Civic Intelligence

Sjogren'S Syndrome Foundation Inc

990 • Fiscal year 2015 • EIN 11-2779073

Jul 01, 2014 to Jun 30, 2015 • Filed on Nov 12, 2015

Organization ProfileWWW.SJOGRENS.ORG

View Organization Page

6707 Democracy Blvd No 325Bethesda, MD 20817

(301) 530-4420

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

87th percentile

0.80x

Higher debt load relative to assets than 87% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

63rd percentile

0.21x

Higher debt load relative to revenue than 63% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

53rd percentile

3.5%

Higher net margin than 53% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

93rd percentile

$261,245

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 13.6% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

66th percentile

5.9%

Faster asset growth than 66% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

58th percentile

6.6%

Faster revenue growth than 58% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets87th percentile

Assets

Up

$509,899

Up $28,504 (+5.9%) from 2014

Net Assets

Up

$99,789

Up $54,389 (+120%) from 2014

Liabilities

Down

$410,110

Down $25,885 (-5.9%) from 2014

Revenue And Expenses
Liabilities / Revenue63rd percentileNet Margin53rd percentile

Revenue

Up

$1,919,622

Up $119,124 (+6.6%) from 2014

Expenses

Up

$1,852,733

Up $112,658 (+6.5%) from 2014

Net Income

Up

$66,889

Up $6,466 (+11%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth66th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $745,613Liabilities 2011: $512,991Net Assets 2011: $232,6222011Assets 2012: $642,235Liabilities 2012: $503,490Net Assets 2012: $138,7452012Assets 2013: $493,898Liabilities 2013: $528,624Net Assets 2013: -$34,7262013Assets 2014: $481,395Liabilities 2014: $435,995Net Assets 2014: $45,4002014Assets 2015: $509,899Liabilities 2015: $410,110Net Assets 2015: $99,7892015Assets 2016: $625,488Liabilities 2016: $390,095Net Assets 2016: $235,3932016Assets 2017: $679,709Liabilities 2017: $325,192Net Assets 2017: $354,5172017Assets 2018: $953,133Liabilities 2018: $586,984Net Assets 2018: $366,1492018Assets 2019: $2,009,972Liabilities 2019: $569,117Net Assets 2019: $1,440,8552019Assets 2020: $2,458,865Liabilities 2020: $1,017,693Net Assets 2020: $1,441,1722020Assets 2021: $2,612,292Liabilities 2021: $1,048,293Net Assets 2021: $1,563,9992021Assets 2022: $2,799,424Liabilities 2022: $728,882Net Assets 2022: $2,070,5422022Assets 2023: $3,694,277Liabilities 2023: $1,128,554Net Assets 2023: $2,565,7232023Assets 2024: $4,167,805Liabilities 2024: $1,255,608Net Assets 2024: $2,912,1972024Assets 2025: $5,240,223Liabilities 2025: $1,212,835Net Assets 2025: $4,027,3882025

Highlighted filing

2015

Assets$509,899
Liabilities$410,110
Net Assets$99,789
Open 2015 Filing

Operations Trend

Revenue Growth58th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $2,037,3212011Expenses 2012: $1,843,4972012Revenue 2013: $1,627,409Expenses 2013: $1,830,338Net Income 2013: -$202,9292013Revenue 2014: $1,800,498Expenses 2014: $1,740,075Net Income 2014: $60,4232014Revenue 2015: $1,919,622Expenses 2015: $1,852,733Net Income 2015: $66,8892015Revenue 2016: $2,235,958Expenses 2016: $2,083,181Net Income 2016: $152,7772016Revenue 2017: $2,268,106Expenses 2017: $2,169,805Net Income 2017: $98,3012017Revenue 2018: $2,318,207Expenses 2018: $2,311,551Net Income 2018: $6,6562018Revenue 2019: $3,416,389Expenses 2019: $2,342,283Net Income 2019: $1,074,1062019Revenue 2020: $2,468,773Expenses 2020: $2,427,639Net Income 2020: $41,1342020Revenue 2021: $2,961,602Expenses 2021: $2,930,916Net Income 2021: $30,6862021Revenue 2022: $2,943,480Expenses 2022: $2,322,444Net Income 2022: $621,0362022Revenue 2023: $3,324,713Expenses 2023: $2,841,846Net Income 2023: $482,8672023Revenue 2024: $3,497,666Expenses 2024: $3,174,412Net Income 2024: $323,2542024Revenue 2025: $5,277,586Expenses 2025: $4,223,979Net Income 2025: $1,053,6072025

Highlighted filing

2015

Revenue$1,919,622
Expenses$1,852,733
Net Income$66,889
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2014 to Jun 30, 2015
Signed
Nov 12, 2015
Return Version
2014v5.0
Gross Receipts
$2,156,860
Mission and Program Overview

