Civic Intelligence

Phelan Mcdermid Syndrome Foundation

990 • Fiscal year 2017 • EIN 04-3673104

Jan 01, 2017 to Dec 31, 2017 • Filed on May 29, 2018

Organization ProfileWWW.PMSF.ORG
200 Capri Isles BoulevardVenice, FL 34292

(941) 485-8000

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.14x

Higher debt load relative to assets than 56% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

57th percentile

0.14x

Higher debt load relative to revenue than 57% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

52nd percentile

3.8%

Higher net margin than 52% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

42nd percentile

$39,583

Higher top officer pay than 42% of similar nonprofits.

Top officer pay equals 3.4% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

40th percentile

0.3%

Faster asset growth than 40% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

22nd percentile

-8.6%

Faster revenue growth than 22% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$1,197,242

Up $3,429 (+0.3%) from 2016

Net Assets

Up

$1,034,180

Up $43,734 (+4.4%) from 2016

Liabilities

Down

$163,062

Down $40,305 (-20%) from 2016

Revenue And Expenses
Liabilities / Revenue57th percentileNet Margin52nd percentile

Revenue

Down

$1,162,999

Down $109,081 (-8.6%) from 2016

Expenses

Up

$1,119,265

Up $73,199 (+7.0%) from 2016

Net Income

Down

$43,734

Down $182,280 (-81%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth40th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2011: $420,902Liabilities 2011: $58,022Net Assets 2011: $362,8802011Assets 2012: $423,996Liabilities 2012: $89,144Net Assets 2012: $334,8522012Assets 2013: $562,228Liabilities 2013: $59,474Net Assets 2013: $502,7542013Assets 2014: $826,825Liabilities 2014: $275,255Net Assets 2014: $551,5702014Assets 2015: $1,047,572Liabilities 2015: $283,140Net Assets 2015: $764,4322015Assets 2016: $1,193,813Liabilities 2016: $203,367Net Assets 2016: $990,4462016Assets 2017: $1,197,242Liabilities 2017: $163,062Net Assets 2017: $1,034,1802017Assets 2018: $1,423,117Liabilities 2018: $89,279Net Assets 2018: $1,333,8382018Assets 2019: $1,427,059Liabilities 2019: $15,392Net Assets 2019: $1,411,6672019Assets 2020: $1,639,670Liabilities 2020: $123,193Net Assets 2020: $1,516,4772020Assets 2021: $1,940,384Liabilities 2021: $24,329Net Assets 2021: $1,916,0552021Assets 2022: $2,113,920Liabilities 2022: $59,480Net Assets 2022: $2,054,4402022Assets 2023: $2,243,009Liabilities 2023: $216,181Net Assets 2023: $2,026,8282023Assets 2024: $2,109,869Liabilities 2024: $210,527Net Assets 2024: $1,899,3422024Assets 2025: $2,220,653Liabilities 2025: $154,468Net Assets 2025: $2,066,1852025

Highlighted filing

2017

Assets$1,197,242
Liabilities$163,062
Net Assets$1,034,180
Open 2017 Filing

Operations Trend

Revenue Growth22nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2011: $366,1222011Expenses 2012: $409,8252012Revenue 2013: $452,384Expenses 2013: $284,482Net Income 2013: $167,9022013Revenue 2014: $911,724Expenses 2014: $862,908Net Income 2014: $48,8162014Revenue 2015: $1,137,997Expenses 2015: $925,135Net Income 2015: $212,8622015Revenue 2016: $1,272,080Expenses 2016: $1,046,066Net Income 2016: $226,0142016Revenue 2017: $1,162,999Expenses 2017: $1,119,265Net Income 2017: $43,7342017Revenue 2018: $1,199,078Expenses 2018: $899,420Net Income 2018: $299,6582018Revenue 2019: $656,384Expenses 2019: $578,555Net Income 2019: $77,8292019Revenue 2020: $560,200Expenses 2020: $455,390Net Income 2020: $104,8102020Revenue 2021: $897,002Expenses 2021: $497,424Net Income 2021: $399,5782021Revenue 2022: $853,648Expenses 2022: $715,263Net Income 2022: $138,3852022Revenue 2023: $1,062,761Expenses 2023: $1,098,819Net Income 2023: -$36,0582023Revenue 2024: $1,306,884Expenses 2024: $1,437,564Net Income 2024: -$130,6802024Revenue 2025: $1,245,861Expenses 2025: $1,082,374Net Income 2025: $163,4872025

Highlighted filing

2017

Revenue$1,162,999
Expenses$1,119,265
Net Income$43,734
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
May 29, 2018
Return Version
2017v2.2
Gross Receipts
$1,166,643
Mission and Program Overview

Mission

The mission of the Phelan-McDermid Syndrome Foundation is to make today better and the future brighter for everyone living with Phelan-McDermid syndrome - from the moment of diagnosis to the delivery of treatments and cures.

