Civic Intelligence

Hereditary Neuropathy Foundation Inc

EIN 13-4137654 • 501(c)3 • New York City, NY

Profile

HNF, Inc., a non-profit dedicated to supporting projects through the Therapeutic Research in Accelerated Discovery (TRIAD) Program, a collaborative effort with academia, government and industry, to develop treatments for CMT. Currently TRIAD involves many groups that span the drug discovery, drug development, and diagnostics continuum. Education and support of the CMT community to improve quality of life is also a key component of HNF's mission.

401 Park Avenue South 10th FloorNew York City, NY 10016

www.hnf-cure.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

45th percentile

0.04x

Higher debt load relative to assets than 45% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

54th percentile

0.10x

Higher debt load relative to revenue than 54% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

21st percentile

-11%

Higher net margin than 21% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

56th percentile

$73,846

Higher top officer pay than 56% of similar nonprofits.

Top officer pay equals 11.3% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

36th percentile

-0.8%

Faster asset growth than 36% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

68th percentile

21%

Faster revenue growth than 68% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets45th percentile

Assets

Down

$1,503,541

Down $11,907 (-0.8%) from 2023

Liabilities

Up

$62,343

Up $50,061 (+408%) from 2023

Net Assets

Down

$1,441,198

Down $61,968 (-4.1%) from 2023

Operations
Liabilities / Revenue54th percentileNet Margin21st percentile

Revenue

Up

$655,296

Up $111,671 (+21%) from 2023

Expenses

Up

$730,003

Up $58,512 (+8.7%) from 2023

Net Income

Up

-$74,707

Up $53,159 (+42%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth36th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2010: $192,558Liabilities 2010: $136,800Net Assets 2010: $55,7582010Assets 2011: $345,562Liabilities 2011: $181,274Net Assets 2011: $164,2882011Assets 2012: $268,727Liabilities 2012: $64,213Net Assets 2012: $204,5142012Assets 2013: $347,542Liabilities 2013: $64,321Net Assets 2013: $283,2212013Assets 2014: $300,162Liabilities 2014: $40,198Net Assets 2014: $259,9642014Assets 2015: $672,703Liabilities 2015: $19,979Net Assets 2015: $652,7242015Assets 2016: $978,369Liabilities 2016: $15,158Net Assets 2016: $963,2112016Assets 2017: $876,381Liabilities 2017: $9,439Net Assets 2017: $866,9422017Assets 2018: $909,104Liabilities 2018: $71,870Net Assets 2018: $837,2342018Assets 2019: $969,441Liabilities 2019: $34,078Net Assets 2019: $935,3632019Assets 2020: $1,301,620Liabilities 2020: $44,414Net Assets 2020: $1,257,2062020Assets 2021: $1,295,654Liabilities 2021: $27,854Net Assets 2021: $1,267,8002021Assets 2022: $1,627,053Liabilities 2022: $5,589Net Assets 2022: $1,621,4642022Assets 2023: $1,515,448Liabilities 2023: $12,282Net Assets 2023: $1,503,1662023Assets 2024: $1,503,541Liabilities 2024: $62,343Net Assets 2024: $1,441,1982024

Highlighted filing

2024

Assets$1,503,541
Liabilities$62,343
Net Assets$1,441,198
Open 2024 Filing

Operations Trend

Revenue Growth68th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2010: $294,070Expenses 2010: $405,419Net Income 2010: -$111,3492010Expenses 2011: $514,6672011Expenses 2012: $588,6302012Expenses 2013: $316,8092013Revenue 2014: $428,244Expenses 2014: $451,503Net Income 2014: -$23,2592014Revenue 2015: $910,772Expenses 2015: $534,854Net Income 2015: $375,9182015Revenue 2016: $741,500Expenses 2016: $430,964Net Income 2016: $310,5362016Revenue 2017: $462,981Expenses 2017: $572,706Net Income 2017: -$109,7252017Revenue 2018: $483,801Expenses 2018: $518,886Net Income 2018: -$35,0852018Revenue 2019: $753,319Expenses 2019: $665,477Net Income 2019: $87,8422019Revenue 2020: $912,443Expenses 2020: $623,754Net Income 2020: $288,6892020Revenue 2021: $637,088Expenses 2021: $679,388Net Income 2021: -$42,3002021Revenue 2022: $1,259,879Expenses 2022: $759,374Net Income 2022: $500,5052022Revenue 2023: $543,625Expenses 2023: $671,491Net Income 2023: -$127,8662023Revenue 2024: $655,296Expenses 2024: $730,003Net Income 2024: -$74,7072024

