Civic Intelligence

Sjogren'S Syndrome Foundation Inc

990 • Fiscal year 2016 • EIN 11-2779073

Jul 01, 2015 to Jun 30, 2016 • Filed on Nov 09, 2016

Organization ProfileWWW.SJOGRENS.ORG

View Organization Page

6707 Democracy Blvd No 325Bethesda, MD 20817

(301) 530-4420

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

83rd percentile

0.62x

Higher debt load relative to assets than 83% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

60th percentile

0.17x

Higher debt load relative to revenue than 60% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

63rd percentile

6.8%

Higher net margin than 63% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

93rd percentile

$267,077

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 11.9% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

83rd percentile

23%

Faster asset growth than 83% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

74th percentile

16%

Faster revenue growth than 74% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets83rd percentile

Assets

Up

$625,488

Up $115,589 (+23%) from 2015

Net Assets

Up

$235,393

Up $135,604 (+136%) from 2015

Liabilities

Down

$390,095

Down $20,015 (-4.9%) from 2015

Revenue And Expenses
Liabilities / Revenue60th percentileNet Margin63rd percentile

Revenue

Up

$2,235,958

Up $316,336 (+16%) from 2015

Expenses

Up

$2,083,181

Up $230,448 (+12%) from 2015

Net Income

Up

$152,777

Up $85,888 (+128%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth83rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $745,613Liabilities 2011: $512,991Net Assets 2011: $232,6222011Assets 2012: $642,235Liabilities 2012: $503,490Net Assets 2012: $138,7452012Assets 2013: $493,898Liabilities 2013: $528,624Net Assets 2013: -$34,7262013Assets 2014: $481,395Liabilities 2014: $435,995Net Assets 2014: $45,4002014Assets 2015: $509,899Liabilities 2015: $410,110Net Assets 2015: $99,7892015Assets 2016: $625,488Liabilities 2016: $390,095Net Assets 2016: $235,3932016Assets 2017: $679,709Liabilities 2017: $325,192Net Assets 2017: $354,5172017Assets 2018: $953,133Liabilities 2018: $586,984Net Assets 2018: $366,1492018Assets 2019: $2,009,972Liabilities 2019: $569,117Net Assets 2019: $1,440,8552019Assets 2020: $2,458,865Liabilities 2020: $1,017,693Net Assets 2020: $1,441,1722020Assets 2021: $2,612,292Liabilities 2021: $1,048,293Net Assets 2021: $1,563,9992021Assets 2022: $2,799,424Liabilities 2022: $728,882Net Assets 2022: $2,070,5422022Assets 2023: $3,694,277Liabilities 2023: $1,128,554Net Assets 2023: $2,565,7232023Assets 2024: $4,167,805Liabilities 2024: $1,255,608Net Assets 2024: $2,912,1972024Assets 2025: $5,240,223Liabilities 2025: $1,212,835Net Assets 2025: $4,027,3882025

Highlighted filing

2016

Assets$625,488
Liabilities$390,095
Net Assets$235,393
Open 2016 Filing

Operations Trend

Revenue Growth74th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $2,037,3212011Expenses 2012: $1,843,4972012Revenue 2013: $1,627,409Expenses 2013: $1,830,338Net Income 2013: -$202,9292013Revenue 2014: $1,800,498Expenses 2014: $1,740,075Net Income 2014: $60,4232014Revenue 2015: $1,919,622Expenses 2015: $1,852,733Net Income 2015: $66,8892015Revenue 2016: $2,235,958Expenses 2016: $2,083,181Net Income 2016: $152,7772016Revenue 2017: $2,268,106Expenses 2017: $2,169,805Net Income 2017: $98,3012017Revenue 2018: $2,318,207Expenses 2018: $2,311,551Net Income 2018: $6,6562018Revenue 2019: $3,416,389Expenses 2019: $2,342,283Net Income 2019: $1,074,1062019Revenue 2020: $2,468,773Expenses 2020: $2,427,639Net Income 2020: $41,1342020Revenue 2021: $2,961,602Expenses 2021: $2,930,916Net Income 2021: $30,6862021Revenue 2022: $2,943,480Expenses 2022: $2,322,444Net Income 2022: $621,0362022Revenue 2023: $3,324,713Expenses 2023: $2,841,846Net Income 2023: $482,8672023Revenue 2024: $3,497,666Expenses 2024: $3,174,412Net Income 2024: $323,2542024Revenue 2025: $5,277,586Expenses 2025: $4,223,979Net Income 2025: $1,053,6072025

Highlighted filing

2016

Revenue$2,235,958
Expenses$2,083,181
Net Income$152,777
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2015 to Jun 30, 2016
Signed
Nov 9, 2016
Return Version
2015v2.1
Gross Receipts
$2,401,402
Mission and Program Overview

