United Spinal Association Inc

“All officers and directors are sent a draft copy of form 990. Comments are sent to the ceo. Replies are sent to the respective officer or director and the form 990 is changed as necessary.”

“Annual questionaire is required from all officers and directors”

“Compensation for the ceo is reviewed by a four board member commitee, which utilized nonprofit compensation surveys. Contemporraneous substantiation of the deliberations and decisions are maintained.”

“Compensation is reviewed by a four board member commitee, which utilizes nonprofit compensation surveys. Contemporaneous substantiation of the deliberations and decisions are maintained.”

“Kentucky, maine, maryland, massachusetts, michigan, minnesota, mississippi, missouri, new hampshire, new jersey, new mexico, new york, north carolina, north dakota, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, utah, virginia, washington, west virginia, wisconsin”

“Copies of policies are sent upon request at no charge. Audited financial statements are available on the organization's website- www.unitedspinal.org.”

“The salaries listed for the five highest indivduals and the one board member that is listed received compensation was not included in the original return.”

“The organization's mission or most significant activities. United spinal's mission is to enhance the quality of the lives of people living with spinal cord injury or disease, as well as disabled veterans, through the provision of resources, inormation and representation. In jamuary, united spinal association received a 500,000 grant to support weather related relief efforts for the spinal cord injury and disease (sci/d) community. Wheelchair users and other people with disabilities are among the most vulnerable from severe weather and natural disaster events such as the recent hurricanes and flods in puerto rico , florida and houston. Funds from the grant were utilized for united spinal's resource center to add dedicated disaster relief staff,a call-in-number, online portal, and specific sci/d case management services. This grant allowed increased and targeted outreach to the sci/d community in affected areas and increase participation in, and coordination between, regional relief efforts. United spinal's chapters impacted by the recent hurricanes and floods also received funds t0 provide local hands-on assistance and resources and services toward rebuilding efforts. Thousand-dollar micro-grants were made avilable to over 300 individuals (both united spinal members and sci/d community members at large) to replace ruined mobility and medical equipment and buy necessities. Vetsfirst this past year united spinal's vetsfirst program and its free online resource hub and call center provided guidance and support to all veterans, regardless of disablity. The online vetsfirst program provided direct assistance and were able to close the cases of approximately 1,300 veterans. Additionally, veterans service officers did outreach to va hospitals, and together with united spinal staff, provided patient education at va hospitals regarding rights and benefits and educated congress and the va regarding disabled veteran policy issues. Acs united spinal's accessibilty consulting services program ensures that the built enviroment is accessible to all people with disabilities. A team of certified accessibility specialists provides, builders and architects to ensure access for those with mobility impairments. Resource center united spinal's spinal cord resource center information specialists provide persoanal guidance and connect sci/d individuals with federal,state and local resources. Direct advice is given by healthcare mobility and disability rights professional via emails and telephone. Moreover, thousands of sci/d individuals used the resource center's online information. New mobility new mobility is united spinal's monthly magazine which goes to every member (53,000) and approximately 40,000 others. Members receive the magazine free, either online or in print. Subttitled "life beyond wheels", the magazine provides timely information on products, servies, travel and other lifestyle issues for wheelchair users. Extending outreach with podcast series united spinal launched a new wheelchair lifestyle podcast series united on wheels' that covers a wide range of contemorary disability-related topics from dating, employment, and advocacy to accessible travel and misconceptions about living with spinal cord injury. The series includes roundtable discussions between wheelchair users and staff members. Advocacy and policy network united spinal is actively engaged in advocating for policies that benefit paralyzed americas and all people with disabilities. Our priorities are focused on advancing access to quality affordable healthcare, community integration, employment opportunities, disabilty benefits and disability rights for all people living with sci/d. United spinal's annual roll on capital hill legislative event brought wheelchair users to washington dc from accoss the country, included of people with disabilities in the policy debate and addressed legislative and regulatory issues that impact individuals living with sci/d.”

“Volunteer assistance with navigating attendees on capital hill and various other jobs.”

“Hundreds of new claims and recovering va benefits on their behalf. The association has several websites full of information and resources for individuals with spinal cord injury/disease. There are also over 20 publications available for download free of charge on unitedspinal.org. The usa tech guide website, operated by the association, provides information and consumer reviews on assistive technology devices. A staff member of united spinal's public policy program service on the bod of the consortium of citizens with disabilities (ccd), an organization of groups representing people with disabilities seeking to influence federal policy makers, i.e., congress and executive agencies. We also are on the bod of the american association of people with disabilities (aapd) and chair its finance committee, and are steering committee members of the national disability leadership alliance. All of this involvement ensures cross disability support for our advocacy efforts for those with sci and other mobility impairments. Advocacy efforts on polling place access, taxis service, subway access resulted in litigation which is ongoing. Moreover, the center for medicare/medicaid services (cms) of hhs has used our policy staff to bridge the gap between consumers using durable medical equipment (dme) and the federal government, explaining federal policy to people with disabilities and the needs of consumers to the federal government, while maintaining close relationships with the manufacturers and vendors of dme. Public policy brought approximately 100 wheelchair users to washington dc for a day of training followed by a day of visiting elected officials followed by a congressional reception.”

“Consulting 163,855 31,359 784 other 122,972 23,536 588 public relations & media cost 1,058,779 0 0 total 1,345,606 54,895 1,372”

“Book / tax depreciation difference 2,667”