Civic Intelligence

Children'S Tumor Foundation

990 • Fiscal year 2016 • EIN 13-2298956

Jan 01, 2016 to Dec 31, 2016 • Filed on May 15, 2017

Organization ProfileWWW.CTF.ORG

View Organization Page

120 Wall StreetNew York, NY 10005-3904

(212) 344-6633

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

43rd percentile

0.17x

Higher debt load relative to assets than 43% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Liabilities / Revenue

37th percentile

0.15x

Higher debt load relative to revenue than 37% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Net Margin

61st percentile

5.4%

Higher net margin than 61% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Top Officer Pay

82nd percentile

$328,522

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 2.1% of source-year revenue.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2016

Asset Growth

64th percentile

5.6%

Faster asset growth than 64% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Revenue Growth

46th percentile

1.9%

Faster revenue growth than 46% of similar nonprofits.

2016 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets43rd percentile

Assets

Up

$13,804,303

Up $731,061 (+5.6%) from 2015

Net Assets

Up

$11,464,812

Up $1,026,357 (+9.8%) from 2015

Liabilities

Down

$2,339,491

Down $295,296 (-11%) from 2015

Revenue And Expenses
Liabilities / Revenue37th percentileNet Margin61st percentile

Revenue

Up

$15,622,801

Up $290,994 (+1.9%) from 2015

Expenses

Down

$14,778,000

Down $459,047 (-3.0%) from 2015

Net Income

Up

$844,801

Up $750,041 (+792%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth64th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2011: $9,102,033Liabilities 2011: $2,872,603Net Assets 2011: $6,229,4302011Assets 2012: $9,263,630Liabilities 2012: $1,606,418Net Assets 2012: $7,657,2122012Assets 2013: $10,987,913Liabilities 2013: $2,165,593Net Assets 2013: $8,822,3202013Assets 2014: $13,235,127Liabilities 2014: $2,886,605Net Assets 2014: $10,348,5222014Assets 2015: $13,073,242Liabilities 2015: $2,634,787Net Assets 2015: $10,438,4552015Assets 2016: $13,804,303Liabilities 2016: $2,339,491Net Assets 2016: $11,464,8122016Assets 2017: $12,134,437Liabilities 2017: $1,435,291Net Assets 2017: $10,699,1462017Assets 2018: $11,722,094Liabilities 2018: $1,209,782Net Assets 2018: $10,512,3122018Assets 2019: $19,223,379Liabilities 2019: $1,535,050Net Assets 2019: $17,688,3292019Assets 2020: $23,094,143Liabilities 2020: $2,555,328Net Assets 2020: $20,538,8152020Assets 2021: $29,600,801Liabilities 2021: $2,305,001Net Assets 2021: $27,295,8002021Assets 2022: $32,079,774Liabilities 2022: $4,527,792Net Assets 2022: $27,551,9822022Assets 2023: $30,074,603Liabilities 2023: $4,353,703Net Assets 2023: $25,720,9002023Assets 2024: $30,677,831Liabilities 2024: $3,908,305Net Assets 2024: $26,769,5262024

Highlighted filing

2016

Assets$13,804,303
Liabilities$2,339,491
Net Assets$11,464,812
Open 2016 Filing

Operations Trend

Revenue Growth46th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MExpenses 2011: $8,148,5872011Revenue 2012: $9,542,643Expenses 2012: $8,183,515Net Income 2012: $1,359,1282012Revenue 2013: $12,468,247Expenses 2013: $11,869,123Net Income 2013: $599,1242013Revenue 2014: $15,469,289Expenses 2014: $14,205,166Net Income 2014: $1,264,1232014Revenue 2015: $15,331,807Expenses 2015: $15,237,047Net Income 2015: $94,7602015Revenue 2016: $15,622,801Expenses 2016: $14,778,000Net Income 2016: $844,8012016Revenue 2017: $11,412,461Expenses 2017: $12,638,073Net Income 2017: -$1,225,6122017Revenue 2018: $12,490,368Expenses 2018: $12,403,939Net Income 2018: $86,4292018Revenue 2019: $17,897,687Expenses 2019: $11,267,232Net Income 2019: $6,630,4552019Revenue 2020: $12,831,946Expenses 2020: $10,393,620Net Income 2020: $2,438,3262020Revenue 2021: $16,779,578Expenses 2021: $10,418,437Net Income 2021: $6,361,1412021Revenue 2022: $16,990,325Expenses 2022: $15,815,548Net Income 2022: $1,174,7772022Revenue 2023: $16,447,289Expenses 2023: $18,828,152Net Income 2023: -$2,380,8632023Revenue 2024: $19,738,640Expenses 2024: $19,009,492Net Income 2024: $729,1482024

Highlighted filing

2016

Revenue$15,622,801
Expenses$14,778,000
Net Income$844,801
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
May 15, 2017
Return Version
2016v3.0
Gross Receipts
$18,042,155
Mission and Program Overview

Mission

Our mission: drive research, expand knowledge, and advance care for the nf community. Our vision: end nf.

