Civic Intelligence

Children'S Tumor Foundation

EIN 13-2298956 • 501(c)3 • New York, NY

View Organization Page

Profile

Our mission: drive research, expand knowledge, and advance care for the nf community. Our vision: end nf.

Refreshing map…

697 3rd Avenue 418New York, NY 10017

www.ctf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

40th percentile

0.13x

Higher debt load relative to assets than 40% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Liabilities / Revenue

41st percentile

0.20x

Higher debt load relative to revenue than 41% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Net Margin

48th percentile

3.7%

Higher net margin than 48% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Top Officer Pay

79th percentile

$468,352

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 2.4% of source-year revenue.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Asset Growth

37th percentile

2.0%

Faster asset growth than 37% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2023 to 2024

Revenue Growth

73rd percentile

20%

Faster revenue growth than 73% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$30,677,831

Up $603,228 (+2.0%) from 2023

Liabilities

Down

$3,908,305

Down $445,398 (-10%) from 2023

Net Assets

Up

$26,769,526

Up $1,048,626 (+4.1%) from 2023

Operations
Liabilities / Revenue41st percentileNet Margin48th percentile

Revenue

Up

$19,738,640

Up $3,291,351 (+20%) from 2023

Expenses

Up

$19,009,492

Up $181,340 (+1.0%) from 2023

Net Income

Up

$729,148

Up $3,110,011 (+131%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth37th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$40M$30M$20M$10M$0Assets 2011: $9,102,033Liabilities 2011: $2,872,603Net Assets 2011: $6,229,4302011Assets 2012: $9,263,630Liabilities 2012: $1,606,418Net Assets 2012: $7,657,2122012Assets 2013: $10,987,913Liabilities 2013: $2,165,593Net Assets 2013: $8,822,3202013Assets 2014: $13,235,127Liabilities 2014: $2,886,605Net Assets 2014: $10,348,5222014Assets 2015: $13,073,242Liabilities 2015: $2,634,787Net Assets 2015: $10,438,4552015Assets 2016: $13,804,303Liabilities 2016: $2,339,491Net Assets 2016: $11,464,8122016Assets 2017: $12,134,437Liabilities 2017: $1,435,291Net Assets 2017: $10,699,1462017Assets 2018: $11,722,094Liabilities 2018: $1,209,782Net Assets 2018: $10,512,3122018Assets 2019: $19,223,379Liabilities 2019: $1,535,050Net Assets 2019: $17,688,3292019Assets 2020: $23,094,143Liabilities 2020: $2,555,328Net Assets 2020: $20,538,8152020Assets 2021: $29,600,801Liabilities 2021: $2,305,001Net Assets 2021: $27,295,8002021Assets 2022: $32,079,774Liabilities 2022: $4,527,792Net Assets 2022: $27,551,9822022Assets 2023: $30,074,603Liabilities 2023: $4,353,703Net Assets 2023: $25,720,9002023Assets 2024: $30,677,831Liabilities 2024: $3,908,305Net Assets 2024: $26,769,5262024

Highlighted filing

2024

Assets$30,677,831
Liabilities$3,908,305
Net Assets$26,769,526
Open 2024 Filing

Operations Trend

Revenue Growth73rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$20M$10M$0-$10MExpenses 2011: $8,148,5872011Revenue 2012: $9,542,643Expenses 2012: $8,183,515Net Income 2012: $1,359,1282012Revenue 2013: $12,468,247Expenses 2013: $11,869,123Net Income 2013: $599,1242013Revenue 2014: $15,469,289Expenses 2014: $14,205,166Net Income 2014: $1,264,1232014Revenue 2015: $15,331,807Expenses 2015: $15,237,047Net Income 2015: $94,7602015Revenue 2016: $15,622,801Expenses 2016: $14,778,000Net Income 2016: $844,8012016Revenue 2017: $11,412,461Expenses 2017: $12,638,073Net Income 2017: -$1,225,6122017Revenue 2018: $12,490,368Expenses 2018: $12,403,939Net Income 2018: $86,4292018Revenue 2019: $17,897,687Expenses 2019: $11,267,232Net Income 2019: $6,630,4552019Revenue 2020: $12,831,946Expenses 2020: $10,393,620Net Income 2020: $2,438,3262020Revenue 2021: $16,779,578Expenses 2021: $10,418,437Net Income 2021: $6,361,1412021Revenue 2022: $16,990,325Expenses 2022: $15,815,548Net Income 2022: $1,174,7772022Revenue 2023: $16,447,289Expenses 2023: $18,828,152Net Income 2023: -$2,380,8632023Revenue 2024: $19,738,640Expenses 2024: $19,009,492Net Income 2024: $729,1482024

