Liabilities / Assets
65th percentile
Higher debt load relative to assets than 65% of similar nonprofits.
National Bleeding Disorders Foundation
990 • Fiscal year 2013 • EIN 13-5641857
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.42x
Liabilities / Revenue
67th percentile
Higher debt load relative to revenue than 67% of similar nonprofits.
Net Margin
66th percentile
Higher net margin than 66% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 2.3% of source-year revenue.
Asset Growth
95th percentile
Faster asset growth than 95% of similar nonprofits.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Balance Sheet
Assets
Up$19,463,103
Up $6,254,171 (+47%) from 2012
Net Assets
Up$11,266,561
Up $1,766,190 (+19%) from 2012
Liabilities
Up$8,196,542
Up $4,487,981 (+121%) from 2012
Revenue And Expenses
Revenue
$15,289,330
No earlier filing loaded for comparison.
Expenses
Up$13,878,812
Up $1,853,887 (+15%) from 2012
Net Income
$1,410,518
No earlier filing loaded for comparison.
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2013 to Dec 31, 2013
- Signed
- Aug 13, 2014
- Return Version
- 2013v3.0
- Gross Receipts
- $17,413,718
Mission and Program Overview
Mission
The national hemophilia foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
Dedicated to finding better treatments and cures for inheritable bleeding disordes and to preventing the complications of these disorders through education, advocacy and research.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $6,417,771 | $8,616,494 | ▲ $2,198,723 |
| Investments Other Securities | $5,191,616 | $7,951,982 | ▲ $2,760,366 |
| Savings and Temporary Cash Investments | $798,526 | $1,680,631 | ▲ $882,105 |
| Pledges and Grants Receivable | $599,427 | $860,550 | ▲ $261,123 |
| Prepaid Expenses and Deferred Charges | $124,358 | $132,967 | ▲ $8,609 |
| Land, Buildings, and Equipment, Net | $24,596 | $26,429 | ▲ $1,833 |
| Total Assets | $13,303,973 | $19,463,103 | ▲ $6,159,130 |
| Other Assets Total | $147,679 | $194,050 | ▲ $46,371 |
| Liabilities | |||
| Deferred Revenue | $2,280,759 | $6,152,418 | ▲ $3,871,659 |
| Accounts Payable and Accrued Expenses | $1,367,682 | $1,862,773 | ▲ $495,091 |
| Other Liabilities | $155,161 | $181,351 | ▲ $26,190 |
| Total Liabilities | $3,803,602 | $8,196,542 | ▲ $4,392,940 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $6,481,952 | $7,966,957 | ▲ $1,485,005 |
| Temporarily Rstr Net Assets | $2,768,419 | $3,049,604 | ▲ $281,185 |
| Permanently Rstr Net Assets | $250,000 | $250,000 | → $0 |
| Total Net Assets Fund Balance | $9,500,371 | $11,266,561 | ▲ $1,766,190 |
| Total Liabilities and Net Assets / Fund Balance | $13,303,973 | $19,463,103 | ▲ $6,159,130 |
Asset Categories
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $16,890 | $999,089 | $1,015,979 |
| Equipment | $2,386 | $185,373 | $187,759 |
| Leasehold Improvements | $7,153 | $168,149 | $175,302 |
| Other Securities | $2,075,070 | - | - |
Endowment Activity
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2013 | $287,878 | - | ▲ $26,933 | - | $314,811 |
| 2012 | $271,335 | - | ▲ $16,543 | - | $287,878 |
| 2011 | $268,750 | - | ▲ $2,585 | - | $271,335 |
| 2010 | $261,250 | - | ▲ $7,500 | - | $268,750 |
| 2009 | $257,500 | - | ▲ $3,750 | - | $261,250 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Val Bias | Chief Executive Officer | FT | $276,484 | $79,466 | $355,950 |
| Mary Ann Ludwig | V.p. of Development | FT | $212,326 | $35,119 | $247,445 |
| Joseph Kleiber | Senior V.p. of Chapter Services | FT | $180,654 | $48,612 | $229,266 |
| Jordana Zeger | Chief Operating Officer | FT | $189,197 | $38,892 | $228,089 |