The mission of phelan-mcdermid syndrome foundation is to improve the quality of life of people affected by phelan-mcdermid syndrome worldwide by accelerating research, providing family support and raising awareness.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$786,982$787,360▲ $378
Cash and Non-Interest-Bearing Accounts$104,965$200,618▲ $95,653
Accounts Receivable$211,911$151,196▼ $60,715
Pledges and Grants Receivable$34,999$0▼ $34,999
Prepaid Expenses and Deferred Charges$3,887$10,384▲ $6,497
Land, Buildings, and Equipment, Net$3,715$3,307▼ $408
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$1,193,813$1,197,242▲ $3,429
Other Assets Total$47,354$44,377▼ $2,977
Liabilities
Accounts Payable and Accrued Expenses$189,367$142,062▼ $47,305
Grants Payable$14,000$21,000▲ $7,000
Total Liabilities$203,367$163,062▼ $40,305
Net Assets / Fund Balance
Unrestricted Net Assets$978,904$1,025,303▲ $46,399
Temporarily Rstr Net Assets$11,542$8,877▼ $2,665
Total Net Assets Fund Balance$990,446$1,034,180▲ $43,734
Total Liabilities and Net Assets / Fund Balance$1,193,813$1,197,242▲ $3,429

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,307$9,710$13,017

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$32,654-▲ $5,431-$36,577
2016$31,702-▲ $1,113-$32,654
2015$34,158-▼ $2,286-$31,702
2014$33,585-▲ $746-$34,158
2013$29,605-▲ $4,246-$33,585
Compensation and Service Providers
Top Officer Pay42nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Susan LomasP/Interm Ex DirectorFT$39,231$352$39,583

Board Members and Trustees

NameTitle
Nick AssendelftVice President
Abby Lievense LagunoffDirector
Geraldine BlissDirector
Joseph SammartinoDirector
Mary CobbDirector
Veronica FrunziSecretary
Van DaughtryTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$434,983
Program Service Revenue
$648,234
Investment Income
$5,651
Other Revenue
$74,131
All Other Contributions
$424,060
Change in Net Assets
$43,734

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,162,999
Revenue Not Reported on Form 990
$1,102
Total Revenue per Audited Statements
$1,164,101
Total Revenue per Form 990
$1,162,999
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$806,817
Salaries, Compensation, and Employee Benefits$203,698
Grants and Similar Amounts Paid$108,750
Total Fundraising Expense$47,906
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$617,682$13,073$1,592$632,347
Grants to Domestic Orgs$108,000--$108,000
Other Salaries and Wages$42,331$45,171$16,429$103,931
Comp Disqual Persons$13,464$30,962-$44,426
Current Officers, Directors, Trustees, and Key Employees$18,000$10,183$12,000$40,183
Travel$20,901$12,454$3,472$36,827
Information Technology$18,222$10,628$5,988$34,838
Fees for Services Lobbying$30,056--$30,056
Office Expenses$868$18,839$5,799$25,506
Conferences and Meetings$16,488--$16,488
Payroll Taxes$5,622$7,649$1,887$15,158
Occupancy-$12,859-$12,859
Advertising$6,479$550$318$7,347
Insurance$264$6,540-$6,804
Depreciation Depletion-$2,211-$2,211
Other Expenses$580$533$421$1,534
Grants to Domestic Individuals$750--$750
Total Functional Expenses$899,707$171,652$47,906$1,119,265

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,120,367
Expenses per Audited Statements$1,119,265
Total Expenses per Form 990$1,119,265
Expenses Not Reported on Form 990$1,102
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Caring Voice Coalition IncMechanicsville, VA-PMS Travel Progam$40,000
Stanford UniversityStanford, CA-Research$27,000
Univ of Texas SW Medical CentDallas, TX-Research$27,000
Boston Childrens HospitalBoston, MA-Research$14,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$77,775
Fundraising Direct Expenses$3,644
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Pl Tshirts$88,698$77,775$3,644$74,131
Total Events$88,698$77,775$3,644$74,131
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“Cpa prepares a draft of form 990 and required supplemental schedules. Finance director reviews in detail and cpa prepares a second draft which is distributed to all current board members. Board members are allowed one week to comment, request changes, and/or ask questions. Board members e-sign a document that confirms their review of the 990 prior to filing”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Board members, committe chairs, and other key volunteers are required to sign an annual statement acknowledging they have received a written conflict of interest policy and are in compliance with the policy.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Board determines compensation of executive director as part of annual budgeting process for entire organization. Salary of executive director falls within range that would be considered reasonable given comparability data of other similar organizations. Board president performs annual review of executive director.”

