Civic Intelligence

Als Therapy Alliance Inc Co Robert Brown Jr MD D Phil

990 • Fiscal year 2015 • EIN 01-0621493

Jan 01, 2015 to Dec 31, 2015 • Filed on Nov 15, 2016

Organization ProfileWWW.ALSTHERAPYALLIANCE.ORG
16 Oakland AveNeedham, MA 02492

(603) 664-5005

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

81st percentile

0.57x

Higher debt load relative to assets than 81% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

96th percentile

5.86x

Higher debt load relative to revenue than 96% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

1st percentile

-881%

Higher net margin than 1% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

1st percentile

-63%

Faster asset growth than 1% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

98th percentile

451%

Faster revenue growth than 98% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets81st percentile

Assets

Down

$1,250,838

Down $2,152,027 (-63%) from 2014

Net Assets

Down

$532,360

Down $1,079,882 (-67%) from 2014

Liabilities

Down

$718,478

Down $1,072,145 (-60%) from 2014

Revenue And Expenses
Liabilities / Revenue96th percentileNet Margin1st percentile

Revenue

Up

$122,517

Up $100,301 (+451%) from 2014

Expenses

Down

$1,202,399

Down $1,345,899 (-53%) from 2014

Net Income

Up

-$1,079,882

Up $1,446,200 (+57%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth1st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $9,613,171Liabilities 2011: $1,930,976Net Assets 2011: $7,682,1952011Assets 2012: $7,526,243Liabilities 2012: $2,402,250Net Assets 2012: $5,123,9932012Assets 2013: $7,264,973Liabilities 2013: $3,108,759Net Assets 2013: $4,156,2142013Assets 2014: $3,402,865Liabilities 2014: $1,790,623Net Assets 2014: $1,612,2422014Assets 2015: $1,250,838Liabilities 2015: $718,478Net Assets 2015: $532,3602015Assets 2016: $584,279Liabilities 2016: $334,295Net Assets 2016: $249,9842016Assets 2018: $117,121Liabilities 2018: $0Net Assets 2018: $117,1212018Assets 2019: $0Liabilities 2019: $0Net Assets 2019: $02019

Highlighted filing

2015

Assets$1,250,838
Liabilities$718,478
Net Assets$532,360
Open 2015 Filing

Operations Trend

Revenue Growth98th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $4,491,404Expenses 2011: $2,078,955Net Income 2011: $2,412,4492011Expenses 2012: $5,151,8692012Revenue 2013: $4,576,659Expenses 2013: $5,544,113Net Income 2013: -$967,4542013Revenue 2014: $22,216Expenses 2014: $2,548,298Net Income 2014: -$2,526,0822014Revenue 2015: $122,517Expenses 2015: $1,202,399Net Income 2015: -$1,079,8822015Revenue 2016: $3,033Expenses 2016: $285,409Net Income 2016: -$282,3762016Revenue 2018: $1,168Expenses 2018: $7,423Net Income 2018: -$6,2552018Expenses 2019: $117,1212019

Highlighted filing

2015

Revenue$122,517
Expenses$1,202,399
Net Income-$1,079,882
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Nov 15, 2016
Return Version
2015v2.0
Gross Receipts
$880,470
Mission and Program Overview

Mission

To raise funds, primarily from individual donors and corporate sponsors, and to coordinate and fund als reasearch conducted primarily at research hospitals and universities.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,136,888$890,610▼ $1,246,278
Cash and Non-Interest-Bearing Accounts$1,260,936$354,870▼ $906,066
Prepaid Expenses and Deferred Charges$5,041$5,358▲ $317
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$3,402,865$1,250,838▼ $2,152,027
Other Assets Total-$0-
Liabilities
Grants Payable$1,784,514$718,237▼ $1,066,277
Accounts Payable and Accrued Expenses$6,109$241▼ $5,868
Total Liabilities$1,790,623$718,478▼ $1,072,145
Net Assets / Fund Balance
Unrestricted Net Assets$1,596,239$510,970▼ $1,085,269
Temporarily Rstr Net Assets$16,003$21,390▲ $5,387
Total Net Assets Fund Balance$1,612,242$532,360▼ $1,079,882
Total Liabilities and Net Assets / Fund Balance$3,402,865$1,250,838▼ $2,152,027
Compensation and Service Providers
Top Officer Pay35th percentile

