Civic Intelligence

Sjogren'S Syndrome Foundation Inc

990 • Fiscal year 2020 • EIN 11-2779073

Jul 01, 2019 to Jun 30, 2020 • Filed on Nov 11, 2020

Organization ProfileWWW.SJOGRENS.ORG

View Organization Page

10701 Parkridge Blvd No 170Reston, VA 20191

(301) 530-4420

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

77th percentile

0.41x

Higher debt load relative to assets than 77% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

74th percentile

0.41x

Higher debt load relative to revenue than 74% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

42nd percentile

1.7%

Higher net margin than 42% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

96th percentile

$354,118

Higher top officer pay than 96% of similar nonprofits.

Top officer pay equals 14.3% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

74th percentile

22%

Faster asset growth than 74% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

17th percentile

-28%

Faster revenue growth than 17% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets77th percentile

Assets

Up

$2,458,865

Up $448,893 (+22%) from 2019

Net Assets

Up

$1,441,172

Up $317 (+0.0%) from 2019

Liabilities

Up

$1,017,693

Up $448,576 (+79%) from 2019

Revenue And Expenses
Liabilities / Revenue74th percentileNet Margin42nd percentile

Revenue

Down

$2,468,773

Down $947,616 (-28%) from 2019

Expenses

Up

$2,427,639

Up $85,356 (+3.6%) from 2019

Net Income

Down

$41,134

Down $1,032,972 (-96%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth74th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $745,613Liabilities 2011: $512,991Net Assets 2011: $232,6222011Assets 2012: $642,235Liabilities 2012: $503,490Net Assets 2012: $138,7452012Assets 2013: $493,898Liabilities 2013: $528,624Net Assets 2013: -$34,7262013Assets 2014: $481,395Liabilities 2014: $435,995Net Assets 2014: $45,4002014Assets 2015: $509,899Liabilities 2015: $410,110Net Assets 2015: $99,7892015Assets 2016: $625,488Liabilities 2016: $390,095Net Assets 2016: $235,3932016Assets 2017: $679,709Liabilities 2017: $325,192Net Assets 2017: $354,5172017Assets 2018: $953,133Liabilities 2018: $586,984Net Assets 2018: $366,1492018Assets 2019: $2,009,972Liabilities 2019: $569,117Net Assets 2019: $1,440,8552019Assets 2020: $2,458,865Liabilities 2020: $1,017,693Net Assets 2020: $1,441,1722020Assets 2021: $2,612,292Liabilities 2021: $1,048,293Net Assets 2021: $1,563,9992021Assets 2022: $2,799,424Liabilities 2022: $728,882Net Assets 2022: $2,070,5422022Assets 2023: $3,694,277Liabilities 2023: $1,128,554Net Assets 2023: $2,565,7232023Assets 2024: $4,167,805Liabilities 2024: $1,255,608Net Assets 2024: $2,912,1972024Assets 2025: $5,240,223Liabilities 2025: $1,212,835Net Assets 2025: $4,027,3882025

Highlighted filing

2020

Assets$2,458,865
Liabilities$1,017,693
Net Assets$1,441,172
Open 2020 Filing

Operations Trend

Revenue Growth17th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $2,037,3212011Expenses 2012: $1,843,4972012Revenue 2013: $1,627,409Expenses 2013: $1,830,338Net Income 2013: -$202,9292013Revenue 2014: $1,800,498Expenses 2014: $1,740,075Net Income 2014: $60,4232014Revenue 2015: $1,919,622Expenses 2015: $1,852,733Net Income 2015: $66,8892015Revenue 2016: $2,235,958Expenses 2016: $2,083,181Net Income 2016: $152,7772016Revenue 2017: $2,268,106Expenses 2017: $2,169,805Net Income 2017: $98,3012017Revenue 2018: $2,318,207Expenses 2018: $2,311,551Net Income 2018: $6,6562018Revenue 2019: $3,416,389Expenses 2019: $2,342,283Net Income 2019: $1,074,1062019Revenue 2020: $2,468,773Expenses 2020: $2,427,639Net Income 2020: $41,1342020Revenue 2021: $2,961,602Expenses 2021: $2,930,916Net Income 2021: $30,6862021Revenue 2022: $2,943,480Expenses 2022: $2,322,444Net Income 2022: $621,0362022Revenue 2023: $3,324,713Expenses 2023: $2,841,846Net Income 2023: $482,8672023Revenue 2024: $3,497,666Expenses 2024: $3,174,412Net Income 2024: $323,2542024Revenue 2025: $5,277,586Expenses 2025: $4,223,979Net Income 2025: $1,053,6072025