Highlighted filing

2024

Revenue$655,296
Expenses$730,003
Net Income-$74,707
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$1,503,541
Liabilities
$62,343
Net assets
$1,441,198
Revenue
$655,296
Expenses
$730,003
Net income
-$74,707
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.50$0.06$1.44$0.66$0.73$0.07
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.52$0.01$1.50$0.54$0.67$0.13
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.63$0.01$1.62$1.26$0.76$0.50
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.30$0.03$1.27$0.64$0.68$0.04
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.30$0.04$1.26$0.91$0.62$0.29
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.97$0.03$0.94$0.75$0.67$0.09
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.91$0.07$0.84$0.48$0.52$0.04
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.88$0.01$0.87$0.46$0.57$0.11
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.02$0.96$0.74$0.43$0.31
2015Detailed filing. Detailed filing data is available for this year.$0.67$0.02$0.65$0.91$0.53$0.38
2014Detailed filing. Detailed filing data is available for this year.$0.30$0.04$0.26$0.43$0.45$0.02
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.06$0.28$0.32
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.27$0.06$0.20$0.59
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.18$0.16$0.51
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.19$0.14$0.06$0.29$0.41$0.11
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2020 below.

Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
May 12, 2021
Return Version
2019v5.2
Gross Receipts
$944,576
Mission and Program Overview

Mission

HNF, Inc., a non-profit dedicated to supporting projects through the Therapeutic Research in Accelerated Discovery (TRIAD) Program, a collaborative effort with academia, government and industry, to develop treatments for CMT. Currently TRIAD involves many groups that span the drug discovery, drug development, and diagnostics continuum. Education and support of the CMT community to improve quality of life is also a key component of HNF's mission.

Hnf, inc., a non-profit dedicated to supporting projects through the therapeutic research in accelerated discovery (triad) program, a collaborative effort with academia, government and industry, to develop treatments for cmt.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$863,178$1,183,662▲ $320,484
Investments in Publicly Traded Securities$70,559$103,713▲ $33,154
Savings and Temporary Cash Investments$32,220$10,761▼ $21,459
Prepaid Expenses and Deferred Charges$434$434→ $0
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$969,441$1,301,620▲ $332,179
Other Assets Total$3,050$3,050→ $0
Liabilities
Accounts Payable and Accrued Expenses$34,078$37,004▲ $2,926
Deferred Revenue$0$7,410▲ $7,410
Grants Payable$0$0→ $0
Total Liabilities$34,078$44,414▲ $10,336
Net Assets / Fund Balance
Net Assets With Donor Restrictions$896,295$1,218,766▲ $322,471
Net Assets Without Donor Restrictions$39,068$38,440▼ $628
Total Net Assets Fund Balance$935,363$1,257,206▲ $321,843
Total Liabilities and Net Assets / Fund Balance$969,441$1,301,620▲ $332,179

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$25,686-
Compensation and Service Providers
Top Officer Pay56th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Courtney HollettExecutive DirectorFT$60,000-$60,000
Allison MooreFounder and Chief ExecutivFT-$38,608$38,608

Board Members and Trustees

NameTitle
Matthew DowningChairman
Debi HouilaresBoard Member
Deborah NewcombBoard Member
Gretchen CappielloBoard Member
Joy Andal KayeBoard Member
Kerin ReillyBoard Member
Lisa MccarthyBoard Member
Robert KauffmanBoard Member
Brooke WarrenSecretary
Kara SpragueTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$928,331
Program Service Revenue
$0
Investment Income
$566
Other Revenue
$-16,454
All Other Contributions
$457,853
Change in Net Assets
$288,689

Audited Revenue Reconciliation

Revenue per Audited Statements
$944,576
Revenue Not Reported on Financial Statements
$-32,133
Revenue Not Reported on Form 990
$103,333
Other Revenue Adjustments
$-32,133
Total Revenue per Audited Statements
$1,047,909
Total Revenue per Form 990
$912,443
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$334,980
Grants and Similar Amounts Paid$185,173
Salaries, Compensation, and Employee Benefits$103,601
Total Fundraising Expense$34,584
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$185,173--$185,173
Fees for Services Other$150,445$8,331$19,196$177,972
Current Officers, Directors, Trustees, and Key Employees$86,608$6,000$6,000$98,608
Conferences and Meetings$70,272$2,349$2,429$75,050
Advertising$22,354--$22,354
Occupancy$521$15,275$24$15,820
Office Expenses$7,643$1,479$6,515$15,637
Fees for Services Accounting$3,480$11,698-$15,178
Information Technology$4,410$1,022$420$5,852
Payroll Taxes-$4,993-$4,993
Other Expenses$775$185-$960
All Other Expenses$364$363-$727
Insurance$292--$292
Total Functional Expenses$533,687$55,483$34,584$623,754

