Liabilities / Assets
73rd percentile
Higher debt load relative to assets than 73% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
73rd percentile
Higher debt load relative to assets than 73% of similar nonprofits.
Liabilities / Revenue
76th percentile
Higher debt load relative to revenue than 76% of similar nonprofits.
Net Margin
49th percentile
Higher net margin than 49% of similar nonprofits.
Top Officer Pay
95th percentile
Higher top officer pay than 95% of similar nonprofits.
Top officer pay equals 22.5% of source-year revenue.
Asset Growth
60th percentile
Faster asset growth than 60% of similar nonprofits.
Revenue Growth
46th percentile
Faster revenue growth than 46% of similar nonprofits.
Assets
Up$237,322
Up $17,417 (+7.9%) from 2013
Net Assets
Up$223,166
Up $7,265 (+3.4%) from 2013
Liabilities
Up$14,156
Up $10,152 (+254%) from 2013
Revenue
Down$271,692
Down $1,642 (-0.6%) from 2013
Expenses
Up$264,427
Up $36,614 (+16%) from 2013
Net Income
Down$7,265
Down $38,256 (-84%) from 2013
To inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. The organization also promotes research into a cure and prevention of the disease.
The mission of angioma alliance is to inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. The organization also promotes research into a cure and prevention of the disease.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $209,446 | $229,538 | ▲ $20,092 |
| Accounts Receivable | $10,233 | $7,784 | ▼ $2,449 |
| Land, Buildings, and Equipment, Net | $226 | $0 | ▼ $226 |
| Total Assets | $219,905 | $237,322 | ▲ $17,417 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $2,427 | $10,079 | ▲ $7,652 |
| Other Liabilities | $1,577 | $4,077 | ▲ $2,500 |
| Total Liabilities | $4,004 | $14,156 | ▲ $10,152 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $106,437 | $176,135 | ▲ $69,698 |
| Temporarily Rstr Net Assets | $109,464 | $47,031 | ▼ $62,433 |
| Total Net Assets Fund Balance | $215,901 | $223,166 | ▲ $7,265 |
| Total Liabilities and Net Assets / Fund Balance | $219,905 | $237,322 | ▲ $17,417 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $0 | $21,201 | $21,201 |
| Other Land Buildings | $0 | $12,383 | $12,383 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Amy L Akers | Chief Scientific Officer | FT | $61,154 | $61,154 |
| Name | Title |
|---|---|
| Cornelia Lee Psyd | President |
| Anthony Mayer | Director |
| Jeffrey Jin | Director |
| Kristen Lewis | Director |
| Liz Neuman | Director |
| Ryan Lisiak | Director |
| Tracy Brown | Director |
| Karen Asbury | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $163,101 |
| Salaries, Compensation, and Employee Benefits | $76,326 |
| Grants and Similar Amounts Paid | $25,000 |
| Total Fundraising Expense | $17,721 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $70,902 | - | - | $70,902 |
| Fees for Services Other | $34,888 | $11,628 | $11,628 | $58,144 |
| Foreign Grants | $25,000 | - | - | $25,000 |
| Conferences and Meetings | $17,986 | - | - | $17,986 |
| Travel | $8,185 | - | - | $8,185 |
| Office Expenses | $3,048 | $461 | $3,195 | $6,704 |
| Fees for Services Accounting | $3,947 | $1,317 | $1,317 | $6,581 |
| Other Expenses | $5,851 | - | - | $5,851 |
| Payroll Taxes | $5,424 | - | - | $5,424 |
| All Other Expenses | $693 | $2,529 | $231 | $3,453 |
| Fees for Services Legal | $2,029 | $676 | $676 | $3,381 |
| Information Technology | $2,660 | $515 | - | $3,175 |
| Insurance | $1,887 | $629 | $629 | $3,145 |
| Depreciation Depletion | $136 | $45 | $45 | $226 |
| Total Functional Expenses | $228,906 | $17,800 | $17,721 | $264,427 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $288,717 |
| Expenses per Audited Statements | $264,427 |
| Total Expenses per Form 990 | $264,427 |
| Expenses Not Reported on Form 990 | $24,290 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $24,290 |
| Fundraising Gross Income | $24,290 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Event 1 | $155,727 | $24,290 | $24,290 | $0 |
| Total Events | $155,727 | $24,290 | $24,290 | $0 |
| Liability | Amount |
|---|---|
| Prepaid Conference Registration Fees | $4,077 |
“Form 990 is reviewed by the treasurer who reports the results of this review to the board.”
“The organization provides copies of its governing documents and financial statements upon written request without charge.”
“Consulting: program service expenses 34,436. Management and general expenses 11,478. Fundraising expenses 11,478. Total expenses 57,392. Payroll processing: program service expenses 452. Management and general expenses 150. Fundraising expenses 150. Total expenses 752.”
“The organization's tax returns are generally subject to examination by authorities for a period of three years from the date they are filed and, consequently, the organization's tax returns filed for the years september 30, 2013, 2012, and 2011 remain subject to examination.”
“Fundraising expenses shown net of revenue on form 990 24,290.”
“Change in temporarily restricted net assets -62,433.”
