Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
990 • Fiscal year 2016 • EIN 06-1789643
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
Liabilities / Revenue
40th percentile
Higher debt load relative to revenue than 40% of similar nonprofits.
Net Margin
3rd percentile
Higher net margin than 3% of similar nonprofits.
Top Officer Pay
88th percentile
Higher top officer pay than 88% of similar nonprofits.
Top officer pay equals 46.2% of source-year revenue.
Asset Growth
9th percentile
Faster asset growth than 9% of similar nonprofits.
Revenue Growth
6th percentile
Faster revenue growth than 6% of similar nonprofits.
Assets
Down$831,714
Down $207,675 (-20%) from 2015
Net Assets
Down$828,161
Down $210,896 (-20%) from 2015
Liabilities
Up$3,553
Up $3,221 (+970%) from 2015
Revenue
Down$218,449
Down $202,725 (-48%) from 2015
Expenses
Down$452,736
Down $6,602 (-1.4%) from 2015
Net Income
Down-$234,287
Down $196,123 (-514%) from 2015
The Neuromuscular Disease Foundation's (NDF) mission is to serve the GNE Myopathy/HIBM community through patient advocacy, raising awareness, educating physicians and the general public, and funding clinical research in search for a cure for neuromuscular diseases.
To promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation may engage in any activities that are reasonably related to or in furtherance of its stated charitable purposes.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $1,039,057 | $828,161 | ▼ $210,896 |
| Savings and Temporary Cash Investments | $606,424 | $445,792 | ▼ $160,632 |
| Cash and Non-Interest-Bearing Accounts | $432,965 | $385,922 | ▼ $47,043 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $1,039,389 | $831,714 | ▼ $207,675 |
| Liabilities | |||
| Other Liabilities | $332 | $3,553 | ▲ $3,221 |
| Total Liabilities | $332 | $3,553 | ▲ $3,221 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $1,039,057 | $828,161 | ▼ $210,896 |
| Total Liabilities and Net Assets / Fund Balance | $1,039,389 | $831,714 | ▼ $207,675 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Lale Jackson Welsh | Executive Director | FT | $100,925 | $100,925 |
| Name | Title |
|---|---|
| Carolyn Becher ESQ | Co-president |
| Emanuel Yashari | Co-president |
| Dr Roxana Rahban | BOARd Director |
| Dr Sepideh Tabibian | BOard Director |
| Michael Banayan | Board Director |
| Ralph Loren | BOARD DIREctor |
| Tricia Mullins | BOard Director |
| Carol Gelbard | Secretary |
| Doran Adhami | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $190,900 |
| Other Expenses | $153,611 |
| Salaries, Compensation, and Employee Benefits | $108,225 |
| Total Fundraising Expense | $22,704 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $60,555 | $20,185 | $20,185 | $100,925 |
| Foreign Grants | $100,000 | - | - | $100,000 |
| Grants to Domestic Orgs | $90,900 | - | - | $90,900 |
| Conferences and Meetings | $77,208 | $4,990 | $1,059 | $83,257 |
| Fees for Services Accounting | - | $15,007 | - | $15,007 |
| Other Expenses | $11,026 | - | - | $11,026 |
| Fees for Services Other | $8,150 | - | - | $8,150 |
| Payroll Taxes | $4,380 | $1,460 | $1,460 | $7,300 |
| Office Expenses | $3,920 | $3,324 | - | $7,244 |
| Advertising | $6,852 | $84 | - | $6,936 |
| Travel | $32 | $2,936 | - | $2,968 |
| Information Technology | $2,626 | - | - | $2,626 |
| Insurance | $600 | - | - | $600 |
| Total Functional Expenses | $382,046 | $47,986 | $22,704 | $452,736 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | Detroit, MI | 501(c)(3) | Research in Finding a Cure for Genetic Neuromuscular Disorders and Diseases | $90,900 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $17,781 |
| Fundraising Direct Expenses | $7,624 |
| Professional Fundraising Fees | $0 |
| Liability | Amount |
|---|---|
| Credit Cards | $3,553 |
“Submitted to the officers for review and clearance before it is filed.”
“A subcommittee of the board of directors determined the Executive Director's salary using information from Guidestar and other sources.”
“Governing documents and financial statements are being kept in the office and available to the public when necessary and upon request.”