| Neil Frick | V.p. of Research & Medical Education | FT | $133,857 | $27,332 | $161,189 |
| John Indence | V.p. of Marketing and Communication | FT | $135,591 | $24,348 | $159,939 |
| Sandra Rotellini | Director of Chapter Service | FT | $120,092 | $19,533 | $139,625 |
| Christa Dardaganian | Director of Education Strategy | FT | $131,196 | $8,288 | $139,484 |
Board Members and Trustees
| Name | Title |
|---|---|
| Jorge De La Riva | Chair |
| Kenneth Trader | Vice-chair |
| Barbara Gordon | Director |
| David Cohenour | Director |
| David Sternberg | Director |
| Dutta Satadip | Director |
| Gilbert C White Ii Md | Director |
| James F Hammel Md | Director |
| James a Heer | Director |
| Jeff Alexis Md | Director |
| Jordan Black | Director |
| Kenneth Moore | Director |
| Kristie Kay Ostash Md | Director |
| Lynn Wilmarth | Director |
| Mark Borreliz | Director |
| Matt Rhodes | Director |
| Steve Helm | Director |
| Carol Simonetti | Secretary |
| Brian Andrew | Treasurer |
Highest Paid Contractors
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Pam Am Equities INC | Rent Of Nyc Office | - | $447,247 |
| The Magazine Group | Production Of Hemaware | - | $422,288 |
| Scherer Clinical Communications LLC | Professional Services: Enduring Symposiu | - | $222,328 |
| Strategic Marketing & Mailing INC | Design, Lettershop And Printing Services | - | $217,792 |
| Cavarocchi Ruscio Dennis Associates L | Consultant-strategic Services And Public | - | $185,734 |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $14,116,476
- Program Service Revenue
- $1,716,117
- Investment Income
- $233,634
- Other Revenue
- $-776,897
- All Other Contributions
- $11,673,314
- Change in Net Assets
- $1,410,518
Audited Revenue Reconciliation
- Revenue per Audited Statements
- $15,289,330
- Revenue Not Reported on Financial Statements
- $0
- Revenue Not Reported on Form 990
- $377,432
- Total Revenue per Audited Statements
- $15,666,762
- Total Revenue per Form 990
- $15,289,330
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Other Expenses | $7,123,221 |
| Salaries, Compensation, and Employee Benefits | $5,691,936 |
| Grants and Similar Amounts Paid | $1,051,280 |
| Total Fundraising Expense | $836,383 |
| Professional Fundraising Fees | $12,375 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $2,727,779 | $780,713 | $254,628 | $3,763,120 |
| Conferences and Meetings | $2,958,647 | $56,737 | $66,569 | $3,081,953 |
| Fees for Services Other | $777,772 | $385,717 | $42,351 | $1,205,840 |
| Grants to Domestic Orgs | $942,136 | - | - | $942,136 |
| Current Officers, Directors, Trustees, and Key Employees | $607,210 | $147,611 | $54,385 | $809,206 |
| Other Employee Benefits | $486,849 | $37,021 | $29,498 | $553,368 |
| Occupancy | $310,414 | $148,907 | $20,959 | $480,280 |
| Payroll Taxes | $311,288 | $23,671 | $18,861 | $353,820 |
| Pension Plan Contributions | $179,538 | $16,399 | $16,485 | $212,422 |
| Fees for Services Legal | $5,187 | $185,150 | - | $190,337 |
| Fees for Services Lobbying | $183,941 | - | - | $183,941 |
| Other Expenses | $80,483 | $3,003 | $93,819 | $177,305 |
| Office Expenses | $130,144 | $25,152 | $6,668 | $161,964 |
| All Other Expenses | $42,660 | $90,337 | $18,244 | $151,241 |
| Grants to Domestic Individuals | $59,144 | - | - | $59,144 |
| Foreign Grants | $50,000 | - | - | $50,000 |
| Insurance | - | $35,201 | $100 | $35,301 |
| Fees for Service Investment Mgmnt Fees | - | $27,590 | - | $27,590 |
| Fees for Services Accounting | - | $12,503 | $573 | $13,076 |
| Fees for Services Professional Fundraising | - | - | $12,375 | $12,375 |
| Depreciation Depletion | $8,034 | $2,340 | $776 | $11,150 |
