEW FROM THE SESSIONS, AND 84% PLANNED TO IMPLEMENT THE NEW LEARNINGS OR SKILLS.NBDF HAS DESIGNED THE NATIONAL YOUTH LEADERSHIP INSTITUTE (NYLI) TO ASSIST YOUNG PEOPLE FROM THE BLEEDING DISORDERS COMMUNITY TO BECOME WELL-TRAINED, RECOGNIZED LEADERS. NBDF PROVIDES YOUNG ADULTS WITH TRAINING, SUPPORT AND OPPORTUNITIES TO PROVIDE EDUCATION TO THE BLEEDING DISORDERS COMMUNITY. IN 2024, NBDF PROVIDED TRAININGS TO THE 7 MEMBERS OF NYLI ON TOPICS INCLUDING PUBLIC SPEAKING, ADVOCACY, NON-PROFIT MANAGEMENT AND FUNDRAISING. NBDF DEVELOPED NUMEROUS EDUCATIONAL COMPONENTS TO ITS INNOVATIVE THERAPIES PROGRAMMING TO ENSURE THAT COMMUNITY MEMBERS ARE AWARE OF THE LATEST TREATMENTS IN THE PIPELINE AND HOW TO HAVE CONVERSATIONS WITH THEIR HEALTHCARE PROVIDERS FOR THE BEST TREATMENT DECISIONS. IN 2024 NBDF EXPANDED ITS 3D VIDEO SERIES ON THE CLOTTING CASCADE WITH NEW VIDEOS ON FACTOR REPLACEMENT THERAPY AND BISPECIFIC ANTIBODY THERAPY, BOTH IN ENGLISH AND SPANISH. THERE ARE OVER 100,000 VIEWS ACROSS ALL THE SERIES VIDEOS COMBINED SINCE THEY LAUNCHED.AT NBDF'S 76TH BLEEDING DISORDERS CONFERENCE (BDC), HELD SEPTEMBER 12-14, 2024, AT THE WORLD CONGRESS CONVENTION CENTER IN ATLANTA, GEORGIA NBDF DELIVERED 64 CONSUMER TRACK EDUCATIONAL SESSIONS, AS WELL AS 4 NETWORKING HOURS FOR CONNECTIONS AND SUPPORT. OF THOSE WHO ATTENDED, 87% REPORTED LEARNING SOMETHING NEW AND 84% SAID THEY WOULD IMPLEMENT THOSE NEW LEARNINGS OR SKILLS. NBDF ALSO OFFERED 55 HOURS OF LIVE IN-PERSON TRAINING FOR HEALTH CARE PROVIDERS IN FOUR CONCURRENT EDUCATIONAL TRACKS. CONTINUING EDUCATION CREDITS WERE MADE AVAILABLE TO EIGHT DISTINCT LICENSED HEALTHCARE DISCIPLINES AS FOLLOWS: - PHYSICIANS/OTHER PRESCRIBERS MD/DO PHYSICIANS; PHYSICIAN ASSISTANTS; NURSE PRACTITIONERS - (A MAXIMUM OF 8.75 AMA PRA CATEGORY 1 CREDITS) - PHARMACISTS - (FOR 8.75 CONTACT HOURS (0.875 CEUS) OF THE ACCREDITATION COUNCIL FOR PHARMACY EDUCATION (ACPE) - REGISTERED NURSES AND NURSE PRACTITIONERS (A MAXIMUM OF 12.5 ANCC ACCREDITED NURSING CONTINUING PROFESSIONAL DEVELOPMENT CONTACT HOURS ) - MEDICAL AND CLINICAL SOCIAL WORKERS [12.50 CLINICAL/ETHICS ASWB-ACE APPROVED CONTINUING EDUCATION CREDITS (UP TO 11.0 CLINICAL AND 1.5 ETHICS)] - PHYSICAL THERAPISTS AND PHYSICAL THERAPY ASSISTANTS (UP TO 12.5 PT CEUS, STATE DEPENDENT)1,810 INDIVIDUALS AT
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IRS990/Form990PartVIISectionAGrp/TitleTxt13PRESIDENT & CEO - THRU 3/31/24
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IRS990/MissionDesc0THE NATIONAL BLEEDING DISORDERS FOUNDATION (FORMERLY THE NATIONAL HEMOPHILIA FOUNDATION) IS DEDICATED TO FINDING CURES FOR INHERITABLE BLOOD AND BLEEDING DISORDERS AND TO ADDRESSING AND PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH RESEARCH, EDUCATION, AND ADVOCACY ENABLING PEOPLE AND FAMILIES TO THRIVE.
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IRS990/MoreThan5000KToOrgInd00
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IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt018818497
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IRS990/OfficeExpensesGrp/ProgramServicesAmt0219472
IRS990/OfficeExpensesGrp/TotalAmt0285822
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
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IRS990/OtherAssetsTotalGrp/BOYAmt0531486
IRS990/OtherAssetsTotalGrp/EOYAmt0518325
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0162543

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