Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
990 • Fiscal year 2018 • EIN 11-2779073
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
Liabilities / Revenue
68th percentile
Higher debt load relative to revenue than 68% of similar nonprofits.
Net Margin
41st percentile
Higher net margin than 41% of similar nonprofits.
Top Officer Pay
95th percentile
Higher top officer pay than 95% of similar nonprofits.
Top officer pay equals 13.5% of source-year revenue.
Asset Growth
89th percentile
Faster asset growth than 89% of similar nonprofits.
Revenue Growth
46th percentile
Faster revenue growth than 46% of similar nonprofits.
Assets
Up$953,133
Up $273,424 (+40%) from 2017
Net Assets
Up$366,149
Up $11,632 (+3.3%) from 2017
Liabilities
Up$586,984
Up $261,792 (+81%) from 2017
Revenue
Up$2,318,207
Up $50,101 (+2.2%) from 2017
Expenses
Up$2,311,551
Up $141,746 (+6.5%) from 2017
Net Income
Down$6,656
Down $91,645 (-93%) from 2017
The foundation's mission is to educate patients and their families about sjogren's syndrome, to increase public and professional awareness of sjogren's syndrome and to encourage research into new treatments and a cure.
The foundation's mission is to educate patients and their families about sjogren's, to increase public and professional awareness of sjogren's and to encourage research into new treatments and a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $419,778 | $402,171 | ▼ $17,607 |
| Land, Buildings, and Equipment, Net | $9,044 | $188,793 | ▲ $179,749 |
| Cash and Non-Interest-Bearing Accounts | $32,242 | $187,307 | ▲ $155,065 |
| Accounts Receivable | $68,065 | $153,814 | ▲ $85,749 |
| Savings and Temporary Cash Investments | $115,234 | $5,243 | ▼ $109,991 |
| Inventories for Sale or Use | $4,311 | $4,030 | ▼ $281 |
| Prepaid Expenses and Deferred Charges | $24,176 | $2,826 | ▼ $21,350 |
| Total Assets | $679,709 | $953,133 | ▲ $273,424 |
| Other Assets Total | $6,859 | $8,949 | ▲ $2,090 |
| Liabilities | |||
| Other Liabilities | $1,305 | $226,143 | ▲ $224,838 |
| Grants Payable | $151,250 | $190,000 | ▲ $38,750 |
| Deferred Revenue | $138,981 | $142,958 | ▲ $3,977 |
| Accounts Payable and Accrued Expenses | $33,656 | $27,883 | ▼ $5,773 |
| Total Liabilities | $325,192 | $586,984 | ▲ $261,792 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $354,517 | $366,149 | ▲ $11,632 |
| Total Net Assets Fund Balance | $354,517 | $366,149 | ▲ $11,632 |
| Total Liabilities and Net Assets / Fund Balance | $679,709 | $953,133 | ▲ $273,424 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Leasehold Improvements | $154,905 | $11,198 | $166,103 |
| Equipment | $33,888 | $72,871 | $106,759 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Steven Taylor | Chief Executive Officer | FT | $197,500 | $114,360 | $311,860 |
| Katherine Hammitt | Vice President of Medical & Scientific Affairs | FT | $114,408 | $26,773 | $141,181 |
| Sheriese Defruscio | Vice President of Marketing | FT | $117,452 | $20,392 | $137,844 |
| Name | Title |
|---|---|
| Janet E Church | Chair-elect |
| Stephen Cohen Od | Chairman |
| Ava Wu Dds | Director |
| Cathy Ingels | Director |
| Chadwick Johr Md | Director |
| Cynthia Lopynski | Director |
| Esen K Akpek Md | Director |
| Jack Faricelli | Director |
| Jason Nichols Od Phd | Director |
| Michelle Wallace | Director |
| Monica Mcgill Ed D | Director |
| Patricia Hurley Msc | Director |
| Scott Lieberman Md | Director |
| Theresa Lawrence Ford Md | Director |
| Thomas D Sutton | Director |
| Timothy Niewold Md Facr | Director |
| Tricia Gooding | Secretary |
| Kathy L Sivils Phd | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $1,246,838 |
| Other Expenses | $889,213 |
| Total Fundraising Expense | $261,049 |
| Grants and Similar Amounts Paid | $175,500 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $621,971 | $30,883 | $77,245 | $730,099 |
| Current Officers, Directors, Trustees, and Key Employees | $284,140 | $14,109 | $35,287 | $333,536 |
| Grants to Domestic Orgs | $175,500 | - | - | $175,500 |