Board Members and Trustees

NameTitle
Robert H Brown Jr MdPresident
Craig MelloDirector
David SchwartzDirector
Jon RobertsDirector
Lawrence Hayward MdDirector
Merit E Cudkowicz MdDirector
Robert Horvitz PhdDirector
Tom Maniatis MdDirector
Gregory a PetskoTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Bisson Barcelona LLCManagement ServicesPO BOX 458, Barrington, NH 03825$110,265
Revenue and Support

Revenue Composition

Contributions and Grants
$119,777
Program Service Revenue
$0
Investment Income
$2,740
Other Revenue
$0
All Other Contributions
$119,777
Change in Net Assets
$-1,079,882
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,062,004
Other Expenses$136,207
Total Fundraising Expense$83,214
Professional Fundraising Fees$4,188
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$657,420--$657,420
Foreign Grants$400,000--$400,000
Fees for Services Management$25,011$11,829$73,425$110,265
Advertising--$5,601$5,601
Grants to Domestic Individuals$4,584--$4,584
Fees for Services Professional Fundraising--$4,188$4,188
Office Expenses-$3,653-$3,653
Insurance-$3,168-$3,168
Fees for Services Legal-$2,963-$2,963
All Other Expenses-$1,490-$1,490
Other Expenses$3,390$968-$968
Fees for Services Accounting-$719-$719
Travel$635--$635
Total Functional Expenses$1,091,040$28,145$83,214$1,202,399
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Childrens Hospitalharvard UBoston, MA-Als Research$300,000
Univ Mass Medical SchoolWorcester, MA-Als Research$258,942
Uc RegentsLos Angeles, CA-Als Research$98,478

International Summary

Spending
$400,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
South AmericaResrch Grants to Univs. & Hosp-00$400,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$4,188
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company

“Day-to-day managaement duties are performed by bisson barcelona llc under a management agreement.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“Copy of the form 990 will be provided to and reviewed by board members.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Financial statements are available on the othe massachusetts attorney general's website.”

Filing and Contact Details

Filer

Filer Name
Als Therapy Alliance Inc
EIN
01-0621493
Phone
6036645005
Address
16 OAKLAND AVE, NEEDHAM, MA 02492

Signing Officer

Name
Traci Bisson
Title
Executive Director
Signed
2016-11-15
Discuss with paid preparer
Yes

Organization Details

Formed
2002
Legal Domicile
Ma
Voting Board Members
9
Independent Board Members
9
Employees
0