| Total Functional Expenses | $10,990,231 | $2,052,198 | $836,383 | $13,878,812 |
Audited Expense Reconciliation
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $13,900,572 |
| Expenses per Audited Statements | $13,878,812 |
| Total Expenses per Form 990 | $13,878,812 |
| Expenses Not Reported on Form 990 | $21,760 |
| Expenses Not Reported on Financial Statements | $0 |
International Activity
Grant and Assistance Recipients
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| 39-0806261 | - | 501(c)(3) | Clinical Research Fellowship Promotin Innovation in Bleeding and Clotting Disorders | $100,000 |
| 72-0423889 | - | 501(c)(3) | Clinical Research Fellowship Promoting Innovation in Bleeding and Clotting Disorders | $96,535 |
| 38-6006309 | - | 501(c)(3) | Clinical Research Fellowship Promoting Innovation in Bleeding and Clotting Disorders | $70,000 |
| 56-6001393 | - | 501(c)(3) | Clinical Research Fellowship Promoting Innovation in Bleeding and Clotting Disorders for 2 Individuals | $64,921 |
| 75-1187148 | - | 501(c)(3) | Advocacy Capacity Building and Staffing Assistance for Chapter | $57,500 |
| 68-0182998 | - | 501(c)(3) | SUPPORT AN EXPANSION IN HCC'S ADVOCACY INFRASTRUCTURE TO ASSIST THE COUNCIL IN ITS EFFORTS TO ACCESS CARE TO THOSE AFFECTED BY BLEEDING DISORDERS IN THE STATE OF CALIFORNIA. | $52,000 |
| 38-2562709 | - | 501(c)(3) | Clinical Research Fellowship Promoting Innovation in Bleeding and Clotting Disorders | $47,367 |
| 84-0404231 | - | 501(c)(3) | Clinical Research Fellowship Promoting Innovation in Bleeding and Clotting Disorders | $37,986 |
| 95-6006144 | - | 501(c)(3) | Clinical Research Fellowship Promoting Innovation and Research in Bleeding and Clotting Disorders | $35,000 |
| 27-1851936 | - | 501(c)(3) | Staffing Assistance for Chapter | $25,500 |
| 62-0476822 | - | 501(c)(3) | Expand Clinical Hours and Geographic Area for Woman With Bleeding Disorders | $24,800 |
| 22-2519156 | - | 501(c)(3) | Advocacy Capacity Building and Staffing Assistance for Chapter | $24,250 |
| 31-1527065 | - | 501(c)(3) | Advocacy Capacity Building | $22,000 |
| 39-0807235 | - | 501(c)(3) | Clinical Research Fellowship Promoting Innovation and Research in Bleeding and Clotting Disorders | $21,000 |
| 81-0533720 | - | 501(c)(3) | Chapter-victory for Woman Program and Staffing Assistance for Chapter | $19,250 |
| 42-1334948 | - | 501(c)(3) | Staffing Assistance for Chapter | $16,231 |
| 82-0161600 | - | 501(c)(3) | Therapy for All Life Stages, Including the Aging Population | $15,000 |
| 74-1761309 | - | 501(c)(3) | Insurance, Career Focused Programs, Patience Assistance for Career/educational Needs | $14,063 |
| 41-1814223 | - | 501(c)(3) | Soozie Courter Nursing Excellence Scholarship | $13,211 |
| 94-3143226 | - | 501(c)(3) | Staffing Assistance for Chapter | $11,250 |
| 54-1183181 | - | 501(c)(3) | Chapter-victory for Woman Program | $11,055 |
| 54-1702561 | - | 501(c)(3) | Chapter-victory for Woman Program and Staffing Assistance for Chapter | $10,920 |
| 34-1018501 | - | 501(c)(3) | Chapter-victory for Woman Program and Staffing Assistance | $10,879 |
| 45-0398104 | - | 501(c)(3) | SURVEY OF PATIENT KNOWLEDGE AND ATTITUDES; COORDINATE CARE WITH EDUCATORS, SCHOOL NURSES, DENTISTS, ETC | $10,595 |
| 54-6001758 | - | 501(c)(3) | Genetic Counseling | $10,476 |
| 38-1905673 | - | 501(c)(3) | Chapter-victory for Woman Program | $10,350 |
| 91-1019655 | - | 501(c)(3) | Physical Therapist Excellence Fellowship | $10,000 |
| 36-2174823 | - | 501(c)(3) | SOCIAL WORKERS' EXCELLENCE FELLOWSHIP | $10,000 |
