Civic Intelligence

Hermansky Pudlak Syndrome Network Inc.

990 • Fiscal year 2018 • EIN 11-3283268

Aug 01, 2017 to Jul 31, 2018 • Filed on Jun 14, 2019

Organization ProfileWWW.HPSNETWORK.ORG
One South RoadOyster Bay Cove, NY 11771

(800) 789-9477

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

63rd percentile

0.03x

Higher debt load relative to assets than 63% of similar nonprofits.

2018 filings • NTEE P • <$500k nonprofits • Source year 2018

Liabilities / Revenue

56th percentile

0.01x

Higher debt load relative to revenue than 56% of similar nonprofits.

2018 filings • NTEE P • <$500k nonprofits • Source year 2018

Net Margin

46th percentile

2.5%

Higher net margin than 46% of similar nonprofits.

2018 filings • NTEE P • <$500k nonprofits • Source year 2018

Top Officer Pay

79th percentile

$11,180

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 3.3% of source-year revenue.

2018 filings • NTEE P • <$500k nonprofits • Source year 2018

Asset Growth

67th percentile

17%

Faster asset growth than 67% of similar nonprofits.

2018 filings • NTEE P • <$500k nonprofits • Annualized from 2017 to 2018

Revenue Growth

37th percentile

-5.6%

Faster revenue growth than 37% of similar nonprofits.

2018 filings • NTEE P • <$500k nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets63rd percentile

Assets

Up

$68,981

Up $9,944 (+17%) from 2017

Net Assets

Up

$67,179

Up $8,355 (+14%) from 2017

Liabilities

Up

$1,802

Up $1,589 (+746%) from 2017

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin46th percentile

Revenue

Down

$334,953

Down $19,877 (-5.6%) from 2017

Expenses

Down

$326,596

Down $17,959 (-5.2%) from 2017

Net Income

Down

$8,357

Down $1,918 (-19%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth67th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2011: $63,002Liabilities 2011: $0Net Assets 2011: $63,0022011Assets 2012: $61,475Liabilities 2012: $235Net Assets 2012: $61,2402012Assets 2013: $58,821Liabilities 2013: $291Net Assets 2013: $58,5302013Assets 2014: $65,126Liabilities 2014: $507Net Assets 2014: $64,6192014Assets 2015: $51,912Liabilities 2015: $489Net Assets 2015: $51,4232015Assets 2017: $59,037Liabilities 2017: $213Net Assets 2017: $58,8242017Assets 2018: $68,981Liabilities 2018: $1,802Net Assets 2018: $67,1792018Assets 2019: $71,538Liabilities 2019: $2,312Net Assets 2019: $69,2262019Assets 2020: $396,430Liabilities 2020: $3,326Net Assets 2020: $393,1042020Assets 2021: $648,592Liabilities 2021: $3,717Net Assets 2021: $644,8752021Assets 2022: $559,842Liabilities 2022: $15,905Net Assets 2022: $543,9372022Assets 2023: $419,221Liabilities 2023: $6,831Net Assets 2023: $412,3902023Assets 2024: $283,257Liabilities 2024: $6,853Net Assets 2024: $276,4042024Assets 2025: $270,081Liabilities 2025: $15,688Net Assets 2025: $254,3932025

Highlighted filing

2018

Assets$68,981
Liabilities$1,802
Net Assets$67,179
Open 2018 Filing

Operations Trend

Revenue Growth37th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $218,235Expenses 2011: $196,772Net Income 2011: $21,4632011Revenue 2012: $183,609Expenses 2012: $185,371Net Income 2012: -$1,7622012Revenue 2013: $199,560Expenses 2013: $202,270Net Income 2013: -$2,7102013Revenue 2014: $218,854Expenses 2014: $212,766Net Income 2014: $6,0882014Revenue 2015: $241,468Expenses 2015: $254,664Net Income 2015: -$13,1962015Revenue 2017: $354,830Expenses 2017: $344,555Net Income 2017: $10,2752017Revenue 2018: $334,953Expenses 2018: $326,596Net Income 2018: $8,3572018Revenue 2019: $383,943Expenses 2019: $381,896Net Income 2019: $2,0472019Revenue 2020: $543,187Expenses 2020: $219,309Net Income 2020: $323,8782020Revenue 2021: $632,452Expenses 2021: $385,076Net Income 2021: $247,3762021Revenue 2022: $425,722Expenses 2022: $526,660Net Income 2022: -$100,9382022Revenue 2023: $293,005Expenses 2023: $424,551Net Income 2023: -$131,5462023Revenue 2024: $323,223Expenses 2024: $459,209Net Income 2024: -$135,9862024Revenue 2025: $425,468Expenses 2025: $447,480Net Income 2025: -$22,0122025