| All Other Expenses | $102,373 | $3,045 | $45,384 | $150,802 |
| Occupancy | $101,786 | $5,054 | $12,641 | $119,481 |
| Other Employee Benefits | $88,596 | $4,397 | $11,003 | $103,996 |
| Travel | $99,732 | - | - | $99,732 |
| Other Expenses | $81,155 | $271 | $16,578 | $81,426 |
| Payroll Taxes | $56,023 | $2,781 | $6,958 | $65,762 |
| Fees for Services Other | $56,267 | $1,145 | $2,532 | $59,944 |
| Fees for Services Accounting | - | $26,443 | - | $26,443 |
| Information Technology | $19,401 | $962 | $2,409 | $22,772 |
| Depreciation Depletion | $15,967 | $792 | $1,983 | $18,742 |
| Pension Plan Contributions | $11,454 | $568 | $1,423 | $13,445 |
| Insurance | $6,392 | $318 | $794 | $7,504 |
| Fees for Service Investment Mgmnt Fees | - | $4,652 | - | $4,652 |
| Interest | - | $1,099 | - | $1,099 |
| Total Functional Expenses | $1,951,826 | $98,676 | $261,049 | $2,311,551 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,318,969 |
| Total Expenses per Form 990 | $2,311,551 |
| Expenses per Audited Statements | $2,306,899 |
| Expenses Not Reported on Form 990 | $12,070 |
| Expenses Not Reported on Financial Statements | $4,652 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Johns Hopkins University | Baltimore, MD | Section 501(c)(3) | Research Grant | $35,000 |
| Bascom Palmer Eye Institute | Miami, FL | N/a | Research Grant | $25,000 |
| Loyola University | Maywood, IL | Section 501(c)(3) | Research Grant | $25,000 |
| University of Missouri | Columbia, MO | Section 501(c)(3) | Research Grant | $25,000 |
| University of Texas Southwestern Medical | Dallas, TX | Section 501(c)(3) | Research Grant | $25,000 |
| University of Utah School of Dentistry | Salt Lake City, UT | Section 501(c)(3) | Research Grant | $25,000 |
| Uconn Health Reconstructive Sciences | Farmington, CT | Section 501(c)(3) | Research Grant | $15,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $48,936 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Walkabouts and Sips Events | $255,418 | - | $48,936 | - |
| Partner Programs | $13,200 | - | - | - |
| Total Events | $268,618 | - | $48,936 | $-48,936 |
| Liability | Amount |
|---|---|
| Deferred Tenant Allowance | $154,905 |
| Deferred Rent | $54,758 |
| Capital Lease Payable | $16,480 |
“The foundation made a change to its bylaws during the fiscal year. The change related to language regarding meetings of the board of directors.”
“Board members will have a week to review 990 and make comments before it is filed. The 990 will be read by the chief executive officer before it is signed.”
“Each director, officer, committee member or employee must annually review a copy of this policy and shall be reminded of the obligation to conform to it. Each covered person must annually complete a conflict of interest information form identifying any relationships, positions or circumstances in which the covered person is involved that he or she believes could create a conflict of interest.”
“Board annually reviews comparable salary and bonus information and compares ceo salary.”
“Financials are posted on the foundation's website for donors, patients and visitors to review. Governance documents, conflict of interest, etc. Are all available by contacting the main office, free of charge. Also the copies of our 990s and financials are available by contacting the main office.”
“The foundation has not changed this process from the prior year. The board of directors is responsible for oversight over the independent audit and selection of the independent auditors.”
“In accounting for uncertainty in income taxes, accounting standards require an entity to recognize the financial statement impact of a tax position when it is more-likely-than-not that the position will not be sustained upon examination. Management evaluated the foundation's tax positions and concluded there are no uncertain tax positions that require adjustment to the financial statements to comply with the provisions of this guidance.”
“Reclassification of costs of goods sold -10,108. Reclassification of loss on disposal -1,962.”