| 95-1642394 | - | - | Clinical Research Fellowship Promoting Innovation in Bleeding and Clotting Disorders | $10,000 |
| 91-6068857 | - | 501(c)(3) | Staffing Assistance for Chapter | $9,249 |
| 93-0551733 | - | 501(c)(3) | Staffing Assistance for Chapter | $8,840 |
| 99-0246364 | - | 501(c)(3) | Patient Outreach to Remote Areas | $7,850 |
| 34-0714775 | - | 501(c)(3) | Implement Shared Medical Appointments Program for Pediatric Population and Patient Assistance for Transportation | $7,800 |
| 52-1640403 | - | 501(c)(3) | Adolescent Transition Clinic | $7,500 |
| 85-0378433 | - | 501(c)(3) | Staffing Assistance for Chapter | $7,024 |
| 59-2072352 | - | 501(c)(3) | Advocacy Strategic Planning Initiative | $5,700 |
| 23-7083114 | - | 501(c)(3) | Funding for Psychology Fellowships and Surveys | $5,000 |
International Summary
- Offices
- 0
- Employees
- 0
- Spending
- $0
International Compliance
- Foreign grant records maintained
- No
- Activity in boycott countries
- No
- Foreign corporation ownership
- No
- Foreign partnership interest
- No
- Interest in foreign trust
- No
- Passive foreign investment company interest
- No
- Transfers to foreign corporations
- No
Fundraising, Events, and Gaming
- Fundraising activities
- Yes
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $815,602 |
| Fundraising Gross Income | $29,913 |
| Professional Fundraising Fees | $12,375 |
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Event 1 | $1,061,736 | - | $522,907 | - |
| Event 2 | $392,329 | $14,348 | $83,980 | $-69,632 |
| Total Events | $1,581,377 | $29,913 | $815,602 | $-785,689 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- Yes
- Subject to proxy tax
- No
Debt and Bond Financing
Other Reported Liabilities
| Liability | Amount |
|---|---|
| 457b Plan Payable | $140,900 |
| Deferred Rent | $40,451 |
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Annual disclosure for covered persons
- Yes
- Audit committee
- Yes
- Backup withholding compliance
- Yes
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- Yes
- Other officer compensation reviewed
- Yes
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Part VI, Section A, Line 6
“The organization has chapter members who are voting members of the organization. An organization whose mission and purpose is consistent with the mission of nhf may apply to be a chapter member. The ceo is authorized to accept or deny chapter member status.”
Form 990, Part VI, Section A, Line 7A
“Chapter members are entitled to vote for directors for each of the vacancies to be filled during elections.”
Form 990, Part VI, Section B, Line 11
“A copy of form 990 is circulated electronically to the organization's board members. The full board will have the opportunity to have the form 990 presented to them by the auditor by conference call prior to being submitted. The ceo, coo and controller are also present on the call.”
Form 990, Part VI, Section B, Line 12C
“Board members disclose in writing annually and verbally at the beginning of each meeting. Employees disclose at hire and annually. Ceo/coo manage conflicts for employees.”
Form 990, Part VI, Section B, Line 15
“The board of directors sets the compensation of ceo at hire and thereafter uses an independent consultant's analysis of comparable salary surveys(biannually). The ceo sets compensation for key employees within a designated salary range with input from human resources/coo as well as using salary surveys.”
Form 990, Part VI, Section C, Line 19
“The organization makes its governing documents and conflicts of interest available to the public upon request. The organization makes its financial statements available to the public on its website.”