Highlighted filing

2018

Revenue$334,953
Expenses$326,596
Net Income$8,357
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Aug 1, 2017 to Jul 31, 2018
Signed
Jun 14, 2019
Return Version
2017v2.3
Gross Receipts
$334,953
Mission and Program Overview

Mission

The hermansky-pudlak syndrome (hps) network's mission is to provide advocacy, fellowship, education and hope to individuals and families affected by hps. We fund and facilitate research. We develope and produce material and resourses for healthcare.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$42,235$54,078▲ $11,843
Land, Buildings, and Equipment, Net$2,326$1,531▼ $795
Total Assets$59,037$68,981▲ $9,944
Other Assets Total$14,476$13,372▼ $1,104
Liabilities
Other Liabilities$213$1,802▲ $1,589
Total Liabilities$213$1,802▲ $1,589
Net Assets / Fund Balance
Unrestricted Net Assets$44,346$58,759▲ $14,413
Temporarily Rstr Net Assets$14,478$8,420▼ $6,058
Total Net Assets Fund Balance$58,824$67,179▲ $8,355
Total Liabilities and Net Assets / Fund Balance$59,037$68,981▲ $9,944

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$1,531$13,013$14,544
Other Assets Org$13,372--
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Donna AppellPresidentFT$11,180$11,180
Heather KirkwoodVP/secPT$10,413$10,413

Board Members and Trustees

NameTitle
Richard AppellTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$334,953
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$334,953
Change in Net Assets
$8,357
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$211,393
Salaries, Compensation, and Employee Benefits$88,203
Grants and Similar Amounts Paid$27,000
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$61,621--$61,621
Grants to Domestic Orgs$27,000--$27,000
Comp Disqual Persons$11,180--$11,180
Conferences and Meetings$11,133--$11,133
Fees for Services Other$10,413--$10,413
Other Employee Benefits$9,133--$9,133
Information Technology$5,689$1,531-$7,220
Office Expenses$6,041$997-$7,038
Payroll Taxes$6,269--$6,269
Fees for Services Accounting-$5,800-$5,800
All Other Expenses$3,576$1,959-$5,535
Other Expenses$2,601$459-$3,060
Insurance$1,099$366-$1,465
Depreciation Depletion-$795-$795
Travel$371--$371
Advertising$140--$140
Total Functional Expenses$314,689$11,907$0$326,596
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA-Research$20,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Taxes Payable$1,802
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI

“The organization is provided with the conpleted reviewed financial statement and a copy of the tax retun to be reviewed prior to filing.”

Form 990, Page 6, Part VI, Line 2

“Donna appell richard appell pres husband & wife”

Form 990, Page 6, Part VI, Line 11B

“No review was or will be conducted.”

Form 990, Page 6, Part VI, Line 19

“The organization has it's governing documents, conflict of interest policy and financial statement available upon request.”

Filing and Contact Details

Filer

Filer Name
Hermansky Pudlak Syndrome Network
EIN
11-3283268
Phone
8007899477
Address
ONE SOUTH ROAD, OYSTER BAY COVE, NY 11771

Signing Officer

Name
Donna Appell
Title
President
Phone
0800789947
Signed
2019-06-14

Organization Details

Principal Officer
Donna Appell
Formed
1995
Legal Domicile
Ny
Voting Board Members
3
Independent Board Members
0
Employees
5

Preparer

Firm
Weissberg & Speller Cpas
Address
3601 HEMPSTEAD TPKE STE 200, LEVITTOWN, NY 11756-1331
Preparer
John W Speller
Phone
5167962727
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“The hermansky-pudlak syndrome (hps) network's mission is to provide advocacy, fellowship, education and hope to individuals and families affected by hps. We fund and facilitate research. We develope and produce material and resourses for healthcare.”