The children's tumor foundation is dedicated to ending neurofibromatosis (nf). Our mission is to: a.) fund research, b.) increase public awareness, c.) support patients and families, d.) encourage establishment of nf clinics.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$6,497,428$6,353,823▼ $143,605
Savings and Temporary Cash Investments$4,030,642$5,848,486▲ $1,817,844
Pledges and Grants Receivable$1,959,348$1,098,672▼ $860,676
Land, Buildings, and Equipment, Net$256,433$246,171▼ $10,262
Prepaid Expenses and Deferred Charges$250,375$178,135▼ $72,240
Investments Other Securities$62,500$62,500→ $0
Total Assets$13,073,242$13,804,303▲ $731,061
Other Assets Total$16,516$16,516→ $0
Liabilities
Grants Payable$2,216,045$1,814,959▼ $401,086
Accounts Payable and Accrued Expenses$209,246$318,011▲ $108,765
Other Liabilities$209,496$206,521▼ $2,975
Total Liabilities$2,634,787$2,339,491▼ $295,296
Net Assets / Fund Balance
Unrestricted Net Assets$6,296,227$6,673,287▲ $377,060
Temporarily Rstr Net Assets$4,142,228$4,791,525▲ $649,297
Total Net Assets Fund Balance$10,438,455$11,464,812▲ $1,026,357
Total Liabilities and Net Assets / Fund Balance$13,073,242$13,804,303▲ $731,061

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$177,093$101,179$278,272
Leasehold Improvements$57,852$118,037$175,889
Equipment$11,226$58,173$69,399

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2012$189,926--$189,926-
Compensation and Service Providers
Top Officer Pay82nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Annette Bakker PhdPresident/chief Scientific OfficerFT$292,417$36,105$328,522
Reid HorovitzCOO/CFOFT$202,983$33,165$236,148
Salvatore LarosaVP of Research & DevelopmentFT$173,506$33,328$206,834
Michael DiversVP of Major Gifts (former)FT$156,718$22,709$179,427
Melissa Sosa-longoVP of Major GiftsFT$173,126$1,054$174,180
Simon VukeljVP of Marketing & CommunicationsFT$137,208$17,176$154,384
David WebberVP of Finance (former)FT$31,199$10,324$41,523

Board Members and Trustees

NameTitle
Richard a HorvitzChairperson
Tracy GallowayVice Chairperson
Brendan Hanrahan PhdDirector
Chad LeathersDirector
Daniel AltmanDirector
Daniel GilbertDirector
John Golfinos MdDirector
John MccarthyDirector
Karl ThomsonDirector
Kenneth RuddDirector
Laura PerfettiDirector
Linda H MartinDirector
Matthew HayDirector
Michael PetersonDirector
Rachel B TivenDirector
Robert BraininDirector
Steven L MckenzieDirector
Stuart Match SunaDirector
William BrooksDirector
Laura Ganio BonaDirector (former)
Lesley OslicaDirector (former)
Nate WalkerDirector (former)
Suzanne EarleDirector (former)
Gabriel GroismanSecretary
Randall StanickyTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Squire Patton BoggsLobbying/advocacy2550 MAIN ST NW, Washington, DC 20037$270,000
Kostopulos Dream FoundationNf Camp4180 EMIGRATION CYN, Salt Lake City, UT 84108$103,500
Revenue and Support

Revenue Composition

Contributions and Grants
$15,471,546
Program Service Revenue
$0
Investment Income
$110,093
Other Revenue
$41,162
All Other Contributions
$9,752,683
Change in Net Assets
$844,801

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table374$366,130Fair Market Value (FMV)
Securities Publicly Traded2$109,448Fair Market Value (FMV)
Total Noncash Contributions376$475,578-

