Civic Intelligence

Hermansky Pudlak Syndrome Network Inc.

990 • Fiscal year 2017 • EIN 11-3283268

Aug 01, 2016 to Jul 31, 2017 • Filed on Jun 05, 2018

Organization ProfileWWW.HPSNETWORK.ORG
One South RoadOyster Bay Cove, NY 11771-1905

(800) 789-9477

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

53rd percentile

0.00x

Higher debt load relative to assets than 53% of similar nonprofits.

2017 filings • NTEE P • <$500k nonprofits • Source year 2017

Liabilities / Revenue

50th percentile

0.00x

Higher debt load relative to revenue than 50% of similar nonprofits.

2017 filings • NTEE P • <$500k nonprofits • Source year 2017

Net Margin

48th percentile

2.9%

Higher net margin than 48% of similar nonprofits.

2017 filings • NTEE P • <$500k nonprofits • Source year 2017

Top Officer Pay

79th percentile

$14,235

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 4.0% of source-year revenue.

2017 filings • NTEE P • <$500k nonprofits • Source year 2017

Asset Growth

54th percentile

6.6%

Faster asset growth than 54% of similar nonprofits.

2017 filings • NTEE P • <$500k nonprofits • Annualized from 2015 to 2017

Revenue Growth

73rd percentile

21%

Faster revenue growth than 73% of similar nonprofits.

2017 filings • NTEE P • <$500k nonprofits • Annualized from 2015 to 2017

Balance Sheet
Liabilities / Assets53rd percentile

Assets

Up

$59,037

Up $7,125 (+14%) from 2015

Net Assets

Up

$58,824

Up $7,401 (+14%) from 2015

Liabilities

Down

$213

Down $276 (-56%) from 2015

Revenue And Expenses
Liabilities / Revenue50th percentileNet Margin48th percentile

Revenue

Up

$354,830

Up $113,362 (+47%) from 2015

Expenses

Up

$344,555

Up $89,891 (+35%) from 2015

Net Income

Up

$10,275

Up $23,471 (+178%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth54th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2011: $63,002Liabilities 2011: $0Net Assets 2011: $63,0022011Assets 2012: $61,475Liabilities 2012: $235Net Assets 2012: $61,2402012Assets 2013: $58,821Liabilities 2013: $291Net Assets 2013: $58,5302013Assets 2014: $65,126Liabilities 2014: $507Net Assets 2014: $64,6192014Assets 2015: $51,912Liabilities 2015: $489Net Assets 2015: $51,4232015Assets 2017: $59,037Liabilities 2017: $213Net Assets 2017: $58,8242017Assets 2018: $68,981Liabilities 2018: $1,802Net Assets 2018: $67,1792018Assets 2019: $71,538Liabilities 2019: $2,312Net Assets 2019: $69,2262019Assets 2020: $396,430Liabilities 2020: $3,326Net Assets 2020: $393,1042020Assets 2021: $648,592Liabilities 2021: $3,717Net Assets 2021: $644,8752021Assets 2022: $559,842Liabilities 2022: $15,905Net Assets 2022: $543,9372022Assets 2023: $419,221Liabilities 2023: $6,831Net Assets 2023: $412,3902023Assets 2024: $283,257Liabilities 2024: $6,853Net Assets 2024: $276,4042024Assets 2025: $270,081Liabilities 2025: $15,688Net Assets 2025: $254,3932025

Highlighted filing

2017

Assets$59,037
Liabilities$213
Net Assets$58,824
Open 2017 Filing

Operations Trend

Revenue Growth73rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $218,235Expenses 2011: $196,772Net Income 2011: $21,4632011Revenue 2012: $183,609Expenses 2012: $185,371Net Income 2012: -$1,7622012Revenue 2013: $199,560Expenses 2013: $202,270Net Income 2013: -$2,7102013Revenue 2014: $218,854Expenses 2014: $212,766Net Income 2014: $6,0882014Revenue 2015: $241,468Expenses 2015: $254,664Net Income 2015: -$13,1962015Revenue 2017: $354,830Expenses 2017: $344,555Net Income 2017: $10,2752017Revenue 2018: $334,953Expenses 2018: $326,596Net Income 2018: $8,3572018Revenue 2019: $383,943Expenses 2019: $381,896Net Income 2019: $2,0472019Revenue 2020: $543,187Expenses 2020: $219,309Net Income 2020: $323,8782020Revenue 2021: $632,452Expenses 2021: $385,076Net Income 2021: $247,3762021Revenue 2022: $425,722Expenses 2022: $526,660Net Income 2022: -$100,9382022Revenue 2023: $293,005Expenses 2023: $424,551Net Income 2023: -$131,5462023Revenue 2024: $323,223Expenses 2024: $459,209Net Income 2024: -$135,9862024Revenue 2025: $425,468Expenses 2025: $447,480Net Income 2025: -$22,0122025

Highlighted filing

2017

Revenue$354,830
Expenses$344,555
Net Income$10,275
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Aug 1, 2016 to Jul 31, 2017
Signed
Jun 5, 2018
Return Version
2016v3.1
Gross Receipts
$354,830
Mission and Program Overview

Mission

The hermansky-pudlak syndrome (hps) network's mission is to provide advocacy, fellowship, education and hope to individuals and families affected by hps. We fund and facilitate research. We develope and produce material and resourses for healthcare.