Mission

The foundation's mission is to educate patients and their families about sjogren's syndrome, to increase public and professional awareness of sjogren's syndrome and to encourage research into new treatments and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$301,528$366,478▲ $64,950
Savings and Temporary Cash Investments$1,710$151,711▲ $150,001
Accounts Receivable$62,468$39,724▼ $22,744
Cash and Non-Interest-Bearing Accounts$84,480$29,568▼ $54,912
Prepaid Expenses and Deferred Charges$26,167$13,718▼ $12,449
Land, Buildings, and Equipment, Net$22,726$13,558▼ $9,168
Inventories for Sale or Use$3,961$3,872▼ $89
Total Assets$509,899$625,488▲ $115,589
Other Assets Total$6,859$6,859→ $0
Liabilities
Grants Payable$143,750$182,500▲ $38,750
Deferred Revenue$124,982$155,691▲ $30,709
Accounts Payable and Accrued Expenses$106,253$33,726▼ $72,527
Other Liabilities$35,125$18,178▼ $16,947
Total Liabilities$410,110$390,095▼ $20,015
Net Assets / Fund Balance
Unrestricted Net Assets$99,789$235,393▲ $135,604
Total Net Assets Fund Balance$99,789$235,393▲ $135,604
Total Liabilities and Net Assets / Fund Balance$509,899$625,488▲ $115,589

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$13,558$112,954$126,512
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven TaylorChief Executive OfficerFT$168,200$98,877$267,077
Sherise DerfruscioVice President of Marketing and CorpFT$111,959$21,812$133,771
Katherine HammittVice President of Medical and ScientificFT$106,770$3,618$110,388

Board Members and Trustees

NameTitle
Ken EconomouChairman
Stephen Cohen OdChairman-elect
Cathy IngelsDirector
Cynthia LopynskiDirector
Esen K Akpek MdDirector
Herbert Baraf Md Facp FacrDirector
Jack FaricelliDirector
Kathy L Sivils PhdDirector
Mary McneilDirector
Michelle WallaceDirector
Nancy L Carteron Md FacrDirector
Patricia Hurley MscDirector
Theresa Lawrence Ford MdDirector
Thomas D SuttonDirector
Timothy Niewold Md FacrDirector
Tricia GoodingDirector
Janet E ChurchSecretary
Vidya Sankar Dmd MhsTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,795,342
Program Service Revenue
$389,872
Investment Income
$22,464
Other Revenue
$28,280
All Other Contributions
$1,498,727
Change in Net Assets
$152,777

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table999$23,473Fair Value
Securities Publicly Traded1$9,191Fair Value
Total Noncash Contributions1,000$32,664-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,244,617
Revenue Not Reported on Financial Statements
$-8,659
Revenue Not Reported on Form 990
$-17,173
Other Revenue Adjustments
$-12,458
Total Revenue per Audited Statements
$2,227,444
Total Revenue per Form 990
$2,235,958
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,090,246
Other Expenses$837,435
Total Fundraising Expense$200,444
Grants and Similar Amounts Paid$155,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$555,312$18,674$71,777$645,763
Current Officers, Directors, Trustees, and Key Employees$223,051$27,881$27,881$278,813
Grants to Domestic Orgs$155,500--$155,500
Occupancy$104,283$6,061$13,360$123,704
Other Employee Benefits$82,390$3,750$10,604$96,744
All Other Expenses$67,849$2,511$19,468$89,828
Travel$77,520--$77,520
Other Expenses$70,913$753$21,174$71,666
Fees for Services Other$59,970$1,279$2,569$63,818
Payroll Taxes$49,670$2,887$6,363$58,920
Fees for Services Accounting-$22,951-$22,951
Information Technology$18,739$1,101$2,401$22,241
Depreciation Depletion$9,405$547$1,205$11,157
Insurance$8,635$502$1,106$10,243
Pension Plan Contributions$8,654$231$1,121$10,006
Fees for Service Investment Mgmnt Fees-$3,799-$3,799
Fees for Services Legal-$3,150-$3,150
Interest-$1,939-$1,939
Total Functional Expenses$1,781,287$101,450$200,444$2,083,181

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,091,840
Total Expenses per Form 990$2,083,181
Expenses per Audited Statements$2,079,382
Expenses Not Reported on Form 990$12,458
Expenses Not Reported on Financial Statements$3,799
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Forsyth InstituteCambridge, MASection 501(c)(3)Research Grant$35,000
The Regents of the University of California BerkeleyBerkeley, CASection 501(c)(3)Research Grant$35,000
Boston UniversityBoston, MASection 501(c)(3)Research Grant$25,000
University of California Los AngelesLos Angeles, CASection 501(c)(3)Research Grant$25,000
University of Southern CaliforniaLos Angeles, CASection 501(c)(3)Research Grant$25,000
University of Rochester Center for Oral BiologyRochester, NYSection 501(c)(3)Research Grant$6,250
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$146,627
Fundraising Gross Income$146,627
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walkabouts and Sips Events$428,853$146,627$146,627$0
Partner Programs$14,389---
Total Events$443,242$146,627$146,627$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$15,435
Capital Lease Payable$2,743
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“Board members will have a week to review 990 and make comments before it is filed. The 990 will be read by the chief executive officer before it is signed.”

