Civic Intelligence

Galactosemia Foundation

990 • Fiscal year 2016 • EIN 13-3349708

Jan 01, 2016 to Dec 31, 2016 • Filed on Jul 07, 2017

PO Box 1512Deerfield Beach, FL 33443

(985) 875-3136

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

44th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • NTEE F • <$500k nonprofits • Source year 2016

Liabilities / Revenue

43rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • NTEE F • <$500k nonprofits • Source year 2016

Net Margin

93rd percentile

48%

Higher net margin than 93% of similar nonprofits.

2016 filings • NTEE F • <$500k nonprofits • Source year 2016

Top Officer Pay

67th percentile

$0

Higher top officer pay than 67% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • NTEE F • <$500k nonprofits • Source year 2016

Asset Growth

82nd percentile

60%

Faster asset growth than 82% of similar nonprofits.

2016 filings • NTEE F • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

78th percentile

34%

Faster revenue growth than 78% of similar nonprofits.

2016 filings • NTEE F • <$500k nonprofits • Annualized from 2015 to 2016

Assets

Up

$302,878

Up $112,992 (+60%) from 2015

Net Assets

Up

$302,878

Up $112,992 (+60%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue

Up

$234,419

Up $59,394 (+34%) from 2015

Expenses

Up

$121,030

Up $14,985 (+14%) from 2015

Net Income

Up

$113,389

Up $44,409 (+64%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $163,347Liabilities 2011: $0Net Assets 2011: $163,3472011Assets 2012: $159,326Liabilities 2012: $0Net Assets 2012: $159,3262012Assets 2013: $196,958Liabilities 2013: $0Net Assets 2013: $196,9582013Assets 2014: $120,906Liabilities 2014: $0Net Assets 2014: $120,9062014Assets 2015: $189,886Liabilities 2015: $0Net Assets 2015: $189,8862015Assets 2016: $302,878Liabilities 2016: $0Net Assets 2016: $302,8782016Assets 2017: $321,184Liabilities 2017: $78,438Net Assets 2017: $242,7462017Assets 2018: $306,309Liabilities 2018: $0Net Assets 2018: $306,3092018Assets 2019: $299,650Liabilities 2019: $0Net Assets 2019: $299,6502019Assets 2020: $440,835Liabilities 2020: $0Net Assets 2020: $440,8352020Assets 2021: $489,043Liabilities 2021: $0Net Assets 2021: $489,0432021Assets 2022: $564,223Liabilities 2022: $0Net Assets 2022: $564,2232022Assets 2023: $781,746Liabilities 2023: $0Net Assets 2023: $781,7462023Assets 2024: $818,648Liabilities 2024: $0Net Assets 2024: $818,6482024

Highlighted filing

2016

Assets$302,878
Liabilities$0
Net Assets$302,878

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KExpenses 2011: $112,3712011Expenses 2012: $179,7402012Revenue 2013: $153,367Expenses 2013: $115,735Net Income 2013: $37,6322013Revenue 2014: $215,146Expenses 2014: $291,198Net Income 2014: -$76,0522014Revenue 2015: $175,025Expenses 2015: $106,045Net Income 2015: $68,9802015Revenue 2016: $234,419Expenses 2016: $121,030Net Income 2016: $113,3892016Revenue 2017: $124,727Expenses 2017: $184,659Net Income 2017: -$59,9322017Revenue 2018: $207,101Expenses 2018: $143,788Net Income 2018: $63,3132018Revenue 2019: $116,235Expenses 2019: $123,371Net Income 2019: -$7,1362019Revenue 2020: $229,496Expenses 2020: $88,338Net Income 2020: $141,1582020Revenue 2021: $229,742Expenses 2021: $181,534Net Income 2021: $48,2082021Revenue 2022: $376,578Expenses 2022: $301,012Net Income 2022: $75,5662022Revenue 2023: $477,376Expenses 2023: $258,143Net Income 2023: $219,2332023Revenue 2024: $385,642Expenses 2024: $350,856Net Income 2024: $34,7862024

Highlighted filing

2016

Revenue$234,419
Expenses$121,030
Net Income$113,389
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jul 7, 2017
Return Version
2016v3.1
Gross Receipts
$234,419
Mission and Program Overview

Mission

To educate, support and provide advocacy for those affected by galactosemia.

To spread awareness of galactosemia; to provide support for parents of children with galactosemia through education and funding research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$189,886$302,878▲ $112,992
Savings and Temporary Cash Investments$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Land, Buildings, and Equipment, Net$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$189,886$302,878▲ $112,992
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$125,581$202,062▲ $76,481
Temporarily Rstr Net Assets$64,305$100,816▲ $36,511
Permanently Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$189,886$302,878▲ $112,992
Total Liabilities and Net Assets / Fund Balance$189,886$302,878▲ $112,992
Compensation and Service Providers

Board Members and Trustees

NameTitle
Bradley S ShepardPresident
Layne LongBoard Member -starting 9/2016
Melisa BaileyBoard Member -starting 9/2016
Seth SchwartzCommunications Lead
Nicole CasaleOutreach Lead
Kellie WilcoxSecretary
Andrea Toppersecretary -THRU 8/2016
Lisa SpiroTreasurer
Scott SaylorVP
Revenue and Support