Filing and Contact Details
Filer
- EIN
- 13-5641857
- Phone
- 2123283700
Signing Officer
- Name
- Val Bias
- Title
- Chief Executive Officer
- Phone
- 2123283700
- Signed
- 2014-08-13
- Discuss with paid preparer
- Yes
Organization Details
- Principal Officer
- Val Bias
- Formed
- 1948
- Legal Domicile
- Ny
- Voting Board Members
- 19
- Independent Board Members
- 19
- Employees
- 65
- Volunteers
- 506
Preparer
- Preparer
- Michael Andriola
- Phone
- 7322839300
Supplemental Narrative
Additional Explanations
Form 990, Part X, Line 9 and Line 15
“Certain amounts previously reported have been reclassified to conform to current year presentation per the audited financial statements. The beginning balance for prepaid expenses has been restated to reflect a reclassification of both 457b plan assets of $95,041 and security deposits of $52,638 to "other assets". This results in a decrease in prepaid expenses of $147,679 on line 9 and a corresponding increase to line 15, "other assets".”
Form 990, Part X, Line 25
“Certain amounts previously reported have been reclassified to conform to current year presentation per the audited financial statements. Such changes were limited to reflecting the asset and liability pertaining to 457(b) plan at gross amounts on the statements of financial position. Such reclassification had no impact on the results of operations on either year presented. The beginning balance on line 25, other liabilities, was increased by $95,041 which represeents the 457(b) liability.”
Financial Statement Notes
PART V, LINE 4:
“The foundation temporarily restricted $26,933 in 2013 representing income from the endowment fund to be used for a research grant. The $64,811 under temporarily restricted assets represents income accumulation from inception july 1, 2008 to december 31, 2013.”
PART X, LINE 2:
“The foundation is a nonprofit voluntary health organization exempt from federal income taxes under section 501 (c)(3) of the internal revenue code and has made no provision for federal or state income taxes in the accompanying financial statements. In addition, the foundation has been determined by the internal revenue service (irs) not to be a "private foundation" within the meaning of section 509(a) of the internal revenue code. Other significant tax positions include its determination of whether any amounts are subject to unrelated business income tax (ubit). The foundation has activities subject to ubit in the years ended 2013 and 2012 and has filed form 990t. All significant tax positions have been considered by management and it has been determined that all tax positions would be sustained upon examination by taxing authorities. The foundation is required to file form 990 (return of organization exempt from income tax), which is subject to examination by the irs up to three years from the extended due date of the tax return. The forms 990 for 2010 through 2012 are open to examination by the irs as of december 31, 2013. Unrelated business income tax for the years ended december 31, 2013 and 2012 amounted to $10,365 and $27,244, respectively.”
Raw XML AppendixShowing 400 of 1,303 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 1367682 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 1862773 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | DEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDES AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH. |
| IRS990/AllOtherContributionsAmt | 0 | 11673314 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 18244 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 90337 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 42660 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 151241 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | JORDANA ZEGER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2123283700 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1 | 0 | 116 WEST 32ND STREET 11TH FL |
| IRS990/BooksInCareOfDetail/USAddress/City | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/State | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCode | 0 | 10001 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 6417771 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 8616494 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 6 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 54385 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 147611 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 607210 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 809206 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 66569 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 56737 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 2958647 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 3081953 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 447247 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 422288 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 2 | 222328 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 