Audited Revenue Reconciliation

Revenue per Audited Statements
$14,812,472
Revenue Not Reported on Financial Statements
$810,329
Revenue Not Reported on Form 990
$592,022
Other Revenue Adjustments
$810,329
Total Revenue per Audited Statements
$15,404,494
Total Revenue per Form 990
$15,622,801
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$5,747,415
Salaries, Compensation, and Employee Benefits$4,614,556
Grants and Similar Amounts Paid$4,416,029
Total Fundraising Expense$1,862,625
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$4,159,999--$4,159,999
Other Salaries and Wages$2,512,751$78,839$414,070$3,005,660
Conferences and Meetings$1,371,543$168,559$670,306$2,210,408
Current Officers, Directors, Trustees, and Key Employees$284,409$292,055$193,624$770,088
Fees for Services Other$502,431$22,114$46,291$570,836
Other Employee Benefits$378,836$30,084$66,014$474,934
All Other Expenses$285,145$32,197$59,461$376,803
Occupancy$197,731$89,878$71,902$359,511
Information Technology$193,905$47,203$59,400$300,508
Travel$234,720$18,563$38,661$291,944
Fees for Services Lobbying$270,000--$270,000
Foreign Grants$256,030--$256,030
Payroll Taxes$189,214$23,724$39,862$252,800
Other Expenses$145,584$14,307$26,909$186,800
Pension Plan Contributions$88,660$8,348$14,066$111,074
Depreciation Depletion$56,748$25,793$20,636$103,177
Insurance$30,030$13,650$10,920$54,600
Fees for Services Accounting-$28,845-$28,845
Advertising$10,086$816$3,626$14,528
Fees for Services Legal-$1,947-$1,947
Total Functional Expenses$11,920,152$995,223$1,862,625$14,778,000

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$14,778,000
Total Expenses per Audited Statements$14,378,137
Expenses per Audited Statements$13,967,671
Expenses Not Reported on Financial Statements$810,329
Other Expense Adjustments$810,329
Expenses Not Reported on Form 990$410,466
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The University of MinnesotaMinneapolis, MN501(c)(3)Research - Synodos$528,539
Massachusetts GeneralBoston, MA501(c)(3)Research - Contract Award, Yia, Ddi, Clinical Trial, & Synodos$499,173
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)(3)Research - Preclinical Consortiumresearch - Preclinical Consortiumresearch - Preclinical Consortiumresearch - Nftc, Synodos & Ddaresearch - Preclinical Consortiumresearch - Preclinical Consortium$394,793
BRIGHAM & WOMEN'S HOSPITALBoston, MA501(c)(3)Research - Yia, Nftc & Contract Award$284,664
Indiana UniversityIndianapolis, IN501(c)(3)Research - Nftc & Synodosvresearch - Young Investigator Awardresearch - Young Investigator Award$280,543
University of CaliforniaBakersfield, CA501(c)(3)Research - Nftc$190,527
Washington UniversitySt Louis, MO501(c)(3)Research - Synodos$190,151
The Trustees of Columbia UniversityNew York, NY501(c)(3)Research - Contract Award$184,584
Sanford ResearchSioux Falls, SD501(c)(3)Research - Contract Award & Synodos$181,992
Medical University of South CarolinaCharleston, SC501(c)(3)Research - Contract Award & Dda$144,007
University of Alabama at BirminghamTuscaloosa, AL501(c)(3)Research - Clinical Trial Award & Contract Award$143,771
Scripps Research InstituteLa Jolla, CA501(c)(3)Research - Yia & Dda$139,250
University of Florida TrusteesGainesville, FL501(c)(3)Research - Contract Award$124,315
University of Central FloridaOrlando, FL501(c)(3)Research - Yia & Contract Award$103,500
The Regents of University of CaliforniaOakland, CA501(c)(3)Research - Synodos$103,442
University of IowaIowa City, IA501(c)(3)Research - Synodos$67,020
University of North CarolinaChapel Hill, NC501(c)(3)Research - Young Investigator Award$52,750
University of Texas Southwestern Medical CenterDallas, TX501(c)(3)Research - Young Investigator Award$52,125
University of ArizonaTucson, AZ501(c)(3)Research - Yia$45,250
THE CHILDREN'S HOSPITAL OF PHOENIXPhiladelphia, PA501(c)(3)Research - Synodos$33,008
Geisel School of Medicine at Dartmouth CollegeHanover, NH501(c)(3)Research - Young Investigator Award$32,000
Vanderbilt University Medical CenterAtlanta, GA501(c)(3)Research - Young Investigator Award$30,666
The Arizona Board of Regents on Behalf of the University of ArizonaPhoenix, AZ501(c)(3)Research - Contract Award$26,167
Department NeurobiologyLos Angeles, CA501(c)(3)Research - Young Investigator Award$26,022
University of PennsylvaniaPhiladelphia, PA501(c)(3)Research - Dda$25,000
California Institute of TechnologyPasadena, CA501(c)(3)Research - Young Investigator Award$21,375
University of ChicagoChicago, IL501(c)(3)Research - Young Investigator Award$16,000