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$726,066
Expenses per Audited Statements$623,754
Total Expenses per Form 990$623,754
Expenses Not Reported on Form 990$102,312
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Sage LabsSaint Louis, MO-Research$27,390
The University of Texas Health Science Center at San AntonioSan Antonio, TX-Research$25,001
The Genesis ProjectMiami, FL-Research$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$32,133
Fundraising Gross Income$14,285
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
JACKSON'S CURE$177,077-$11,012-
Cntnap1$99,968---
Total Events$448,718$14,285$28,883$-14,598
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Allison moore ceo and founder is sister to courtney hollett executive director.”

Form 990, Part VI, Section B, Line 11B

“The organization distributes to board members electronically prior to filing form 990.”

Form 990, Part VI, Section B, Line 12C

“The organization distributes conflict of interest policies at its annual meeting and if matters give rise to a conflict of interest the board of directors eliminates the conflict upon discovery.”

Form 990, Part VI, Section B, Line 15A

“The compensation review was undertaken for the newly established executive director's position of which the board of directors determined the compensation based upon the market and size of the organization.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing and other financial documents available upon request.”

Filing and Contact Details

Filer

Filer Name
Hereditary Neuropathy Foundation Inc
EIN
13-4137654
Phone
2127228396
Address
401 PARK AVENUE SOUTH 10TH FLOOR, NEW YORK CITY, NY 10016

Signing Officer

Name
Allison Moore
Title
CEO/founder
Phone
2127228396
Signed
2021-05-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Allison Moore
Formed
2001
Legal Domicile
Ny
Voting Board Members
11
Independent Board Members
11
Employees
1
Volunteers
25

Preparer

Firm
Teal Becker & Chiaramonte Cpas Pc
Address
7 WASHINGTON SQUARE, ALBANY, NY 12205
Preparer
Pasquale M Scisci CPA
Phone
5184566663
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Design and program consulting: program service expenses 4,240. Management and general expenses 0. Fundraising expenses 18,785. Total expenses 23,025. Payroll service fees: program service expenses 0. Management and general expenses 2,003. Fundraising expenses 0. Total expenses 2,003. Educators: program service expenses 4,150. Management and general expenses 0. Fundraising expenses 0. Total expenses 4,150. Communications: program service expenses 15,500. Management and general expenses 0. Fundraising expenses 0. Total expenses 15,500. Web/technology/design/maintenance: program service expenses 126,555. Management and general expenses 6,328. Fundraising expenses 411. Total expenses 133,294.”

Part XII, Line 2C

“There were no changes in the oversight of the audit from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The organization follows the guidance for uncertainty in income taxes. As of june 30, 2020, the organization believes that it has appropriate support for the income tax positions taken and to be taken on its returns based on an assessment of many factors including experience and interpretations of tax laws applied to the facts of each matter. The organization has concluded that there are no significant uncertain tax positions requiring disclosure, and there are no material amounts of unrecognized tax benefits.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Direct fundraising expenses -32,133.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 32,133.”