Highlighted filing

2020

Revenue$2,468,773
Expenses$2,427,639
Net Income$41,134
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
Nov 11, 2020
Return Version
2019v5.1
Gross Receipts
$3,477,980
Mission and Program Overview

Mission

The foundation's mission is to educate patients and their families about sjogren's syndrome, to increase public and professional awareness of sjogren's syndrome and to encourage research into new treatments and a cure.

See schedule o for description of organization's primary mission.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,051,275$1,083,977▲ $32,702
Savings and Temporary Cash Investments$505,268$669,735▲ $164,467
Cash and Non-Interest-Bearing Accounts$180,793$342,524▲ $161,731
Land, Buildings, and Equipment, Net$161,714$132,567▼ $29,147
Accounts Receivable$69,094$119,474▲ $50,380
Intangible Assets-$62,772-
Prepaid Expenses and Deferred Charges$28,676$32,882▲ $4,206
Inventories for Sale or Use$4,203$5,985▲ $1,782
Total Assets$2,009,972$2,458,865▲ $448,893
Other Assets Total$8,949$8,949→ $0
Liabilities
Deferred Revenue$106,848$345,155▲ $238,307
Grants Payable$208,750$258,750▲ $50,000
Mortgage Notes Payable Secured by Investment Property-$211,800-
Other Liabilities$199,879$170,991▼ $28,888
Accounts Payable and Accrued Expenses$53,640$30,997▼ $22,643
Total Liabilities$569,117$1,017,693▲ $448,576
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,072,896$1,000,896▼ $72,000
Net Assets Without Donor Restrictions$367,959$440,276▲ $72,317
Total Net Assets Fund Balance$1,440,855$1,441,172▲ $317
Total Liabilities and Net Assets / Fund Balance$2,009,972$2,458,865▲ $448,893

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$110,133$55,970$166,103
Equipment$22,434$86,101$108,535

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$1,072,896--$72,000$1,000,896
2018-$1,122,896-$50,000$1,072,896
Compensation and Service Providers
Top Officer Pay96th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven TaylorChief Executive OfficerFT$243,800$110,318$354,118
Sheriese DefruscioVice President of MarketingFT$121,135$24,511$145,646
Katherine HammittVice President of Medical and Scientific ResearchFT$136,629$5,066$141,695
Ben BasloeVice President of PhilanthropyFT$112,592$16,111$128,703

Board Members and Trustees

NameTitle
Donald E Thomas MdChair-elect
Janet E ChurchChairman
Ava Wu DdsDirector
Chadwick Johr MdDirector
Cynthia LopynskiDirector
David SchraderDirector
Esen K Akpek MdDirector
Jason Nichols Od PhdDirector
Jonathan Morse MscDirector
Michelle WallaceDirector
Patricia Hurley MscDirector
Scott Lieberman MdDirector
Susan BarajasDirector
Theresa Lawrence Ford MdDirector
Thomas D SuttonDirector
Timothy Niewold Md FacrDirector
Tricia GoodingSecretary
Monica Mcgill Ed DTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,004,952
Program Service Revenue
$391,049
Investment Income
$67,055
Other Revenue
$5,717
All Other Contributions
$1,777,616
Change in Net Assets
$41,134

