Civic Intelligence

Sjogren'S Syndrome Foundation Inc

990 • Fiscal year 2014 • EIN 11-2779073

Jul 01, 2013 to Jun 30, 2014 • Filed on Nov 12, 2014

Organization ProfileWWW.SJOGRENS.ORG

View Organization Page

6707 Democracy Blvd No 325Reston, VA 20817

(301) 530-4420

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

89th percentile

0.91x

Higher debt load relative to assets than 89% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

65th percentile

0.24x

Higher debt load relative to revenue than 65% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

52nd percentile

3.4%

Higher net margin than 52% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

91st percentile

$214,025

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 11.9% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

30th percentile

-2.5%

Faster asset growth than 30% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

64th percentile

11%

Faster revenue growth than 64% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets89th percentile

Assets

Down

$481,395

Down $12,503 (-2.5%) from 2013

Net Assets

Up

$45,400

Up $80,126 (+231%) from 2013

Liabilities

Down

$435,995

Down $92,629 (-18%) from 2013

Revenue And Expenses
Liabilities / Revenue65th percentileNet Margin52nd percentile

Revenue

Up

$1,800,498

Up $173,089 (+11%) from 2013

Expenses

Down

$1,740,075

Down $90,263 (-4.9%) from 2013

Net Income

Up

$60,423

Up $263,352 (+130%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth30th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $745,613Liabilities 2011: $512,991Net Assets 2011: $232,6222011Assets 2012: $642,235Liabilities 2012: $503,490Net Assets 2012: $138,7452012Assets 2013: $493,898Liabilities 2013: $528,624Net Assets 2013: -$34,7262013Assets 2014: $481,395Liabilities 2014: $435,995Net Assets 2014: $45,4002014Assets 2015: $509,899Liabilities 2015: $410,110Net Assets 2015: $99,7892015Assets 2016: $625,488Liabilities 2016: $390,095Net Assets 2016: $235,3932016Assets 2017: $679,709Liabilities 2017: $325,192Net Assets 2017: $354,5172017Assets 2018: $953,133Liabilities 2018: $586,984Net Assets 2018: $366,1492018Assets 2019: $2,009,972Liabilities 2019: $569,117Net Assets 2019: $1,440,8552019Assets 2020: $2,458,865Liabilities 2020: $1,017,693Net Assets 2020: $1,441,1722020Assets 2021: $2,612,292Liabilities 2021: $1,048,293Net Assets 2021: $1,563,9992021Assets 2022: $2,799,424Liabilities 2022: $728,882Net Assets 2022: $2,070,5422022Assets 2023: $3,694,277Liabilities 2023: $1,128,554Net Assets 2023: $2,565,7232023Assets 2024: $4,167,805Liabilities 2024: $1,255,608Net Assets 2024: $2,912,1972024Assets 2025: $5,240,223Liabilities 2025: $1,212,835Net Assets 2025: $4,027,3882025

Highlighted filing

2014

Assets$481,395
Liabilities$435,995
Net Assets$45,400
Open 2014 Filing

Operations Trend

Revenue Growth64th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $2,037,3212011Expenses 2012: $1,843,4972012Revenue 2013: $1,627,409Expenses 2013: $1,830,338Net Income 2013: -$202,9292013Revenue 2014: $1,800,498Expenses 2014: $1,740,075Net Income 2014: $60,4232014Revenue 2015: $1,919,622Expenses 2015: $1,852,733Net Income 2015: $66,8892015Revenue 2016: $2,235,958Expenses 2016: $2,083,181Net Income 2016: $152,7772016Revenue 2017: $2,268,106Expenses 2017: $2,169,805Net Income 2017: $98,3012017Revenue 2018: $2,318,207Expenses 2018: $2,311,551Net Income 2018: $6,6562018Revenue 2019: $3,416,389Expenses 2019: $2,342,283Net Income 2019: $1,074,1062019Revenue 2020: $2,468,773Expenses 2020: $2,427,639Net Income 2020: $41,1342020Revenue 2021: $2,961,602Expenses 2021: $2,930,916Net Income 2021: $30,6862021Revenue 2022: $2,943,480Expenses 2022: $2,322,444Net Income 2022: $621,0362022Revenue 2023: $3,324,713Expenses 2023: $2,841,846Net Income 2023: $482,8672023Revenue 2024: $3,497,666Expenses 2024: $3,174,412Net Income 2024: $323,2542024Revenue 2025: $5,277,586Expenses 2025: $4,223,979Net Income 2025: $1,053,6072025