Revenue Composition

Contributions and Grants
$179,320
Program Service Revenue
$55,075
Investment Income
$24
Other Revenue
$0
All Other Contributions
$179,320
Change in Net Assets
$113,389
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$121,030
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$114,313--$114,313
Office Expenses$3,580--$3,580
Fees for Services Other-$1,700-$1,700
Other Expenses-$733-$733
Travel$704--$704
Total Functional Expenses$118,597$2,433$0$121,030
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Galactosemia Foundation
EIN
13-3349708
In Care Of
% LISA SPIRO
Phone
9858753136
Address
PO Box 1512, Deerfield Beach, FL 33443

Signing Officer

Name
Lisa Spiro
Title
Treasurer
Phone
9858753136
Signed
2017-07-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Lisa Spiro
Formed
1985
Legal Domicile
De
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
40

Preparer

Firm
Hw&co
Address
23240 Chagrin Blvd Suite 700, Cleveland, OH 44122-5450
Preparer
Jordan L Keller CPA
Phone
2168311200
Supplemental Narrative

Additional Explanations

Form 990, Part V, Line 8B

Committees do not have authority to act on behalf of governing body

Form 990, Part V, Line 11B

Treasurer will email copy to governing body and wait for acceptance by all before filing

Form 990, Part V, Line 12C

Personal knowledge of board members is sufficient to comply with conflict of interest policy

Form 990, Part V, Line 19

Yes, the organization makes its governing documents and conflict of interest policy available upon request. The financial statements are included twice a year in the organization's newsletter and also available upon request

Form 990, Part XI, Line 8

Prior period adjustment to net assets......$397

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IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0Lisa Spiro
IRS990/PriorPeriodAdjustmentsAmt0-397
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE REGISTRATIONS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt055075
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt055075
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0175001
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt090623
IRS990/PYInvestmentIncomeAmt024
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt015422
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt068980
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0106045
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0175025
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt00
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0113389
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt055075
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0179320
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0175001
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0136963
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt090408
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0130029
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0711721
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt024
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt024
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt075
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0110
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt0137
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0370
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt055075
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt066674
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0244
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt037909
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0159902
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt024
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt024
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt075
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0110
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt0137
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0370
IRS990ScheduleA/InvestmentIncomeCYPct00.00042
IRS990ScheduleA/InvestmentIncomePYPct00.00111
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt09489
IRS990ScheduleA/OtherIncome509Grp/TotalAmt09489
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.98882
IRS990ScheduleA/PublicSupportPY509Pct00.94839
IRS990ScheduleA/PublicSupportTotal509Amt0871623
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0234395
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0175001
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0203637
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt090652
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0167938
IRS990ScheduleA/Total509Grp/TotalAmt0871623
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0234419
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0175025
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0213201
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt090762
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0168075
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0881482
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0COMMITTEES DO NOT HAVE AUTHORITY TO ACT ON BEHALF OF GOVERNING BODY
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1TREASURER WILL EMAIL COPY TO GOVERNING BODY AND WAIT FOR ACCEPTANCE BY ALL BEFORE FILING
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2PERSONAL KNOWLEDGE OF BOARD MEMBERS IS SUFFICIENT TO COMPLY WITH CONFLICT OF INTEREST POLICY
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3YES, THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE UPON REQUEST. THE FINANCIAL STATEMENTS ARE INCLUDED TWICE A YEAR IN THE ORGANIZATION'S NEWSLETTER AND ALSO AVAILABLE UPON REQUEST
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4PRIOR PERIOD ADJUSTMENT TO NET ASSETS......$397
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART V, LINE 8B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART V, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART V, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART V, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART XI, LINE 8
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondLiabilitiesGrp/BOYAmt00
IRS990/TaxExemptBondLiabilitiesGrp/EOYAmt00
IRS990/TaxExemptBondsInd0false
IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt064305
IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt0100816
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0189886
IRS990/TotalAssetsEOYAmt0302878

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.19$0.00$8.19$3.86$3.51$0.35
2023Detailed filing. Detailed filing data is available for this year.$7.82$0.00$7.82$4.77$2.58$2.19
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.64$0.00$5.64$3.77$3.01$0.76
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.89$0.00$4.89$2.30$1.82$0.48
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.41$0.00$4.41$2.29$0.88$1.41
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.00$0.00$3.00$1.16$1.23$0.07
2018Detailed filing. Detailed filing data is available for this year.$3.06$0.00$3.06$2.07$1.44$0.63
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.21$0.78$2.43$1.25$1.85$0.60
2016Detailed filing. Detailed filing data is available for this year.$3.03$0.00$3.03$2.34$1.21$1.13
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.90$0.00$1.90$1.75$1.06$0.69
2014Detailed filing. Detailed filing data is available for this year.$1.21$0.00$1.21$2.15$2.91$0.76
2013Detailed filing. Detailed filing data is available for this year.$1.97$0.00$1.97$1.53$1.16$0.38
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.59$0.00$1.59$1.80
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.63$0.00$1.63$1.12