Form 990, Part VI, Line 15B: Compensation Review and Approval Process for Officers and Key Employees

“Board determines compensation of other key staff as part of annual budgeting process for entire organization. Salary of these staff people fall within range that would be considered reasonable given comparability data of other similar organizations.”

Form 990, Part VI, Line 18: Explanation of Other Means Forms Available For Public Inspection

“990 is made available on foundation's website and other documents upon request.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Annual audit report and form 990 is made available on foundation's website. Other documents upon request.”

Filing and Contact Details

Filer

Filer Name
Phelan-mcdermid Syndrome Foundation Inc
EIN
04-3673104
Phone
9414858000
Address
200 CAPRI ISLES BOULEVARD, VENICE, FL 34292

Signing Officer

Name
Susan Lomas
Title
President
Signed
2018-05-29
Discuss with paid preparer
Yes

Organization Details

Formed
2002
Legal Domicile
Fl
Voting Board Members
8
Independent Board Members
7
Employees
7
Volunteers
250

Preparer

Firm
Dowd Whittaker & Associates CPAs PA
Address
1521 S Tamiami Trail Suite 303, Venice, FL 34285
Preparer
Thomas E Whittaker CPA
Phone
9414935299
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“Other program services 4:”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/GrantsToDomesticOrgsGrp/TotalAmt0108000
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IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt01166643
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt07
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt05988
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt010628
IRS990/InformationTechnologyGrp/ProgramServicesAmt018222
IRS990/InformationTechnologyGrp/TotalAmt034838
IRS990/InsuranceGrp/ManagementAndGeneralAmt06540
IRS990/InsuranceGrp/ProgramServicesAmt0264
IRS990/InsuranceGrp/TotalAmt06804
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt05651
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IRS990/InvestmentInJointVentureInd0false
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IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt09710
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IRS990/LandBldgEquipBasisNetGrp/EOYAmt03307
IRS990/LandBldgEquipCostOrOtherBssAmt013017
IRS990/LegalDomicileStateCd0FL
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0true
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0false
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0THE MISSION OF PHELAN-MCDERMID SYNDROME FOUNDATION IS TO IMPROVE THE QUALITY OF LIFE OF PEOPLE AFFECTED BY PHELAN-MCDERMID SYNDROME WORLDWIDE BY ACCELERATING RESEARCH, PROVIDING FAMILY SUPPORT AND RAISING AWARENESS.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0990446
IRS990/NetAssetsOrFundBalancesEOYAmt01034180
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt074131
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt074131
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NoncashContributionsAmt01651
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ManagementAndGeneralAmt012859
IRS990/OccupancyGrp/TotalAmt012859
IRS990/OfficeExpensesGrp/FundraisingAmt05799
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt018839
IRS990/OfficeExpensesGrp/ProgramServicesAmt0868
IRS990/OfficeExpensesGrp/TotalAmt025506
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
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IRS990/OtherAssetsTotalGrp/EOYAmt044377
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0533
IRS990/OtherExpensesGrp/ProgramServicesAmt0580
IRS990/OtherExpensesGrp/TotalAmt01534
IRS990/OtherInd0X
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt016429
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt045171
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt042331
IRS990/OtherSalariesAndWagesGrp/TotalAmt0103931
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01887
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07649
IRS990/PayrollTaxesGrp/ProgramServicesAmt05622
IRS990/PayrollTaxesGrp/TotalAmt015158
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt034999
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt03887
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt010384
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/Desc0OTH PROG INC-STORE
IRS990/ProgramServiceRevenueGrp/Desc1PCORI CONTRACTUAL INCOME
IRS990/ProgramServiceRevenueGrp/Desc2SYMPOSIUM REG FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt03911
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1638692
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt25631
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt03911
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1638692
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt25631
IRS990/ProgSrvcAccomActy2Grp/Desc0STAFF AND CONSULTANT ACTIVITIES IN FAMILY SUPPORT AND RESEARCH, INCLUDING A MINI-CONFERENCE DURING JULY 2017 IN STANFORD CA AS WELL AS DETAILED PLANNING FOR THE 2018 INTERNATIONAL FAMILY CONFERENCE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0131732
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH SUPPORT - CONTINUED SUPPORT OF THE RDCRN'S DEVELOPMENTAL SYNAPTOPATHIES CONSORTIUM FUNDING CLINICIAN TRAINING, FAMILY TRAVEL GRANTS AND A PILOT STUDY OF ADULTS WITH PHELAN-MCDERMID SYNDROME.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0108000
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0108000
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0574693
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt080623
IRS990/PYInvestmentIncomeAmt02564
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0839852
IRS990/PYProgramServiceRevenueAmt0694823
IRS990/PYRevenuesLessExpensesAmt0226014
IRS990/PYSalariesCompEmpBnftPaidAmt0125591
IRS990/PYTotalExpensesAmt01046066
IRS990/PYTotalRevenueAmt01272080
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt043734
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0638692
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0786982
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0787360
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0424060
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0574693
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0446650
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0456730
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0421045
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02323178
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt05651
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt02564
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0-898
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt02912
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt02786
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt013015
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt074131
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt09251
IRS990ScheduleA/OtherIncome170Grp/TotalAmt083382
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.96020
IRS990ScheduleA/PublicSupportPY170Pct00.96990
IRS990ScheduleA/PublicSupportTotal170Amt02323178
IRS990ScheduleA/SubstantialContributorsTotAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0424060
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0574693
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0446650
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0456730
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0421045
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02323178
IRS990ScheduleA/TotalSupportAmt02419575
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt046732
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt044902
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt091634
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt0186927
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt0179607
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt0366534
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt030056
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt030756
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt060812
IRS990ScheduleC/CorrectionMadeInd0false
IRS990ScheduleC/Form4720FiledInd0false
IRS990ScheduleC/Form4720FiledSection4955TaxInd0false
IRS990ScheduleC/GrassrootsCeilingAmt0137451
IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt046732
IRS990ScheduleC/LobbyingCeilingAmt0549801
IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt0186927
IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt01089209
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt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
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0Part II-B, Line 1i - Other Activities Description
IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt030056
IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt01119265
IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt030056
IRS990ScheduleD/CYEndwmtFundGrp/AdministrativeExpensesAmt0174
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt032654
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt036577
IRS990ScheduleD/CYEndwmtFundGrp/GrantsOrScholarshipsAmt01334
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt05431
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/AdministrativeExpensesAmt0161
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt031702
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt032654
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt01113
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/AdministrativeExpensesAmt0170
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt034158
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt031702