Highlighted filing

2024

Revenue$19,738,640
Expenses$19,009,492
Net Income$729,148
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$30,677,831
Liabilities
$3,908,305
Net assets
$26,769,526
Revenue
$19,738,640
Expenses
$19,009,492
Net income
$729,148
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$30.7$3.91$26.8$19.7$19.0$0.73
2023Detailed filing. Detailed filing data is available for this year.$30.1$4.35$25.7$16.4$18.8$2.38
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$32.1$4.53$27.6$17.0$15.8$1.17
2021Detailed filing. Detailed filing data is available for this year.$29.6$2.31$27.3$16.8$10.4$6.36
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$23.1$2.56$20.5$12.8$10.4$2.44
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$19.2$1.54$17.7$17.9$11.3$6.63
2018Detailed filing. Detailed filing data is available for this year.$11.7$1.21$10.5$12.5$12.4$0.09
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.1$1.44$10.7$11.4$12.6$1.23
2016Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$13.8$2.34$11.5$15.6$14.8$0.84
2015Detailed filing. Detailed filing data is available for this year.$13.1$2.63$10.4$15.3$15.2$0.09
2014Detailed filing. Detailed filing data is available for this year.$13.2$2.89$10.3$15.5$14.2$1.26
2013Detailed filing. Detailed filing data is available for this year.$11.0$2.17$8.82$12.5$11.9$0.60
2012Summary only. Only limited summary data is available for this year.$9.26$1.61$7.66$9.54$8.18$1.36
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.10$2.87$6.23$8.15
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 27, 2025
Return Version
2024v5.2
Gross Receipts
$20,862,188
Mission and Program Overview

Mission

Our mission: drive research, expand knowledge, and advance care for the nf community. Our vision: end nf.

The children's tumor foundation is dedicated to ending neurofibromatosis (nf). Our mission is to: a.) fund research, b.) increase public awareness, c.) support patients and families, d.) encourage establishment of nf clinics.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$16,207,158$10,906,572▼ $5,300,586
Investments in Publicly Traded Securities$6,877,431$7,941,032▲ $1,063,601
Cash and Non-Interest-Bearing Accounts$3,487,231$5,112,813▲ $1,625,582
Pledges and Grants Receivable$2,012,179$4,755,438▲ $2,743,259
Investments Other Securities-$741,136-
Prepaid Expenses and Deferred Charges$675,410$617,247▼ $58,163
Inventories for Sale or Use$1,270$98,882▲ $97,612
Accounts Receivable$59,105$59,105→ $0
Land, Buildings, and Equipment, Net$46,224$13,632▼ $32,592
Total Assets$30,074,603$30,677,831▲ $603,228
Other Assets Total$708,595$431,974▼ $276,621
Liabilities
Grants Payable$3,031,467$2,899,399▼ $132,068
Accounts Payable and Accrued Expenses$930,708$709,761▼ $220,947
Other Liabilities$335,245$237,690▼ $97,555
Deferred Revenue$56,283$61,455▲ $5,172
Total Liabilities$4,353,703$3,908,305▼ $445,398
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$15,845,614$17,535,493▲ $1,689,879
Net Assets With Donor Restrictions$9,875,286$9,234,033▼ $641,253
Total Net Assets Fund Balance$25,720,900$26,769,526▲ $1,048,626
Total Liabilities and Net Assets / Fund Balance$30,074,603$30,677,831▲ $603,228

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$13,632$35,187$48,819

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$6,845,436$445,669▲ $618,367-$7,876,012
2023$4,888,578$1,426,676▲ $553,222-$6,845,434
2022$5,750,795-▼ $589,449-$4,888,578
2021$5,250,101-▲ $500,694-$5,750,795
2020$5,378,258-▲ $439,809-$5,250,101
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Annette BakkerPresidentFT$389,619$78,733$468,352
Brigid GarelikChief Medical OfficerFT$337,403$67,232$404,635
Simon VukeljChief Marketing OfficerFT$239,060$37,859$276,919
Monica SohnChief Growth OfficerFT$258,750$12,578$271,328
Irene MorgansternDirector, Preclinical InitiativesFT$179,752$58,303$238,055
Barbara GallagherVice President of Dev.FT$165,464$49,988$215,452
Sarah BourneSr. VP, Finance and OperationsFT$181,812$21,505$203,317
Jennifer ChingDirector, Human ResourcesFT$153,687$44,695$198,382
Amy BoulasVP Dev. Ptp and Field Based EventsFT$145,715$40,738$186,453
Michele PrzypysznyChief Advancement OfficerFT$166,864$4,026$170,890