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded4$62,651Fair Market Value (FMV)
Total Noncash Contributions4$62,651-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,473,499
Revenue Not Reported on Financial Statements
$-4,726
Revenue Not Reported on Form 990
$-16,581
Other Revenue Adjustments
$-9,666
Total Revenue per Audited Statements
$2,456,918
Total Revenue per Form 990
$2,468,773
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,520,332
Other Expenses$732,307
Total Fundraising Expense$235,337
Grants and Similar Amounts Paid$175,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$802,632$39,748$85,475$927,855
Current Officers, Directors, Trustees, and Key Employees$329,936$16,505$29,460$375,901
Grants to Domestic Orgs$175,000--$175,000
All Other Expenses$94,343$1,077$34,736$130,156
Other Employee Benefits$103,281$5,537$9,222$118,040
Occupancy$78,069$3,878$6,971$88,918
Payroll Taxes$70,894$3,521$6,330$80,745
Travel$49,363--$49,363
Fees for Services Other$42,015$319$1,672$44,006
Other Expenses$37,991$1,889$3,393$43,273
Depreciation Depletion$29,620$1,471$2,645$33,736
Fees for Services Accounting-$28,699-$28,699
Information Technology$23,086$1,148$2,062$26,296
Conferences and Meetings$24,846--$24,846
Pension Plan Contributions$15,559$842$1,390$17,791
Insurance$7,090$352$633$8,075
Fees for Service Investment Mgmnt Fees-$4,940-$4,940
Interest-$120-$120
Total Functional Expenses$2,079,834$112,468$235,337$2,427,639

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,456,601
Total Expenses per Form 990$2,427,639
Expenses per Audited Statements$2,422,699
Expenses Not Reported on Form 990$33,902
Expenses Not Reported on Financial Statements$4,940
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Ucla School of DentistryLos Angeles, CASection 501(c)(3)Research Grant$75,000
University of FloridaGainesville, FLSection 501(c)(3)Research Grant$75,000
Boston UniversityBoston, MASection 501(c)(3)Research Grant$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$12,962
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walkabouts and Sips Events$214,774-$12,962-
Partner Programs$12,562---
Total Events$227,336-$12,962$-12,962
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Tenant Allowance$110,113
Deferred Rent$52,552
Capital Lease Payable$8,326
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Board members will have a week to review 990 and make comments before it is filed. The 990 will be read by the chief executive officer before it is signed.”

Form 990, Part VI, Section B, Line 12C

“Each director, officer, committee member or employee must annually review a copy of this policy and shall be reminded of the obligation to conform to it. Each covered person must annually complete a conflict of interest information form identifying any relationships, positions or circumstances in which the covered person is involved that he or she believes could create a conflict of interest.”

Form 990, Part VI, Section B, Line 15A

“Board annually reviews comparable salary and bonus information and compares ceo salary.”

Form 990, Part VI, Section C, Line 19

“Financials are posted on the foundation's website for donors, patients and visitors to review. Governance documents, conflict of interest, etc. Are all available by contacting the main office, free of charge. Also the copies of our 990s and financials are available by contacting the main office.”

Filing and Contact Details

Filer

Filer Name
SJOGREN'S SYNDROME FOUNDATION INC
EIN
11-2779073
Phone
3015304420
Address
10701 PARKRIDGE BLVD NO 170, RESTON, VA 20191

Signing Officer

Name
Steven Taylor
Title
Chief Executive Officer
Phone
3015304420
Signed
2020-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steven Taylor
Formed
1983
Legal Domicile
Ny
Voting Board Members
18
Independent Board Members
18
Employees
14
Volunteers
550

Preparer

Firm
Renner and Company CPA Pc
Address
700 NORTH FAIRFAX STREET SUITE 400, ALEXANDRIA, VA 22314
Preparer
Andrew E Young CPA
Phone
7035351200
Supplemental Narrative

Additional Explanations

Form 990, Part I, Line 1

“Organization mission: the foundation's mission is to provide education and resources to sjogren's patients and their loved ones, provide credible resources/education to healthcare professionals, serve as the voice for all sjogren's patients and lead and fund innovative research projects.”

Form 990, Part XII, Line 2C

“The foundation has not changed this process from the prior year. The board of directors is responsible for oversight over the independent audit and selection of the independent auditors.”

Financial Statement Notes

PART V, LINE 4:

“The foundation's endowment funds consist of a bequest that was restricted for the purposes of research.”

