Civic Intelligence

Sjogren'S Syndrome Foundation Inc

EIN 11-2779073 • 501(c)3 • Reston, VA

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Profile

The foundation's mission is to educate patients and their families about sjogren's syndrome, to increase public and professional awareness of sjogren's syndrome and to encourage research into new treatments and a cure.

10701 Parkridge Blvd 170Reston, VA 20191

www.sjogrens.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

62nd percentile

0.23x

Higher debt load relative to assets than 62% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Liabilities / Revenue

59th percentile

0.23x

Higher debt load relative to revenue than 59% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Net Margin

73rd percentile

20%

Higher net margin than 73% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Top Officer Pay

91st percentile

$368,360

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 7.0% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Asset Growth

84th percentile

26%

Faster asset growth than 84% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Revenue Growth

84th percentile

51%

Faster revenue growth than 84% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Up

$5,240,223

Up $1,072,418 (+26%) from 2024

Liabilities

Down

$1,212,835

Down $42,773 (-3.4%) from 2024

Net Assets

Up

$4,027,388

Up $1,115,191 (+38%) from 2024

Operations
Liabilities / Revenue59th percentileNet Margin73rd percentile

Revenue

Up

$5,277,586

Up $1,779,920 (+51%) from 2024

Expenses

Up

$4,223,979

Up $1,049,567 (+33%) from 2024

Net Income

Up

$1,053,607

Up $730,353 (+226%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth84th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $745,613Liabilities 2011: $512,991Net Assets 2011: $232,6222011Assets 2012: $642,235Liabilities 2012: $503,490Net Assets 2012: $138,7452012Assets 2013: $493,898Liabilities 2013: $528,624Net Assets 2013: -$34,7262013Assets 2014: $481,395Liabilities 2014: $435,995Net Assets 2014: $45,4002014Assets 2015: $509,899Liabilities 2015: $410,110Net Assets 2015: $99,7892015Assets 2016: $625,488Liabilities 2016: $390,095Net Assets 2016: $235,3932016Assets 2017: $679,709Liabilities 2017: $325,192Net Assets 2017: $354,5172017Assets 2018: $953,133Liabilities 2018: $586,984Net Assets 2018: $366,1492018Assets 2019: $2,009,972Liabilities 2019: $569,117Net Assets 2019: $1,440,8552019Assets 2020: $2,458,865Liabilities 2020: $1,017,693Net Assets 2020: $1,441,1722020Assets 2021: $2,612,292Liabilities 2021: $1,048,293Net Assets 2021: $1,563,9992021Assets 2022: $2,799,424Liabilities 2022: $728,882Net Assets 2022: $2,070,5422022Assets 2023: $3,694,277Liabilities 2023: $1,128,554Net Assets 2023: $2,565,7232023Assets 2024: $4,167,805Liabilities 2024: $1,255,608Net Assets 2024: $2,912,1972024Assets 2025: $5,240,223Liabilities 2025: $1,212,835Net Assets 2025: $4,027,3882025

Highlighted filing

2025

Assets$5,240,223
Liabilities$1,212,835
Net Assets$4,027,388
Open 2025 Filing

Operations Trend

Revenue Growth84th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $2,037,3212011Expenses 2012: $1,843,4972012Revenue 2013: $1,627,409Expenses 2013: $1,830,338Net Income 2013: -$202,9292013Revenue 2014: $1,800,498Expenses 2014: $1,740,075Net Income 2014: $60,4232014Revenue 2015: $1,919,622Expenses 2015: $1,852,733Net Income 2015: $66,8892015Revenue 2016: $2,235,958Expenses 2016: $2,083,181Net Income 2016: $152,7772016Revenue 2017: $2,268,106Expenses 2017: $2,169,805Net Income 2017: $98,3012017Revenue 2018: $2,318,207Expenses 2018: $2,311,551Net Income 2018: $6,6562018Revenue 2019: $3,416,389Expenses 2019: $2,342,283Net Income 2019: $1,074,1062019Revenue 2020: $2,468,773Expenses 2020: $2,427,639Net Income 2020: $41,1342020Revenue 2021: $2,961,602Expenses 2021: $2,930,916Net Income 2021: $30,6862021Revenue 2022: $2,943,480Expenses 2022: $2,322,444Net Income 2022: $621,0362022Revenue 2023: $3,324,713Expenses 2023: $2,841,846Net Income 2023: $482,8672023Revenue 2024: $3,497,666Expenses 2024: $3,174,412Net Income 2024: $323,2542024Revenue 2025: $5,277,586Expenses 2025: $4,223,979Net Income 2025: $1,053,6072025