3 | 217792 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 4 | 185734 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1 | 0 | 18 EAST 50TH STREET 10TH FL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1 | 1 | 1707 L STREET NW 3RD FLOOR |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1 | 2 | 17 WEST PROSPECT STREET |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1 | 3 | 3002 N APOLLO DRIVE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1 | 4 | 600 MARYLAND AVE SW STE 835W |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/City | 0 | NEW YORK |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/City | 1 | WASHINGTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/City | 2 | HONEYWELL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/City | 3 | CHAMPAIGN |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/City | 4 | WASHINGTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/State | 0 | NY |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/State | 1 | DC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/State | 2 | NJ |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/State | 3 | IL |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/State | 4 | DC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCode | 0 | 10022 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCode | 1 | 20036 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCode | 2 | 08525 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCode | 3 | 61822 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCode | 4 | 20024 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1 | 0 | PAM AM EQUITIES INC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1 | 1 | THE MAGAZINE GROUP |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1 | 2 | SCHERER CLINICAL COMMUNICATIONS LLC |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1 | 3 | STRATEGIC MARKETING & MAILING INC |
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| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | RENT OF NYC OFFICE |
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| IRS990/ContractorCompensationGrp/ServicesDesc | 2 | PROFESSIONAL SERVICES: ENDURING SYMPOSIU |
| IRS990/ContractorCompensationGrp/ServicesDesc | 3 | DESIGN, LETTERSHOP AND PRINTING SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 4 | CONSULTANT-STRATEGIC SERVICES AND PUBLIC |
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| IRS990/Desc | 0 | HEALTH EDUCATION AND TRAINING - THROUGH HANDI, NHF'S INFORMATION RESOURCE CENTER, CLOSE TO 3,000 REQUESTS WERE ANSWERED IN 2013. THESE REQUESTS WERE RECEIVED FROM PATIENTS, FAMILIES, HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC ON SUCH TOPICS AS HEMOPHILIA, VON WILLEBRAND DISEASE, HEALTHCARE COVERAGE, HEPATITIS C, HIV, INHIBITOR FORMATION AND SCHOOL ISSUES. IN CONJUNCTION WITH CDC AND MACRO INTERNATIONAL, HANDI CREATED 2 VIDEOS, ONE ON DISCLOSURE AND THE OTHER ON PARTICIPATING IN SPORTS ACTIVITIES. THESE VIDEOS WERE PRESENTED AT THE CDC BLOOD DISORDERS CONFERENCE ON MARCH 13, 2013. NHF ORGANIZED 2 INHIBITOR EDUCATION SUMMITS IN ENGLISH FOR PATIENTS AND FAMILIES EXPERIENCING THE COMPLICATION OF AN INHIBITOR. THE FIRST WAS JULY 11-14, 2013, IN SEATTLE, WA, WITH 100 FAMILIES ATTENDING AND 336 TOTAL PARTICIPANTS. THE SECOND WAS JULY 25-28, 2013, IN NASHVILLE, TN, WITH 102 FAMILIES AND 365 TOTAL PARTICIPANTS. NHF ORGANIZED AN INHIBITOR EDUCATION SUMMIT IN SPANISH FOR PATIENTS AND FAMILIES IN MIAMI, FL, ON MAY 31 - JUNE 2, 2013, WITH 22 FAMILIES AND 106 TOTAL PARTICIPANTS. PHYSICIAN REPRESENTATIVES FROM NHF'S MEDICAL AND SCIENTIFIC ADVISORY COUNCIL (MASAC) AND REPRESENTATIVES FROM NHF'S NURSING, SOCIAL WORK AND PHYSICAL THERAPY WORKING GROUPS DEVELOPED MORE THAN 40 EDUCATIONAL SESSIONS FOR NHF'S 2013 ANNUAL MEETING IN ANAHEIM, CA, WHICH PROVIDED BOTH CME AND CEU ACCREDITATION. THE PRIMARY GOALS OF NHF'S VICTORY FOR WOMEN PROGRAM ARE: 1) TO INCREASE AWARENESS TO FACILITATE EARLY AND ACCURATE DIAGNOSES; AND 2) TO PROVIDE AFFECTED WOMEN WITH EDUCATION AND SUPPORT. 2013 HIGHLIGHTS INCLUDED: PROVIDING FUNDS TO CHAPTERS FOR EDUCATIONAL AND SUPPORT ACTIVITIES FOR GIRLS AND WOMEN WITH BLEEDING DISORDERS; DISSEMINATING A TOOLKIT FOR CHAPTER OUTREACH ACTIVITIES TO SYMPTOMATIC WOMEN AND HEALTHCARE PROVIDERS; EDUCATING COLLEGE HEALTHCARE PROFESSIONALS ON THE SIGNS AND SYMPTOMS OF BLEEDING DISORDERS IN WOMEN TO INCREASE IDENTIFICATION OF WOMEN WHO ARE SYMPTOMATIC; PROVIDED FIVE EDUCATIONAL SESSIONS FOR FEMALE CONSUMERS AT NHF'S 2013 ANNUAL MEETING; AND PROVIDED WORKSHOPS FOR CONSUMERS AT CHAPTER EDUCATION DAYS AND WOMEN'S RETREATS.STEPS FOR LIVING IS A MULTIMEDIA EDUCATIONAL PROGRAM DESIGNED TO INCREASE ACCESS TO AGE AND CULTURALLY APPROPRIATE INFORMATION SO THAT CHILDREN, TEENS, ADULTS AND FAMILIES CAN MANAGE THE DAILY CHALLENGES OF LIVING WITH A BLEEDING DISORDER. THIS ALSO INCLUDES ENSURING SUCCESSFUL LIFE TRANSITIONS AND PREVENTING SECONDARY COMPLICATIONS. THE FOLLOWING WERE ACCOMPLISHED IN 2013 ON