“Changes to Unrestricted net Assets 23,390.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO PROMOTE AND FUND RESEARCH FOR GENETIC NEUROMUSCULAR DISORDERS AND DISEASES. ADDITIONALLY, THE FOUNDATION MAY ENGAGE IN ANY ACTIVITIES THAT ARE REASONABLY RELATED TO OR IN FURTHERANCE OF ITS STATED CHARITABLE PURPOSES. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 84 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 6852 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 6936 |
| IRS990/AllOtherContributionsAmt | 0 | 206973 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | Lale Jackson Welsh |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3102762980 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 8690 National Blvd |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Culver City |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 90232 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt | 0 | 0 |
| IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 432965 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 385922 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 20185 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 20185 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 60555 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 100925 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 1059 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 4990 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 77208 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 83257 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 206973 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 190900 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1319 |
| IRS990/CYOtherExpensesAmt | 0 | 153611 |
| IRS990/CYOtherRevenueAmt | 0 | 10157 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -234287 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 108225 |
| IRS990/CYTotalExpensesAmt | 0 | 452736 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 22704 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 218449 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | Donated a total of $190,900 to the Research Institute and Nationwide Children's Hospital and to Hosseein Khademian for research. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DoingBusinessAsName/BusinessNameLine1Txt | 0 | NA |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 245519 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 15007 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 15007 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 8150 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 8150 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 100000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 100000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 37.50 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Carolyn Becher ESQ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Emanuel Yashari |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Michael Banayan |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Carol Gelbard |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DORAN ADHAMI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | RALPH LOREN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | TRICIA MULLINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | DR SEPIDEH TABIBIAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DR ROXANA RAHBAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Lale Jackson Welsh |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 100925 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CO-PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CO-PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Board Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD DIREctor |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOard Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOard Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARd Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Executive Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2006 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 7624 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 17781 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantAmt | 0 | 190900 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 90900 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 90900 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 226073 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2626 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 2626 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 600 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 600 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1319 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 1319 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 14 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | The Neuromuscular Disease Foundation's (NDF) mission is to serve the GNE Myopathy/HIBM community through patient advocacy, raising awareness, educating physicians and the general public, and funding clinical research in search for a cure for neuromuscular diseases. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 1 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1039057 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 828161 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 10157 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 10157 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 3324 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 3920 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 7244 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 23390 |
| IRS990/OtherExpensesGrp/Desc | 0 | NDF FILM |
| IRS990/OtherExpensesGrp/Desc | 1 | Scientific Advisory Com |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 15797 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 11026 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 15797 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 11026 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 332 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 3553 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1460 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1460 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 4380 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 7300 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt | 0 | 0 |
| IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | Carolyn Becher Esq |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Conducted two symposia, one in New York and one in Los Angeles, and continued advocacy and awareness programs. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 79120 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PATIENT ADVOCACY |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 57407 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 439620 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 291000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1404 |
| IRS990/PYOtherExpensesAmt | 0 | 76971 |
| IRS990/PYOtherRevenueAmt | 0 | -19850 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -38164 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 91367 |
| IRS990/PYTotalExpensesAmt | 0 | 459338 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 421174 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -234287 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt | 0 | 1039057 |
| IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt | 0 | 828161 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 606424 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 445792 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 209389 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 520604 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 605655 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 712278 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 360689 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2408615 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 1319 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1404 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1078 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 890 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 885 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 5576 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 10157 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 10157 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.85700 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.92410 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2077589 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 331026 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 209389 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 520604 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 605655 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 712278 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 360689 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2408615 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2424348 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 3553 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | Credit Cards |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 3553 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinutationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinutationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt | 0 | 100000 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt | 0 | CHECK |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt | 0 | 1 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt | 0 | Middle East and North Africa |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt | 0 | RESEARCH |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc | 0 | CASH |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | RESEARCH CONDUCTED OVERSEAS IS OVERSEEN BY A SCIENTIST AND NDF ADVISORY COMMITTEE MEMBER AT THE UNIVERSITY OF CALIFORNIA, LOS ANGELES. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part I, Line 2: |
| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 90900 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH IN FINDING A CURE FOR GENETIC NEUROMUSCULAR DISORDERS AND DISEASES |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 316056230 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | PO BOX 781653 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | DETROIT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MI |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 482781653 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Submitted to the officers for review and clearance before it is filed. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | A subcommittee of the board of directors determined the Executive Director's salary using information from Guidestar and other sources. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Governing documents and financial statements are being kept in the office and available to the public when necessary and upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Changes to Unrestricted net Assets 23,390. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section B, line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section C, line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part XI, line 9: |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 1039389 |
| IRS990/TotalAssetsEOYAmt | 0 | 831714 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 1039389 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 831714 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 206973 |
| IRS990/TotalEmployeeCnt | 0 | 1 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 22704 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 47986 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 382046 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 452736 |
| IRS990/TotalGrossUBIAmt | 0 | 1319 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 332 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 3553 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 332 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 3553 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 1039057 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 828161 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 382046 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 100925 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 10157 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 218449 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 1319 |
| IRS990/TotalVolunteersCnt | 0 | 0 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 1039389 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 831714 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 2936 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 32 |
| IRS990/TravelGrp/TotalAmt | 0 | 2968 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 2919 Wilshire Boulevard |
| IRS990/USAddress/CityNm | 0 | Santa Monica |
| IRS990/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/USAddress/ZIPCd | 0 | 90403 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 7 |
| IRS990/VotingMembersIndependentCnt | 0 | 7 |
| IRS990/WebsiteAddressTxt | 0 | www.ndf-hibm.org |
| IRS990/WhistleblowerPolicyInd | 0 | 0 |
| ReturnHeader/BuildTS | 0 | 2017-02-10 21:41:12Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Carolyn Becher Esq |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Co-President |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.