Board Members and Trustees

NameTitle
Gabriel GroismanChair
Linda H MartinChair Emeritus
Richard HorvitzChair Emeritus
Liz RodbellVice Chair
Daniel AltmanBoard Member
Emily ParkerBoard Member
Frank HaughtonBoard Member
George ThuronyiBoard Member
Jaishri BlakeleyBoard Member
Kenneth RuddBoard Member
Laura GrannemanBoard Member
Lu LeBoard Member
Mark OppenheimerBoard Member
Montse Montaner PicartBoard Member
Randall StanickyBoard Member
Richard SollBoard Member
Roger - Ketcha NgassamBoard Member
Sally GottesmanBoard Member
Scott PlotkinBoard Member
Simone MansoBoard Member
Steven MckenzieBoard Member
Tracy GallowayBoard Member
Vicki Match SunaBoard Member
Wade ClappBoard Member
Carol KalagherBoard Member (outgoing)
Daniel GilbertBoard Member (outgoing)
Ed SternBoard Member (outgoing)
Robert BraininBoard Member (outgoing)
Rb HarrisonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Squire Patton BoggsLobbying/advocacyPO BOX 643051, Cincinnati, OH 45264$360,000
Roc Live Events And Production LLCA/v83 MESEROLE STREET, Brooklyn, NY 11206$248,003
Keybridge Communications LLCPublic Relations1722 WISCONSIN AVE NW, Washington, DC 20007$129,996
Revenue and Support

Revenue Composition

Contributions and Grants
$18,893,523
Program Service Revenue
$25,665
Investment Income
$853,571
Other Revenue
$-34,119
All Other Contributions
$16,744,208
Change in Net Assets
$729,148

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded21$758,404Fair Market Value (FMV)
Other Non Cash Contri Table129$84,278Fair Market Value (FMV)
Other Non Cash Contri Table2$1,850Fair Market Value (FMV)
Food Inventory3$873Fair Market Value (FMV)
Other Non Cash Contri Table1$400Fair Market Value (FMV)
Total Noncash Contributions156$845,805-

Audited Revenue Reconciliation

Revenue per Audited Statements
$19,823,530
Revenue Not Reported on Financial Statements
$-84,890
Revenue Not Reported on Form 990
$522,508
Other Revenue Adjustments
$-119,392
Total Revenue per Audited Statements
$20,346,038
Total Revenue per Form 990
$19,738,640
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$6,787,095
Other Expenses$6,728,872
Grants and Similar Amounts Paid$5,493,525
Total Fundraising Expense$1,557,993
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$4,301,975--$4,301,975
Other Salaries and Wages$2,942,174$403,739$584,578$3,930,491
Current Officers, Directors, Trustees, and Key Employees$1,195,649$195,644$233,259$1,624,552
Fees for Services Other$1,509,717$22,178$43,014$1,574,909
Conferences and Meetings$1,255,449$138,800$165,850$1,560,099
Foreign Grants$1,126,709--$1,126,709
Other Employee Benefits$518,574$110,564$112,167$741,305
Information Technology$377,675$85,677$65,622$528,974
Travel$395,248$32,797$36,453$464,498
Payroll Taxes$296,804$59,712$61,620$418,136
Fees for Services Lobbying$360,000--$360,000
Office Expenses$227,288$31,420$43,288$301,996
Depreciation Depletion$118,883$64,845$32,423$216,151
Advertising$169,771$12,384$31,849$214,004
Fees for Services Legal-$129,951-$129,951
Occupancy$57,977$31,624$15,812$105,413
Pension Plan Contributions$46,856$12,765$12,990$72,611
Grants to Domestic Individuals$64,841--$64,841
Other Expenses$24,424$4,778$5,506$34,708
Fees for Service Investment Mgmnt Fees-$34,502-$34,502
Insurance$15,689$8,541$4,289$28,519
All Other Expenses$9,410$4,602$2,337$16,349
Total Functional Expenses$15,925,351$1,526,148$1,557,993$19,009,492

