Liabilities / Assets
86th percentile
Higher debt load relative to assets than 86% of similar nonprofits.
990 • Fiscal year 2016 • EIN 01-0621493
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
86th percentile
Higher debt load relative to assets than 86% of similar nonprofits.
Liabilities / Revenue
100th percentile
Higher debt load relative to revenue than 100% of similar nonprofits.
Net Margin
1st percentile
Higher net margin than 1% of similar nonprofits.
Top Officer Pay
49th percentile
Higher top officer pay than 49% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
2nd percentile
Faster asset growth than 2% of similar nonprofits.
Revenue Growth
1st percentile
Faster revenue growth than 1% of similar nonprofits.
Assets
Down$584,279
Down $666,559 (-53%) from 2015
Net Assets
Down$249,984
Down $282,376 (-53%) from 2015
Liabilities
Down$334,295
Down $384,183 (-53%) from 2015
Revenue
Down$3,033
Down $119,484 (-98%) from 2015
Expenses
Down$285,409
Down $916,990 (-76%) from 2015
Net Income
Up-$282,376
Up $797,506 (+74%) from 2015
To raise funds, primarily from individual donors and corporate sponsors, and to coordinate and fund als reasearch conducted primarily at research hospitals and universities.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $354,870 | $543,625 | ▲ $188,755 |
| Savings and Temporary Cash Investments | $890,610 | $40,654 | ▼ $849,956 |
| Prepaid Expenses and Deferred Charges | $5,358 | $0 | ▼ $5,358 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $1,250,838 | $584,279 | ▼ $666,559 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Grants Payable | $718,237 | $334,295 | ▼ $383,942 |
| Accounts Payable and Accrued Expenses | $241 | - | - |
| Total Liabilities | $718,478 | $334,295 | ▼ $384,183 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $510,970 | $228,594 | ▼ $282,376 |
| Temporarily Rstr Net Assets | $21,390 | $21,390 | → $0 |
| Total Net Assets Fund Balance | $532,360 | $249,984 | ▼ $282,376 |
| Total Liabilities and Net Assets / Fund Balance | $1,250,838 | $584,279 | ▼ $666,559 |
| Name | Title |
|---|---|
| Robert H Brown Jr Md | President |
| Craig Mello | Director |
| David Schwartz | Director |
| Jon Roberts | Director |
| Lawrence Hayward Md | Director |
| Merit E Cudkowicz Md | Director |
| Robert Horvitz Phd | Director |
| Tom Maniatis Md | Director |
| Gregory a Petsko | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Bisson Barcelona LLC | Management Services | PO BOX 458, Barrington, NH 03825 | $195,532 |
| Line Item | Amount |
|---|---|
| Other Expenses | $221,177 |
| Grants and Similar Amounts Paid | $64,232 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Management | $156,426 | $39,106 | - | $195,532 |
| Grants to Domestic Orgs | $60,000 | - | - | $60,000 |
| Fees for Services Accounting | - | $6,955 | - | $6,955 |
| Office Expenses | - | $4,505 | - | $4,505 |
| Grants to Domestic Individuals | $4,232 | - | - | $4,232 |
| Payment Travel Entrtnmnt Publicly Ofcl | $4,095 | - | - | $4,095 |
| Fees for Services Other | - | $2,836 | - | $2,836 |
| Fees for Services Legal | - | $2,414 | - | $2,414 |
| Insurance | - | $1,565 | - | $1,565 |
| Other Expenses | - | $365 | - | $365 |
| Advertising | - | $134 | - | $134 |
| Total Functional Expenses | $224,753 | $60,656 | $0 | $285,409 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| John Hopkins Universtiy | Baltimore, MD | - | Als Resarch | $60,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Day-to-day managaement duties are performed by bisson barcelona llc under a management agreement.”
“Copy of the form 990 will be provided to and reviewed by board members.”
“No documents available to the public.”
“The organization is planning on ceasing oprerations in 2017 or 2018, therefore it is not soliciting additional contributions or grant proposals.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 241 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS AND CORPORATE SPONSORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 134 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 134 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 2989 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | false |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | ROBERT BROWN JR MD |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6036645005 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 16 OAKLAND AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEEDHAM |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 02426 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 354870 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 543625 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 195532 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | PO BOX 458 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | BARRINGTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | NH |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 03825 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | BISSON BARCELONA LLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | MANAGEMENT SERVICES |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2989 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 64232 |
| IRS990/CYInvestmentIncomeAmt | 0 | 44 |
| IRS990/CYOtherExpensesAmt | 0 | 221177 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -282376 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 285409 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3033 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | true |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | PROVIDED COORDINATION AND NEW FUNDING FOR 1 NEW ALS RESEARCH PROJECT CONDUCTED AT A RESEARCH HOSPITAL AND UNIVERSITY. ALSO MONITORED PREVIOUSLY APPROVED FUNDING FOR 5 OTHER ALS RESEARCH PROJECTS THAT CONTINUED INTO 2016. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | false |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 224753 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 6955 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 6955 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 2414 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 2414 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 39106 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 156426 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 195532 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 2836 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 2836 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.50 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ROBERT H BROWN JR MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DAVID SCHWARTZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | LAWRENCE HAYWARD MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ROBERT HORVITZ PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MERIT E CUDKOWICZ MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | TOM MANIATIS MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JON ROBERTS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CRAIG MELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | GREGORY A PETSKO |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Treasurer |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantAmt | 0 | 64232 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 718237 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 334295 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 4232 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 4232 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 60000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 60000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | true |
| IRS990/GrossReceiptsAmt | 0 | 3033 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1565 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1565 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 44 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 44 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS AND CORPORATE SPONSORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 532360 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 249984 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4505 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4505 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | WEBSITE MAINTENANCE |