To promote medical research and awareness

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$13,565$42,235▲ $28,670
Savings and Temporary Cash Investments$31,469--
Land, Buildings, and Equipment, Net$3,308$2,326▼ $982
Total Assets$49,542$59,037▲ $9,495
Other Assets Total$1,200$14,476▲ $13,276
Liabilities
Other Liabilities$993$213▼ $780
Total Liabilities$993$213▼ $780
Net Assets / Fund Balance
Unrestricted Net Assets$36,816$44,346▲ $7,530
Temporarily Rstr Net Assets$11,733$14,478▲ $2,745
Total Net Assets Fund Balance$48,549$58,824▲ $10,275
Total Liabilities and Net Assets / Fund Balance$49,542$59,037▲ $9,495

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$2,326$2,584$4,910
Other Assets Org$14,476--
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Heather KirkwoodVP/secPT$14,235$14,235
Donna AppellPresidentFT$9,960$9,960

Board Members and Trustees

NameTitle
Richard AppellTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$354,830
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$344,830
Change in Net Assets
$10,275
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$217,743
Salaries, Compensation, and Employee Benefits$81,812
Grants and Similar Amounts Paid$45,000
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Comp Disqual Persons$75,473--$75,473
Grants to Domestic Orgs$45,000--$45,000
Conferences and Meetings$14,888--$14,888
Fees for Services Other$14,235--$14,235
Information Technology$11,495$2,699-$14,194
All Other Expenses$9,536$765-$10,301
Payroll Taxes$6,339--$6,339
Travel$4,561--$4,561
Insurance$2,649$883-$3,532
Fees for Services Accounting-$3,300-$3,300
Other Expenses$2,210$737-$2,947
Office Expenses$1,565$346-$1,911
Depreciation Depletion-$982-$982
Advertising-$282-$282
Total Functional Expenses$334,561$9,994$0$344,555
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
American Thoracic SocietyNew York, NY-Research Reasearch$20,000
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA--$20,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Taxes Payable$213
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“No review was or will be conducted.”

Form 990, Page 6, Part VI, Line 19

“The organization has it's governing documents, conflict of interest policy and financial statement available upon request.”

Filing and Contact Details

Filer

Filer Name
Hermansky Pudlak Syndrome Network
EIN
11-3283268
Phone
8007899477
Address
ONE SOUTH ROAD, OYSTER BAY COVE, NY 11771-1905

Signing Officer

Name
Donna Appell
Title
President
Phone
0800789947
Signed
2018-06-05

Organization Details

Principal Officer
Donna Appell
Formed
1995
Legal Domicile
Ny
Voting Board Members
3
Independent Board Members
3
Employees
5

Preparer

Firm
Weissberg & Speller Cpas
Address
3601 HEMPSTEAD TPKE STE 200, LEVITTOWN, NY 11756-1331
Preparer
John W Speller
Phone
5167962727
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“The hermansky-pudlak syndrome (hps) network's mission is to provide advocay, fellowship, education and hope to individuals and families affected by hps. The organization funds and facilitates research. The organization developes and produces educational material and resources for healthcare.”

Form 990, Page 2, Part III, Line 2

“Compiles patient data to assist in research, runs conferences to collect and provide disease information and provides information and support to affected families.”