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$19,321,886
Total Expenses per Form 990$19,009,492
Expenses per Audited Statements$18,974,990
Expenses Not Reported on Form 990$346,896
Expenses Not Reported on Financial Statements$34,502
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Massachusetts General HospitalBoston, MA501(c)3Research - Contract Award, Yia, Ddi, Cra and Nf Clinic Network$449,795
Washington UniversitySt Louis, MO501(c)3Research - Contract Award and Yia$437,707
The Regents of the University of CaliforniaLos Angeles, CA501(c)3Research - Contract Award, Yia and Nfcn$336,410
Sage BionetworksSeattle, WA501(c)3Research - Contract Award$328,754
National Cancer InstitutePittsburg, PA501(c)3Research - Contract Award and Cra$242,758
University of Arkansas for Medical SciencesLittle Rock, AR501(c)3Research - Nfcn$234,442
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)3Research - Opg, Contract Award, Nf Clinic Network, Yia and Cra$230,224
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501(c)3Research - Opg$228,194
Indiana UniversityIndianapolis, IN501(c)3Research - Yia, Contract Award and Nf Clinic Network$189,658
University of MiamiCoral Gables, FL501(c)3Research - Contract Award$166,667
Yale UniversityNew Haven, CT501(c)3Research - Contract Award$161,688
Oregon Health and Science UniversityPortland, OR501(c)3Research - Contract Award and Ddi$92,372
Johns Hopkins UniversityBaltimore, MD501(c)3Research - Yia, Ddi and Nf Clinic Network$82,600
CHILDREN'S NATIONAL HOSPITALWashington, DC501(c)3Research - Nf Clinic Network, Cra, Ddi and Opg$79,708
CHILDREN'S NATIONAL MEDICAL CENTERWashington, DC501(c)3Research - Opg, Ddi, Cra and Nf Clinic Network$79,708
Florida State University Research Foundation IncTallahassee, FL501(c)3Research - Cra$74,970
Regents of the University of MinnesotaBagley, MN501(c)3Research - Cra and Nf Clinic Network$74,328
University of PennsylvaniaPhiladelphia, PA501(c)3Research - Yia$66,234
Nyph - Weill Cornell Medical CollegeNew York, NY501(c)3Research - Yia$59,186
Medical College of WisconsinMenomonee, WI501(c)3Research - Ddi$50,000
University of Texas Md Anderson Cancer CenterHouston, TX501(c)3Research - Nf Clinic Network and Ddi$49,044
University of Texas at AustinAustin, TX501(c)3Research - Contract Awards$47,892
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)3Research - Opg, Cra and Nf Clinic Network$47,215
University of IowaIowa City, IA501(c)3Research - Yia and Nf Clinic Network$42,184
University of Florida GainesvilleGainville, FL501(c)3Research - Nf Clinic Network and Cra$40,087
Stanford UniversityStanford, CA501(c)3Research - Nf Clinic Network$39,440
University of Central FloridaOrlando, FL501(c)3Research - Yia$37,818
Mayo Clinic Research FinanceRochester, MN501(c)3Research - Contract Award and Nf Clinic Network$33,387
Alliant International UniversitySan Diego, CA501(c)3Research - Contract Award$22,543
Van Andel Research InstituteGrand Rapids, MI501(c)3Research - Yia$22,250
Precision for Medicine IncFrederick, MD501(c)3Research - Opg$19,881
Louisiana State University and A&m CollegeBaton Rouge, LA501(c)3Research - Yia$17,915
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGOChicago, IL501(c)3Research - Nf Clinic Network and Opg$12,480
University Foundation at Sacramento StateSacramento, CA501(c)3Research - Nf Clinic Network$10,000
ST JOSEPH'S REGIONAL MEDICAL CENTERLewiston, ID501(c)3Research - Nf Clinic Network$9,850
CHILDREN'S HOSPITAL-NEW ORLEANSNew Orleans, LA501(c)3Research - Nf Clinic Network$8,000
University of UtahSalt Lake City, UT501(c)3Research - Nf Clinic Network$8,000
VALLEY CHILDREN'S HEALTHCAREMadera, CA501(c)3Research - Nf Clinic Network$8,000
DELL CHILDREN'S MEDICAL CENTER OF CENTRAL TEXASAustin, TX501(c)3Research - Nf Clinic Network$6,800
Adventhealth for ChildrenMaitland, FL501(c)3Research - Nf Clinic Network$6,500
BENIOFF CHILDREN'S HOSPITALOakland, CA501(c)3Research - Nf Clinic Network$6,500
CHILDREN'S HEALTHCARE OF ATLANTAAtlanta, GA501(c)3Research - Nf Clinic Network$6,500
Cleveland Clinic FoundationIndependence, OH501(c)3Research - Nf Clinic Network$6,500
Columbia University Irving Medical CenterNew York, NY501(c)3Research - Nf Clinic Network$6,500
Emory University School of MedicineAtlanta, GA501(c)3Research - Nf Clinic Network$6,500
PHOENIX CHILDREN'S HOSPITALPhoenix, AZ501(c)3Research - Nf Clinic Network$6,500
University of California San FranciscoSan Francisco, CA501(c)3Research - Nf Clinic Network$6,500
SEATTLE CHILDREN'S HOSPITAL FOUNDATIONSeattle, WA501(c)3Research - Nf Clinic Network$5,200
CHILDREN'S HOSPITAL COLORADOAurora, CO501(c)3Research - Nf Clinic Network$5,100
Ut Southwestern Medical CenterDallas, TX501(c)3Research - Yia & Nf Clinic Network$5,095