Form 990, Part VI, Section B, Line 12C

“Each director, officer, committee member or employee must annually review a copy of this policy and shall be reminded of the obligation to conform to it. Each covered person must annually complete a conflict of interest information form identifying any relationships, positions or circumstances in which the covered person is involved that he or she believes could create a conflict of interest.”

Form 990, Part VI, Section B, Line 15A

“Board annually reviews comparable salary and bonus information and compares ceo salary.”

Form 990, Part VI, Section C, Line 19

“Financials are posted on the foundation's website for donors, patients and visitors to review. Governance documents, conflict of interest, etc. Are all available by contacting the main office, free of charge. Also the copies of our 990s and financials are available by contacting main office.”

Filing and Contact Details

Filer

Filer Name
SJOGREN'S SYNDROME FOUNDATION INC
EIN
11-2779073
Phone
3015304420
Address
6707 DEMOCRACY BLVD NO 325, BETHESDA, MD 20817

Signing Officer

Name
Steven Taylor
Title
Chief Executive Officer
Phone
3015304420
Signed
2016-11-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steven Taylor
Formed
1983
Legal Domicile
Ny
Voting Board Members
18
Independent Board Members
18
Employees
13
Volunteers
350

Preparer

Firm
Renner and Company CPA Pc
Address
700 NORTH FAIRFAX ST SUITE 400, ALEXANDRIA, VA 22314
Preparer
Andrew E Young CPA
Phone
7035351200
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The organization has not changed this process from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The foundation's federal exempt organization business income tax returns (form 990 and form 990-t) for 2013, 2014, and 2015 are subject to examination by the internal revenue service (irs), generally for three years after they are filed.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Cost of goods sold reported on part viii -12,458.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold reported on part viii 12,458.”