| IRS990/OtherExpensesGrp/Desc | 1 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 2 | Postage and Shipping |
| IRS990/OtherExpensesGrp/Desc | 3 | BUSINESS REGISTRATIONS |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1365 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 720 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 691 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 365 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1365 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 720 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 691 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 365 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 0 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 5358 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 119777 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1062004 |
| IRS990/PYInvestmentIncomeAmt | 0 | 2740 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/ProgramServicesAmt | 0 | 4095 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 4095 |
| IRS990/PYOtherExpensesAmt | 0 | 136207 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -1079882 |
| IRS990/PYTotalExpensesAmt | 0 | 1202399 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 4188 |
| IRS990/PYTotalRevenueAmt | 0 | 122517 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -282376 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 2989 |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 890610 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 40654 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 2989 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 119777 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 13544 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 4565569 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2588389 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 7290268 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 44 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 4266 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 8672 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 13721 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 17479 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 44182 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 44 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 4266 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 8672 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 13721 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 17479 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 44182 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00600 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00390 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99400 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99610 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 7290268 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 2989 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 119777 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 13544 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 4565569 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2588389 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 7290268 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 3033 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 124043 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 22216 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 4579290 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 2605868 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 7334450 |
| IRS990/ScheduleBRequiredInd | 0 | false |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 60000 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | ALS RESARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | JOHN HOPKINS UNIVERSTIY |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 520595110 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 3910 KESWICK ROAD |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | BALTIMORE |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 21211 |
| IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc | 0 | CASH PAID |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | ORGANIZATION REQUIRES GRANTEES TO SUBMIT PROGRESS REPORTS EVERY SIX MONTHS DEMONSTRATING PROGRESS TOWARD THE PROPOSED RESEARCH INVESTIGATION INITIALLY PROPOSED BY THE GRANTEE AND APPROVED BY THE ORGANIZATION. ORGANIZATION ALSO REQUIRES FINAL REPORT OF RESULTS AT THE CONCLUSION OF RESEARCH INVESTIGATION. ORGANIZATION ALSO REQUIRES FINANCIAL STATEMENT OF ALL GRANT EXPENDITURES FILED WITHIN 60 DAYS OF EXPIRATION OF GRANT PERIOD. ORGANIZATION MAY WITHHOLD FUTURE FUNDS FROM GRANTEE IF REPORTS ARE NOT FILED. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Grantmaker's Description of How Grants are Used |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 0 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/AssistancePurposeTxt | 0 | PD ON PY GRANT |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/AssistancePurposeTxt | 1 | PD ON PY GRANT |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/AssistancePurposeTxt | 2 | PD ON PY GRANT |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/AssistancePurposeTxt | 3 | PD ON PY GRANT |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/CashGrantAmt | 0 | 258942 |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/PersonNm | 0 | LAWRENCE HAYWARD MD |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/PersonNm | 1 | ROBERT HORVITZ MD |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/PersonNm | 2 | TOM MANIATIS MD |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/PersonNm | 3 | DR ROBERT BROWN |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/RelationshipWithOrgTxt | 0 | DIRECTOR |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/RelationshipWithOrgTxt | 1 | DIRECTOR |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/RelationshipWithOrgTxt | 2 | DIRECTOR |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/RelationshipWithOrgTxt | 3 | PRESIDENT |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/TypeOfAssistanceTxt | 0 | GRANT TO ER |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/TypeOfAssistanceTxt | 1 | GRANT TO ER |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/TypeOfAssistanceTxt | 2 | GRANT TO ER |
| IRS990ScheduleL/GrntAsstBnftInterestedPrsnGrp/TypeOfAssistanceTxt | 3 | GRANT TO ER |
| IRS990ScheduleL/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION'S BOARD OF DIRECTORS INCLUDES SEVERAL HIGHLY TRAINED RESEARCH SCIENTISTS WITH EXPERTISE IN ALS RESEARCH. THESE DIRECTOR/SCIENTISTS CAN APPLY FOR RESEARCH GRANTS ON BEHALF OF THE RESEARCH FACILITIES WHERE THEY ARE EMPLOYED ("ER"). WHEN GRANT PROPOSALS FROM BOARD OF DIRECTOR MEMBERS ARE CONSIDERED BY THE BOARD OF DIRECTORS, THE BOARD MEMBER APPLYING MUST LEAVE THE ROOM AND RECUSE THEMSELVES FROM ALL DISCUSSION AND VOTING ON THE GRANTS. |
| IRS990ScheduleL/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Schedule L, Part V Supplemental Information |
| IRS990/ScheduleORequiredInd | 0 | false |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION IS PLANNING ON CEASING OPRERATIONS IN 2017 OR 2018, THEREFORE IT IS NOT SOLICITING ADDITIONAL CONTRIBUTIONS OR GRANT PROPOSALS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | DAY-TO-DAY MANAGAEMENT DUTIES ARE PERFORMED BY BISSON BARCELONA LLC UNDER A MANAGEMENT AGREEMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | COPY OF THE FORM 990 WILL BE PROVIDED TO AND REVIEWED BY BOARD MEMBERS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | No documents available to the public. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part III, Line 3: Ceased Conducting or Significant Changes To Services |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Line 11b: Form 990 Review Process |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part VI, Line 19: Other Organization Documents Publicly Available |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | true |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | MA |
| IRS990/SubjectToProxyTaxInd | 0 | false |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.