Highlighted filing

2014

Revenue$1,800,498
Expenses$1,740,075
Net Income$60,423
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2013 to Jun 30, 2014
Signed
Nov 12, 2014
Return Version
2013v3.0
Gross Receipts
$2,039,546
Mission and Program Overview

Mission

The foundation's mission is to educate patients and their families about sjogren's syndrome, to increase public and professional awareness of sjogren's syndrome and to encourage research into new treatments and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$338,859$306,986▼ $31,873
Accounts Receivable$70,904$81,882▲ $10,978
Cash and Non-Interest-Bearing Accounts$14,449$39,005▲ $24,556
Land, Buildings, and Equipment, Net$54,278$33,163▼ $21,115
Prepaid Expenses and Deferred Charges$4,769$8,171▲ $3,402
Inventories for Sale or Use$2,071$3,619▲ $1,548
Savings and Temporary Cash Investments$1,709$1,710▲ $1
Total Assets$493,898$481,395▼ $12,503
Other Assets Total$6,859$6,859→ $0
Liabilities
Accounts Payable and Accrued Expenses$152,404$157,572▲ $5,168
Deferred Revenue$117,929$113,115▼ $4,814
Grants Payable$190,000$111,250▼ $78,750
Other Liabilities$68,291$54,058▼ $14,233
Total Liabilities$528,624$435,995▼ $92,629
Net Assets / Fund Balance
Unrestricted Net Assets$-34,726$45,400▲ $80,126
Total Net Assets Fund Balance$-34,726$45,400▲ $80,126
Total Liabilities and Net Assets / Fund Balance$493,898$481,395▼ $12,503

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$33,163$96,015$129,178
Other Land Buildings$0$60,846$60,846
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven TaylorChief Executive OfficerFT$155,700$58,325$214,025

Board Members and Trustees

NameTitle
S Lance Forstot MdChairman of the Board
Ken EconomouChairman-elect
Denise Faustman Md PhdMsab Chairman
Cathy IngelsDirector
Herbert Baraf Md Facp FacrDirector
Jack FaricelliDirector
Janet E ChurchDirector
Mary McneilDirector
Michael Brennan DdsDirector
Nancy L Carteron Md FacrDirector
Shari RoodDirector
Stephen Cohen OdDirector
Theresa Lawrence Ford MdDirector
Vidya Sankar Dmd MhsDirector
Pamela S BrownSecretary
Kathryn P MccarrenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,273,958
Program Service Revenue
$467,926
Investment Income
$19,711
Other Revenue
$38,903
All Other Contributions
$916,060
Change in Net Assets
$60,423

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,823,383
Revenue Not Reported on Financial Statements
$-22,885
Revenue Not Reported on Form 990
$19,703
Other Revenue Adjustments
$-26,530
Total Revenue per Audited Statements
$1,843,086
Total Revenue per Form 990
$1,800,498
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$946,883
Other Expenses$726,942
Total Fundraising Expense$201,573
Grants and Similar Amounts Paid$66,250
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$475,791$14,975$64,918$555,684
Current Officers, Directors, Trustees, and Key Employees$208,848$26,106$26,106$261,060
Office Expenses$168,188$3,849$49,203$221,240
Occupancy$101,830$6,024$13,674$121,528
Conferences and Meetings$101,546$647-$102,193
Other Employee Benefits$58,332$2,661$7,858$68,851
Grants to Domestic Orgs$66,250--$66,250
Fees for Services Other$53,565$1,208$5,400$60,173
Travel$54,277--$54,277
Payroll Taxes$44,003$2,579$5,858$52,440
Depreciation Depletion$19,711$1,156$2,624$23,491
All Other Expenses$19,605$715$1,620$21,940
Fees for Services Accounting-$21,441-$21,441
Other Expenses$10,779$632$1,435$12,846
Insurance$7,740$453$1,030$9,223
Pension Plan Contributions$7,553$268$1,027$8,848
Interest-$5,230-$5,230
Fees for Service Investment Mgmnt Fees-$3,645-$3,645
Total Functional Expenses$1,445,949$92,553$201,573$1,740,075

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,762,960
Total Expenses per Form 990$1,740,075
Expenses per Audited Statements$1,736,430
Expenses Not Reported on Form 990$26,530
Expenses Not Reported on Financial Statements$3,645
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
73-0580274-Section 501(c)(3)Research Grant$25,000
52-0858115-Section 501(c)(3)Research Grant$15,000
13-1624158-Section 501(c)(3)Research Grant$15,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$100,527
Fundraising Gross Income$100,527
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$427,097$100,527$100,527$0
Event 2$20,841---
Total Events$458,415$100,527$100,527$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$32,088
Capital Lease Payable$21,970
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“Board members will have a week to review 990 and make comments before it is filed. The 990 will be read by the chief executive officer before it is signed.”