Preparer

Firm
Martin J Scafidi PC
Address
7 Essex Green Drive 66, Peabody, MA 01960
Preparer
Martin J Scafidi
Phone
9785381919
Raw XML AppendixShowing 400 of 517 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt06109
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0241
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS AND CORPORATE SPONSORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES.
IRS990/AdvertisingGrp/FundraisingAmt05601
IRS990/AdvertisingGrp/TotalAmt05601
IRS990/AllAffiliatesIncludedInd0false
IRS990/AllOtherContributionsAmt0119777
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt01490
IRS990/AllOtherExpensesGrp/TotalAmt01490
IRS990/AnnualDisclosureCoveredPrsnInd0false
IRS990/BackupWthldComplianceInd0false
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0ROBERT BROWN JR MD
IRS990/BooksInCareOfDetail/PhoneNum06036645005
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt016 OAKLAND AVE
IRS990/BooksInCareOfDetail/USAddress/CityNm0NEEDHAM
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd002426
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt01260936
IRS990/CashNonInterestBearingGrp/EOYAmt0354870
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt01
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt00
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/TotalAmt00
IRS990/ConflictOfInterestPolicyInd0false
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContractorCompensationGrp/CompensationAmt0110265
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt0PO BOX 458
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm0BARRINGTON
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd0NH
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd003825
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt0BISSON BARCELONA LLC
IRS990/ContractorCompensationGrp/ServicesDesc0MANAGEMENT SERVICES
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0119777
IRS990/CYGrantsAndSimilarPaidAmt01062004
IRS990/CYInvestmentIncomeAmt02740
IRS990/CYOtherExpensesAmt0136207
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-1079882
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt01202399
IRS990/CYTotalFundraisingExpenseAmt083214
IRS990/CYTotalProfFndrsngExpnsAmt04188
IRS990/CYTotalRevenueAmt0122517
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0true
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0PROVIDED COORDINATION AND NEW FUNDING FOR 10 DIFFERENT ALS RESEARCH PROJECTS CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES. ALSO MONITORED PREVIOUSLY APPROVED FUNDING FOR 20 OTHER ALS RESEARCH PROJECTS THAT CONTINUED INTO 2014.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EmploymentTaxReturnsFiledInd0false
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExpenseAmt01091040
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt0719
IRS990/FeesForServicesAccountingGrp/TotalAmt0719
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt02963
IRS990/FeesForServicesLegalGrp/TotalAmt02963
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/FundraisingAmt073425
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt011829
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt025011
IRS990/FeesForServicesManagementGrp/TotalAmt0110265
IRS990/FeesForServicesOtherGrp/TotalAmt00
IRS990/FeesForServicesProfFundraising/FundraisingAmt04188
IRS990/FeesForServicesProfFundraising/TotalAmt04188
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt0400000
IRS990/ForeignGrantsGrp/TotalAmt0400000
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt00.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt10.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt20.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt30.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt40.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt50.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt60.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt70.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt80.50
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/PersonNm0ROBERT H BROWN JR MD
IRS990/Form990PartVIISectionAGrp/PersonNm1DAVID SCHWARTZ
IRS990/Form990PartVIISectionAGrp/PersonNm2LAWRENCE HAYWARD MD
IRS990/Form990PartVIISectionAGrp/PersonNm3ROBERT HORVITZ PHD
IRS990/Form990PartVIISectionAGrp/PersonNm4MERIT E CUDKOWICZ MD
IRS990/Form990PartVIISectionAGrp/PersonNm5TOM MANIATIS MD
IRS990/Form990PartVIISectionAGrp/PersonNm6JON ROBERTS
IRS990/Form990PartVIISectionAGrp/PersonNm7CRAIG MELLO
IRS990/Form990PartVIISectionAGrp/PersonNm8GREGORY A PETSKO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Director
IRS990/Form990PartVIISectionAGrp/TitleTxt2Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Treasurer
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/Form990TFiledInd0false
IRS990/FormationYr02002
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GainOrLossGrp/SecuritiesAmt0-1526
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt09
IRS990/GrantAmt01062004
IRS990/GrantsPayableGrp/BOYAmt01784514
IRS990/GrantsPayableGrp/EOYAmt0718237
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt04584
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt04584
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0657420
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0657420
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0true
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0756427
IRS990/GrossReceiptsAmt0880470
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/ManagementAndGeneralAmt03168
IRS990/InsuranceGrp/TotalAmt03168
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt04266
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt04266
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LegalDomicileStateCd0MA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0757953
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS AND CORPORATE SPONSORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt01612242
IRS990/NetAssetsOrFundBalancesEOYAmt0532360
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt0-1526
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-1526
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03653
IRS990/OfficeExpensesGrp/TotalAmt03653
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0SPECIAL EVENTS
IRS990/OtherExpensesGrp/Desc1WEBSITE MAINTENANCE
IRS990/OtherExpensesGrp/Desc2PROFESSIONAL DEVELOPMENT
IRS990/OtherExpensesGrp/Desc3BUSINESS REGISTRATIONS
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02235
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11120
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2968
IRS990/OtherExpensesGrp/ProgramServicesAmt03390
IRS990/OtherExpensesGrp/TotalAmt03390
IRS990/OtherExpensesGrp/TotalAmt12235
IRS990/OtherExpensesGrp/TotalAmt21120
IRS990/OtherExpensesGrp/TotalAmt3968