International Summary

Offices
0
Employees
0
Spending
$256,030

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumResearch Grants to ScientistsResearch Grants00$256,030
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$450,809
Fundraising Gross Income$450,809
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Detroit Gala$5,054,513$347,762$347,762$0
New York City Gala$1,050,414$103,047$103,047$0
Total Events$6,104,927$450,809$450,809$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Assets Held in Trust$195,800
Deferred Rent$10,721
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The complete form 990 is distributed in draft form via e-mail to all board members with a return receipt prior to filing. Each board member acknowledges their receipt, review, and acceptance of the form 990.”

Form 990, Part VI, Section B, Line 12C

“The organization has a conflict of interest policy and regularly and consistently monitors and enforces compliance with the policy on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The organization's top management and key employees are reviewed for performance on an annual basis. Compensation for these positions are reviewed and approved by the board's personnel committee. Compensation is determined using currently available salary data for non-profits of similar size and mission in the new york city area.”

Form 990, Part VI, Section C, Line 19

“All documents are available upon request within the prescribed time frames as required.”

Filing and Contact Details

Filer

Filer Name
CHILDREN'S TUMOR FOUNDATION
EIN
13-2298956
Phone
2123446633
Address
120 WALL STREET, NEW YORK, NY 10005-3904

Signing Officer

Name
Reid Horovitz
Title
COO/CFO
Phone
2123446633
Signed
2017-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Annette Bakker
Formed
1978
Legal Domicile
Ny
Voting Board Members
21
Independent Board Members
21
Employees
50
Volunteers
1,000

Preparer

Firm
Marks Paneth Llp
Address
685 THIRD AVENUE, NEW YORK, NY 10017
Preparer
Robert Lyons CPA
Phone
2125038800
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Loss on uncollectible accounts -12,875.”

Form 990, Part XII, Line 2C

“The children's tumor foundation has an audit committee that assumes responsibility for oversight of the audit of its financial statements and selection of an independent accountant.”

Financial Statement Notes

PART X, LINE 2:

“The foundation has no uncertain tax positions as of december 31, 2016, in accordance with accounting standards codification ("asc") topic 740, which provides standards for establishing and classifying any tax provisions for uncertain tax positions.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Prior year grants returned 810,329.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Loss on uncollectible accounts 12,875.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“Prior year grants returned 810,329.”

Raw XML AppendixShowing 400 of 1,209 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS.
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IRS990/Desc0RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITIONALLY, OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.
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IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt29VP OF MAJOR GIFTS
IRS990/Form990PartVIISectionAGrp/TitleTxt30VP OF MARKETING & COMMUNICATIONS
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IRS990/MissionDesc0OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF.

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$13,804,303
Liabilities
$2,339,491
Net assets
$11,464,812
Revenue
$15,622,801
Expenses
$14,778,000
Net income
$844,801
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$30.7$3.91$26.8$19.7$19.0$0.73
2023Detailed filing. Detailed filing data is available for this year.$30.1$4.35$25.7$16.4$18.8$2.38
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$32.1$4.53$27.6$17.0$15.8$1.17
2021Detailed filing. Detailed filing data is available for this year.$29.6$2.31$27.3$16.8$10.4$6.36
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$23.1$2.56$20.5$12.8$10.4$2.44
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$19.2$1.54$17.7$17.9$11.3$6.63
2018Detailed filing. Detailed filing data is available for this year.$11.7$1.21$10.5$12.5$12.4$0.09
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.1$1.44$10.7$11.4$12.6$1.23
2016Detailed filing. Detailed filing data is available for this year.$13.8$2.34$11.5$15.6$14.8$0.84
2015Detailed filing. Detailed filing data is available for this year.$13.1$2.63$10.4$15.3$15.2$0.09
2014Detailed filing. Detailed filing data is available for this year.$13.2$2.89$10.3$15.5$14.2$1.26
2013Detailed filing. Detailed filing data is available for this year.$11.0$2.17$8.82$12.5$11.9$0.60
2012Summary only. Only limited summary data is available for this year.$9.26$1.61$7.66$9.54$8.18$1.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.10$2.87$6.23$8.15