International Summary

Offices
0
Employees
0
Spending
$1,126,709

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
Yes
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
East Asia and the PacificResearch Grants to ScientistsResearch Grants00$709,804
Europe (including Iceland & Greenland)Research Grants to ScientistsResearch Grants00$400,905
North America, Canada, and MexicoResearch Grants to ScientistsResearch Grants00$16,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$341,861
Fundraising Gross Income$224,675
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
2024 Ny Gala$1,767,674$131,655$187,833$-56,178
Dancing With Our Stars$196,989$27,500$93,343$-65,843
Total Events$2,346,960$224,675$341,861$-117,186
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Assets Held in Trust$195,800
Rent Payable$41,890
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The complete form 990 is prepared by an independent accountant and is distributed in draft form via e-mail to all board members with a return receipt prior to filing. Each board member acknowledges their receipt, review, and acceptance of the form 990.”

Form 990, Part VI, Section B, Line 12C

“The organization has a conflict of interest policy and regularly and consistently monitors and enforces compliance with the policy on an annual basis. Board members and management are required to complete.”

Form 990, Part VI, Section B, Line 15

“The organization's top management and key employees are reviewed for performance on an annual basis. Compensation for these positions are reviewed and approved by the board's personnel committee. Compensation is determined using currently available salary data for non-profits of similar size and mission in the new york city area.”

Form 990, Part VI, Section C, Line 19

“All documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
CHILDREN'S TUMOR FOUNDATION
EIN
13-2298956
Phone
2123446633
Address
697 3RD AVENUE 418, NEW YORK, NY 10017

Signing Officer

Name
Annette Bakker Phd
Title
President
Phone
2123446633
Signed
2025-10-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Annette Bakker Phd
Formed
1978
Legal Domicile
Ny
Voting Board Members
25
Independent Board Members
25
Employees
55
Volunteers
1,000

Preparer

Firm
Cbiz Advisors LLC
Address
685 THIRD AVENUE, NEW YORK, NY 10017
Preparer
Magdalena Czerniawski CPA
Phone
2125038800
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The process has not changed from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“The foundation's board of directors established an endowment account without donor restrictions. While ecorded in the consolidated statements of financial position as net assets without donor restrictions, the board of directors has imposed an internal designation on the use of these funds. Invasions of principal or interest may not be made without the approval of the board of directors. All bequests and memorial contributions received by the foundation are deposited into this fund.”

PART X, LINE 2:

“The foundation believes it has no uncertain tax positions as of december 31, 2024 and 2023, in accordance with fasb accounting standards codification ("asc") topic 740, which provides standards for establishing and classifying any tax provisions for uncertain tax positions.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Related entity's revenue 163,079.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Direct fundraising expenses -119,392.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Related entity's expenses 187,553. Direct fundraising expenses 119,392.”

Raw XML AppendixShowing 400 of 1,722 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS.
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IRS990/Desc0RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.
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IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER (OUTGOING)
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER (OUTGOING)
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11CHAIR EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt12VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHAIR EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt19BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt20BOARD MEMBER (OUTGOING)
IRS990/Form990PartVIISectionAGrp/TitleTxt21BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt22BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt23BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt24BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt25BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt26BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt27BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt28BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt29PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt30CHIEF MEDICAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt31CHIEF GROWTH OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt32SR. VP, FINANCE AND OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt33CHIEF MARKETING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt34VP DEV. PTP AND FIELD BASED EVENTS
IRS990/Form990PartVIISectionAGrp/TitleTxt35VICE PRESIDENT OF DEV.
IRS990/Form990PartVIISectionAGrp/TitleTxt36DIRECTOR, PRECLINICAL INITIATIVES

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