Highlighted filing

2025

Revenue$5,277,586
Expenses$4,223,979
Net Income$1,053,607
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$5,240,223
Liabilities
$1,212,835
Net assets
$4,027,388
Revenue
$5,277,586
Expenses
$4,223,979
Net income
$1,053,607
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.24$1.21$4.03$5.28$4.22$1.05
2024Detailed filing. Detailed filing data is available for this year.$4.17$1.26$2.91$3.50$3.17$0.32
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.69$1.13$2.57$3.32$2.84$0.48
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.80$0.73$2.07$2.94$2.32$0.62
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.61$1.05$1.56$2.96$2.93$0.03
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.02$1.44$2.47$2.43$0.04
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.01$0.57$1.44$3.42$2.34$1.07
2018Detailed filing. Detailed filing data is available for this year.$0.95$0.59$0.37$2.32$2.31$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.33$0.35$2.27$2.17$0.10
2016Detailed filing. Detailed filing data is available for this year.$0.63$0.39$0.24$2.24$2.08$0.15
2015Detailed filing. Detailed filing data is available for this year.$0.51$0.41$0.10$1.92$1.85$0.07
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.44$0.05$1.80$1.74$0.06
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.49$0.53$0.03$1.63$1.83$0.20
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.64$0.50$0.14$1.84
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.51$0.23$2.04
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Nov 10, 2025
Return Version
2024v5.2
Gross Receipts
$5,382,573
Mission and Program Overview

Mission

The foundation's mission is to educate patients and their families about sjogren's syndrome, to increase public and professional awareness of sjogren's syndrome and to encourage research into new treatments and a cure.

See schedule o for description of organization's primary mission.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,833,654$4,600,242▲ $1,766,588
Cash and Non-Interest-Bearing Accounts$697,030$253,748▼ $443,282
Savings and Temporary Cash Investments$220,026$220,214▲ $188
Prepaid Expenses and Deferred Charges$20,159$0▼ $20,159
Land, Buildings, and Equipment, Net$49,992$20,135▼ $29,857
Inventories for Sale or Use$17,109$12,193▼ $4,916
Intangible Assets$9,911$0▼ $9,911
Accounts Receivable$223,294$3,213▼ $220,081
Total Assets$4,167,805$5,240,223▲ $1,072,418
Other Assets Total$96,630$130,478▲ $33,848
Liabilities
Grants Payable$475,000$526,250▲ $51,250
Deferred Revenue$561,934$483,753▼ $78,181
Other Liabilities$152,249$152,054▼ $195
Accounts Payable and Accrued Expenses$66,425$50,778▼ $15,647
Total Liabilities$1,255,608$1,212,835▼ $42,773
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,911,301$2,926,653▲ $1,015,352
Net Assets With Donor Restrictions$1,000,896$1,100,735▲ $99,839
Total Net Assets Fund Balance$2,912,197$4,027,388▲ $1,115,191
Total Liabilities and Net Assets / Fund Balance$4,167,805$5,240,223▲ $1,072,418

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$70$166,033$166,103
Equipment$20,065$73,952$94,017

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$1,000,896$771,783-$671,944$1,100,735
2023$1,000,896---$1,000,896
2022$1,000,896---$1,000,896
2021$1,000,896---$1,000,896
2020$1,000,896---$1,000,896
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Janet ChurchPresident and CEOFT$321,800$46,560$368,360
Katherine Morland HammittVP of Medical and Scientific AffairsFT$177,640$11,640$189,280
Ben BasloeVP of Philanthropy and OperationsFT$135,085-$135,085
Lane DestroSr. Director, Corporate Partnerships & Strategic IFT$125,368-$125,368
Michele ChampignyVP of Patient Services and EducationFT$115,761-$115,761
Matthew MakaraSenior Director of Research & Scientific AffairsFT$114,253-$114,253

Board Members and Trustees

NameTitle
Susan BarajasChairman
Alan Baer MdDirector, Chairman of Msac
Donald E Thomas MdPast Chairman
Allissa LathamDirector
Brent P Goodman MdDirector
Daniel Wallace MdDirector
David SchraderDirector
Nishant Gupta MdDirector
Robyn LaukienDirector
Rubenstein LisaDirector
Sara Mccoy MdDirector
Scott Lieberman MdDirector
Tammy DotsonDirector
Tom IatestaDirector
Vatinee Bunya Md MsceDirector
Katie ForteSecretary
Vidya Sankar Dmd MhsTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Impact Health Strategies LLCClinical Practice Guidelines621 BRIER ST, Kenilworth, IL 60043$125,575
Revenue and Support

Revenue Composition

Contributions and Grants
$4,712,138
Program Service Revenue
$502,889
Investment Income
$143,224
Other Revenue
$-80,665
All Other Contributions
$4,423,980
Change in Net Assets
$1,053,607