“Reclassification of costs of goods sold 10,108. Reclassification of loss on disposal 1,962.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 33656 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 27883 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 68065 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 153814 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AllOtherContributionsAmt | 0 | 1575890 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 45384 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3045 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 102373 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 150802 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | SJOGREN'S SYNDROME FOUNDATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3015304420 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 10701 PARKRIDGE BLVD SUITE 170 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | RESTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 20191 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 32242 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 187307 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 1 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 35287 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 14109 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 284140 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 333536 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 268618 |
| IRS990/CostOfGoodsSoldAmt | 0 | 10108 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1844508 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 175500 |
| IRS990/CYInvestmentIncomeAmt | 0 | 28128 |
| IRS990/CYOtherExpensesAmt | 0 | 889213 |
| IRS990/CYOtherRevenueAmt | 0 | -18639 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 464210 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 6656 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1246838 |
| IRS990/CYTotalExpensesAmt | 0 | 2311551 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 261049 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2318207 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 138981 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 142958 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 1983 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 792 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 15967 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 18742 |
| IRS990/Desc | 0 | RESEARCH GRANTS TO PROMOTE CONTINUED MEDICAL AND SCIENTIFIC RESEARCH IN THE AREA OF SJOGREN'S. SEVEN GRANTS WERE AWARDED TO UNIVERSITY AFFILIATED RESEARCHERS DURING 2018. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 13 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 395219 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 26443 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 26443 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2532 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1145 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 56267 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 59944 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 4652 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 4652 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 20 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 27628 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 20392 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 26773 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | STEPHEN COHEN OD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JANET E CHURCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | TRICIA GOODING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | KATHY L SIVILS PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ESEN K AKPEK MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JACK FARICELLI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | PATRICIA HURLEY MSC |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CATHY INGELS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | CHADWICK JOHR MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | THERESA LAWRENCE FORD MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | SCOTT LIEBERMAN MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | CYNTHIA LOPYNSKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | MONICA MCGILL ED D |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | JASON NICHOLS OD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | TIMOTHY NIEWOLD MD FACR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | THOMAS D SUTTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | MICHELLE WALLACE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | AVA WU DDS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | STEVEN TAYLOR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | SHERIESE DEFRUSCIO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | KATHERINE HAMMITT |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 284232 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 117452 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 114408 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR-ELECT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | CHIEF EXECUTIVE OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | VICE PRESIDENT OF MARKETING |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | VICE PRESIDENT OF MEDICAL & SCIENTIFIC AFFAIRS |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/Form990TFiledInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1983 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 268618 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 48936 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | -1962 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 7609 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 18 |
| IRS990/GrantAmt | 0 | 175500 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 151250 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 190000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 175500 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 175500 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 8889 |
| IRS990/GrossReceiptsAmt | 0 | 2380493 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 36754 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 18 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 2409 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 962 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 19401 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 22772 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 794 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 318 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 6392 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 7504 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 1099 |
| IRS990/InterestGrp/TotalAmt | 0 | 1099 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 4311 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 4030 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 22481 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 22481 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 419778 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 402171 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 84069 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 9044 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 188793 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 272862 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 1962 |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 1280 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 354517 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 366149 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 5647 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 5647 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -48936 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -48936 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 26646 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 26646 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 4976 |
| IRS990/NoncashContributionsAmt | 0 | 16527 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 12641 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 5054 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 101786 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 119481 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 6859 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 8949 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 11003 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 4397 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 88596 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 103996 |
| IRS990/OtherExpensesGrp/Desc | 0 | AWARENESS ACTIVITIES |
| IRS990/OtherExpensesGrp/Desc | 1 | PRINTING, DUPLICATING, |
| IRS990/OtherExpensesGrp/Desc | 2 | POSTAGE AND DELIVERY |
| IRS990/OtherExpensesGrp/Desc | 3 | FOOD AND BEVERAGE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 19635 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 27177 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 16578 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 742 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1415 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 271 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 87371 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 69946 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 73752 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 81155 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 107006 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 97865 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 91745 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 81426 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 1305 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 226143 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 541900 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 2000 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 2000 |
| IRS990/OtherRevenueTotalAmt | 0 | 2000 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 77245 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 30883 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 621971 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 730099 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 6958 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2781 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 56023 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 65762 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1423 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 568 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 11454 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 13445 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 24176 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 2826 |
| IRS990/PrincipalOfficerNm | 0 | STEVEN TAYLOR |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 541900 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 541900 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 2 | 541800 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | MEMBERSHIP DUES |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | CONFERENCE |
| IRS990/ProgramServiceRevenueGrp/Desc | 2 | ADVERTISING |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 51800 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 234007 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 113167 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 234007 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 164967 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 2 | 65236 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 65236 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 231168 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO HEALTHCARE PROFESSIONALS. |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.