“Fundraising expenses shown net of revenues on form 990 24,290.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 2427 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 10079 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 10233 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 7784 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF ANGIOMA ALLIANCE IS TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE. |
| IRS990/AllOtherContributionsAmt | 0 | 136189 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 231 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2529 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 693 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 3453 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | THE TREASURER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7576811989 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1 | 0 | 252 DOWNING DRIVE |
| IRS990/BooksInCareOfDetail/USAddress/City | 0 | CHESAPEAKE |
| IRS990/BooksInCareOfDetail/USAddress/State | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCode | 0 | 23322 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 209446 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 229538 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 17986 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 17986 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 131437 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 267626 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 25000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 3 |
| IRS990/CYOtherExpensesAmt | 0 | 163101 |
| IRS990/CYOtherRevenueAmt | 0 | 1050 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 3013 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 7265 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 76326 |
| IRS990/CYTotalExpensesAmt | 0 | 264427 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 17721 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 271692 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 45 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 45 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 136 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 226 |
| IRS990/Desc | 0 | SCIENTIFIC CONFERENCES CONDUCTED TO DISEMINATE INFORMATION ABOUT CCM TO THOSE AFFECTED AND THEIR FAMILIES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 17986 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 1317 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 1317 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 3947 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 6581 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 676 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 676 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 2029 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 3381 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 11628 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 11628 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 34888 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 58144 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 25000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 25000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | CORNELIA LEE PSYD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JEFFREY JIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | KAREN ASBURY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | LIZ NEUMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | KRISTEN LEWIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | TRACY BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | RYAN LISIAK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | ANTHONY MAYER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | AMY L AKERS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 61154 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CHIEF SCIENTIFIC OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 131437 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 24290 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 24290 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 295982 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 515 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 2660 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 3175 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 629 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 629 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1887 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3145 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 3 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 3 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 33584 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 226 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 33584 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 215901 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 223166 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 3565 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 3195 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 461 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 3048 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 6704 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | CLINICAL TESTING |
| IRS990/OtherExpensesGrp/Desc | 1 | PATIENT REGISTRY |
| IRS990/OtherExpensesGrp/Desc | 2 | AWARENESS |
| IRS990/OtherExpensesGrp/Desc | 3 | EDUCATION |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 27810 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 11603 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 6857 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 5851 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 27810 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 11603 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 6857 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 5851 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 1577 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 4077 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1050 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 1050 |
| IRS990/OtherRevenueTotalAmt | 0 | 1050 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 70902 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 70902 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 5424 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 5424 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | CORNELIA LEE |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611710 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REGISTRATIO |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 3013 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 3013 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | CREATION AND MAINTENANCE OF A PATIENT REGISTRY TO ADVOCATE, FACILITATE AND PARTICIPATE IN CCM RESEARCH IN THE PURSUIT OF A GREATER UNDERSTANDING OF THE DISEASE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 11603 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PERFORMANCE OF COMMUNITY OUTREACH, PUBLICATION OF NEWSLETTER, AND MAINTENANCE OF WEBSITE TO INCREASE PUBLIC AWARENESS, PROVIDE SUPPORT, AND BUILD A BROAD BASE OF RESEARCH FUNDING RESOURCES. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 199317 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 25000 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 1050 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 260405 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 25000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 3 |
| IRS990/PYOtherExpensesAmt | 0 | 130630 |
| IRS990/PYOtherRevenueAmt | 0 | 9830 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 3096 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 45521 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 72183 |
| IRS990/PYTotalExpensesAmt | 0 | 227813 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 273334 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 7265 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 3013 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 5000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 25000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 20000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 15000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 65000 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 144139 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 260405 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 81034 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 168521 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 142694 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 796793 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 3013 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 3096 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1332 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 4731 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1800 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 13972 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.61830 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.71100 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 501323 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 105760 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 143750 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 26000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt | 0 | 6300 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt | 0 | 27632 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 309442 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 100760 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 118750 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt | 0 | 6000 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus3YearsAmt | 0 | 6300 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus4YearsAmt | 0 | 12632 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 244442 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 147152 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 263501 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 82366 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 173252 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 144494 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 810765 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 147152 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 263501 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 82366 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 173252 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 144494 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 810765 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 0 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 21201 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 21201 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 24290 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 264427 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 24290 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 0 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 12383 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 12383 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 4077 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | PREPAID CONFERENCE REGISTRATION FEES |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 24290 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -62433 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 24290 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -62433 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 334125 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION'S TAX RETURNS ARE GENERALLY SUBJECT TO EXAMINATION BY AUTHORITIES FOR A PERIOD OF THREE YEARS FROM THE DATE THEY ARE FILED AND, CONSEQUENTLY, THE ORGANIZATION'S TAX RETURNS FILED FOR THE YEARS SEPTEMBER 30, 2013, 2012, AND 2011 REMAIN SUBJECT TO EXAMINATION. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | FUNDRAISING EXPENSES SHOWN NET OF REVENUE ON FORM 990 24,290. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | CHANGE IN TEMPORARILY RESTRICTED NET ASSETS -62,433. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 3 | FUNDRAISING EXPENSES SHOWN NET OF REVENUES ON FORM 990 24,290. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | PART XI, LINE 4B - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 264427 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 4077 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 271692 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 358415 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 288717 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinutationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinutationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 25000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | WIRE TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | MEDICAL RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | CANADA |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 131437 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 131437 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 24290 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 155727 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 155727 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 24290 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 24290 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent1Amt | 0 | AUCTION EVENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 24290 |
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Displayed year
2014 • Form 990Detailed filing. Detailed filing data is available for this year.