Form 990, Part VI, Section B, Line 12C

“Each director, officer, committee member or employee must annually review a copy of this policy and shall be reminded of the obligation to conform to it. Each covered person must annually complete a conflict of interest information form identifying any relationships, positions or circumstances in which the covered person is involved that he or she believes could create a conflict of interest.”

Form 990, Part VI, Section B, Line 15A

“Board annually reviews comparable salary and bonus information and compares ceo salary.”

Form 990, Part VI, Section C, Line 19

“Financials are posted on the foundation's website for donors, patients and visitors to review. Governance documents, conflict of interest, etc. Are all available by contacting the main office, free of charge. Also the copies of our 990s and financials are available be contacting main office.”

Filing and Contact Details

Filer

EIN
11-2779073
Phone
3015304420

Signing Officer

Name
Steven Taylor
Title
Chief Executive Officer
Phone
3015304420
Signed
2014-11-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steven Taylor
Formed
1983
Legal Domicile
Ny
Voting Board Members
17
Independent Board Members
16
Employees
13
Volunteers
16

Preparer

Preparer
Joan Mrenner CPA
Phone
7035351200
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 2C

“The organization has not changed this process from the prior year.”

Financial Statement Notes

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Cost of goods sold reported on part viii -26,186. Loss on disposal of property -344.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold reported on part viii 26,186. Loss on disposal of property 344.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0MSAB CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7CHAIRMAN OF THE BOARD
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt9CHAIRMAN-ELECT
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF EXECUTIVE OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/Form990TFiledInd01
IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0357898
IRS990/FundraisingDirectExpensesAmt0100527
IRS990/FundraisingGrossIncomeAmt0100527
IRS990/GainOrLossGrp/OtherAmt0-344
IRS990/GainOrLossGrp/SecuritiesAmt012708
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GrantAmt066250
IRS990/GrantsPayableGrp/BOYAmt0190000
IRS990/GrantsPayableGrp/EOYAmt0111250
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt066250
IRS990/GrantsToDomesticOrgsGrp/TotalAmt066250
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/OtherAmt01670
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0123029
IRS990/GrossReceiptsAmt02039546
IRS990/GrossSalesOfInventoryAmt059484
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/FundraisingAmt01030
IRS990/InsuranceGrp/ManagementAndGeneralAmt0453
IRS990/InsuranceGrp/ProgramServicesAmt07740
IRS990/InsuranceGrp/TotalAmt09223
IRS990/InterestGrp/ManagementAndGeneralAmt05230
IRS990/InterestGrp/TotalAmt05230
IRS990/InventoriesForSaleOrUseGrp/BOYAmt02071
IRS990/InventoriesForSaleOrUseGrp/EOYAmt03619
IRS990/InvestmentIncomeGrp/ExclusionAmt07347
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt07347
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0338859
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0306986
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0156861
IRS990/LandBldgEquipBasisNetGrp/BOYAmt054278
IRS990/LandBldgEquipBasisNetGrp/EOYAmt033163
IRS990/LandBldgEquipCostOrOtherBssAmt0190024
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt02014
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0110321
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0-34726
IRS990/NetAssetsOrFundBalancesEOYAmt045400
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt012364
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt012364
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt033298
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt033298
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt019703
IRS990/NoncashContributionsAmt022344
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt013674
IRS990/OccupancyGrp/ManagementAndGeneralAmt06024
IRS990/OccupancyGrp/ProgramServicesAmt0101830
IRS990/OccupancyGrp/TotalAmt0121528
IRS990/OfficeExpensesGrp/FundraisingAmt049203
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03849
IRS990/OfficeExpensesGrp/ProgramServicesAmt0168188
IRS990/OfficeExpensesGrp/TotalAmt0221240
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt06859
IRS990/OtherAssetsTotalGrp/EOYAmt06859
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt07858
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02661
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt058332
IRS990/OtherEmployeeBenefitsGrp/TotalAmt068851
IRS990/OtherExpensesGrp/Desc0BANK AND CREDIT CARD FE
IRS990/OtherExpensesGrp/Desc1AWARENESS ACTIVITIES
IRS990/OtherExpensesGrp/Desc2TELEPHONE
IRS990/OtherExpensesGrp/Desc3DUES, SUBSCRIPTIONS AND
IRS990/OtherExpensesGrp/FundraisingAmt011418
IRS990/OtherExpensesGrp/FundraisingAmt17261