Raw XML Appendix375 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
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IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt02584
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt04910
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0213
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0PAYROLL TAXES PAYABLE
IRS990ScheduleD/TotalBookValueLandBuildingsAmt02326
IRS990ScheduleD/TotalBookValueOtherAssetsAmt014476
IRS990ScheduleD/TotalLiabilityAmt0213
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IRS990ScheduleI/RecipientTable/CashGrantAmt020000
IRS990ScheduleI/RecipientTable/CashGrantAmt120000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH REASEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0AMERICAN THORACIC SOCIETY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CHILDREN'S HOSPITAL OF PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt025 BROADWAY 18TH FL
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt13401 CIVIC CENTER BLVD
IRS990ScheduleI/RecipientTable/USAddress/CityNm0NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm1PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1PA
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IRS990ScheduleI/RecipientTable/USAddress/ZIPCd119104
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0false
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCAY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. THE ORGANIZATION FUNDS AND FACILITATES RESEARCH. THE ORGANIZATION DEVELOPES AND PRODUCES EDUCATIONAL MATERIAL AND RESOURCES FOR HEALTHCARE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2NO REVIEW WAS OR WILL BE CONDUCTED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION HAS IT'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENT AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 2, PART III, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0true
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
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IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt014478
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt049542
IRS990/TotalAssetsEOYAmt059037
IRS990/TotalAssetsGrp/BOYAmt049542
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IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0354830
IRS990/TotalEmployeeCnt05
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt09994
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0334561
IRS990/TotalFunctionalExpensesGrp/TotalAmt0344555
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0993
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IRS990/TotalLiabilitiesGrp/EOYAmt0213
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IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt058824
IRS990/TotalOtherProgSrvcRevenueAmt0354830
IRS990/TotalProgramServiceExpensesAmt0334561
IRS990/TotalReportableCompFromOrgAmt024195
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0354830
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt049542
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt059037
IRS990/TravelGrp/ProgramServicesAmt04561
IRS990/TravelGrp/TotalAmt04561
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt036816
IRS990/UnrestrictedNetAssetsGrp/EOYAmt044346
IRS990/USAddress/AddressLine1Txt0ONE SOUTH ROAD
IRS990/USAddress/CityNm0OYSTER BAY COVE
IRS990/USAddress/StateAbbreviationCd0NY
IRS990/USAddress/ZIPCd011771
IRS990/VotingMembersGoverningBodyCnt03
IRS990/VotingMembersIndependentCnt03
IRS990/WebsiteAddressTxt0WWW.HPSNETWORK.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02018-06-14 16:35:46Z
ReturnHeader/BusinessOfficerGrp/PersonNm0DONNA APPELL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum00800789947
ReturnHeader/BusinessOfficerGrp/SignatureDt02018-06-05
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0HERMANSKY PUDLAK SYNDROME NETWORK
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0%DONNA APPELL
ReturnHeader/Filer/BusinessNameControlTxt0HERM
ReturnHeader/Filer/EIN0113283268
ReturnHeader/Filer/PhoneNum08007899477
ReturnHeader/Filer/USAddress/AddressLine1Txt0ONE SOUTH ROAD
ReturnHeader/Filer/USAddress/CityNm0OYSTER BAY COVE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd0117711905
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0C3ACC4380F5398BFE1833180CA913855BF20A3AC
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0C3ACC4380F5398BFE1833180CA913855BF20A3AC
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0113179015
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0WEISSBERG & SPELLER CPAS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt03601 HEMPSTEAD TPKE STE 200
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0LEVITTOWN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0117561331
ReturnHeader/PreparerPersonGrp/PhoneNum05167962727
ReturnHeader/PreparerPersonGrp/PreparationDt02018-06-11
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JOHN W SPELLER
ReturnHeader/ReturnTs02018-06-11T10:55:29-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02016-08-01
ReturnHeader/TaxPeriodEndDt02017-07-31
ReturnHeader/TaxYr02016

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$59,037
Liabilities
$213
Net assets
$58,824
Revenue
$354,830
Expenses
$344,555
Net income
$10,275
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$2.70$0.16$2.54$4.25$4.47$0.22
2024Detailed filing. Detailed filing data is available for this year.$2.83$0.07$2.76$3.23$4.59$1.36
2023Detailed filing. Detailed filing data is available for this year.$4.19$0.07$4.12$2.93$4.25$1.32
2022Detailed filing. Detailed filing data is available for this year.$5.60$0.16$5.44$4.26$5.27$1.01
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.49$0.04$6.45$6.32$3.85$2.47
2020Detailed filing. Detailed filing data is available for this year.$3.96$0.03$3.93$5.43$2.19$3.24
2019Detailed filing. Detailed filing data is available for this year.$0.72$0.02$0.69$3.84$3.82$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.69$0.02$0.67$3.35$3.27$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.59$0.00$0.59$3.55$3.45$0.10
2015Detailed filing. Detailed filing data is available for this year.$0.52$0.00$0.51$2.41$2.55$0.13
2014Detailed filing. Detailed filing data is available for this year.$0.65$0.01$0.65$2.19$2.13$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.59$0.00$0.59$2.00$2.02$0.03
2012Summary only. Only limited summary data is available for this year.$0.61$0.00$0.61$1.84$1.85$0.02
2011Summary only. Only limited summary data is available for this year.$0.63$0.00$0.63$2.18$1.97$0.21