Mission

The foundation's mission is to educate patients and their families about sjogren's syndrome, to increase public and professional awareness of sjogren's syndrome and to encourage research into new treatments and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$306,986$301,528▼ $5,458
Cash and Non-Interest-Bearing Accounts$39,005$84,480▲ $45,475
Accounts Receivable$81,882$62,468▼ $19,414
Prepaid Expenses and Deferred Charges$8,171$26,167▲ $17,996
Land, Buildings, and Equipment, Net$33,163$22,726▼ $10,437
Inventories for Sale or Use$3,619$3,961▲ $342
Savings and Temporary Cash Investments$1,710$1,710→ $0
Total Assets$481,395$509,899▲ $28,504
Other Assets Total$6,859$6,859→ $0
Liabilities
Grants Payable$111,250$143,750▲ $32,500
Deferred Revenue$113,115$124,982▲ $11,867
Accounts Payable and Accrued Expenses$157,572$106,253▼ $51,319
Other Liabilities$54,058$35,125▼ $18,933
Total Liabilities$435,995$410,110▼ $25,885
Net Assets / Fund Balance
Unrestricted Net Assets$45,400$99,789▲ $54,389
Total Net Assets Fund Balance$45,400$99,789▲ $54,389
Total Liabilities and Net Assets / Fund Balance$481,395$509,899▲ $28,504

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$22,726$103,523$126,249
Other Land Buildings$0$60,847$60,847
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Steven TaylorChief Executive OfficerFT$170,000$91,245$261,245

Board Members and Trustees

NameTitle
Ken EconomouChairman
Stephen Cohen OdChairman-elect
S Lance Forstot MdImmediate Past Chairman
Denise Faustman Md PhdMsab Chairman
Cathy IngelsDirector
Cynthia LopynskiDirector
Esen K Akpek MdDirector
Herbert Baraf Md Facp FacrDirector
Jack FaricelliDirector
Kathy L Sivils PhdDirector
Mary McneilDirector
Nancy L Carteron Md FacrDirector
Pamela S BrownDirector
Theresa Lawrence Ford MdDirector
Tricia GoodingDirector
Janet E ChurchSecretary
Vidya Sankar Dmd MhsTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,391,279
Program Service Revenue
$456,602
Investment Income
$22,578
Other Revenue
$49,163
All Other Contributions
$1,100,237
Change in Net Assets
$66,889

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,935,914
Revenue Not Reported on Financial Statements
$-16,292
Revenue Not Reported on Form 990
$-12,500
Other Revenue Adjustments
$-20,090
Total Revenue per Audited Statements
$1,923,414
Total Revenue per Form 990
$1,919,622
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,032,275
Other Expenses$695,458
Total Fundraising Expense$190,813
Grants and Similar Amounts Paid$125,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$529,871$16,047$58,245$604,163
Current Officers, Directors, Trustees, and Key Employees$226,758$28,345$28,345$283,448
Grants to Domestic Orgs$125,000--$125,000
Occupancy$104,074$5,962$11,887$121,923
All Other Expenses$70,772$882$21,534$93,188
Other Employee Benefits$66,958$3,065$7,525$77,548
Travel$70,645--$70,645
Payroll Taxes$48,976$2,806$5,594$57,376
Fees for Services Other$36,123$315$6,001$42,439
Other Expenses$31,989$1,832$3,653$37,474
Fees for Services Accounting-$22,484-$22,484
Information Technology$16,862$967$1,926$19,755
Depreciation Depletion$11,157$639$1,274$13,070
Pension Plan Contributions$8,587$216$937$9,740
Insurance$6,708$384$766$7,858
Fees for Service Investment Mgmnt Fees-$3,798-$3,798
Interest-$2,538-$2,538
Total Functional Expenses$1,568,190$93,730$190,813$1,852,733

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,869,025
Total Expenses per Form 990$1,852,733
Expenses per Audited Statements$1,848,935
Expenses Not Reported on Form 990$20,090
Expenses Not Reported on Financial Statements$3,798
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Forsyth InstituteCambridge, MASection 501(c)(3)Research Grant$35,000
University of Rochester Center for Oral BiologyRochester, NYSection 501(c)(3)Research Grant$25,000
University of Southern CaliforniaLos Angeles, CASection 501(c)(3)Research Grant$25,000
Johns Hopkins University School of MedicineBaltimore, MDSection 501(c)(3)Research Grant$20,000
University of Michigan School of DentistryAnn Arbor, MISection 501(c)(3)Research Grant$20,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$115,127
Fundraising Gross Income$115,127
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walkabouts and Sips Events$395,415$115,127$115,127$0
Partner Programs$10,754---
Total Events$406,169$115,127$115,127$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$25,237
Capital Lease Payable$9,888
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“Board members will have a week to review 990 and make comments before it is filed. The 990 will be read by the chief executive officer before it is signed.”