IRS990/OtherExpensesGrp/FundraisingAmt22141
IRS990/OtherExpensesGrp/FundraisingAmt31435
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt022
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1942
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2632
IRS990/OtherExpensesGrp/ProgramServicesAmt014327
IRS990/OtherExpensesGrp/ProgramServicesAmt117519
IRS990/OtherExpensesGrp/ProgramServicesAmt216085
IRS990/OtherExpensesGrp/ProgramServicesAmt310779
IRS990/OtherExpensesGrp/TotalAmt025767
IRS990/OtherExpensesGrp/TotalAmt124780
IRS990/OtherExpensesGrp/TotalAmt219168
IRS990/OtherExpensesGrp/TotalAmt312846
IRS990/OtherLiabilitiesGrp/BOYAmt068291
IRS990/OtherLiabilitiesGrp/EOYAmt054058
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt01557
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01557
IRS990/OtherRevenueTotalAmt01557
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt064918
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt014975
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0475791
IRS990/OtherSalariesAndWagesGrp/TotalAmt0555684
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05858
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02579
IRS990/PayrollTaxesGrp/ProgramServicesAmt044003
IRS990/PayrollTaxesGrp/TotalAmt052440
IRS990/PensionPlanContributionsGrp/FundraisingAmt01027
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0268
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt07553
IRS990/PensionPlanContributionsGrp/TotalAmt08848
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt04769
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt08171
IRS990/PrincipalOfficerNm0STEVEN TAYLOR
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/BusinessCd1541900
IRS990/ProgramServiceRevenueGrp/BusinessCd2541800
IRS990/ProgramServiceRevenueGrp/Desc0MEMBERSHIP DUES
IRS990/ProgramServiceRevenueGrp/Desc1CONFERENCE
IRS990/ProgramServiceRevenueGrp/Desc2ADVERTISING
IRS990/ProgramServiceRevenueGrp/ExclusionAmt095250
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0233865
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt160633
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0233865
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1155883
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt278178
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt078178
IRS990/ProgSrvcAccomActy2Grp/Desc0NEWSLETTER - THE SSF PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0247009
IRS990/ProgSrvcAccomActy3Grp/Desc0ONE NATIONAL PATIENT CONFERNCE WAS HELD THIS PAST YEAR. THIS CONFERENCE WAS HELD FOR PATIENTS AND THEIR FAMILIES TO LEARN FROM HEALTHCARE PROFESSIONALS ABOUT TREATMENT AND MANAGEMENT OF SJOGRENS SYNDROME. OVER 400 INDIVIDUALS ATTENDED THESE CONFERENCES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0199124
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt060633
IRS990/ProgSrvcAccomActyOtherGrp/Desc0AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO PROFESSIONALS.
IRS990/ProgSrvcAccomActyOtherGrp/Desc1OTHER MEMBER SERVICES
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0781859
IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt0268720
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01096264
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0151250
IRS990/PYInvestmentIncomeAmt04721
IRS990/PYOtherExpensesAmt0813032
IRS990/PYOtherRevenueAmt040747
IRS990/PYProgramServiceRevenueAmt0485677
IRS990/PYRevenuesLessExpensesAmt0-202929
IRS990/PYSalariesCompEmpBnftPaidAmt0866056
IRS990/PYTotalExpensesAmt01830338
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01627409
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt060423

Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$481,395
Liabilities
$435,995
Net assets
$45,400
Revenue
$1,800,498
Expenses
$1,740,075
Net income
$60,423
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.24$1.21$4.03$5.28$4.22$1.05
2024Detailed filing. Detailed filing data is available for this year.$4.17$1.26$2.91$3.50$3.17$0.32
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.69$1.13$2.57$3.32$2.84$0.48
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.80$0.73$2.07$2.94$2.32$0.62
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.61$1.05$1.56$2.96$2.93$0.03
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.02$1.44$2.47$2.43$0.04
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.01$0.57$1.44$3.42$2.34$1.07
2018Detailed filing. Detailed filing data is available for this year.$0.95$0.59$0.37$2.32$2.31$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.33$0.35$2.27$2.17$0.10
2016Detailed filing. Detailed filing data is available for this year.$0.63$0.39$0.24$2.24$2.08$0.15
2015Detailed filing. Detailed filing data is available for this year.$0.51$0.41$0.10$1.92$1.85$0.07
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.44$0.05$1.80$1.74$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.49$0.53$0.03$1.63$1.83$0.20
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.64$0.50$0.14$1.84
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.51$0.23$2.04