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,197,242
Liabilities
$163,062
Net assets
$1,034,180
Revenue
$1,162,999
Expenses
$1,119,265
Net income
$43,734
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$2.22$0.15$2.07$1.25$1.08$0.16
2024Detailed filing. Detailed filing data is available for this year.$2.11$0.21$1.90$1.31$1.44$0.13
2023Detailed filing. Detailed filing data is available for this year.$2.24$0.22$2.03$1.06$1.10$0.04
2022Detailed filing. Detailed filing data is available for this year.$2.11$0.06$2.05$0.85$0.72$0.14
2021Detailed filing. Detailed filing data is available for this year.$1.94$0.02$1.92$0.90$0.50$0.40
2020Detailed filing. Detailed filing data is available for this year.$1.64$0.12$1.52$0.56$0.46$0.10
2019Detailed filing. Detailed filing data is available for this year.$1.43$0.02$1.41$0.66$0.58$0.08
2018Detailed filing. Detailed filing data is available for this year.$1.42$0.09$1.33$1.20$0.90$0.30
2017Detailed filing. Detailed filing data is available for this year.$1.20$0.16$1.03$1.16$1.12$0.04
2016Detailed filing. Detailed filing data is available for this year.$1.19$0.20$0.99$1.27$1.05$0.23
2015Detailed filing. Detailed filing data is available for this year.$1.05$0.28$0.76$1.14$0.93$0.21
2014Detailed filing. Detailed filing data is available for this year.$0.83$0.28$0.55$0.91$0.86$0.05
2013Detailed filing. Detailed filing data is available for this year.$0.56$0.06$0.50$0.45$0.28$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.42$0.09$0.33$0.41
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.42$0.06$0.36$0.37
Peer Organizations

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