Form 990, Part VI, Section B, Line 12C

“Each director, officer, committee member or employee must annually review a copy of this policy and shall be reminded of the obligation to conform to it. Each covered person must annually complete a conflict of interest information form identifying any relationships, positions or circumstances in which the covered person is involved that he or she believes could create a conflict of interest.”

Form 990, Part VI, Section B, Line 15A

“Board annually reviews comparable salary and bonus information and compares ceo salary.”

Form 990, Part VI, Section C, Line 19

“Financials are posted on the foundation's website for donors, patients and visitors to review. Governance documents, conflict of interest, etc. Are all available by contacting the main office, free of charge. Also the copies of our 990s and financials are available be contacting main office.”

Filing and Contact Details

Filer

Filer Name
SJOGREN'S SYNDROME FOUNDATION INC
EIN
11-2779073
Phone
3015304420
Address
6707 DEMOCRACY BLVD NO 325, BETHESDA, MD 20817

Signing Officer

Name
Steven Taylor
Title
Chief Executive Officer
Phone
3015304420
Signed
2015-11-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steven Taylor
Formed
1983
Legal Domicile
Ny
Voting Board Members
17
Independent Board Members
17
Employees
10
Volunteers
350

Preparer

Firm
Renner and Company CPA Pc
Address
700 NORTH FAIRFAX ST SUITE 400, ALEXANDRIA, VA 22314
Preparer
Andrew Young CPA
Phone
7035351200
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 2C

“The organization has not changed this process from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The foundation's federal exempt organization business income tax returns (form 990 and form 990-t) for 2012, 2013, and 2014 are subject to examination by the internal revenue service (irs), generally for three years after they are filed.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Cost of goods sold reported on part viii -19,547. Loss on disposal of property -543.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Cost of goods sold reported on part viii 19,547. Loss on disposal of property 543.”