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded2$59,718Fair Market Value (FMV)
Total Noncash Contributions2$59,718-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,285,205
Revenue Not Reported on Financial Statements
$-7,619
Revenue Not Reported on Form 990
$61,584
Other Revenue Adjustments
$-16,459
Total Revenue per Audited Statements
$5,346,789
Total Revenue per Form 990
$5,277,586
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,937,731
Other Expenses$1,649,459
Grants and Similar Amounts Paid$636,789
Total Fundraising Expense$469,255
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$896,498$72,149$127,851$1,096,498
Grants to Domestic Orgs$636,789--$636,789
Current Officers, Directors, Trustees, and Key Employees$454,644$36,589$64,839$556,072
All Other Expenses$180,610$3,517$54,784$238,911
Other Employee Benefits$139,589$11,234$19,908$170,731
Fees for Services Other$133,363$8,167$14,469$155,999
Payroll Taxes$93,558$7,529$13,343$114,430
Fees for Services Legal$107,958--$107,958
Other Expenses$63,038$96$40,556$103,690
Occupancy$83,716$6,737$11,939$102,392
Depreciation Depletion$30,751$2,472$4,385$37,608
Travel$36,655--$36,655
Fees for Services Accounting-$34,804-$34,804
Information Technology$26,988$2,171$3,849$33,008
Insurance$9,330$751$1,331$11,412
Fees for Service Investment Mgmnt Fees-$8,840-$8,840
Interest$1,894$133-$2,027
Total Functional Expenses$3,551,082$203,642$469,255$4,223,979

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$4,231,598
Total Expenses per Form 990$4,223,979
Expenses per Audited Statements$4,215,139
Expenses Not Reported on Form 990$16,459
Expenses Not Reported on Financial Statements$8,840
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Foundation for the National Institutes of HealthNorth Bethesda, MDSection 501(c)(3)Research Grant$200,000
The University of UtahSalt Lake City, UTSection 501(c)(3)Research Grant$120,000
Mass General BrighamBoston, MASection 501(c)(3)Research Grant$100,000
Oklahoma Medical Research FoundationOklahoma City, OKSection 501(c)(3)Research Grant$50,000
The Regents of the University of CaliforniaLos Angeles, CASection 501(c)(3)Research Grant$50,000
University of Wisconsin-madisonMadison, WISection 501(c)(3)Research Grant$50,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$88,528
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walks and Sips Events$288,158-$88,528-
Total Events$288,158-$88,528$-88,528
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability - Operating$135,622
Lease Liability - Finance$16,432
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Board members will have a week to review 990 and make comments before it is filed. The 990 will be read by the chief executive officer before it is signed.”

Form 990, Part VI, Section B, Line 12C

“Each director, officer, committee member or employee must annually review a copy of this policy and shall be reminded of the obligation to conform to it. Each covered person must annually complete a conflict of interest information form identifying any relationships, positions or circumstances in which the covered person is involved that he or she believes could create a conflict of interest.”

Form 990, Part VI, Section B, Line 15A

“Board annually reviews comparable salary and bonus information and compares ceo salary.”

Form 990, Part VI, Section C, Line 19

“Financials are posted on the foundation's website for donors, patients and visitors to review. Governance documents, conflict of interest, etc. Are all available by contacting the main office, free of charge. Also the copies of our 990s and financials are available by contacting the main office.”

Filing and Contact Details

Filer

Filer Name
SJOGREN'S FOUNDATION INC
EIN
11-2779073
Phone
3015304420
Address
10701 PARKRIDGE BLVD 170, RESTON, VA 20191

Signing Officer

Name
Janet Church
Title
Chief Executive Officer
Phone
3015304420
Signed
2025-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Janet Church
Formed
1983
Legal Domicile
Ny
Voting Board Members
17
Independent Board Members
17
Employees
16
Volunteers
684

Preparer

Firm
Renner and Company CPA Pc
Address
700 NORTH FAIRFAX STREET SUITE 400, ALEXANDRIA, VA 22314
Preparer
Andrew E Young CPA
Phone
7035351200
Supplemental Narrative

Additional Explanations

Form 990, Part I, Line 1

“The foundation's mission is to provide education and resources to sjogren's patients and their loved ones, provide credible resources/education to healthcare professionals, serve as the voice of all patients through advocacy and fund innovative research.”

Form 990, Part XII, Line 2C

“The foundation has not changed this process from the prior year. The board of directors is responsible for oversight over the independent audit and selection of the independent auditors.”

Form 990, Part IX, Fundraising

“The sjogren's foundation also upgraded and transitioned technology platforms, database, and integrations to improve infrastructure and prepare for growth of the foundation for the coming decade.”

Financial Statement Notes

PART V, LINE 4:

“The foundation's endowment funds consist of a bequest that was restricted for the purposes of research.”

PART X, LINE 2:

“In accounting for uncertainty in income taxes, accounting standards require an entity to recognize the financial statement impact of a tax position when it is more-likely-than-not that the position will not be sustained upon examination. Management evaluated the foundation's tax positions and concluded there are no uncertain tax positions that require adjustment to the financial statements to comply with the provisions of this guidance.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Reclassification of costs of goods sold -16,459.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Reclassification of costs of goods sold 16,459.”

Raw XML AppendixShowing 400 of 825 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt19VP OF PHILANTHROPY AND OPERATIONS
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