PART X, LINE 2:

“In accounting for uncertainty in income taxes, accounting standards require an entity to recognize the financial statement impact of a tax position when it is more-likely-than-not that the position will not be sustained upon examination. Management evaluated the foundation's tax positions and concluded there are no uncertain tax positions that require adjustment to the financial statements to comply with the provisions of this guidance.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Reclassification of costs of goods sold -8,940. Loss on disposal of asset -726.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Reclassification of costs of goods sold 8,940. Loss on disposal of asset 726.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm2TRICIA GOODING
IRS990/Form990PartVIISectionAGrp/PersonNm3MONICA MCGILL ED D
IRS990/Form990PartVIISectionAGrp/PersonNm4ESEN K AKPEK MD
IRS990/Form990PartVIISectionAGrp/PersonNm5SUSAN BARAJAS
IRS990/Form990PartVIISectionAGrp/PersonNm6PATRICIA HURLEY MSC
IRS990/Form990PartVIISectionAGrp/PersonNm7CHADWICK JOHR MD
IRS990/Form990PartVIISectionAGrp/PersonNm8THERESA LAWRENCE FORD MD
IRS990/Form990PartVIISectionAGrp/PersonNm9SCOTT LIEBERMAN MD
IRS990/Form990PartVIISectionAGrp/PersonNm10CYNTHIA LOPYNSKI
IRS990/Form990PartVIISectionAGrp/PersonNm11JONATHAN MORSE MSC
IRS990/Form990PartVIISectionAGrp/PersonNm12JASON NICHOLS OD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm13TIMOTHY NIEWOLD MD FACR
IRS990/Form990PartVIISectionAGrp/PersonNm14DAVID SCHRADER
IRS990/Form990PartVIISectionAGrp/PersonNm15THOMAS D SUTTON
IRS990/Form990PartVIISectionAGrp/PersonNm16MICHELLE WALLACE
IRS990/Form990PartVIISectionAGrp/PersonNm17AVA WU DDS
IRS990/Form990PartVIISectionAGrp/PersonNm18STEVEN TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm19KATHERINE HAMMITT
IRS990/Form990PartVIISectionAGrp/PersonNm20SHERIESE DEFRUSCIO
IRS990/Form990PartVIISectionAGrp/PersonNm21BEN BASLOE
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19136629
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20121135
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21112592
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR-ELECT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHIEF EXECUTIVE OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt19VICE PRESIDENT OF MEDICAL AND SCIENTIFIC RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt20VICE PRESIDENT OF MARKETING
IRS990/Form990PartVIISectionAGrp/TitleTxt21VICE PRESIDENT OF PHILANTHROPY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/Form990TFiledInd01
IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0227336
IRS990/FundraisingDirectExpensesAmt012962
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/OtherAmt0-726
IRS990/GainOrLossGrp/SecuritiesAmt041232
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantAmt0175000
IRS990/GrantsPayableGrp/BOYAmt0208750
IRS990/GrantsPayableGrp/EOYAmt0258750
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0175000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0175000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01027811
IRS990/GrossReceiptsAmt03477980
IRS990/GrossSalesOfInventoryAmt021634
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt018
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02062
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01148
IRS990/InformationTechnologyGrp/ProgramServicesAmt023086
IRS990/InformationTechnologyGrp/TotalAmt026296
IRS990/InsuranceGrp/FundraisingAmt0633
IRS990/InsuranceGrp/ManagementAndGeneralAmt0352
IRS990/InsuranceGrp/ProgramServicesAmt07090
IRS990/InsuranceGrp/TotalAmt08075
IRS990/IntangibleAssetsGrp/EOYAmt062772
IRS990/InterestGrp/ManagementAndGeneralAmt0120
IRS990/InterestGrp/TotalAmt0120
IRS990/InventoriesForSaleOrUseGrp/BOYAmt04203
IRS990/InventoriesForSaleOrUseGrp/EOYAmt05985
IRS990/InvestmentIncomeGrp/ExclusionAmt026549
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt026549
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01051275
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01083977
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0142071
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0161714
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0132567
IRS990/LandBldgEquipCostOrOtherBssAmt0274638
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt0726
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0986579
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH PROJECTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt0211800
IRS990/NetAssetsOrFundBalancesBOYAmt01440855