Raw XML AppendixShowing 400 of 527 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
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IRS990/ActivityOrMissionDesc0HNF, INC., A NON-PROFIT DEDICATED TO SUPPORTING PROJECTS THROUGH THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) PROGRAM, A COLLABORATIVE EFFORT WITH ACADEMIA, GOVERNMENT AND INDUSTRY, TO DEVELOP TREATMENTS FOR CMT.
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IRS990/Desc0THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) - HNF HAS BEEN A LEADER IN COLLABORATING WITH INDUSTRY ON CLINICAL TRIAL DEVELOPMENT. THE REPORTED RESULTS OF THE DRUG PXT3003, THE FIRST PIVOTAL PHASE III CLINICAL TRIAL TO TREAT CMT1A SHOWS PROMISE. OTHER INDUSTRY STAKEHOLDERS PARTNER WITH HNF IN HELPING TO DEVELOP CLINICAL TRIAL PROTOCOLS, REGULATORY INVOLVEMENT, IMPROVED CLINICAL AND PATIENT REPORTED OUTCOME MEASURES AND ENDPOINTS FOR CLINICAL TRIALS AND FOR THE RECRUITMENT OF PATIENTS THROUGH HNF'S PATIENT REGISTRY, GLOBAL REGISTRY FOR INHERITED NEUROPATHIES (GRIN). HNF'S GRIN PROPRIETARY PLATFORM COLLECTS NATURAL HISTORY AND LONGITUDINAL STUDIES FOR CHARCOT-MARIE-TOOTH (CMT) AND OTHER INHERITED NEUROPATHIES (IN). AS PART OF THE TRIAD PROGRAM, HNF CONTINUES TO COLLABORATE ON PRECLINICAL STUDIES (BOTH NOVEL DRUG COMPOUNDS AND GENE THERAPY APPROACHES) WITH RESEARCHERS AND INDUSTRY TO TRANSLATE POTENTIAL THERAPIES FOR CMT.
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IRS990/Form990PartVIISectionAGrp/PersonNm9BROOKE WARREN
IRS990/Form990PartVIISectionAGrp/PersonNm10ROBERT KAUFFMAN
IRS990/Form990PartVIISectionAGrp/PersonNm11COURTNEY HOLLETT
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IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11EXECUTIVE DIRECTOR
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IRS990/FormationYr02001
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IRS990/FSAuditedInd01
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IRS990/FundraisingDirectExpensesAmt032133
IRS990/FundraisingGrossIncomeAmt014285
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
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IRS990/GrantsPayableGrp/BOYAmt00
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IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
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IRS990/InformationTechnologyGrp/FundraisingAmt0420
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01022
IRS990/InformationTechnologyGrp/ProgramServicesAmt04410
IRS990/InformationTechnologyGrp/TotalAmt05852
IRS990/InsuranceGrp/ProgramServicesAmt0292
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IRS990/InvestmentsPubTradedSecGrp/BOYAmt070559
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0103713
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IRS990/LandBldgEquipAccumDeprecAmt025686
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IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0HNF, INC., A NON-PROFIT DEDICATED TO SUPPORTING PROJECTS THROUGH THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD)PROGRAM, A COLLABORATIVE EFFORT WITH ACADEMIA, GOVERNMENT AND INDUSTRY, TO DEVELOP TREATMENTS FOR CMT. CURRENTLY TRIAD INVOLVES MANY GROUPS THAT SPAN THE DRUG DISCOVERY, DRUG DEVELOPMENT, AND DIAGNOSTICS CONTINUUM. EDUCATION AND SUPPORT OF THE CMT COMMUNITY TO IMPROVE QUALITY OF LIFE IS ALSO A KEY COMPONENT OF HNF'S MISSION.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/NetAssetsOrFundBalancesEOYAmt01257206
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-17848
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-17848
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt033154
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt039068
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt038440
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt024
IRS990/OccupancyGrp/ManagementAndGeneralAmt015275
IRS990/OccupancyGrp/ProgramServicesAmt0521
IRS990/OccupancyGrp/TotalAmt015820
IRS990/OfficeExpensesGrp/FundraisingAmt06515
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01479
IRS990/OfficeExpensesGrp/ProgramServicesAmt07643
IRS990/OfficeExpensesGrp/TotalAmt015637
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt03050
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0BANK FEES
IRS990/OtherExpensesGrp/Desc1MEMBERSHIP DUES
IRS990/OtherExpensesGrp/Desc2FACILITY AND EQUIPMENT
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03408
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1380
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2185
IRS990/OtherExpensesGrp/ProgramServicesAmt01350
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IRS990/OtherExpensesGrp/TotalAmt03408
IRS990/OtherExpensesGrp/TotalAmt11730
IRS990/OtherExpensesGrp/TotalAmt2960
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt01394
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IRS990/OtherRevenueTotalAmt01394
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04993
IRS990/PayrollTaxesGrp/TotalAmt04993