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/TotalAmt00
IRS990/OtherWebsiteInd0X
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/TotalAmt00
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt05041
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt05358
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt013544
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt02379068
IRS990/PYInvestmentIncomeAmt08672
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0159934
IRS990/PYRevenuesLessExpensesAmt0-2526082
IRS990/PYTotalExpensesAmt02548298
IRS990/PYTotalProfFndrsngExpnsAmt09296
IRS990/PYTotalRevenueAmt022216
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-1079882
IRS990/RegularMonitoringEnfrcInd0false
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt02136888
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0890610
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0119777
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt013544
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt04565569
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt02588389
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt04524156
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt011811435
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt04266
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt08672
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt013721
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt017479
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt02248
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt046386
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt00
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt04266
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt08672
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt013721
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt017479
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt02248
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt046386
IRS990ScheduleA/InvestmentIncomeCYPct00.00390
IRS990ScheduleA/InvestmentIncomePYPct00.00340
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99610
IRS990ScheduleA/PublicSupportPY509Pct00.99660
IRS990ScheduleA/PublicSupportTotal509Amt011811435
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0119777
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt013544
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt04565569
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt02588389
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt04524156
IRS990ScheduleA/Total509Grp/TotalAmt011811435
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0124043
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt022216
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt04579290
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt02605868
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt04526404
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt011857821
IRS990/ScheduleBRequiredInd0false
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt0400000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0SOUTH AMERICA
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0RESRCH GRANTS TO UNIVS. & HOSP
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt0400000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0ALS RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0SOUTH AMERICA
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt0400000
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0ORGANIZATION REQUIRES GRANTEES TO SUBMIT PROGRESS REPORTS EVERY SIX MONTHS DEMONSTRATING PROGRESS TOWARD THE PROPOSED RESEARCH INVESTIGATION INITIALLY PROPOSED BY THE GRANTEE AND APPROVED BY THE ORGANIZATION. ORGANIZATION ALSO REQUIRES FINAL REPORT OF RESULTS AT THE CONCLUSION OF RESEARCH INVESTIGATION. ORGANIZATION ALSO REQUIRES FINANCIAL STATEMENT OF ALL GRANT EXPENDITURES FILED WITHIN 60 DAYS OF EXPIRATION OF GRANT PERIOD. ORGANIZATION MAY WITHHOLD FUTURE FUNDS FROM GRANTEE IF REPORTS ARE NOT FILED.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION MAKES GRANTS FOR ALS RESEARCH TO UNIVERSITY AND RESEARCH HOSPITALS LOCATED IN FOREIGN COUNTRIES. THESE GRANTS ARE REPORTED ON THE ACCRUAL BASIS WHEN GRANT HAS BEEN AWARDED AND HAS BEEN ACCEPTED BY GRANTEE. GRANT ARE PAID OVER THE LIFE OF THE GRANT; USUALLY TWO OR THREE YEARS.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt2IN 2015, THE ORGANIZATION MADE A GRANT TO A UNIVERSITY RESEARCH PROGRAM IN SOUTH AMERICA IN THE AMOUNT OF $125,000 WHICH WAS FULLY PAID IN 2015.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1Part I, Line 3f - Method of Accounting
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc2Part I, Line 3f - Investments and Expenditures
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalSpentAmt0400000
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0300000
IRS990ScheduleI/RecipientTable/CashGrantAmt198478
IRS990ScheduleI/RecipientTable/CashGrantAmt2258942
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0ALS RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1ALS RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2ALS RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0CHILDRENS HOSPITALHARVARD U
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UC REGENTS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2UNIV MASS MEDICAL SCHOOL
IRS990ScheduleI/RecipientTable/RecipientEIN0042774441
IRS990ScheduleI/RecipientTable/RecipientEIN1956006143
IRS990ScheduleI/RecipientTable/RecipientEIN2043167352
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt03 BLACKFAN CIRCLE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt111000 KINROSS AVE STE 211
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2LRB 726 364 PLANTATION ST

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,250,838
Liabilities
$718,478
Net assets
$532,360
Revenue
$122,517
Expenses
$1,202,399
Net income
-$1,079,882
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2019Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.12
2018Detailed filing. Detailed filing data is available for this year.$0.12$0.00$0.12$0.00$0.01$0.01
2016Detailed filing. Detailed filing data is available for this year.$0.58$0.33$0.25$0.00$0.29$0.28
2015Detailed filing. Detailed filing data is available for this year.$1.25$0.72$0.53$0.12$1.20$1.08
2014Detailed filing. Detailed filing data is available for this year.$3.40$1.79$1.61$0.02$2.55$2.53
2013Detailed filing. Detailed filing data is available for this year.$7.26$3.11$4.16$4.58$5.54$0.97
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.53$2.40$5.12$5.15
2011Summary only. Only limited summary data is available for this year.$9.61$1.93$7.68$4.49$2.08$2.41
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2015 filings • 501(c)3 • $1M-$5M nonprofits