IRS990/NetAssetsOrFundBalancesEOYAmt01441172
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt040506
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt040506
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-12962
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-12962
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt012694
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt012694
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-40817
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0367959
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0440276
IRS990/NoncashContributionsAmt062651
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06971
IRS990/OccupancyGrp/ManagementAndGeneralAmt03878
IRS990/OccupancyGrp/ProgramServicesAmt078069
IRS990/OccupancyGrp/TotalAmt088918
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt08949
IRS990/OtherAssetsTotalGrp/EOYAmt08949
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt09222
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt05537
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0103281
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0118040
IRS990/OtherExpensesGrp/Desc0PRINTING, DUPLICATING,
IRS990/OtherExpensesGrp/Desc1POSTAGE AND DELIVERY
IRS990/OtherExpensesGrp/Desc2AWARENESS ACTIVITIES
IRS990/OtherExpensesGrp/Desc3MAINTENANCE AND REPAIRS
IRS990/OtherExpensesGrp/FundraisingAmt035903
IRS990/OtherExpensesGrp/FundraisingAmt114858
IRS990/OtherExpensesGrp/FundraisingAmt2587
IRS990/OtherExpensesGrp/FundraisingAmt33393
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0845
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11577
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21889
IRS990/OtherExpensesGrp/ProgramServicesAmt062655
IRS990/OtherExpensesGrp/ProgramServicesAmt164223
IRS990/OtherExpensesGrp/ProgramServicesAmt269231
IRS990/OtherExpensesGrp/ProgramServicesAmt337991
IRS990/OtherExpensesGrp/TotalAmt099403
IRS990/OtherExpensesGrp/TotalAmt180658
IRS990/OtherExpensesGrp/TotalAmt269818
IRS990/OtherExpensesGrp/TotalAmt343273
IRS990/OtherLiabilitiesGrp/BOYAmt0199879
IRS990/OtherLiabilitiesGrp/EOYAmt0170991
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt01798
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01798
IRS990/OtherRevenueTotalAmt01798
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt085475
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt039748
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0802632
IRS990/OtherSalariesAndWagesGrp/TotalAmt0927855
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt06330
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03521
IRS990/PayrollTaxesGrp/ProgramServicesAmt070894
IRS990/PayrollTaxesGrp/TotalAmt080745
IRS990/PensionPlanContributionsGrp/FundraisingAmt01390
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0842
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt015559
IRS990/PensionPlanContributionsGrp/TotalAmt017791
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt028676
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt032882
IRS990/PrincipalOfficerNm0STEVEN TAYLOR
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,458,865
Liabilities
$1,017,693
Net assets
$1,441,172
Revenue
$2,468,773
Expenses
$2,427,639
Net income
$41,134
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.24$1.21$4.03$5.28$4.22$1.05
2024Detailed filing. Detailed filing data is available for this year.$4.17$1.26$2.91$3.50$3.17$0.32
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.69$1.13$2.57$3.32$2.84$0.48
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.80$0.73$2.07$2.94$2.32$0.62
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.61$1.05$1.56$2.96$2.93$0.03
2020Detailed filing. Detailed filing data is available for this year.$2.46$1.02$1.44$2.47$2.43$0.04
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.01$0.57$1.44$3.42$2.34$1.07
2018Detailed filing. Detailed filing data is available for this year.$0.95$0.59$0.37$2.32$2.31$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.33$0.35$2.27$2.17$0.10
2016Detailed filing. Detailed filing data is available for this year.$0.63$0.39$0.24$2.24$2.08$0.15
2015Detailed filing. Detailed filing data is available for this year.$0.51$0.41$0.10$1.92$1.85$0.07
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.44$0.05$1.80$1.74$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.49$0.53$0.03$1.63$1.83$0.20
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.64$0.50$0.14$1.84
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.51$0.23$2.04