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0434
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0434
IRS990/PrincipalOfficerNm0ALLISON MOORE
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0MOVEMENT IS MEDICINE - HNF BELIEVES THAT PHYSICAL ACTIVITY PLAYS AN ESSENTIAL ROLE IN PHYSICAL AND MENTAL WELL BEING, ESPECIALLY FOR PEOPLE AFFECTED BY DEBILITATING DISEASES LIKE CMT. THE MOVEMENT IS MEDICINE MISSION IS TO PROMOTE THE SAFE ADOPTION OF A MORE ACTIVE LIFESTYLE THROUGH EXERCISE AND NUTRITION PROGRAMS SPECIFICALLY CREATED FOR THOSE WITH DISABILITIES. HNF COLLABORATES WITH ONLY THE TOP LEADING EXPERTS TO CONDUCT EDUCATIONAL CLASSES, ENGAGING WORKSHOPS AND TRANSLATIONAL RESERACH STUDIES AT OUR ANNUAL MOVEMENT IS MEDICINE SUMMIT WHICH WAS HELD IN PHOENIX AT ABILITY360. THE SUMMIT WAS AN INTERACTIVE TWO-DAY EVENT WITH INSPIRATIONAL SPEAKERS, AWESOME INSTRUCTORS, ONE ON ONE EXERCISE SESSIONS, SURGICAL AND BRACING EVALUATIONS, AND INFORMATIONAL WORKSHOPS SPECIFICALLY CURATED BY AND FOR CMT PATIENTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt023962
IRS990/ProgSrvcAccomActy2Grp/GrantAmt03000
IRS990/ProgSrvcAccomActy3Grp/Desc0MEDICAL OUTREACH AND EDUCATION - HNF CONTINUES TO EDUCATE HEALTH CARE PROVIDERS ON CMT AND RELATED IN AS WELL AS TO INFORM ON THE PIPELINE OF TREATMENTS FOR THEIR PATIENTS TO CONSIDER TO PARTICIPATE IN NATURAL HISTORY, LONGITUDINAL AND CLINICAL STUDIES AND TRIALS. HNF LONG-TERM PARTNERSHIPS WITH NEUROLOGY REVIEWS (NR) AND THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM) HAVE BEEN INSTRUMENTAL IN EDUCATING NEUROLOGISTS AND OTHERS. HNF PUBLISHED MATERIALS IN THE PRESTIGIOUS NR ANNUAL RARE NEUROLOGICAL DISEASE SPECIAL REPORT AND SUPPORTED THE AANEM IN THE DEVELOPMENT OF A CONTINUING MEDICAL EDUCATION COURSE THROUGH THEIR ON-LINE TESTING PLATFORM. HNF HOSTED A CMT SYMPOSIUM AT THEIR ANNUAL MEETING. HNF CONTINUES TO BE A LEADER IN EDUCATING THE MEDICAL COMMUNITY ON THE IMPORTANCE OF RECOGNIZING, DIAGNOSING AND TREATING CMT.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0264917
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt016461
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0691630
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IRS990/PYGrantsAndSimilarPaidAmt0100291
IRS990/PYInvestmentIncomeAmt0257
IRS990/PYOtherExpensesAmt0463897
IRS990/PYOtherRevenueAmt061432
IRS990/PYProgramServiceRevenueAmt00
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IRS990/PYSalariesCompEmpBnftPaidAmt0101289
IRS990/PYTotalExpensesAmt0665477
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0753319
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
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IRS990/RegularMonitoringEnfrcInd01
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IRS990/RelatedOrganizationCtrlEntInd00
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IRS990/ReportOtherLiabilitiesInd00
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0441605
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0508035
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0546659
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IRS990ScheduleD/FootnoteTextInd0X
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IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-32133
IRS990ScheduleD/RevenueSubtotalAmt0944576
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION FOLLOWS THE GUIDANCE FOR UNCERTAINTY IN INCOME TAXES. AS OF JUNE 30, 2020, THE ORGANIZATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR THE INCOME TAX POSITIONS TAKEN AND TO BE TAKEN ON ITS RETURNS BASED ON AN ASSESSMENT OF MANY FACTORS INCLUDING EXPERIENCE AND INTERPRETATIONS OF TAX LAWS APPLIED TO THE FACTS OF EACH MATTER. THE ORGANIZATION HAS CONCLUDED THAT THERE ARE NO SIGNIFICANT UNCERTAIN TAX POSITIONS REQUIRING DISCLOSURE, AND THERE ARE NO MATERIAL AMOUNTS OF UNRECOGNIZED TAX BENEFITS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1DIRECT FUNDRAISING EXPENSES -32,133.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2DIRECT FUNDRAISING EXPENSES 32,133.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
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IRS990ScheduleD/TotalRevenuePerForm990Amt0912443
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01047909
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IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0434433
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0177077
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt099968
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IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt028883
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0JACKSON'S CURE
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0CNTNAP1
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt099968
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt0171673
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0448718

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