Raw XML AppendixShowing 400 of 784 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm12JACK FARICELLI
IRS990/Form990PartVIISectionAGrp/PersonNm13HERBERT BARAF MD FACP FACR
IRS990/Form990PartVIISectionAGrp/PersonNm14CATHY INGELS
IRS990/Form990PartVIISectionAGrp/PersonNm15KATHY L SIVILS PHD
IRS990/Form990PartVIISectionAGrp/PersonNm16PATRICIA HURLEY MSC
IRS990/Form990PartVIISectionAGrp/PersonNm17TIMOTHY NIEWOLD MD FACR
IRS990/Form990PartVIISectionAGrp/PersonNm18STEVEN TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm19SHERISE DERFRUSCIO
IRS990/Form990PartVIISectionAGrp/PersonNm20KATHERINE HAMMITT
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18246955
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19111959
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20106770
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIRMAN-ELECT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHIEF EXECUTIVE OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt19VICE PRESIDENT OF MARKETING AND CORP
IRS990/Form990PartVIISectionAGrp/TitleTxt20VICE PRESIDENT OF MEDICAL AND SCIENTIFIC
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/Form990TFiledInd01
IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0296615
IRS990/FundraisingDirectExpensesAmt0146627
IRS990/FundraisingGrossIncomeAmt0146627
IRS990/GainOrLossGrp/SecuritiesAmt04713
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantAmt0155500
IRS990/GrantsPayableGrp/BOYAmt0143750
IRS990/GrantsPayableGrp/EOYAmt0182500
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0155500
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0155500
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt011072
IRS990/GrossReceiptsAmt02401402
IRS990/GrossSalesOfInventoryAmt035296
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt018
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02401
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01101
IRS990/InformationTechnologyGrp/ProgramServicesAmt018739
IRS990/InformationTechnologyGrp/TotalAmt022241
IRS990/InsuranceGrp/FundraisingAmt01106
IRS990/InsuranceGrp/ManagementAndGeneralAmt0502
IRS990/InsuranceGrp/ProgramServicesAmt08635
IRS990/InsuranceGrp/TotalAmt010243
IRS990/InterestGrp/ManagementAndGeneralAmt01939
IRS990/InterestGrp/TotalAmt01939
IRS990/InventoriesForSaleOrUseGrp/BOYAmt03961
IRS990/InventoriesForSaleOrUseGrp/EOYAmt03872
IRS990/InvestmentIncomeGrp/ExclusionAmt017751
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt017751
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0301528
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0366478
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0112954
IRS990/LandBldgEquipBasisNetGrp/BOYAmt022726
IRS990/LandBldgEquipBasisNetGrp/EOYAmt013558
IRS990/LandBldgEquipCostOrOtherBssAmt0126512
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt06359
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt099789
IRS990/NetAssetsOrFundBalancesEOYAmt0235393
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt04713
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt04713
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt022838
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt022838
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-17173
IRS990/NoncashContributionsAmt032664
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt013360
IRS990/OccupancyGrp/ManagementAndGeneralAmt06061
IRS990/OccupancyGrp/ProgramServicesAmt0104283
IRS990/OccupancyGrp/TotalAmt0123704
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt06859
IRS990/OtherAssetsTotalGrp/EOYAmt06859
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt010604
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03750
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt082390
IRS990/OtherEmployeeBenefitsGrp/TotalAmt096744
IRS990/OtherExpensesGrp/Desc0AWARENESS ACTIVITIES
IRS990/OtherExpensesGrp/Desc1PRINTING, DUPLICATING,
IRS990/OtherExpensesGrp/Desc2POSTAGE AND DELIVERY
IRS990/OtherExpensesGrp/Desc3FOOD AND BEVERAGE
IRS990/OtherExpensesGrp/FundraisingAmt0161
IRS990/OtherExpensesGrp/FundraisingAmt121254
IRS990/OtherExpensesGrp/FundraisingAmt221174
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01173
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12261
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2753
IRS990/OtherExpensesGrp/ProgramServicesAmt0121758
IRS990/OtherExpensesGrp/ProgramServicesAmt190276
IRS990/OtherExpensesGrp/ProgramServicesAmt277362
IRS990/OtherExpensesGrp/ProgramServicesAmt370913
IRS990/OtherExpensesGrp/TotalAmt0121919
IRS990/OtherExpensesGrp/TotalAmt1112703
IRS990/OtherExpensesGrp/TotalAmt2100797
IRS990/OtherExpensesGrp/TotalAmt371666
IRS990/OtherLiabilitiesGrp/BOYAmt035125
IRS990/OtherLiabilitiesGrp/EOYAmt018178
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt03328
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt03328
IRS990/OtherRevenueTotalAmt03328
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt071777
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt018674
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0555312
IRS990/OtherSalariesAndWagesGrp/TotalAmt0645763
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt06363
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02887
IRS990/PayrollTaxesGrp/ProgramServicesAmt049670
IRS990/PayrollTaxesGrp/TotalAmt058920
IRS990/PensionPlanContributionsGrp/FundraisingAmt01121
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0231
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt08654
IRS990/PensionPlanContributionsGrp/TotalAmt010006
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt026167
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt013718
IRS990/PrincipalOfficerNm0STEVEN TAYLOR
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/BusinessCd1541900
IRS990/ProgramServiceRevenueGrp/BusinessCd2541800
IRS990/ProgramServiceRevenueGrp/Desc0MEMBERSHIP DUES
IRS990/ProgramServiceRevenueGrp/Desc1CONFERENCE
IRS990/ProgramServiceRevenueGrp/Desc2ADVERTISING
IRS990/ProgramServiceRevenueGrp/ExclusionAmt036300
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0231267
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt157927
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0231267
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt194227
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt264378
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt064378
IRS990/ProgSrvcAccomActy2Grp/Desc0NEWSLETTER - SSF PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0246509
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt064378
IRS990/ProgSrvcAccomActy3Grp/Desc0AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO HEALTHCARE PROFESSIONALS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0513003

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$625,488
Liabilities
$390,095
Net assets
$235,393
Revenue
$2,235,958
Expenses
$2,083,181
Net income
$152,777
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.24$1.21$4.03$5.28$4.22$1.05
2024Detailed filing. Detailed filing data is available for this year.$4.17$1.26$2.91$3.50$3.17$0.32
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.69$1.13$2.57$3.32$2.84$0.48
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.80$0.73$2.07$2.94$2.32$0.62
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.61$1.05$1.56$2.96$2.93$0.03
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.02$1.44$2.47$2.43$0.04
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.01$0.57$1.44$3.42$2.34$1.07
2018Detailed filing. Detailed filing data is available for this year.$0.95$0.59$0.37$2.32$2.31$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.33$0.35$2.27$2.17$0.10
2016Detailed filing. Detailed filing data is available for this year.$0.63$0.39$0.24$2.24$2.08$0.15
2015Detailed filing. Detailed filing data is available for this year.$0.51$0.41$0.10$1.92$1.85$0.07
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.44$0.05$1.80$1.74$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.49$0.53$0.03$1.63$1.83$0.20
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.64$0.50$0.14$1.84
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.51$0.23$2.04