THE STEPS FOR LIVING WEBSITE: REDESIGNED WEBSITE TO ENHANCE USABILITY AND FUNCTIONALITY; LAUNCHED A NEW BASICS OF BLEEDING DISORDER SECTION THAT WAS ALSO TRANSLATED INTO SPANISH; PRODUCED 3 NEW VIDEOS, INCLUDING A SPANISH AND ENGLISH VERSION OF MY HTC AND ME AND "GOT QUESTIONS: STEPS FOR LIVING HAS ANSWERS." NHF PROVIDED 3 STEPS FOR LIVING "TRAIN-THE-TRAINER" PROGRAMS FOR STAFF AND HEALTHCARE PROVIDERS FROM 24 CHAPTERS ACROSS THE COUNTRY. NHF CONTINUED TO PRINT AND DISTRIBUTE MORE THAN 1,000 EDUCATIONAL PRINT MATERIALS, INCLUDING GUIDELINES FOR GROWING BROCHURE SERIES, A WELCOME KIT FOR NEWLY DIAGNOSED FAMILIES AND THE COLORING BOOK "MY HTC AND ME" IN SPANISH AND ENGLISH.THE NATIONAL HEMOPHILIA FOUNDATION HAS DESIGNED THE NATIONAL YOUTH LEADERSHIP INSTITUTE (NYLI) TO ASSIST YOUNG PEOPLE FROM THE BLEEDING DISORDERS COMMUNITY TO BECOME WELL-TRAINED, RECOGNIZED LEADERS. NHF ACHIEVES THESE OUTCOMES BY PROVIDING YOUNG ADULTS WITH TRAINING, SUPPORT AND OPPORTUNITIES TO PROVIDE EDUCATION TO THE BLEEDING DISORDERS COMMUNITY. IN 2013 NHF PROVIDED TWO TRAININGS TO THE 25 MEMBERS OF NYLI ON TOPICS INCLUDING PEER COACHING, PUBLIC SPEAKING, SOCIAL MEDIA AND CULTURAL COMPETENCE. NYLI MEMBERS WERE PROVIDED OPPORTUNITIES TO SERVE ON A VARIETY OF NHF ADVISORY GROUPS AND ONE MEMBER SERVED AS A NONVOTING MEMBER ON NHF'S BOARD OF DIRECTORS. NYLI MEMBERS PROVIDED 7 EDUCATIONAL SESSIONS, ADVOCATED ON BEHALF OF THEIR STATES IN WASHINGTON, DC, AT NHF'S WASHINGTON DAYS ADV |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JORDAN BLACK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MARK BORRELIZ |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | BARBARA GORDON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JAMES F HAMMEL MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | KRISTIE KAY OSTASH MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JAMES A HEER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | MATT RHODES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | DUTTA SATADIP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | GILBERT C WHITE II MD |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | KENNETH MOORE |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | DIRECTOR OF CHAPTER SERVICE |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/Form990TFiledInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1948 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1551464 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 815602 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 29913 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 76187 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 19 |
| IRS990/GovernmentGrantsAmt | 0 | 863450 |
| IRS990/GrantAmt | 0 | 88100 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 59144 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 59144 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 942136 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 942136 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 1384973 |
| IRS990/GrossReceiptsAmt | 0 | 17413718 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 19 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 10 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 100 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 35201 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 35301 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 157447 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 157447 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 5191616 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 7951982 |
| IRS990/IRPDocumentCnt | 0 | 103 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 1352611 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 24596 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 26429 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 1379040 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 1308786 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 1 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE NATIONAL HEMOPHILIA FOUNDATION IS DEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDERS AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 9500371 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 11266561 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 76187 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 76187 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -785689 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -785689 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 39297 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 355147 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 20959 |
Document Assets
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Filings
Displayed year
2013 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $19,463,103
- Liabilities
- $8,196,542
- Net assets
- $11,266,561
- Revenue
- $15,289,330
- Expenses
- $13,878,812
- Net income
- $1,410,518