Raw XML AppendixShowing 400 of 744 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17241851
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIRMAN-ELECT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7IMMEDIATE PAST CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10MSAB CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF EXECUTIVE OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/Form990TFiledInd01
IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0291042
IRS990/FundraisingDirectExpensesAmt0115127
IRS990/FundraisingGrossIncomeAmt0115127
IRS990/GainOrLossGrp/OtherAmt0-543
IRS990/GainOrLossGrp/SecuritiesAmt04113
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GrantAmt0125000
IRS990/GrantsPayableGrp/BOYAmt0111250
IRS990/GrantsPayableGrp/EOYAmt0143750
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0125000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0125000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/OtherAmt05561
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0100573
IRS990/GrossReceiptsAmt02156860
IRS990/GrossSalesOfInventoryAmt051693
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt01926
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0967
IRS990/InformationTechnologyGrp/ProgramServicesAmt016862
IRS990/InformationTechnologyGrp/TotalAmt019755
IRS990/InsuranceGrp/FundraisingAmt0766
IRS990/InsuranceGrp/ManagementAndGeneralAmt0384
IRS990/InsuranceGrp/ProgramServicesAmt06708
IRS990/InsuranceGrp/TotalAmt07858
IRS990/InterestGrp/ManagementAndGeneralAmt02538
IRS990/InterestGrp/TotalAmt02538
IRS990/InventoriesForSaleOrUseGrp/BOYAmt03619
IRS990/InventoriesForSaleOrUseGrp/EOYAmt03961
IRS990/InvestmentIncomeGrp/ExclusionAmt019008
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt019008
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0306986
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0301528
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0164370
IRS990/LandBldgEquipBasisNetGrp/BOYAmt033163
IRS990/LandBldgEquipBasisNetGrp/EOYAmt022726
IRS990/LandBldgEquipCostOrOtherBssAmt0187096
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt06104
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt096460
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt045400
IRS990/NetAssetsOrFundBalancesEOYAmt099789
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt03570
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt03570
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt032146
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt032146
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-12500
IRS990/NoncashContributionsAmt017425
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt011887
IRS990/OccupancyGrp/ManagementAndGeneralAmt05962
IRS990/OccupancyGrp/ProgramServicesAmt0104074
IRS990/OccupancyGrp/TotalAmt0121923
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt06859
IRS990/OtherAssetsTotalGrp/EOYAmt06859
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt07525
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03065
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt066958
IRS990/OtherEmployeeBenefitsGrp/TotalAmt077548
IRS990/OtherExpensesGrp/Desc0PRINTING, DUPLICATING,
IRS990/OtherExpensesGrp/Desc1POSTAGE AND DELIVERY
IRS990/OtherExpensesGrp/Desc2FOOD AND BEVERAGE
IRS990/OtherExpensesGrp/Desc3MAINTENANCE AND REPAIRS
IRS990/OtherExpensesGrp/FundraisingAmt029693
IRS990/OtherExpensesGrp/FundraisingAmt113433
IRS990/OtherExpensesGrp/FundraisingAmt23653
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0613
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12228
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2609
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt31832
IRS990/OtherExpensesGrp/ProgramServicesAmt074602
IRS990/OtherExpensesGrp/ProgramServicesAmt179116
IRS990/OtherExpensesGrp/ProgramServicesAmt259992
IRS990/OtherExpensesGrp/ProgramServicesAmt331989
IRS990/OtherExpensesGrp/TotalAmt0104908
IRS990/OtherExpensesGrp/TotalAmt194777
IRS990/OtherExpensesGrp/TotalAmt260601
IRS990/OtherExpensesGrp/TotalAmt337474
IRS990/OtherLiabilitiesGrp/BOYAmt054058
IRS990/OtherLiabilitiesGrp/EOYAmt035125
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt014456
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt014456
IRS990/OtherRevenueTotalAmt014456
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt058245
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt016047
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0529871
IRS990/OtherSalariesAndWagesGrp/TotalAmt0604163
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05594
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02806
IRS990/PayrollTaxesGrp/ProgramServicesAmt048976
IRS990/PayrollTaxesGrp/TotalAmt057376
IRS990/PensionPlanContributionsGrp/FundraisingAmt0937
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0216
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt08587
IRS990/PensionPlanContributionsGrp/TotalAmt09740
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt08171
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt026167
IRS990/PrincipalOfficerNm0STEVEN TAYLOR
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/BusinessCd1541800
IRS990/ProgramServiceRevenueGrp/BusinessCd2541900
IRS990/ProgramServiceRevenueGrp/Desc0MEMBERSHIP DUES
IRS990/ProgramServiceRevenueGrp/Desc1ADVERTISING
IRS990/ProgramServiceRevenueGrp/Desc2CONFERENCE
IRS990/ProgramServiceRevenueGrp/ExclusionAmt039750
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0234327
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt164932
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0234327
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1117593
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt2104682
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt0117593
IRS990/ProgSrvcAccomActy2Grp/Desc0NEWSLETTER - THE SSF PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0249151
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0117593
IRS990/ProgSrvcAccomActy3Grp/Desc0AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO PROFESSIONALS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0383530
IRS990/ProgSrvcAccomActyOtherGrp/Desc0ONE NATIONAL PATIENT CONFERNCE WAS HELD THIS PAST YEAR. THIS CONFERENCE WAS HELD FOR PATIENTS AND THEIR FAMILIES TO LEARN FROM HEALTHCARE PROFESSIONALS ABOUT TREATMENT AND MANAGEMENT OF SJOGRENS SYNDROME. OVER 400 INDIVIDUALS ATTENDED THESE CONFERENCES. IN ADDITION, THE FOUNDATION PERFORMED OTHER VARIOUS SERVICES BENEFITTING THE INDUSTRY AT LARGE. IT ALSO SELLS PRODUCTS AND MATERIALS THAT ARE RELEVANT TO THOSE WITH SJOGREN'S SYNDROME.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0673400
IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt0903313
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01273958
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt066250
IRS990/PYInvestmentIncomeAmt019711
IRS990/PYOtherExpensesAmt0726942
IRS990/PYOtherRevenueAmt038903
IRS990/PYProgramServiceRevenueAmt0467926
IRS990/PYRevenuesLessExpensesAmt060423
IRS990/PYSalariesCompEmpBnftPaidAmt0946883
IRS990/PYTotalExpensesAmt01740075
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01800498
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$509,899
Liabilities
$410,110
Net assets
$99,789
Revenue
$1,919,622
Expenses
$1,852,733
Net income
$66,889
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.24$1.21$4.03$5.28$4.22$1.05
2024Detailed filing. Detailed filing data is available for this year.$4.17$1.26$2.91$3.50$3.17$0.32
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.69$1.13$2.57$3.32$2.84$0.48
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.80$0.73$2.07$2.94$2.32$0.62
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.61$1.05$1.56$2.96$2.93$0.03
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.02$1.44$2.47$2.43$0.04
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.01$0.57$1.44$3.42$2.34$1.07
2018Detailed filing. Detailed filing data is available for this year.$0.95$0.59$0.37$2.32$2.31$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.33$0.35$2.27$2.17$0.10
2016Detailed filing. Detailed filing data is available for this year.$0.63$0.39$0.24$2.24$2.08$0.15
2015Detailed filing. Detailed filing data is available for this year.$0.51$0.41$0.10$1.92$1.85$0.07
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.44$0.05$1.80$1.74$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.49$0.53$0.03$1.63$1.83$0.20
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.64$0.50$0.14$1.84
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.51$0.23$2.04