Form 990, Part XI, Line 9

“ROUNDING -2”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt013013
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt014544
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt01802
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0PAYROLL TAXES PAYABLE
IRS990ScheduleD/TotalBookValueLandBuildingsAmt01531
IRS990ScheduleD/TotalBookValueOtherAssetsAmt013372
IRS990ScheduleD/TotalLiabilityAmt01802
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IRS990ScheduleI/RecipientTable/CashGrantAmt020000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
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IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt03401 CIVIC CENTER BLVD
IRS990ScheduleI/RecipientTable/USAddress/CityNm0PHILADELPHIA
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IRS990ScheduleI/RecipientTable/USAddress/ZIPCd019104
IRS990ScheduleI/Total501c3OrgCnt02
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IRS990/ScheduleORequiredInd0false
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION IS PROVIDED WITH THE CONPLETED REVIEWED FINANCIAL STATEMENT AND A COPY OF THE TAX RETUN TO BE REVIEWED PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DONNA APPELL RICHARD APPELL PRES HUSBAND & WIFE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3NO REVIEW WAS OR WILL BE CONDUCTED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION HAS IT'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENT AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5ROUNDING -2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
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IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
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IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt08420
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
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IRS990/TotalAssetsEOYAmt068981
IRS990/TotalAssetsGrp/BOYAmt059037
IRS990/TotalAssetsGrp/EOYAmt068981
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IRS990/TotalContributionsAmt0334953
IRS990/TotalEmployeeCnt05
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt011907
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0314689
IRS990/TotalFunctionalExpensesGrp/TotalAmt0326596
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0213
IRS990/TotalLiabilitiesEOYAmt01802
IRS990/TotalLiabilitiesGrp/BOYAmt0213
IRS990/TotalLiabilitiesGrp/EOYAmt01802
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt058824
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt067179
IRS990/TotalProgramServiceExpensesAmt0314689
IRS990/TotalReportableCompFromOrgAmt021593
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0334953
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt068981
IRS990/TravelGrp/ProgramServicesAmt0371
IRS990/TravelGrp/TotalAmt0371
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt044346
IRS990/UnrestrictedNetAssetsGrp/EOYAmt058759
IRS990/USAddress/AddressLine1Txt0ONE SOUTH ROAD
IRS990/USAddress/CityNm0OYSTER BAY COVE
IRS990/USAddress/StateAbbreviationCd0NY
IRS990/USAddress/ZIPCd0117711905
IRS990/VotingMembersGoverningBodyCnt03
IRS990/VotingMembersIndependentCnt00
IRS990/WebsiteAddressTxt0WWW.HPSNETWORK.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02019-02-21 02:37:17Z
ReturnHeader/BusinessOfficerGrp/PersonNm0DONNA APPELL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum00800789947
ReturnHeader/BusinessOfficerGrp/SignatureDt02019-06-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0HERMANSKY PUDLAK SYNDROME NETWORK
ReturnHeader/Filer/BusinessNameControlTxt0HERM
ReturnHeader/Filer/EIN0113283268
ReturnHeader/Filer/PhoneNum08007899477
ReturnHeader/Filer/USAddress/AddressLine1Txt0ONE SOUTH ROAD
ReturnHeader/Filer/USAddress/CityNm0OYSTER BAY COVE
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ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0D0E01CCC05217AB1D45FB5E2505F7A1D668A7285
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0C3ACC4380F5398BFE1833180CA913855BF20A3AC
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt072.69.180.156
ReturnHeader/FilingSecurityInformation/IPDt02019-06-17
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0CD
ReturnHeader/FilingSecurityInformation/IPTm008:25:38
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0113179015
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0WEISSBERG & SPELLER CPAS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt03601 HEMPSTEAD TPKE STE 200
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0LEVITTOWN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0117561331
ReturnHeader/PreparerPersonGrp/PhoneNum05167962727
ReturnHeader/PreparerPersonGrp/PreparationDt02019-06-17
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JOHN W SPELLER
ReturnHeader/ReturnTs02019-06-17T08:25:38-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02017-08-01
ReturnHeader/TaxPeriodEndDt02018-07-31
ReturnHeader/TaxYr02017

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$68,981
Liabilities
$1,802
Net assets
$67,179
Revenue
$334,953
Expenses
$326,596
Net income
$8,357
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$2.70$0.16$2.54$4.25$4.47$0.22
2024Detailed filing. Detailed filing data is available for this year.$2.83$0.07$2.76$3.23$4.59$1.36
2023Detailed filing. Detailed filing data is available for this year.$4.19$0.07$4.12$2.93$4.25$1.32
2022Detailed filing. Detailed filing data is available for this year.$5.60$0.16$5.44$4.26$5.27$1.01
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.49$0.04$6.45$6.32$3.85$2.47
2020Detailed filing. Detailed filing data is available for this year.$3.96$0.03$3.93$5.43$2.19$3.24
2019Detailed filing. Detailed filing data is available for this year.$0.72$0.02$0.69$3.84$3.82$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.69$0.02$0.67$3.35$3.27$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.59$0.00$0.59$3.55$3.45$0.10
2015Detailed filing. Detailed filing data is available for this year.$0.52$0.00$0.51$2.41$2.55$0.13
2014Detailed filing. Detailed filing data is available for this year.$0.65$0.01$0.65$2.19$2.13$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.59$0.00$0.59$2.00$2.02$0.03
2012Summary only. Only limited summary data is available for this year.$0.61$0.00$0.61$1.84$1.85$0.02
2011Summary only. Only limited summary data is available for this year.$0.63$0.00$0.63$2.18$1.97$0.21